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Developing a global nursing network for rare diseases to enhance patient care and support. 建立罕见病全球护理网络，加强对患者的护理和支持。
Nursing children and young people Pub Date : 2024-09-09 DOI: 10.7748/ncyp.2024.e1531
Zoe Morrison, Kaila Stevens
{"title":"Developing a global nursing network for rare diseases to enhance patient care and support.","authors":"Zoe Morrison, Kaila Stevens","doi":"10.7748/ncyp.2024.e1531","DOIUrl":"https://doi.org/10.7748/ncyp.2024.e1531","url":null,"abstract":"<p><p>Rare diseases, while individually rare, are common when considered collectively, affecting about one in 17 people across their lifetime. However, there is a lack of awareness of and education about rare diseases in nursing. To address this, the Global Nursing Network Rare Diseases (GNNRD) has been launched to connect nurses from within all fields of practice and at all levels of experience, with the aim of improving the lives of people with rare and undiagnosed diseases (RUDs). The GNNRD aims to empower nurses on a global scale through leadership, knowledge exchange and skill development and to provide a platform from which they can influence policy and advocate for patients and their families at regional, national and international levels. This article provides an overview of RUDs and some of the challenges experienced by patients and their families and describes the development and aims of the GNNRD.</p>","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Checking nasogastric tube safety in children cared for in the community: a re-examination of the evidence base. 检查社区护理儿童鼻胃管的安全性：重新审查证据基础。
Nursing children and young people Pub Date : 2024-09-05 Epub Date: 2024-03-04 DOI: 10.7748/ncyp.2024.e1493
Michael Tatterton, Jane Mulcahy, Joanna Mankelow, Maria Harding, Jacqui Scrace, Megan Fisher, Claire Bethell
{"title":"Checking nasogastric tube safety in children cared for in the community: a re-examination of the evidence base.","authors":"Michael Tatterton, Jane Mulcahy, Joanna Mankelow, Maria Harding, Jacqui Scrace, Megan Fisher, Claire Bethell","doi":"10.7748/ncyp.2024.e1493","DOIUrl":"10.7748/ncyp.2024.e1493","url":null,"abstract":"<p><p>Nasogastric tube feeding is generally considered safe provided a nasogastric aspirate with a pH ≤5.5, which indicates that the end of tube is correctly located in the stomach, can be obtained. When this is not possible, hospital attendance or admission is usually required so that an X-ray can be undertaken to check the tube's position. This practice is based on an interpretation of the evidence that places undue importance on nasogastric aspirate pH testing before every use of a tube that is already in place, with potential negative consequences for children cared for in the community and their families. Following a re-examination of the evidence base, a revised approach is proposed in this article: when a child has a tube in place, provided its position has been confirmed as correct on initial placement using aspirate pH testing, nurses can use checks other than aspirate pH testing, alongside their clinical judgement, to determine whether it is safe and appropriate to use the tube. This proposed revised approach would reduce delayed or missed administration of fluids, feeds and medicines and enable more children to remain at home.</p>","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" ","pages":"16-22"},"PeriodicalIF":0.0,"publicationDate":"2024-09-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140022833","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Supporting children, young people and families to self-manage atopic eczema. 支持儿童、青少年和家庭自我管理特应性湿疹。
Nursing children and young people Pub Date : 2024-09-05 Epub Date: 2024-01-22 DOI: 10.7748/ncyp.2024.e1478
Emma Williams, Samantha Lakkiss
{"title":"Supporting children, young people and families to self-manage atopic eczema.","authors":"Emma Williams, Samantha Lakkiss","doi":"10.7748/ncyp.2024.e1478","DOIUrl":"10.7748/ncyp.2024.e1478","url":null,"abstract":"<p><p>Atopic eczema is common in childhood and can continue into adulthood. Adherence to treatment is a significant factor in its effective management, but the complexity of treatment regimens can make adherence challenging. Additionally, living with the condition can have adverse psychosocial consequences for young people in particular. This article discusses treatment regimens for moderate-to-severe atopic eczema and some of the challenges encountered by children, young people and families in self-managing the condition. The authors discuss strategies that can support families to achieve optimal self-management, namely online support tools, written action plans and nurse-led eczema clinics.</p>","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" ","pages":"30-35"},"PeriodicalIF":0.0,"publicationDate":"2024-09-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139513641","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Oral and dental health promotion for children's nurses. 促进儿童护士的口腔和牙齿健康。
Nursing children and young people Pub Date : 2024-09-05 Epub Date: 2024-02-05 DOI: 10.7748/ncyp.2024.e1498
Sarah Najim, Mohammed Ali, Nabina Bhujel
{"title":"Oral and dental health promotion for children's nurses.","authors":"Sarah Najim, Mohammed Ali, Nabina Bhujel","doi":"10.7748/ncyp.2024.e1498","DOIUrl":"10.7748/ncyp.2024.e1498","url":null,"abstract":"<p><p>Tooth decay remains one of the most common preventable oral health concerns in children. After birth, advice to caregivers predominantly focuses on medical health with little attention paid to dental health. Before discharge from the maternity unit and during future hospital and community appointments, opportunistic dental advice should be provided by midwives, nurses and health visitors where possible, with the aim of preventing early onset dental disease. Registering with a dentist at birth is crucial due to long NHS dental waiting lists. Simple advice on toothbrushing should be offered, including brushing twice a day with a soft toothbrush using an age-appropriate amount of fluoride toothpaste. Mothers should be provided with information on the benefits of breastfeeding for oral health alongside tailored preventive care. Appropriate advice on bottle-feeding and weaning is required, including minimising the use of added sugar, drinking from free-flow cups after six months of age, and discouraging the use of milk bottles at bedtime and in general after one year of age. Written visual summaries can be shared with parents to consolidate verbal advice on oral and dental health.</p>","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" ","pages":"23-29"},"PeriodicalIF":0.0,"publicationDate":"2024-09-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139681667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Developing a web-based app for non-mental health nurses to assess the mental health needs and risks of children and young people. 为非心理健康护士开发基于网络的应用程序，以评估儿童和青少年的心理健康需求和风险。
Nursing children and young people Pub Date : 2024-09-05 Epub Date: 2024-02-19 DOI: 10.7748/ncyp.2024.e1503
Michael A Doyle, Manisha Singh, Phil McNulty, Siobhan Slavin, Mike Smith, Helen Walker, Wajid Khan, Barry Percy-Smith
{"title":"Developing a web-based app for non-mental health nurses to assess the mental health needs and risks of children and young people.","authors":"Michael A Doyle, Manisha Singh, Phil McNulty, Siobhan Slavin, Mike Smith, Helen Walker, Wajid Khan, Barry Percy-Smith","doi":"10.7748/ncyp.2024.e1503","DOIUrl":"10.7748/ncyp.2024.e1503","url":null,"abstract":"<p><p>There is high demand for specialist mental health services for children and young people in the UK. Non-mental health nurses are well-placed to assess the mental health needs and risks of children and young people to maximise opportunities for early intervention and relieve the pressure on child and adolescent mental health services. This article provides an overview of a service development project to develop a web-based application (app) to support non-mental health nurses when assessing the mental health needs and risks of children and young people. The article describes the development, testing and evaluation process, which involved consultation with children and young people as well as interviews, focus groups and an online survey with a range of professionals working with children and young people. Overall, the findings suggest that the app is appropriate for use by non-mental health nurses in terms of quality, functionality and acceptability.</p>","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" ","pages":"36-42"},"PeriodicalIF":0.0,"publicationDate":"2024-09-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139900559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enhancing discharge preparation for parents after complex cardiac surgery: evaluation of an e-learning resource for nurses. 加强复杂心脏手术后家长的出院准备：对护士电子学习资源的评估。
Nursing children and young people Pub Date : 2024-07-08 DOI: 10.7748/ncyp.2024.e1515
Kerry Gaskin, Amanda Daniels
{"title":"Enhancing discharge preparation for parents after complex cardiac surgery: evaluation of an e-learning resource for nurses.","authors":"Kerry Gaskin, Amanda Daniels","doi":"10.7748/ncyp.2024.e1515","DOIUrl":"https://doi.org/10.7748/ncyp.2024.e1515","url":null,"abstract":"<p><p>Parents need to be appropriately prepared by knowledgeable healthcare professionals before going home with their infant following cardiac surgery for complex congenital heart disease (CHD). A quality improvement project was undertaken between 2018 and 2021 to equip healthcare professionals including children's cardiac nurses with the knowledge required to use the Congenital Heart Assessment Tool (CHAT) to teach parents how to monitor their infant at home. The project involved developing, implementing and evaluating an e-learning resource that included simulated scenarios captured on video. An online survey showed that users perceived the e-learning resource as having a positive effect on their understanding of complex CHD and their practice of preparing parents for discharge and home monitoring.</p>","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141555646","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Whooping cough: symptoms to look out for and treatment 百日咳：应注意的症状和治疗方法
Nursing children and young people Pub Date : 2024-07-04 DOI: 10.7748/ncyp.36.4.10.s3
Erin Dean
{"title":"Whooping cough: symptoms to look out for and treatment","authors":"Erin Dean","doi":"10.7748/ncyp.36.4.10.s3","DOIUrl":"https://doi.org/10.7748/ncyp.36.4.10.s3","url":null,"abstract":"","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141678651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
PANS and PANDAS: what you need to know about these little-known autoimmune disorders PANS 和 PANDAS：关于这些鲜为人知的自身免疫性疾病，您需要了解什么？
Nursing children and young people Pub Date : 2024-07-04 DOI: 10.7748/ncyp.36.4.6.s2
Pavan Amara
{"title":"PANS and PANDAS: what you need to know about these little-known autoimmune disorders","authors":"Pavan Amara","doi":"10.7748/ncyp.36.4.6.s2","DOIUrl":"https://doi.org/10.7748/ncyp.36.4.6.s2","url":null,"abstract":"","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" 44","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141680079","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the implementation of key nursing roles in children's cardiac services. 探索在儿童心脏服务中实施关键护理角色。
Nursing children and young people Pub Date : 2024-07-04 Epub Date: 2023-12-18 DOI: 10.7748/ncyp.2024.e1515
Kerry Gaskin, Amanda Daniels
{"title":"Exploring the implementation of key nursing roles in children's cardiac services.","authors":"Kerry Gaskin, Amanda Daniels","doi":"10.7748/ncyp.2024.e1515","DOIUrl":"10.7748/ncyp.2024.e1515","url":null,"abstract":"<p><strong>Background: </strong>Children's cardiac nursing roles have changed over the past decade. Royal College of Nursing (RCN) guidance and NHS England standards have been published with the aim of standardising and enhancing nursing care for children and young people with congenital heart disease (CHD) and their families.</p><p><strong>Aim: </strong>To explore the breath of implementation of key nursing roles in children's cardiac services across the UK and Ireland and to determine whether the roles met the RCN guidance and the NHS England standards.</p><p><strong>Method: </strong>A cross-sectional survey design was used. The 150 members of the Congenital Cardiac Nurses Association (CCNA) were invited via email to participate and were sent a link to an online survey.</p><p><strong>Findings: </strong>Of the 150 potential respondents, 31 completed the survey. Overall, respondents believed that the RCN guidance had been implemented effectively and that children's cardiac nursing roles matched the RCN's example job descriptions. Respondents' comments suggested that implementation of the NHS England standards had been challenging and that progress in setting up key roles such as lead nurse, cardiac nurse educator and children's cardiac nurse specialist had been slow. Respondents felt that political and financial factors adversely affected recruitment.</p><p><strong>Conclusion: </strong>Since publication of the NHS England standards there has been some progress in the implementation, in children's cardiac services, of key nursing roles such as lead nurse and innovative nursing roles such as advanced nurse practitioner and research nurse. The findings of this study have informed the latest edition of the RCN guidance, which now includes the role of senior research nurse.</p>","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" ","pages":"22-29"},"PeriodicalIF":0.0,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138800104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Service evaluation of an independent domestic violence advocate post in a children's hospital. 对儿童医院一个独立的家庭暴力倡导者职位的服务评价。
Nursing children and young people Pub Date : 2024-07-04 Epub Date: 2023-11-20 DOI: 10.7748/ncyp.2023.e1490
Ben Donagh, Julie Taylor, Caroline Bradbury-Jones
{"title":"Service evaluation of an independent domestic violence advocate post in a children's hospital.","authors":"Ben Donagh, Julie Taylor, Caroline Bradbury-Jones","doi":"10.7748/ncyp.2023.e1490","DOIUrl":"10.7748/ncyp.2023.e1490","url":null,"abstract":"<p><p>Domestic violence and abuse (DVA) has detrimental effects on the health and well-being of children and young people exposed to it, whether they witness or experience it. The introduction of independent domestic violence advocates in UK hospitals has enhanced the safety of victims of DVA. In 2020-2021 an independent domestic violence advocate post was piloted at a children's hospital for one year, the advocate's role being to train hospital staff and support women who had experienced DVA. A service evaluation showed that the training and support provided by the independent domestic violence advocate had benefits for women, children and staff. It also confirmed that the commissioning of services for children exposed to DVA is often underfunded and overshadowed by the provision of support to adults.</p>","PeriodicalId":38902,"journal":{"name":"Nursing children and young people","volume":" ","pages":"30-35"},"PeriodicalIF":0.0,"publicationDate":"2024-07-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138048142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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