{"title":"Independent Living as a Counter-Narrative","authors":"Alison Tarrant","doi":"10.13169/intljofdissocjus.2.1.0048","DOIUrl":"https://doi.org/10.13169/intljofdissocjus.2.1.0048","url":null,"abstract":"This article explores the concept of independent living as a counter-narrative. I argue that in addition to being both an aim for disabled people and a campaign objective for the global disabled people’s movement, independent living also acts as a narrative tool that opposes majoritarian social constructions of disability and creates ‘repaired’ identities for disabled people. I analyse documents produced by the disabled people’s movement in the UK to establish how independent living performs the work of resistance and re-draws social identities to enable equality and social justice for disabled people. I suggest that if independent living is to be effectively enshrined in domestic law and policy, the challenge it poses to dominant social narratives must be fully understood, and consider the role of the UN Convention on the Rights of Persons with Disabilities in effecting this.","PeriodicalId":448882,"journal":{"name":"International Journal of Disability and Social Justice","volume":"72 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127360536","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"CURRENT ISSUES BULLETIN","authors":"Violeta Gevorgianienė, E. Šumskienė","doi":"10.13169/intljofdissocjus.3.1.0125","DOIUrl":"https://doi.org/10.13169/intljofdissocjus.3.1.0125","url":null,"abstract":"This paper aims to analyse the transition to independent living through the lens of the wellbeing of communities. A case study methodology was applied. The research showed that the relocation of people with disabilities into community group homes is only an intermediate stage towards independent living. Without a thorough discussion with local people, it can end in a lack of trust in the idea of deinstitutionalisation. Paradoxically, independence implies co-dependence on each other, as this co-dependence opens up opportunities both for newly arrived people with disabilities as well as for long-time residents of the community.","PeriodicalId":448882,"journal":{"name":"International Journal of Disability and Social Justice","volume":"101 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128597072","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Nothing About Us Without … Who? Disability Rights Organisations, Representation and Collaborative Governance","authors":"J. Bahner","doi":"10.13169/intljofdissocjus.2.2.0040","DOIUrl":"https://doi.org/10.13169/intljofdissocjus.2.2.0040","url":null,"abstract":"When governments invite disability rights organisations to policy deliberations, how does the slogan ‘nothing about us without us’ translate into practice? This article draws upon a study about local disability organisations and their relationship to a regional consultative citizens’ council on disability issues in Sweden. Interviews were conducted with organisations that had seats on the council, politicians and officials on the council, as well as with disability organisations without seats on the council. Results show that conceptualisations of ‘disability’ in policies that regulate deliberations not only define what type of organisations are eligible for appointment to the council, but also influence how disability organisations identify, present themselves and what issues they advocate for – leading to divisions among organisations. The findings have implications for collaborative governance structures and disability rights organisations elsewhere – problematising issues around representation, institutionalisation of inclusion and the constantly evolving concept of what counts as ‘disability’.","PeriodicalId":448882,"journal":{"name":"International Journal of Disability and Social Justice","volume":"7 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130867213","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A Disability Rights Approach to a Constitutional Right to Housing","authors":"A. Sperrin","doi":"10.13169/intljofdissocjus.3.1.0080","DOIUrl":"https://doi.org/10.13169/intljofdissocjus.3.1.0080","url":null,"abstract":"This article discusses the potential value of a Constitutional Right to Housing in Ireland to the realisation of independent living for disabled people. Article 19 of the United Nations Convention on the Rights of Persons with Disabilities promotes the right of choice over where and with whom to live, the right to access supports to realise your choices and to participate equally in society. Ireland’s historic system of institutionalising disabled people is being slowly dismantled, but equally challenging is the lack of available, accessible, and adequate housing in the community. This article outlines how the live issues of defective construction materials, inaccessibility of housing, the invisibility of disabled people’s homelessness, and ongoing institutionalisation are preventing full Article 19 UN CRPD realisation. It will suggest how embedding housing as a Constitutional right will contribute to alleviating these rights violations.","PeriodicalId":448882,"journal":{"name":"International Journal of Disability and Social Justice","volume":"23 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123299764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
C. Brennan, N. Lally, P. O'brien, Catherine O’Leary
{"title":"Abandoning ‘a Lifetime of Habits’ to Avoid the ‘Sins of the Past’","authors":"C. Brennan, N. Lally, P. O'brien, Catherine O’Leary","doi":"10.13169/intljofdissocjus.2.2.0023","DOIUrl":"https://doi.org/10.13169/intljofdissocjus.2.2.0023","url":null,"abstract":"While many studies have identified the problem of reproducing small institutions in community settings, few have explored why. This article explores how staff preserve and defend institutionalised beliefs and practices in community settings. We apply the concepts of disruptive and defensive institutional work to analyse the findings of qualitative interviews at six Irish residential institutions that were identified as priority sites for a national de-congregation programme. Reflecting on their roles, staff conceptualised their practices as historical, traditional, and reflective of a bygone era. However, the findings indicate that it would be misleading to represent institutional practices as relics of the past. The programme offered an olive branch for staff members who wanted to distance themselves from a ‘lifetime of habits’ and ‘sins of the past’.","PeriodicalId":448882,"journal":{"name":"International Journal of Disability and Social Justice","volume":"28 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125279776","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Reflections on the Power of the Pen – Issue 2 Editorial","authors":"A. Lawson, A. Beckett","doi":"10.13169/intljofdissocjus.2.1.0004","DOIUrl":"https://doi.org/10.13169/intljofdissocjus.2.1.0004","url":null,"abstract":"1. Opening Thoughts – on Writing in a Time of Conflict We faced a dilemma when writing this editorial. We wanted to celebrate the important work of our authors (and all those involved in bringing this edition to publication); and recognise that each article, albeit in different ways, explores ideas, programmes, policies or practices that promote social justice and inclusion for disabled people. Yet whilst celebrating these academic contributions and recognising their importance, we also wanted to convey our growing personal unease with a comment that we made in our first editorial. We stated that as researchers and authors we believe that there is ‘power in our pens’. We continue to believe this. But, as we turn on the radio or TV and hear or watch the news from around the world, we are continually confronted with the limits of that power – and ask ourselves what power our pens really have against tanks and bombs and guns? Against destruction, misery and death? At such times, unequivocal belief in ‘the power of the pen’ can start to feel naïve. As we write this editorial, millions of people are fleeing Ukraine – adding to those who have fled in recent years and continue to flee from conflicts elsewhere – for example, in Syria, Venezuela, Somalia and Myanmar. It is a terrible fact that the conflict in Ukraine is one of five or six ‘major wars’ currently taking place around the globe; and amongst over forty ‘wars’ or ‘minor conflicts’ (minor only in their classification, not in their human impact). We are reminded of Robbie Burns’ famous lament that: ‘Man’s inhumanity to man, Makes countless thousands mourn.’ On our minds are all the victims of war, of ‘man’s inhumanity to man’. But we are especially thinking of the disabled people in armed conflict zones, who are facing a ‘crisis within a crisis’. Reports are starting to emerge from Ukraine of disabled people being overlooked and excluded from safety and relief efforts. Sadly, this is not surprising.","PeriodicalId":448882,"journal":{"name":"International Journal of Disability and Social Justice","volume":"314 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124130248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Forgotten People, Forgotten Places – Volume 2, Issue 2 Editorial","authors":"A. Beckett, A. Lawson","doi":"10.13169/intljofdissocjus.2.2.0004","DOIUrl":"https://doi.org/10.13169/intljofdissocjus.2.2.0004","url":null,"abstract":"1. Forgotten People, Forgotten Places In our last editorial we promised that we would invite submissions focused on the rights of disabled people in the context of armed conflict to be published in future issues of this journal. Whilst acknowledging that an academic journal can only achieve so much – in such situations words alone can never be enough – we hope that the IJDSJ can make at least some positive contribution by helping to bring attention to the lives of disabled people living in conflict zones and the challenges that they face. Disabled people are disproportionately impacted by war, yet are all-too-often ‘invisible’ within peace and security agendas and forgotten within and by humanitarian efforts. Time and again, the story repeats: disabled people’s pre-existing isolation and exclusion is a contributing factor in the failure to meet their needs at times of conflict; and their isolation and exclusion is significantly exacerbated by that conflict. This is a story of how ‘slow’ and ‘fast’ forms of violence operate, together. Slow violence, as Nixon (2011) defined it, occurs gradually and out of sight. It is often not considered to be violence because it is not spectacular and explosive, as is the violence of war. Yet there is a violence to processes of exclusion, to the manufactured marginalisation and isolation of people, to the denial of human rights and stripping away of human dignity – however gradually these things happen. What we are learning is that to understand the situation that disabled people face in armed conflicts around the world, we need to understand how ‘slow’ and ‘fast’ forms of violence are part of one single complex. They cannot and should not be decoupled. The slow forms of violence against disabled people that take place pre-conflict are imbricated with fast forms that occur during times of war. This issue opens with two short bulletins about the war in Ukraine and the devastating impact that this conflict is having on disabled people. Readers may well find content in the two bulletins distressing. We certainly did. There is no easy way to avoid this – and to avoid it would be to erase the truth. Nevertheless, we believe neither bulletin describes experiences/situations in gratuitous detail. Both highlight, starkly,","PeriodicalId":448882,"journal":{"name":"International Journal of Disability and Social Justice","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129401320","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
E. Rosenthal, H. Kurylo, Dragana Ciric Milovanovic, L. Ahern, Priscila Rodríguez
{"title":"Human Rights Bulletin","authors":"E. Rosenthal, H. Kurylo, Dragana Ciric Milovanovic, L. Ahern, Priscila Rodríguez","doi":"10.13169/intljofdissocjus.2.2.0015","DOIUrl":"https://doi.org/10.13169/intljofdissocjus.2.2.0015","url":null,"abstract":"This bulletin considers the situation of children with disabilities in Ukraine, who at the time of the onset of the armed conflict were living in institutional care. DRI investigations have revealed that despite abundant international assistance, the government of Ukraine and international relief agencies have failed to ensure the safety and protect the lives of these children within institutions – or to ensure their safe return to families in the community.","PeriodicalId":448882,"journal":{"name":"International Journal of Disability and Social Justice","volume":"105 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"1900-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122267507","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}