Family quality of life of caregivers of individuals with autism, with other disabilities, and without disabilities: the case of Saudi Arabia.

IF 1.5 4区医学 Q2 EDUCATION, SPECIAL

International Journal of Developmental Disabilities Pub Date : 2024-11-14 eCollection Date: 2024-01-01 DOI:10.1080/20473869.2024.2362007

Ghaleb H Alnahdi, Arwa Alwadei, Susanne Schwab

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引用次数: 0

Abstract

This comprehensive study delves into the family quality of life (FQOL) of caregivers in Saudi Arabia, focusing on those caring for individuals with autism, intellectual disabilities, and other disabilities and those without any disabilities. Employing the Arabic version of the Beach Center FQOL Scale, the research encompasses a diverse group of 1065 family members. It reveals that caregivers of individuals without disabilities experience notably higher FQOL, especially in domains such as family interaction, parenting, emotional, and physical/material well-being. The study also identifies unique FQOL challenges encountered by caregivers of individuals with autism. These insights underscore the necessity for specific support mechanisms catering to the distinct needs of caregivers, particularly those handling autism-related challenges, highlighting a critical area for targeted interventions and policy formulation.

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自闭症患者、其他残疾患者和非残疾患者的照顾者的家庭生活质量：沙特阿拉伯的案例。

这项综合研究深入探讨了沙特阿拉伯照顾者的家庭生活质量（FQOL），重点关注那些照顾自闭症患者、智障人士和其他残疾人士的照顾者，以及那些没有任何残疾的照顾者。研究采用了阿拉伯语版的海滩中心 FQOL 量表，涵盖了 1065 名家庭成员。研究显示，非残疾人士的照顾者的 FQOL 明显更高，尤其是在家庭互动、养育子女、情感和身体/物质福祉等方面。研究还发现了自闭症患者照顾者在 FQOL 方面遇到的独特挑战。这些见解突出表明，有必要建立专门的支持机制，以满足照顾者的独特需求，尤其是那些应对自闭症相关挑战的照顾者，这也凸显了有针对性的干预措施和政策制定的关键领域。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

International Journal of Developmental Disabilities Multiple-

CiteScore

4.10

自引率

9.50%

发文量

期刊介绍： The IJDD publishes scientific articles on work dealing with different approaches to the habilitation problems of people with an intellectual disability. The Journal covers the entire spectrum of intellectual disabilities, and is concerned with definitions, IQ, genetic predisposition, evaluation of abilities, learning interventions, challenging behaviour, medication, attitudes to death and bereavement, sexuality, legal aspects, WHO, NICE and other governmental guidelines, care in the community, advocacy, stress and coping strategies for families and carers - though this is not an exhaustive list. The unifying theme is that all of these aspects should be of practical help for those with intellectual disabilities or those caring for persons with intellectual disabilities. Emphasis is placed on the practical implications of the work of educationists, instructors, nurses, occupational and other therapists, psychiatrists, psychologists and social workers, whether taking place in a hospital setting or in community care. The Journal accepts contributions from anywhere in the world but they must be written in acceptable and fluent English, avoiding technical jargon as far as possible in view of the wide readership. The IJDD puts much emphasis on the practical application of scientific findings, and prospective contributors should keep in mind that acceptance of a manuscript for publication will depend to a great extent on its direct relevance to habilitation work. Readers of the IJDD expect that articles should give them some scientific help and insight in their practical work.