Journal of Consumer Health on the Internet最新文献

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Recalls.gov: Your Online Resource for Recalls recall .gov:您的在线召回资源
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Journal of Consumer Health on the Internet Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2136913
Bethany Figg
{"title":"Recalls.gov: Your Online Resource for Recalls","authors":"Bethany Figg","doi":"10.1080/15398285.2022.2136913","DOIUrl":"https://doi.org/10.1080/15398285.2022.2136913","url":null,"abstract":"Abstract The United States Food and Drug Administration, National Highway Traffic Safety Administration, United States Environmental Protection Agency, The United States Department of Agriculture, United States Coast Guard, and United States Consumer Product Safety Commission joined together to provide alerts for the American people when products are unsafe, hazardous, or defective. While in need of an update, Recalls.gov provides one web page where consumers can obtain recall information, report a dangerous product, and learn important safety updates to stay healthy.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"423 - 432"},"PeriodicalIF":0.8,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47041823","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
All of Us: A National Effort to Improve Health 我们所有人:改善健康的国家努力
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Journal of Consumer Health on the Internet Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2138058
H. Epstein
{"title":"All of Us: A National Effort to Improve Health","authors":"H. Epstein","doi":"10.1080/15398285.2022.2138058","DOIUrl":"https://doi.org/10.1080/15398285.2022.2138058","url":null,"abstract":"Abstract In healthcare one size does not fit all. If one was ill, wouldn’t it be great for them to receive medicines made precisely for them? It is the aim of the All of Us campaign to do just that. Overtime, All of Us hopes to collect one million DNA samples and other valuable health information from a diverse group of people in the United States by about 2024. Studying these samples will reveal to researchers likenesses and differences across the samples to improve health by creating precise personal remedies and treatments. This column introduces the All of Us campaign, illustrates the research efforts using the All of Us data and closes with where one can contribute to this monumental effort.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"452 - 459"},"PeriodicalIF":0.8,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43320337","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Restart: Designing a Healthy Post-Pandemic Life 重新开始:设计健康的大流行后生活
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Journal of Consumer Health on the Internet Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2136915
Andrea Slonosky
{"title":"Restart: Designing a Healthy Post-Pandemic Life","authors":"Andrea Slonosky","doi":"10.1080/15398285.2022.2136915","DOIUrl":"https://doi.org/10.1080/15398285.2022.2136915","url":null,"abstract":"","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"460 - 461"},"PeriodicalIF":0.8,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41340171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Alone We Are Rare, Together We Are Strong: A Review of the National Organization for Rare Disorders (NORD®) 独自我们罕见,团结我们强大:国家罕见疾病组织(NORD®)综述
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Journal of Consumer Health on the Internet Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2139492
Kat Phillips
{"title":"Alone We Are Rare, Together We Are Strong: A Review of the National Organization for Rare Disorders (NORD®)","authors":"Kat Phillips","doi":"10.1080/15398285.2022.2139492","DOIUrl":"https://doi.org/10.1080/15398285.2022.2139492","url":null,"abstract":"Abstract The National Organization for Rare Disorders, or NORD®, is a robust resource suitable for patients, families, clinicians, researchers, and advocates of those living with or impacted by rare diseases. Given that rare diseases affect around 30 million people in the United States, half of which are estimated to be children, it is vital to have access to credible and accessible information. An added bonus of NORD is their staunch advocacy platform, which brings to light other consumer health information which may otherwise be hard to find. This consumer health resource review covers the consumer-focused aspects of NORD.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"444 - 451"},"PeriodicalIF":0.8,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44573452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Is the Authoritative Online COVID-19 Consumer Health Information Intelligible to Adults of the General Public?: A COVID-19 Information Analysis 权威的在线COVID-19消费者健康信息能被普通公众的成年人理解吗?: COVID-19信息分析
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-10-02 DOI: 10.1080/15398285.2022.2124493
Feili Tu-Keefner, April Hobbs, Abby Bricker
{"title":"Is the Authoritative Online COVID-19 Consumer Health Information Intelligible to Adults of the General Public?: A COVID-19 Information Analysis","authors":"Feili Tu-Keefner, April Hobbs, Abby Bricker","doi":"10.1080/15398285.2022.2124493","DOIUrl":"https://doi.org/10.1080/15398285.2022.2124493","url":null,"abstract":"Abstract Objective To investigate whether the authoritative COVID-19 consumer health information provided by the Centers for Disease Control and Prevention (CDC) in the United States (U.S.) and the World Health Organization (WHO) is at low readability levels (i.e., at or below a sixth-grade reading level). Major public health organizations, such as these have quickly distributed authoritative COVID-19 health information on the Internet during the pandemic. However, scant research has assessed whether the information disseminated by these two major public health organizations enables access by adults from the general public. This study examines the Flesch-Kincaid grade levels of the COVID-19 health information in English distributed by the CDC and the WHO. Design The study is guided by communication and information science frameworks. It examines the reading level of the resources to see if they are compatible with the guidelines of the American Medical Association for patient education materials. Methods/setting The methodology used centered on content and document analyses. The samples analyzed were identified through accessing the COVID-19 health information shared on the websites of the public library systems of the twenty largest cities in the U.S. Key results The results show that the documents reviewed in the study are not compatible with the sixth-grade reading level recommended by the American Medical Association for patient education materials.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"373 - 395"},"PeriodicalIF":0.8,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44144365","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Get Smart About Drugs: A DEA Resource for Parents, Educators, and Caregivers 聪明对待毒品:缉毒局为家长、教育工作者和护理人员提供的资源
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2101329
Bethany Figg
{"title":"Get Smart About Drugs: A DEA Resource for Parents, Educators, and Caregivers","authors":"Bethany Figg","doi":"10.1080/15398285.2022.2101329","DOIUrl":"https://doi.org/10.1080/15398285.2022.2101329","url":null,"abstract":"Abstract The Drug Enforcement Administration has provided a resource for parents, educators, and caregivers to help them raise drug-free young people, properly dispose of drugs, stay informed on top drug issues, and keep loved ones safe. This resource, a web site called Get Smart About Drugs, can help users understand what to look for when protecting their loved ones from substance misuse as well as generate awareness about drugs and paraphernalia, and national campaigns for drug and opioid abuse prevention.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"300 - 309"},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42674789","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Shared Decision-Making Among Women Diagnosed with Breast Cancer: A Phenomenological Study and Exploration into Health Literacy Education 乳腺癌患者的共同决策:健康素养教育的现象学研究与探索
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Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2093086
Antonio P. DeRosa, Michelle R. Demetres, Ryan R. McComas
{"title":"Shared Decision-Making Among Women Diagnosed with Breast Cancer: A Phenomenological Study and Exploration into Health Literacy Education","authors":"Antonio P. DeRosa, Michelle R. Demetres, Ryan R. McComas","doi":"10.1080/15398285.2022.2093086","DOIUrl":"https://doi.org/10.1080/15398285.2022.2093086","url":null,"abstract":"Abstract Little is known about how women with breast cancer experience making decisions in collaboration with their medical provider, and how these patient-provider interactions affect autonomy in choosing a treatment option. The purpose of the study is to examine the patient experience with shared decision-making (SDM) among women diagnosed with breast cancer and to explore more effective ways of educating patients when they are faced with a critical treatment choice. The research questions include: (1) What is the meaning of SDM from the perspective of women diagnosed with breast cancer? (2) What facilitates and inhibits SDM around medical treatments for women diagnosed with breast cancer? (3) What kind of health literacy education do women with breast cancer need to better support SDM? Using a phenomenological design and inductive thematic analysis procedure, a purposive sample of 6 women diagnosed with breast cancer were recruited from an academic medical center, consented, and interviewed. Ultimately, participants viewed the SDM process as empowering, self-advocating, collaborative, and inclusive. Participants described key concepts like trust, lack of understanding/ambiguity, social support, and religion/faith as important indicators for SDM. Participants also cited nutrition and mental health literacy, treatment and medication literacy, community education, and high-quality health information as priority areas for education. Conclusions and implications for practice include creating inclusive environments for patients, encouraging empowerment, utilizing diverse and multidisciplinary teams, and providing reliable health information. Future researchers should investigate how SDM may lead to increased satisfaction and improved treatment outcomes.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"259 - 273"},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42853036","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Consumer Health Information for Basic Radiation Safety 基本辐射安全的消费者健康信息
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100210
Deidre Rios, Kenya Haugen
{"title":"Consumer Health Information for Basic Radiation Safety","authors":"Deidre Rios, Kenya Haugen","doi":"10.1080/15398285.2022.2100210","DOIUrl":"https://doi.org/10.1080/15398285.2022.2100210","url":null,"abstract":"Abstract Patients can require imaging for several reasons. Many are for something other than annual checkups, and this can cause undue stress or fear of radiation. For parents, caregivers, and patients alike, understanding the basics of radiation and how to stay safe and get the imaging exams needed can be daunting. The information provided here will help patients and their caregivers understand the benefits and risks of radiation, and inform them not only about how radiation works, but also where and how they may encounter radiation.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"316 - 324"},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42950051","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Is YouTube® Adequate as a Source of Patient Information for Intravenous Sedation in Dentistry? YouTube®是否足以作为牙科静脉镇静的患者信息来源?
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2097430
G. Erkan, M. Önder
{"title":"Is YouTube® Adequate as a Source of Patient Information for Intravenous Sedation in Dentistry?","authors":"G. Erkan, M. Önder","doi":"10.1080/15398285.2022.2097430","DOIUrl":"https://doi.org/10.1080/15398285.2022.2097430","url":null,"abstract":"Abstract Objective According to the results of the research conducted by the Pew Research Center in the USA, 80% of adult Internet users search for health on the Internet, and treatment decisions of 58% of them are affected by the information obtained. YouTube® is the most popular video-sharing platform globally, and many health-related videos are available. However, the information quality of YouTube® videos on intravenous sedation in dentistry is unclear. This study aimed to evaluate the information quality of YouTube® videos on “intravenous sedation in dentistry.” Materials and methods “Intravenous sedation in dentistry” was searched on YouTube®, and the first 200 videos were listed. Video features, i.e., like ratio (LR) and video power index (VPI), were recorded. The quality of videos was evaluated using the DISCERN questionnaire, Global Quality Score (GQS), and Journal of the American Medical Association (JAMA) score. Results The study included 130 videos, and 73.1% of the videos were published by private dental hospitals. However, 96.9% of the videos were of low quality considering the DISCERN total score. Only 14.6% of the videos with GQS and 1.5% with JAMA were of acceptable quality (score ≥3). Videos with “Fair” DISCERN total score and the DQ score of 4 had significantly higher VPI, view ratio, and number of comments. The VPI and view ratio were significantly higher in videos with a GQS score of 4. Moreover, the video quality was positively correlated with the video duration. Conclusion YouTube® content about intravenous sedation in dentistry was generally of low quality. It has been demonstrated that users viewed higher quality videos more and higher quality videos were more popular about “IV sedation in dentistry.” Thus, patients could be informed effectively and adequately by uploading accurate and quality YouTube® videos created by authorized institutions, anesthesiologists, and dentists.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"274 - 282"},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44720847","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of the Medical Home Portal Website: Connecting Parents and Clinicians with High Quality Information about Children and Youth with Special Health Care Needs 医疗家庭门户网站:将父母和临床医生与有特殊保健需求的儿童和青少年的高质量信息联系起来
IF 0.8
Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI: 10.1080/15398285.2022.2100177
Shawn Steidinger
{"title":"Review of the Medical Home Portal Website: Connecting Parents and Clinicians with High Quality Information about Children and Youth with Special Health Care Needs","authors":"Shawn Steidinger","doi":"10.1080/15398285.2022.2100177","DOIUrl":"https://doi.org/10.1080/15398285.2022.2100177","url":null,"abstract":"Abstract Nearly one fifth of children in the United States have special healthcare needs, but their pediatricians may only deal with 1–3 patients who fall into the category of rare or chronic disease. Where can they find information on treating these conditions when they do not confront them very often? And where can the families of these children find quality information to help care for them? One website that covers both of these situations is the Medical Home Portal. This review will describe the Medical Home Portal website, and discuss the purpose of the site, the site's strengths and weaknesses, and who should use this resource.","PeriodicalId":44184,"journal":{"name":"Journal of Consumer Health on the Internet","volume":"26 1","pages":"310 - 315"},"PeriodicalIF":0.8,"publicationDate":"2022-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47256033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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