International Journal of Developmental Disabilities最新文献_第2页

Phase 1 clinical trial of ¡Iniciando! la adultez: a culturally tailored intervention for transitioning Latino young adults with autism. 1期临床试验la adultez：一项针对拉美裔自闭症青年的文化干预。

IF 1.4 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-08-23 DOI: 10.1080/20473869.2025.2545960

Antonio F Pagán, Ana Esparza, Ana Ramirez, Miriam Ortiz, Linda Hernandez, Mary Beth Morgan, Geohanna Noel, Alejandro L Pagán, Jada Salas, Katherine Maurano, Grace Sattem, Leela Sydow, Noor Ahmed, Katherine A Loveland, Cecilia Montiel-Nava, Ron Acierno

{"title":"Phase 1 clinical trial of ¡Iniciando! la adultez: a culturally tailored intervention for transitioning Latino young adults with autism.","authors":"Antonio F Pagán, Ana Esparza, Ana Ramirez, Miriam Ortiz, Linda Hernandez, Mary Beth Morgan, Geohanna Noel, Alejandro L Pagán, Jada Salas, Katherine Maurano, Grace Sattem, Leela Sydow, Noor Ahmed, Katherine A Loveland, Cecilia Montiel-Nava, Ron Acierno","doi":"10.1080/20473869.2025.2545960","DOIUrl":"10.1080/20473869.2025.2545960","url":null,"abstract":"This Phase 1 clinical trial evaluated ¡Iniciando! la Adultez, a culturally adapted intervention for Latino autistic young adults (n = 56) and their parents (n = 63). Young adults showed significant post-treatment improvements on measures of social responsiveness (SRS-2), adaptive behavior (ABAS-3), executive functioning (BRIEF-A), quality of life (WHOQOL-BREF), transition readiness (TRS-A), coping self-efficacy (CSES), and emotion regulation (DERS-SF). Parents reported significant improvements in their perceptions of their child's social responsiveness, adaptive behavior, and executive functioning, as well as increased transition readiness ratings. Notably, parents evinced a significant decrease in acculturative stress (RASI) and depressive symptoms (PHQ-9), however, parental baseline anxiety remained unchanged. These preliminary findings suggest ¡Iniciando! is a feasible and potentially effective culturally adapted intervention for this underserved population, warranting further investigation in larger controlled trials.","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2025-08-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12724526/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145828557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

From the parents' perspective: qualitative exploration of caregiving challenges and coping strategies of children with intellectual disability. 父母视角：智障儿童照料挑战及应对策略的质性探讨。

IF 1.4 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-08-04 eCollection Date: 2026-01-01 DOI: 10.1080/20473869.2025.2537119

Ping Lu, Aizan Sofia Amin, Nor Jana Saim

{"title":"From the parents' perspective: qualitative exploration of caregiving challenges and coping strategies of children with intellectual disability.","authors":"Ping Lu, Aizan Sofia Amin, Nor Jana Saim","doi":"10.1080/20473869.2025.2537119","DOIUrl":"10.1080/20473869.2025.2537119","url":null,"abstract":"The care of children with intellectual disabilities (ID) is a complex and challenging process that deeply affects the lives and psychological of their parents. This study guided is by the Family Quality of Life (FQoL) theory and aims to understand the challenges faced by parents in caregiving and their coping strategies. This study employed a qualitative approach and conducted semi-structured interviews with 16 parents of children with ID. The interviews were recorded, transcribed, and translated into English. The data were analysed by thematic analysis. Parents reported the multidimensional impact of raising children with ID on the individual, family, and social levels and shared their coping strategies. Five themes emerged including emotional and psychological challenges, economic challenges, social challenges, children's core disorder challenges, and coping strategies. Regarding coping strategies, parents adopted various strategies to overcome challenges including self-regulation, learning and growth, outdoor activities therapy, and seeking support. This study further explores the multifaceted challenges encountered by parents in raising children with ID and the effective coping strategies they employed. Moreover, the study offers valuable insights for policymakers, social workers, and educational institutions to develop more effective support systems for these families.","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"72 1","pages":"162-175"},"PeriodicalIF":1.4,"publicationDate":"2025-08-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12857714/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146107709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Perspectives of parents of individuals with autism spectrum disorders on participation in physical activity: a mixed methods study. 自闭症谱系障碍患儿家长参与体育活动的观点：一项混合方法研究。

IF 1.4 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-07-15 eCollection Date: 2026-01-01 DOI: 10.1080/20473869.2025.2530565

Gonca Ince, Akin Gonen, Yigit Unveren

{"title":"Perspectives of parents of individuals with autism spectrum disorders on participation in physical activity: a mixed methods study.","authors":"Gonca Ince, Akin Gonen, Yigit Unveren","doi":"10.1080/20473869.2025.2530565","DOIUrl":"10.1080/20473869.2025.2530565","url":null,"abstract":"Objectives: We aimed to evaluate the perspectives of parents with individuals Autism Spectrum Disorder (ASD) regarding their participation in physical activity (PA).Methods: Parents [603 = 482 mothers/121 fathers] in special education centers across Türkiye participated in the study. The researchers used mixed-method-design. In the quantitative part, the researchers administered a questionnaire. In the qualitative part, they prepared semi-structured questions. They analysed the means, standard deviations and frequencies. They applied thematic analysis for the qualitative data.Results: In the 377 parents emphasized that had their children receive PA services (213 parents did individually and 44 parents did as a group). Parents emphasized that PA had a great impact on their children's behavioral skills, their children's communication skills improved a lot with PA. In addition, they stated that PA had a very positive effect on their academic skills and children's self-care skills, PA contributed a little to their children's language development. 226 parents who the reasons for not having their children receive PA services were lack of centers and facilities for PA, lack of time and financial difficulties, respectively.Conclusions: Parents recommended that PA should be made more widespread for their children with ASD, should be done in groups and sports should be emphasized.","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"72 2","pages":"371-385"},"PeriodicalIF":1.4,"publicationDate":"2025-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13037147/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147595468","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A tutorial on person ability scores for the IDD clinician. 为IDD临床医生编写的个人能力评分教程。

IF 1.4 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-04-12 DOI: 10.1080/20473869.2025.2486428

Cristan Farmer, Natasha N Ludwig, Audrey Thurm

引用次数: 0

Next steps in the development of a sibling adjustment scale: reply to Supianto. 兄弟姐妹适应量表开发的下一步：回复Supianto。

IF 1.5 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-02-20 eCollection Date: 2025-01-01 DOI: 10.1080/20473869.2025.2456803

Linda K M Veerman, Stian Orm, Krister W Fjermestad, Paula S Sterkenburg, Agnes M Willemen

引用次数: 0

Health literacy and eHealth literacy in caregivers of students with special education needs: a cross-sectional survey study. 特殊教育需要学生照顾者的健康素养和电子健康素养：一项横断面调查研究

IF 1.4 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-02-05 eCollection Date: 2026-01-01 DOI: 10.1080/20473869.2025.2456776

Berna Madalı-Kafes, Şenay Burçin Alkan, Serpil Kara, Berna Torun, Hasan Hüseyin Kara

{"title":"Health literacy and eHealth literacy in caregivers of students with special education needs: a cross-sectional survey study.","authors":"Berna Madalı-Kafes, Şenay Burçin Alkan, Serpil Kara, Berna Torun, Hasan Hüseyin Kara","doi":"10.1080/20473869.2025.2456776","DOIUrl":"10.1080/20473869.2025.2456776","url":null,"abstract":"Objectives: This study aims to assess the health literacy (HL) and electronic health literacy (e-HL) levels of the caregivers of students with special education needs (SEN) and to compare these levels with the caregivers of students who continue typically developing (TD) education.Methods: The research was conducted on students with SEN and TD and their caregivers. HL and e-HL levels of the caregivers and sociodemographic characteristics were collected by face-to-face questionnaire. The HL and e-HL levels of caregivers were assessed with the Turkish Health Literacy Scale-32 and e-Health Literacy Scale, respectively.Results: A total of 138 students and their caregivers, 71 of whom were in SEN and 67 in TD education, participated in the study. The literacy levels and economic status of the caregivers of students with SEN were lower compared to the caregivers of TD students. The HL and e-HL levels of the caregivers of students with SEN were significantly lower than the caregivers of TD students (p = 0.004 and p = 0.037, respectively). Based on the results of multiple regression analysis, it was found that sociodemographic characteristics had a 30% impact on HL (Model 1). For e-HL, the effect of health-related data from the internet was found to be 3.7%.Conclusions: Caregivers of students with SEN demonstrated significantly lower HL and e-HL compared to caregivers of TD students. Developing targeted interventions and policies to enhance HL among caregivers of students with SEN is essential, along with a multidisciplinary approach to address this issue.","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"72 2","pages":"386-395"},"PeriodicalIF":1.4,"publicationDate":"2025-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13037136/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147595412","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Milestone achievements of the last year and looking to the New Year. 回顾过去一年取得的里程碑式成就，展望新的一年。

IF 1.4 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-01-27 eCollection Date: 2025-01-01 DOI: 10.1080/20473869.2025.2454153

Brian Salmons, Arturo Langa

引用次数: 0

Critical reflections on psychometric assessment of the NAS scale. 对NAS量表心理测量评估的批判性思考。

IF 1.4 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-01-27 eCollection Date: 2025-01-01 DOI: 10.1080/20473869.2024.2443840

Supianto

引用次数: 0

Is everything (im)possible? Exploring the belief systems of Chinese pre-service special education teachers regarding students with moderate and severe intellectual disability. 一切都有可能吗？中国职前特殊教育教师对中重度智障学生的信仰体系探讨。

IF 1.4 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-01-21 eCollection Date: 2026-01-01 DOI: 10.1080/20473869.2025.2452856

Weihao Xin, Jingwen Ye, Zhenzhen Zhang

{"title":"Is everything (im)possible? Exploring the belief systems of Chinese pre-service special education teachers regarding students with moderate and severe intellectual disability.","authors":"Weihao Xin, Jingwen Ye, Zhenzhen Zhang","doi":"10.1080/20473869.2025.2452856","DOIUrl":"10.1080/20473869.2025.2452856","url":null,"abstract":"Objectives: This study aims to explore the belief systems of Chinese pre-service special education teachers (PSETs) regarding students with moderate to severe intellectual disability (MSID).Methods: A qualitative research design was employed. Semi-structured interviews were conducted with eight PSETs and analysed using inductive thematic analysis.Results: The findings revealed four key themes in PSETs' beliefs about students with MSID: educational placement, approaches to learning, priority development areas, and growth in abilities. These beliefs ranged from limiting to constructive, forming either nested or divergent belief systems.Conclusions: This study sheds light on the diverse belief systems of Chinese PSETs regarding students with MSID. The complexity of these belief systems underscores the need for targeted teacher education programs designed to foster more constructive beliefs, thereby promoting effective teaching practices and improving educational outcomes for students with MSID.","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"72 2","pages":"336-350"},"PeriodicalIF":1.4,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13037180/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147595466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The effectiveness of video modelling in training individuals with intellectual disabilities the skill of preparing a meal in a fast-food restaurant. 视频建模在训练智障人士在快餐店准备一顿饭的技能方面的有效性。

IF 1.4 4区医学

International Journal of Developmental Disabilities Pub Date : 2025-01-20 eCollection Date: 2026-01-01 DOI: 10.1080/20473869.2025.2450427

Saeed Almalki, Nada Binomran

{"title":"The effectiveness of video modelling in training individuals with intellectual disabilities the skill of preparing a meal in a fast-food restaurant.","authors":"Saeed Almalki, Nada Binomran","doi":"10.1080/20473869.2025.2450427","DOIUrl":"10.1080/20473869.2025.2450427","url":null,"abstract":"Video modeling (VM) is an evidence-based practice that has been used with individuals with disabilities as an intervention to acquire a variety of skills, including vocational skills. The main goal of this study is to evaluate the effectiveness of VM as an intervention tool for individuals with intellectual disabilities in learning and remembering how to prepare meals in a fast-food restaurant. To achieve this, the study used an experimental method, specifically a single-subject design with a multiple probe approach. The study sample included four individuals with intellectual disabilities who were enrolled in a training and rehabilitation institution. The findings of the study found that VM is an effective intervention tool to help individuals with intellectual disabilities learn meal preparation skills in fast-food settings. The results indicated a correlation between using VM techniques and gaining these important skills. Additionally, the participants were able to remember what they learned for more than two weeks after stop using the intervention. The study provides practical suggestions for using VM in training and rehabilitation programs for individuals with intellectual disabilities.","PeriodicalId":45338,"journal":{"name":"International Journal of Developmental Disabilities","volume":"72 2","pages":"225-235"},"PeriodicalIF":1.4,"publicationDate":"2025-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13037175/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147595424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0