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Shared Decision-Making Among Women Diagnosed with Breast Cancer: A Phenomenological Study and Exploration into Health Literacy Education 乳腺癌患者的共同决策:健康素养教育的现象学研究与探索
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2093086
Antonio P. DeRosa, Michelle R. Demetres, Ryan R. McComas
{"title":"Shared Decision-Making Among Women Diagnosed with Breast Cancer: A Phenomenological Study and Exploration into Health Literacy Education","authors":"Antonio P. DeRosa, Michelle R. Demetres, Ryan R. McComas","doi":"10.1080/15398285.2022.2093086","DOIUrl":"https://doi.org/10.1080/15398285.2022.2093086","url":null,"abstract":"Abstract Little is known about how women with breast cancer experience making decisions in collaboration with their medical provider, and how these patient-provider interactions affect autonomy in choosing a treatment option. The purpose of the study is to examine the patient experience with shared decision-making (SDM) among women diagnosed with breast cancer and to explore more effective ways of educating patients when they are faced with a critical treatment choice. The research questions include: (1) What is the meaning of SDM from the perspective of women diagnosed with breast cancer? (2) What facilitates and inhibits SDM around medical treatments for women diagnosed with breast cancer? (3) What kind of health literacy education do women with breast cancer need to better support SDM? Using a phenomenological design and inductive thematic analysis procedure, a purposive sample of 6 women diagnosed with breast cancer were recruited from an academic medical center, consented, and interviewed. Ultimately, participants viewed the SDM process as empowering, self-advocating, collaborative, and inclusive. Participants described key concepts like trust, lack of understanding/ambiguity, social support, and religion/faith as important indicators for SDM. Participants also cited nutrition and mental health literacy, treatment and medication literacy, community education, and high-quality health information as priority areas for education. Conclusions and implications for practice include creating inclusive environments for patients, encouraging empowerment, utilizing diverse and multidisciplinary teams, and providing reliable health information. Future researchers should investigate how SDM may lead to increased satisfaction and improved treatment outcomes.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42853036","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Is YouTube® Adequate as a Source of Patient Information for Intravenous Sedation in Dentistry? YouTube®是否足以作为牙科静脉镇静的患者信息来源？
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2097430
G. Erkan, M. Önder
{"title":"Is YouTube® Adequate as a Source of Patient Information for Intravenous Sedation in Dentistry?","authors":"G. Erkan, M. Önder","doi":"10.1080/15398285.2022.2097430","DOIUrl":"https://doi.org/10.1080/15398285.2022.2097430","url":null,"abstract":"Abstract Objective According to the results of the research conducted by the Pew Research Center in the USA, 80% of adult Internet users search for health on the Internet, and treatment decisions of 58% of them are affected by the information obtained. YouTube® is the most popular video-sharing platform globally, and many health-related videos are available. However, the information quality of YouTube® videos on intravenous sedation in dentistry is unclear. This study aimed to evaluate the information quality of YouTube® videos on “intravenous sedation in dentistry.” Materials and methods “Intravenous sedation in dentistry” was searched on YouTube®, and the first 200 videos were listed. Video features, i.e., like ratio (LR) and video power index (VPI), were recorded. The quality of videos was evaluated using the DISCERN questionnaire, Global Quality Score (GQS), and Journal of the American Medical Association (JAMA) score. Results The study included 130 videos, and 73.1% of the videos were published by private dental hospitals. However, 96.9% of the videos were of low quality considering the DISCERN total score. Only 14.6% of the videos with GQS and 1.5% with JAMA were of acceptable quality (score ≥3). Videos with “Fair” DISCERN total score and the DQ score of 4 had significantly higher VPI, view ratio, and number of comments. The VPI and view ratio were significantly higher in videos with a GQS score of 4. Moreover, the video quality was positively correlated with the video duration. Conclusion YouTube® content about intravenous sedation in dentistry was generally of low quality. It has been demonstrated that users viewed higher quality videos more and higher quality videos were more popular about “IV sedation in dentistry.” Thus, patients could be informed effectively and adequately by uploading accurate and quality YouTube® videos created by authorized institutions, anesthesiologists, and dentists.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44720847","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Consumer Health Information for Basic Radiation Safety 基本辐射安全的消费者健康信息
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100210
Deidre Rios, Kenya Haugen
{"title":"Consumer Health Information for Basic Radiation Safety","authors":"Deidre Rios, Kenya Haugen","doi":"10.1080/15398285.2022.2100210","DOIUrl":"https://doi.org/10.1080/15398285.2022.2100210","url":null,"abstract":"Abstract Patients can require imaging for several reasons. Many are for something other than annual checkups, and this can cause undue stress or fear of radiation. For parents, caregivers, and patients alike, understanding the basics of radiation and how to stay safe and get the imaging exams needed can be daunting. The information provided here will help patients and their caregivers understand the benefits and risks of radiation, and inform them not only about how radiation works, but also where and how they may encounter radiation.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42950051","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of the Medical Home Portal Website: Connecting Parents and Clinicians with High Quality Information about Children and Youth with Special Health Care Needs 医疗家庭门户网站:将父母和临床医生与有特殊保健需求的儿童和青少年的高质量信息联系起来
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100177
Shawn Steidinger
{"title":"Review of the Medical Home Portal Website: Connecting Parents and Clinicians with High Quality Information about Children and Youth with Special Health Care Needs","authors":"Shawn Steidinger","doi":"10.1080/15398285.2022.2100177","DOIUrl":"https://doi.org/10.1080/15398285.2022.2100177","url":null,"abstract":"Abstract Nearly one fifth of children in the United States have special healthcare needs, but their pediatricians may only deal with 1–3 patients who fall into the category of rare or chronic disease. Where can they find information on treating these conditions when they do not confront them very often? And where can the families of these children find quality information to help care for them? One website that covers both of these situations is the Medical Home Portal. This review will describe the Medical Home Portal website, and discuss the purpose of the site, the site's strengths and weaknesses, and who should use this resource.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47256033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An Ecological Model Analysis of COVID-19 Social Media Posts 新冠肺炎社交媒体帖子的生态模型分析
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2081910
Suzanne Grossman, J. Alber, D. Henry, David A. Askay, Hunter Glanz, Erika Marts, Anna Ostrander
{"title":"An Ecological Model Analysis of COVID-19 Social Media Posts","authors":"Suzanne Grossman, J. Alber, D. Henry, David A. Askay, Hunter Glanz, Erika Marts, Anna Ostrander","doi":"10.1080/15398285.2022.2081910","DOIUrl":"https://doi.org/10.1080/15398285.2022.2081910","url":null,"abstract":"Abstract This study examined prevention and coping content related to COVID-19 on social media. Publicly available social media posts were examined by levels of the social ecological model (SEM) and by platform (Instagram, TikTok, Twitter). Using systematic random sampling, 1579 public posts were collected from March 2020 to June 2020 using COVID-19 hashtags. Of these, 663 posts written in English about COVID-19 were included. Content was coded by platform, strategies for reducing risk, strategies for coping with stress, and SEM level(s). In total, 41.18% of the posts mentioned a strategy for reducing risk. Few posts mentioned coping strategies (5%). Slightly less than half of the posts focused on the individual level (42.1%). Both the strategies mentioned for reducing risk and SEM levels referenced in each post varied significantly by platform. Results suggest that social media may provide insight into the type of health information the public receives as well as the public’s strategies for reducing risk and coping; however, there is variation among platforms.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49265660","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Complete Guide to Food Allergies in Adults and Children 成人和儿童食物过敏完整指南
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100165
Kristen Burroughs
{"title":"The Complete Guide to Food Allergies in Adults and Children","authors":"Kristen Burroughs","doi":"10.1080/15398285.2022.2100165","DOIUrl":"https://doi.org/10.1080/15398285.2022.2100165","url":null,"abstract":"","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47886278","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What About Mom? Teen: Usability of a Postpartum App for Teen Mothers 妈妈呢？青少年：产后应用程序对青少年母亲的可用性
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2109096
Cassidy Faught, C. Howe, A. Raines-Milenkov, Teresa Wagner
{"title":"What About Mom? Teen: Usability of a Postpartum App for Teen Mothers","authors":"Cassidy Faught, C. Howe, A. Raines-Milenkov, Teresa Wagner","doi":"10.1080/15398285.2022.2109096","DOIUrl":"https://doi.org/10.1080/15398285.2022.2109096","url":null,"abstract":"Abstract Introduction There exists a paucity of literature on availability of health literate, virtual postpartum symptom education empowering adolescent moms to seek urgent medical care when needed. With few postpartum health-related Apps on the market, a gap remains in research of their potential to deliver postpartum symptom instruction. This study examined the usability of the What About Mom App? for adolescent mothers to identify and act on urgent complications potentially reducing morbidity and mortality for this high-risk group. Methods Participants were recruited via email lists and social media of community partners serving new mothers in both English and Spanish in the United States. Participants completed a survey that assessed their e-health literacy and perception of the quality and usability of the What About Mom Apps ? using the User Version Mobility Assessment Rating Scale (uMARS). Results After data cleaning, 159 credible responses were retained for analysis. Participant mean total score for eHEALS was 30.2 (range 9–40; SD 5.9) indicating adequate e-health literacy. The uMARS scores indicate the quality and usability of the app. Compared with the norms in each of the uMARS domains, Functionality was the only category that scored below the standard. Qualitative suggestions were made from the participants to improve Functionality. Discussion The uMARS scores added valuable information to modify the What About Mom App? to improve ease of delivery of health literate postpartum health information. Apps including The What About Mom App? offer promising interventions that can help increase healthcare engagement for moms of all ages to reduce maternal morbidity and mortality.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47044144","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
New Technological Innovations to Improve Balance against Falling in Older Adults: Exergaming, Virtual Reality and Augmented Realty 提高老年人平衡能力的新技术创新:游戏、虚拟现实和增强现实
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2113303
H. Epstein
{"title":"New Technological Innovations to Improve Balance against Falling in Older Adults: Exergaming, Virtual Reality and Augmented Realty","authors":"H. Epstein","doi":"10.1080/15398285.2022.2113303","DOIUrl":"https://doi.org/10.1080/15398285.2022.2113303","url":null,"abstract":"Abstract Older adults fall and live with the fear of falling. Until recently vitamin D to strengthen bones, Tai Chi and other slow deliberate exercises have been prescribed. Recent studies introducing these adults to newer technological innovations such as the Nintendo Wii and Microsoft HoloLens and Oculus from Meta show enjoyment of using the equipment, improvement with balance, reduced fear of falling and stronger feelings of independence. This column reports the troubling statistics of older adults falling, introduces technological innovations and highlights studies using these tools.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45045523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding the Silent Killer: A Review of NIAAA, the National Institute on Alcohol Abuse and Alcoholism 理解沉默的杀手:NIAAA的评论，国家酒精滥用和酒精中毒研究所
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100167
Jeannine Creazzo
{"title":"Understanding the Silent Killer: A Review of NIAAA, the National Institute on Alcohol Abuse and Alcoholism","authors":"Jeannine Creazzo","doi":"10.1080/15398285.2022.2100167","DOIUrl":"https://doi.org/10.1080/15398285.2022.2100167","url":null,"abstract":"Abstract Established in 1970 as a part of the National Institute of Mental Health (NIMH), the National Institute on Alcohol Abuse and Alcoholism (NIAAA) has grown into the world’s largest funder of alcohol research. An independent institute of the National Institutes of Health, the NIAAA’s website, https://www.niaaa.nih.gov provides a wealth of resources for researchers, health professionals, and the public, including where to find help. The NIAAA’s ongoing efforts reflect their role as the United States’ primary source of evidence-based information on alcohol and health, in addition to conducting and supporting research and influencing legislation.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48537810","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dignity for Deeply Forgetful People: How Caregivers Can Meet the Challenges of Alzheimer’s Disease 严重健忘的人的尊严:护理人员如何应对阿尔茨海默病的挑战
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100166
Kristen Burroughs
{"title":"Dignity for Deeply Forgetful People: How Caregivers Can Meet the Challenges of Alzheimer’s Disease","authors":"Kristen Burroughs","doi":"10.1080/15398285.2022.2100166","DOIUrl":"https://doi.org/10.1080/15398285.2022.2100166","url":null,"abstract":"","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41933971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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