医疗家庭门户网站:将父母和临床医生与有特殊保健需求的儿童和青少年的高质量信息联系起来

IF 0.4 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Journal of Consumer Health on the Internet Pub Date : 2022-07-03 DOI:10.1080/15398285.2022.2100177

Shawn Steidinger

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引用次数: 0

摘要

在美国，近五分之一的儿童有特殊的医疗需求，但他们的儿科医生可能只处理1-3名属于罕见或慢性疾病的患者。当他们不经常面对这些问题时，他们在哪里可以找到治疗这些疾病的信息?这些孩子的家庭在哪里可以找到高质量的信息来帮助照顾他们?一个涵盖这两种情况的网站是医疗家庭门户网站。本综述将描述医疗家庭门户网站，并讨论该网站的目的，该网站的优势和劣势，以及谁应该使用该资源。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Review of the Medical Home Portal Website: Connecting Parents and Clinicians with High Quality Information about Children and Youth with Special Health Care Needs

Abstract Nearly one fifth of children in the United States have special healthcare needs, but their pediatricians may only deal with 1–3 patients who fall into the category of rare or chronic disease. Where can they find information on treating these conditions when they do not confront them very often? And where can the families of these children find quality information to help care for them? One website that covers both of these situations is the Medical Home Portal. This review will describe the Medical Home Portal website, and discuss the purpose of the site, the site's strengths and weaknesses, and who should use this resource.

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来源期刊

Journal of Consumer Health on the Internet PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-

CiteScore

1.30

自引率

12.50%

发文量

期刊介绍： The Journal of Consumer Health on the Internet is the only professional peer-reviewed journal devoted to locating consumer health information via the Internet. In this journal librarians and health information providers describe programs and services aimed at helping patients and the general public find the health information they need. From the Editor: "Studies have shown that health information is one of the major reasons that people worldwide access the Internet. As the amount of health information on the Web increases exponentially, it becomes critical that librarians-including public and medical librarians-be knowledgeable about what is available online and be able to direct users to reliable, accurate, quality information."