Journal of Social Inclusion最新文献

{"title":"Changing Places, Changing Lives","authors":"Alexandra G. Martin, Valerie Watchorn, Cathryn Grant","doi":"10.36251/JOSI.134","DOIUrl":"https://doi.org/10.36251/JOSI.134","url":null,"abstract":"The built environment has long been recognised as a significant determinant of social inclusion and participation of people who experience disability. Despite existence of anti-discrimination legislation and development of the United Nations Convention on the Rights of Persons with a Disability, many individuals continue to experience inequitable access to their communities. Using a qualitative approach, this study aimed to explore the lived experiences of people who use Changing Places facilities within Victoria, Australia. Semi-structured interviews were conducted with four participants regarding their experiences of using Changing Places facilities. Findings from this study further consolidate existing research that highlight social inequities experienced by people with severe and profound physical disabilities. Findings in this preliminary study can also support the development and expansion of Changing Places facilities, not only as a means of meeting legal obligations within our community, but also as an approach towards improving social inclusion and participation of people with severe and profound physical disabilities.","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":" ","pages":""},"PeriodicalIF":0.5,"publicationDate":"2018-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46040856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Migration background and educational affordability amongst Pacific Islander migrant learners in Melbourne’s western region","authors":"Irene Paulsen","doi":"10.36251/JOSI.137","DOIUrl":"https://doi.org/10.36251/JOSI.137","url":null,"abstract":"High cost is a major barrier to the attainment of educational goals of many learners, especially those from economically-disadvantaged backgrounds. In Australia, this cohort includes Pacific Islander (PI) learners for whom low family income and ineligibility to access Government assistance for tertiary education costs may prohibit some learners from pursuing Higher Education (HE) studies. Whilst cultural barriers such as unfamiliarity with the education system, low language competence, and poor institutional support for non-traditional learners have consistently dominated the discourse on Pacific Islander learner’s low levels of achievement in education, less attention has focused on the effects of migration background, economic, and social adjustment patterns on their schooling outcomes. This article proposes that migration history, socio-economic background, and financial challenges affect PI migrant learners in two distinct ways: for those who have motivation and capability to enroll in tertiary level study, their aspirations are constrained by the high cost of tuition fees; while those learners who have the financial means and support to enroll in HE study are sometimes constrained by long-term poverty, which affects their motivations to study at the tertiary education level.This qualitative study involved working with a small group of PI learners from Melbourne’s western region from 2012 to 2015. Information was gathered from semi-structured interviews conducted with learner participants, and their parents and teachers. Learners were interviewed three or four times, while their parents and teachers were interviewed either once or twice over a four-year period. The collected data was sorted and categorized using NVivo software, and later categorized into broad themes, which were then cross matched with individual learner case stories to refine emerging finding and themes.The study revealed that migration background has an important influence on the social and economic settlement patterns of PI learners and their families and these in turn significantly affect learners’ schooling and post school outcomes.","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":"1 1","pages":""},"PeriodicalIF":0.5,"publicationDate":"2018-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44109589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘I would call it a social capital building exercise’: the nature of networks that enable women with a refugee background to access sustainable employment in regional Australia","authors":"L. Whitaker, Mandy Hughes, Barbara A. Rugendyke","doi":"10.36251/josi.138","DOIUrl":"https://doi.org/10.36251/josi.138","url":null,"abstract":"Securing sustainable employment is an important factor in the successful settlement of women from refugee backgrounds into regional Australia, however, the path to its attainment is complex. Work that takes advantage of the breadth of their untapped skills or offers sustainable careers is not readily available. Further, having to seek refuge suggests that women bring embodied memories of trauma which may, in turn, continue to impact on their health. A pilot program was funded to support women from refugee backgrounds as they navigated the employment pathway. This paper reports the findings from an action research study which was associated with the pilot program. As social capital enables people to be “hired, healthy, happy and housed” (Woolcock, 1998, p. 154), the study investigated the form and function of the networks that enabled these women. Findings revealed the women engaged in building a network that increased the number of people that they knew as both friends and professional paths to employment. Program participants were also keen to be embedded in the geographical and cultural landscape. Further this social, cultural and physical engagement provided opportunities to mobilise and further develop their skills. This interwoven web of connections fostered women’s safety and enabled them to discover their unique pathways to potential employment.","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":" ","pages":""},"PeriodicalIF":0.5,"publicationDate":"2018-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44542855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Empirical Foundations of Dignity Therapy: Comparing Dignity Therapy with Life Review for Palliative Care Patients","authors":"Dean Vuksanovic","doi":"10.25904/1912/11","DOIUrl":"https://doi.org/10.25904/1912/11","url":null,"abstract":"Approaching end of life is a time of significant change. The physical impacts of an advancing illness can be overwhelming, and this can be closely followed by psychological, social, existential, and spiritual contributors to distress and suffering. Palliative care patients also typically need to navigate complex healthcare systems, and face difficult decisions relating to medical, personal, family, and financial matters. Not surprisingly, sense of demoralisation and expressions of desire to die are particularly prevalent in this patient population. In order to meet these complex biopsychosocial needs, palliative care relies on active cooperation and coordination of a variety of health professionals, volunteers, and community representatives. Its key guiding principle is to help patients maintain sense of dignity throughout the dying process. However, there is evidence that palliative care clinicians may not have sufficient skills and confidence in optimally assessing and treating psychosocial, existential, and spiritual domains of distress. Furthermore, there is a need to better understand the acceptability, feasibility, and effectiveness of psychotherapeutic interventions that are specifically tailored to palliative care patients. Dignity Therapy is one such promising intervention, as it is based on an empirical model of dignity in this patient population. It aims to address dignity-related distress by facilitating a creation of a lasting legacy document that is then typically shared with family or friends, and archived for future generations. Systematic reviews to date have found that Dignity Therapy has very high acceptability and satisfaction rates, variable feasibility, and generally uncertain effectiveness. Similar interventions such as Life Review also have the potential to demonstrate clinically meaningful patient outcomes but the relative lack of empirical evidence is a key barrier to their inclusion into standard palliative care practice. The overarching aim of this project was to conduct research that examined the efficacy of Dignity Therapy for palliative care patients by comparing this intervention to Life Review and a Waitlist Control Group. In order to achieve this aim, the first study involved developing a brief measure of Erik Erikson’s concepts of generativity and egointegrity that is suitable for use in palliative care settings. The second study was a Randomised Controlled trial that compared the efficacy of Dignity Therapy vs Life Review vs Waitlist Control Group on a range of outcome measures, including the newly-developed generativity and ego-integrity measure from the first study. The third study utilised qualitative research methods to further explore and better understand similarities and differences between Dignity Therapy and Life Review. The first study (N=143) demonstrated that the newly-developed measure of Erikson’s concepts generativity and ego-integrity is suitable for use with middle-aged and older adults. In the","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2018-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"http://hdl.handle.net/10072/382707","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147883716","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How the personal support networks of people with intellectual disability promote participation and engagement","authors":"K. Shelley, M. Donelly, A. Hillman, A. Dew, L. Whitaker, R. Stancliffe, M. Knox, T. Parmenter","doi":"10.36251/JOSI.130","DOIUrl":"https://doi.org/10.36251/JOSI.130","url":null,"abstract":"Background: Social inclusion has been defined as an interaction between major life domains, including interpersonal relationships and community participation among other factors. Understanding the manner in which these life domains may inter-connect could inform efforts to promote social inclusion. This paper explores the role of personal support network members in establishing and maintaining community participation of a person with an intellectual disability.Method: An ethnographic research design allowed exploration of network interactions over a three-year period. In-depth interviews and participant observations were undertaken with nine people with an intellectual disability and their network members.Results: The networks promoted participation using various strategies. The person and their network gathered and shared information to determine what was meaningful to the person. Information about success was used to adapt developing strategies, enhance support, and build on existing gains.Conclusions: Personal networks provided insight into the practical and relational aspects of participation, and the importance of balancing risk and autonomy, vulnerability and freedom. Respect for the personhood, importance and dignity of each person at the centre of the network influenced this work.","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":" ","pages":""},"PeriodicalIF":0.5,"publicationDate":"2018-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49108041","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A History of Women’s Homelessness: The Making of a Crisis","authors":"A. Oudshoorn, Amy Van Berkum, Colleen Van Loon","doi":"10.36251/JOSI.128","DOIUrl":"https://doi.org/10.36251/JOSI.128","url":null,"abstract":"Women’s homelessness is continually referred to as a new, surprising, or growing phenomenon. Rather, in this paper we explore the proposition that women’s homelessness has long existed in Canada, Australia, the United States of America and the United Kingdom, but in many ways has been ignored or marginalized. To do so, we use texts, articles, and reports from the mid-1800’s to today to present how women experiencing homelessness are pushed to the margins of an already marginalized group. Instead of a new phenomenon, we seek to demonstrate that women’s homelessness has evolved over time parallel with evolving gender roles. Ultimately, we conclude that it is in fact structural forces of gender that have put women at unique risk of experiencing hidden homelessness.","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":" ","pages":""},"PeriodicalIF":0.5,"publicationDate":"2018-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45517361","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Preparing for inclusive consultation, research and policy development: insights from the field of Deafblindness","authors":"Alana Roy, K. Mcvilly, B. Crisp","doi":"10.36251/JOSI.132","DOIUrl":"https://doi.org/10.36251/JOSI.132","url":null,"abstract":"There is a paucity of research and guidance on good practice for engaging with people who are Deafblind in policy development and the co-design of services and service systems. Although there are a range of inclusive research methodologies, such as the World Café, Deafblind people are yet to be engaged authentically and effectively in these conversations. To address this issue, and as part of a program of research to investigate and test good practice in this field, we analysed data from semi-structured interviews with eight Deafblindness professionals using inductive thematic analysis. Six themes emerged from the interview data. These were: (1) acknowledging the unique Deafblind world view; (2) the interplay of vulnerability and trusting relationships; (3) the importance of specialist knowledge, skills, and cultural sensitivities; (4) power to the people - addressing power imbalances inherent in consultation processes; (5) same but different – the Deafblind experience of being a culturally and linguistically diverse (CALD) community, and; (6) a challenge that must be met – the imperative to involve people who are Deafblind in research and policy development. If people who are Deafblind are to be engaged in research and policy development, there are a number of guiding principles that need to be considered and practical actions to be taken. These principles include employing a culturally sensitive and trusted research team to spend time working with Deafblind people to help prepare and educate them for research and consultation processes. In so doing, people with lived experiences and professionals in the field can build the trust, knowledge and skills needed to enable authentic co-design and co-production of policy and practice.","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":" ","pages":""},"PeriodicalIF":0.5,"publicationDate":"2018-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46697501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social inclusion, and the power of being ‘seen’ and ‘heard’ in 2018","authors":"A. Duvnjak, P. Harris","doi":"10.36251/JOSI.127","DOIUrl":"https://doi.org/10.36251/JOSI.127","url":null,"abstract":"Whose experiences, lives and values do we have most access to, and whose voices end up being heard or privileged? What does ‘visibility’ really mean in a world with a 24-hour media cycle, the opening up and democratisation of participatory models fuelled by social media, and increasing opportunities for direct representation which bypass traditional gatekeepers of information dissemination? From the protest at this year’s World Cup final carried out by Russian feminist musicians and activist group Pussy Riot, to the Black Lives Matter movement, and the increasing popular resistance to the detention of asylum seekers in Australia, we see increasing examples of the lived experiences of those kept ‘out of view’.","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":" ","pages":""},"PeriodicalIF":0.5,"publicationDate":"2018-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45949093","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving inclusion in rural health services for marginalised community members: Developing a process for change","authors":"C. Malatzky, Olivia Mitchell, L. Bourke","doi":"10.36251/JOSI.129","DOIUrl":"https://doi.org/10.36251/JOSI.129","url":null,"abstract":"Australia’s mainstream health services located in rural contexts are mandated to provide health care to the entire local population. However, complex power relations embedded and reflected within the cultures of mainstream generalist health services are excluding the most marginalised residents from health care. This paper argues that unless inclusion in rural, generalist mainstream health services is improved, the health experiences of these residents will not substantially change and Australia will continue to report significant health differentials within its population. The concept of culturally inclusive health care is difficult for Australian mainstream generalist health practitioners to engage with because there is limited understanding of what culture is and how it operates within diverse communities. This makes it challenging for many in mainstream health institutions to begin deconstructing how it is that exclusion occurs. Frequently, ‘culture’ is assigned to ‘Others’, and there is little recognition that all people, including White, mainstream Australians, are cultural beings, and that health disciplines, services and systems have particular cultures that make assumptions about how to be in the world. Consequently, current approaches to the provision of culturally inclusive health care are not shifting the power relations that (re)produce exclusion. In this paper, we outline a new interdisciplinary methodology that operationalises Foucault’s concepts of power, resistance and discourse within a Participatory Action Research (PAR) design and utilises Continuous Quality Improvement (CQI) processes to respond to these power relations and provide health institutions with a process to improve their inclusivity, specifically for Australia’s most marginalised residents. It is suggested that employing this new methodology will promote a different way of thinking and acting in health institutions, producing a deconstructed process for health services to adapt to improve their inclusivity.","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":" ","pages":""},"PeriodicalIF":0.5,"publicationDate":"2018-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45805646","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ili-based Community Organising: An Igorot Indigenous Peoples’ Concept for Grassroots Collaboration","authors":"Digna L. Adonis, J. Couch","doi":"10.36251/JOSI.131","DOIUrl":"https://doi.org/10.36251/JOSI.131","url":null,"abstract":"The growing demand for participatory community development approaches has greatly influenced the need to involve community people as active partners, rather than passive recipients of programs, projects and services. Participatory approaches operate on the premise that the local people are the ultimate change agents of their own communities and that their culture is an asset to their own development. For Indigenous communities, their Indigenous cultural and knowledge systems serve as tools for sustainable collaboration.This article discusses how the ili-based community organising concept was developed by non-government organisations while working with the Igorot Indigenous Peoples in Northern Philippines. Ili is an Igorot word for ‘home’ or ‘the land of one’s birth’, considered to be the Igorots’ source of identity, belonging and life direction. The ili-based concept uses traditional knowledge, values and practices to facilitate the formation of People Organisations (POs). The concept is part of a wider research project on community development amongst the Igorot Indigenous Peoples of Benguet Province, Philippines.","PeriodicalId":42982,"journal":{"name":"Journal of Social Inclusion","volume":" ","pages":""},"PeriodicalIF":0.5,"publicationDate":"2018-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46816893","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}