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Can participation in documentation influence experiences of involvement in care decision-making? 参与记录会影响参与护理决策的经验吗?
Open Nursing Journal Pub Date : 2013-05-16 Print Date: 2013-01-01 DOI: 10.2174/1874434620130516002
Hanna Vestala, Gunilla Hollman Frisman
{"title":"Can participation in documentation influence experiences of involvement in care decision-making?","authors":"Hanna Vestala,&nbsp;Gunilla Hollman Frisman","doi":"10.2174/1874434620130516002","DOIUrl":"https://doi.org/10.2174/1874434620130516002","url":null,"abstract":"<p><strong>Introduction: </strong>Patients have the right to influence the care they receive, but their wish to participate in care decision-making is unclear.</p><p><strong>Aim: </strong>This study investigates whether participation in nursing documentation influences patient participation in care decision-making, mastery, self-esteem, empowerment and depressive feelings among adult in-patients with chronic disease.</p><p><strong>Materials and methodology: </strong>Adult patients (n=39) with chronic diseases were randomized. The intervention group participated in nursing documentation. Upon departure, patients filled in questionnaires about participation in care decision-making, mastery, self-esteem, empowerment and depressive feelings.</p><p><strong>Results: </strong>The majority of the patients preferred a collaborative or passive role regarding care decision-making. Lack of knowledge was one reason for non-participation. Having been diagnosed more than five years previously meant stronger empowerment.</p><p><strong>Conclusion: </strong>It is a challenge for nurses to find strategies to assess patients' wishes regarding participation in care decision-making. Nurses must support patients' knowledge of their disease and empowerment.</p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"66-72"},"PeriodicalIF":0.0,"publicationDate":"2013-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.2174/1874434620130516002","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31534679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 17
Risk assessment in mental health: introducing a traffic light system in a community mental health team. 心理健康风险评估:在社区心理健康小组引入交通灯系统。
Open Nursing Journal Pub Date : 2013-05-14 Print Date: 2013-01-01 DOI: 10.2174/1874434620130529004
S Croucher, Graham R Williamson
{"title":"Risk assessment in mental health: introducing a traffic light system in a community mental health team.","authors":"S Croucher,&nbsp;Graham R Williamson","doi":"10.2174/1874434620130529004","DOIUrl":"https://doi.org/10.2174/1874434620130529004","url":null,"abstract":"<p><strong>Aims: </strong>To reports a study in which action research approach was utilised to introduce a new system of risk assessment, based on traffic lights, into a community mental health team.</p><p><strong>Background: </strong>Risk management is a serious concern in community mental healthcare where there is less direct, real-time supervision of clients than in other settings, and because inadequate management of risk can have fatal consequences when service users are a risk to themselves and/or others.</p><p><strong>Design: </strong>An action research design was undertaken, using three phases of Look, Think and Act.</p><p><strong>Methods: </strong>Data were collected between January and March of 2012. In the action research phases, qualitative data were collected in focus groups with the team's multi-disciplinary mental health professionals. Data were transcribed verbatim and analysed thematically, which involved agreement of themes and interpretations by two researchers. The Look, Think and Act phases guided the development of the project; team members worked collaboratively on the traffic light system, implemented and evaluated it.</p><p><strong>Findings: </strong>Themes were constructed that were discussed across the focus groups. These themes were: Ease of use; Risk identification and management; Legal status; Different teams' views of risk; Post-implementation evaluation.</p><p><strong>Conclusion: </strong>Action research has been used to implement change in mental health risk management. Others internationally would benefit from considering a Traffic Light System, and in using action research to implement it.</p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"82-8"},"PeriodicalIF":0.0,"publicationDate":"2013-05-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/55/07/TONURSJ-7-82.PMC3715756.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31600758","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 9
Evaluation of Staff's Job Satisfaction in the Spinal Cord Unit in Italy. 意大利脊髓科工作人员工作满意度评价。
Open Nursing Journal Pub Date : 2013-04-05 Print Date: 2013-01-01 DOI: 10.2174/1874434601307010049
Laura Cominetti, Garrino Lorenza, Rita Decorte, Nadia Felisi, Ebe Matta, Maria Vittoria Actis, Roberto Carone, Silvano Gregorino, Dimonte Valerio
{"title":"Evaluation of Staff's Job Satisfaction in the Spinal Cord Unit in Italy.","authors":"Laura Cominetti,&nbsp;Garrino Lorenza,&nbsp;Rita Decorte,&nbsp;Nadia Felisi,&nbsp;Ebe Matta,&nbsp;Maria Vittoria Actis,&nbsp;Roberto Carone,&nbsp;Silvano Gregorino,&nbsp;Dimonte Valerio","doi":"10.2174/1874434601307010049","DOIUrl":"https://doi.org/10.2174/1874434601307010049","url":null,"abstract":"<p><p>In July 2007 a Spinal Cord Unit was set up in Turin (Italy) within the newly integrated structure of the Orthopaedic Traumatologic Centre, warranting a multidisciplinary and professional approach according to International Guidelines. This approach will be possible through experimentation of a personalized care model. To analyze job satisfaction of health care professionals operating within the Spinal Cord Unit, preliminary to organizational change. Data collection was carried out by using questionnaires, interviews, shadowing. Results from quantitative analysis on the self-filled questionnaires were integrated with results from qualitative analysis. All the health care professionals operating in the field were involved. Positive aspects were the perception of carrying out a useful job, the feeling of personal fulfilment and the wish to engage new energies and resources. Problematic aspects included role conflict among staff categories and communication with managers. The positive aspects can be exploited to create professional practices facilitating role and expertise integration, information spreading and staff identification within the organization rather than team work. Data of job satisfaction and self efficacy of health care workers can be considered basic requirement before implementing an organizational change. The main challenges is multiprofessional collaboration.</p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"49-56"},"PeriodicalIF":0.0,"publicationDate":"2013-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/cd/db/TONURSJ-7-49.PMC3636486.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31492813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 8
Beliefs about health and illness in latin-american migrants with diabetes living in sweden. 居住在瑞典的拉丁美洲糖尿病移民对健康和疾病的看法。
Open Nursing Journal Pub Date : 2013-04-05 Print Date: 2013-01-01 DOI: 10.2174/1874434601307010057
Katarina Hjelm, Karin Bard
{"title":"Beliefs about health and illness in latin-american migrants with diabetes living in sweden.","authors":"Katarina Hjelm,&nbsp;Karin Bard","doi":"10.2174/1874434601307010057","DOIUrl":"https://doi.org/10.2174/1874434601307010057","url":null,"abstract":"<p><p>The study explored beliefs about health and illness in Latin American migrants diagnosed with diabetes mellitus (DM) living in Sweden, and investigated the influence on health-related behavior including self-care and care-seeking behavior. Migrants are particularly affected in the diabetes pandemia. Beliefs about health and illness determine health-related behaviour and health but no studies have been found on Latin American migrants with DM. An explorative study design with focus-group interviews of nine persons aged 36-77 years from a diabetes clinic was used. Health was described from a pathogenetic or a salutogenetic perspective: 'freedom from disease or feeling of well-being', and being autonomous and able to work. Economic hardship due to expenses for medications and food for DM affected health. Individual factors such as diet, exercise and compliance with advice, and social factors with good social relations and avoidance of stress, often caused by having experienced severe events related to migrational experiences, were considered important for maintaining health and could cause DM. Disturbed relations to others (social factors), punishment by God or Fate (supernatural factors), intake of diuretics and imbalance between warmth and cold (natural factors) were also perceived as causes. A mix of biomedical and traditional explanations and active self-care behaviour with frequent use of herbs was found. It is important to assess the individual's beliefs, and health professionals, particularly nurses, should incorporate discussions of alternative treatments and other components of explanatory models and co-operate with social workers to consider influence of finances and migrational experiences on health. </p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"57-65"},"PeriodicalIF":0.0,"publicationDate":"2013-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/2d/0a/TONURSJ-7-57.PMC3680992.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31534678","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 14
Nurse-driven training courses: impact on implementation of ambulatory blood pressure monitoring. 护士主导的培训课程:对动态血压监测实施的影响。
Open Nursing Journal Pub Date : 2013-04-05 Print Date: 2013-01-01 DOI: 10.2174/1874434601307010035
Estel Félez-Carrobé, Maria Sagarra-Tió, Araceli Romero, Montserrat Rubio, Lourdes Planas, María José Pérez-Lucena, Montserrat Baiget, Cristina Cabistañ, Jordi Félez
{"title":"Nurse-driven training courses: impact on implementation of ambulatory blood pressure monitoring.","authors":"Estel Félez-Carrobé,&nbsp;Maria Sagarra-Tió,&nbsp;Araceli Romero,&nbsp;Montserrat Rubio,&nbsp;Lourdes Planas,&nbsp;María José Pérez-Lucena,&nbsp;Montserrat Baiget,&nbsp;Cristina Cabistañ,&nbsp;Jordi Félez","doi":"10.2174/1874434601307010035","DOIUrl":"https://doi.org/10.2174/1874434601307010035","url":null,"abstract":"<p><strong>Background: </strong>Ambulatory blood pressure monitoring (ABPM) predicts cardiovascular risk and identifies white-coat and masked hypertension, efficacy of treatment and the circadian cycle of hypertensive patients.</p><p><strong>Objective: </strong>To analyze the effectiveness of ABPM implementation thoughtout a nurse-driven training program.</p><p><strong>Materials and methodology: </strong>Twenty eight professionals were involved in the study carried out in the primary care center of the metropolitan area of Barcelona that serves 34,289 inhabitants. The ABPM implementation program was driven by two nurses that held four education sessions. After a 2-year follow-up period, we assessed the outcome of attendance at the educational sessions. First, we evaluated whether the program increased the number of orders of ABPM. Second, we used a survey to evaluate to what extent the input of our educational sessions was understood by attendants. Third, we analyzed the effect ABPM results had on the treatment of patients with a bad control of their hypertension.</p><p><strong>Results: </strong>After the training sessions we found a 6-fold increase in the number of patients undergoing ABPM. We analyzed 204 hypertensive individuals: 41% dippers, 34% were non-dippers, 20% were risers and 5% were extremely dippers. According to our survey, 100% of attendants had a good practice regarding ABPM management. However only 27% of riser patients were studied with a second ABPM.</p><p><strong>Conclusions: </strong>Specific training processes are needed for implementation of ABPM and an even more concentrated effort should be focused on training in the correct interpretation of ABPM results.</p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"35-40"},"PeriodicalIF":0.0,"publicationDate":"2013-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/d4/d2/TONURSJ-7-35.PMC3636488.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31492812","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
The differentiation of chronic obstructive pulmonary disease from asthma: a review of current diagnostic and treatment recommendations. 慢性阻塞性肺疾病与哮喘的鉴别:目前诊断和治疗建议的综述
Open Nursing Journal Pub Date : 2013-03-22 Print Date: 2013-01-01 DOI: 10.2174/1874434601307010029
Pamela Spencer, Bruce Krieger
{"title":"The differentiation of chronic obstructive pulmonary disease from asthma: a review of current diagnostic and treatment recommendations.","authors":"Pamela Spencer,&nbsp;Bruce Krieger","doi":"10.2174/1874434601307010029","DOIUrl":"https://doi.org/10.2174/1874434601307010029","url":null,"abstract":"<p><strong>Aim: </strong>Global and regional data have shown that chronic airway diseases such as chronic obstructive pulmonary disease (COPD) and asthma are increasing in incidence and prevalence, with detrimental consequences to healthcare resources and the quality of life of patients. A firm diagnosis of COPD or asthma is important because the natural history, treatment, and outcomes differ between the two respiratory diseases. The aim of this review is to provide nurse practitioners (NPs) with the requisite facts to understand and improve the diagnosis and treatment of affected individuals.</p><p><strong>Methods: </strong>Articles on the differential diagnosis, treatment, and management of COPD and asthma published in peer-reviewed journals were retrieved from PubMed. Evidence-based respiratory guidelines, World Health Organization disease-related data, and US prescribing information for different respiratory medications served as additional data sources.</p><p><strong>Conclusions: </strong>NPs, along with other primary care professionals, form the frontline in diagnosing, treating, and managing COPD and asthma. Differentiating COPD from asthma has prognostic as well as significant therapeutic implications. Since NPs play a key role in diagnosing and managing patients with COPD and asthma, those with a comprehensive understanding of the diagnostic and therapeutic differences between the two diseases can help to lower the risks of exacerbations and hospitalizations, and improve the quality of life of these patients.</p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"29-34"},"PeriodicalIF":0.0,"publicationDate":"2013-03-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/67/21/TONURSJ-7-29.PMC3680994.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31628407","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 11
Initial evidence of religious practice and belief in depressed african american cancer patients. 抑郁的非裔美国癌症患者的宗教实践和信仰的初步证据。
Open Nursing Journal Pub Date : 2013-01-01 Epub Date: 2013-01-15 DOI: 10.2174/1874434601307010001
Amy Y Zhang, Faye Gary, Hui Zhu
{"title":"Initial evidence of religious practice and belief in depressed african american cancer patients.","authors":"Amy Y Zhang,&nbsp;Faye Gary,&nbsp;Hui Zhu","doi":"10.2174/1874434601307010001","DOIUrl":"https://doi.org/10.2174/1874434601307010001","url":null,"abstract":"<p><strong>Objective: </strong>This study examined spiritual coping (beliefs and practices) of depressed African American cancer patients through a comparison with depressed White cancer patients and non-depressed African American cancer patients.</p><p><strong>Methods: </strong>Using mixed methods, 74 breast (n=41) and prostate (n=33) cancer survivors including 34 depressed and 23 nondepressed African Americans and 17 depressed Whites were interviewed. The interviews were audiotaped and transcribed. Qualitative data analysis identified themes that were coded. The codes were entered into SPSS software. The Fisher's exact test was performed to examine group differences in self-reported spiritual coping.</p><p><strong>Results: </strong>Significantly more depressed African Americans questioned God when learning of a cancer diagnosis than the non-depressed African Americans (p=.03), but they did not differ from the depressed Whites in this regard (p=.70). Significantly more depressed African Americans reported having faith in God (p=.04), reading the bible (p=.02), and conversing with God (p=.01) than did the depressed Whites. They also reported praying alone (p=.01) more frequently than the depressed Whites who, on the other hand, reported praying with others (non-family members) together for one's own health more frequently (p=.04).</p><p><strong>Conclusions: </strong>Depression is associated with a deepening need for spirituality and it affects religious beliefs and practices more in African American than White cancer patients. Given its important role in the lives of African American cancer patients, spirituality may be utilized as a reasonable, culturally-based approach to better assess and treat depression in these patients.</p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"1-5"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/e1/8f/TONURSJ-7-1.PMC3551236.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31185065","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 10
Use of online machine translation for nursing literature: a questionnaire-based survey. 护理文献在线机器翻译的使用:一项基于问卷的调查。
Open Nursing Journal Pub Date : 2013-01-01 Epub Date: 2013-02-01 DOI: 10.2174/1874434601307010022
Ryoko Anazawa, Hirono Ishikawa, Kiuchi Takahiro
{"title":"Use of online machine translation for nursing literature: a questionnaire-based survey.","authors":"Ryoko Anazawa,&nbsp;Hirono Ishikawa,&nbsp;Kiuchi Takahiro","doi":"10.2174/1874434601307010022","DOIUrl":"https://doi.org/10.2174/1874434601307010022","url":null,"abstract":"<p><strong>Background: </strong>The language barrier is a significant obstacle for nurses who are not native English speakers to obtain information from international journals. Freely accessible online machine translation (MT) offers a possible solution to this problem.</p><p><strong>Aim: </strong>To explore how Japanese nursing professionals use online MT and perceive its usability in reading English articles and to discuss what should be considered for better utilisation of online MT lessening the language barrier.</p><p><strong>Method: </strong>In total, 250 randomly selected assistants and research associates at nursing colleges across Japan answered a questionnaire examining the current use of online MT and perceived usability among Japanese nurses, along with the number of articles read in English and the perceived language barrier. The items were rated on Likert scales, and t-test, ANOVA, chi-square test, and Spearman's correlation were used for analyses.</p><p><strong>Results: </strong>Of the participants, 73.8% had used online MT. More than half of them felt it was usable. The language barrier was strongly felt, and academic degrees and English proficiency level were associated factors. The perceived language barrier was related to the frequency of online MT use. No associated factor was found for the perceived usability of online MT.</p><p><strong>Conclusion: </strong>Language proficiency is an important factor for optimum utilisation of MT. A need for education in the English language, reading scientific papers, and online MT training was indicated. Cooperation with developers and providers of MT for the improvement of their systems is required.</p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"22-8"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/b7/fd/TONURSJ-7-22.PMC3580755.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31280890","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
How death anxiety impacts nurses' caring for patients at the end of life: a review of literature. 死亡焦虑如何影响护士对临终病人的护理:文献综述。
Open Nursing Journal Pub Date : 2013-01-01 Epub Date: 2013-01-24 DOI: 10.2174/1874434601307010014
L Peters, R Cant, S Payne, M O'Connor, F McDermott, K Hood, J Morphet, K Shimoinaba
{"title":"How death anxiety impacts nurses' caring for patients at the end of life: a review of literature.","authors":"L Peters,&nbsp;R Cant,&nbsp;S Payne,&nbsp;M O'Connor,&nbsp;F McDermott,&nbsp;K Hood,&nbsp;J Morphet,&nbsp;K Shimoinaba","doi":"10.2174/1874434601307010014","DOIUrl":"https://doi.org/10.2174/1874434601307010014","url":null,"abstract":"<p><p>Nurses are frequently exposed to dying patients and death in the course of their work. This experience makes individuals conscious of their own mortality, often giving rise to anxiety and unease. Nurses who have a strong anxiety about death may be less comfortable providing nursing care for patients at the end of their life. This paper explores the literature on death anxiety and nurses' attitudes to determine whether fear of death impacts on nurses' caring for dying patients. Fifteen quantitative studies published between 1990 and 2012 exploring nurses' own attitudes towards death were critically reviewed. Three key themes identified were: i). nurses' level of death anxiety; ii). death anxiety and attitudes towards caring for the dying, and iii). death education was necessary for such emotional work. Based on quantitative surveys using valid instruments, results suggested that the level of death anxiety of nurses working in hospitals in general, oncology, renal, hospice care or in community services was not high. Some studies showed an inverse association between nurses' attitude towards death and their attitude towards caring for dying patients. Younger nurses consistently reported stronger fear of death and more negative attitudes towards end-of-life patient care. Nurses need to be aware of their own beliefs. Studies from several countries showed that a worksite death education program could reduce death anxiety. This offers potential for improving nurses' caring for patients at the end of their life.</p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"14-21"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.2174/1874434601307010014","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31322942","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 320
Informal caregivers of people with dementia: problems, needs and support in the initial stage and in subsequent stages of dementia: a questionnaire survey. 痴呆症患者的非正式照护者:痴呆症初期和后续阶段的问题、需求和支持:一项问卷调查。
Open Nursing Journal Pub Date : 2013-01-01 Epub Date: 2013-01-15 DOI: 10.2174/1874434601307010006
Marieke Zwaanswijk, José M Peeters, Adriana Pa van Beek, Julie Hcm Meerveld, Anneke L Francke
{"title":"Informal caregivers of people with dementia: problems, needs and support in the initial stage and in subsequent stages of dementia: a questionnaire survey.","authors":"Marieke Zwaanswijk,&nbsp;José M Peeters,&nbsp;Adriana Pa van Beek,&nbsp;Julie Hcm Meerveld,&nbsp;Anneke L Francke","doi":"10.2174/1874434601307010006","DOIUrl":"https://doi.org/10.2174/1874434601307010006","url":null,"abstract":"<p><strong>Objective: </strong>The ageing of the population is expected to lead to an increase in the prevalence of dementia. Providing support to informal caregivers is essential to promote their wellbeing and prevent serious caregiver burden. The aim of the study is to investigate whether differences occur between the initial and later stages of dementia in terms of (1) problems experienced by informal caregivers in the provision of care, (2) use of professional support by persons with dementia, (3) informal caregivers' needs for additional professional support.</p><p><strong>Methods: </strong>The data were collected within the framework of the Dutch National Dementia Program, which was instigated in 2005 by the Dutch Ministry of Health, Welfare and Sport to improve integrated care for people with dementia and their informal caregivers. This paper is based on data of a questionnaire survey among 1494 informal caregivers, collected between September 2007 and December 2008.</p><p><strong>Results: </strong>Most informal caregivers (98-99%) experienced problems in caring for a person with dementia, irrespective of the stage of the illness process. In later stages, informal caregivers more often experienced problems in their social networks. Most dementia patients (87-94%) received ambulatory professional support.</p><p><strong>Conclusions: </strong>Since informal caregivers indicate a need for additional professional support in all stages of dementia, professional support should be provided during the entire illness process. Informal caregivers need advice on how to cope with symptoms of dementia, how to deal with behavior problems and receive more information about (early and advanced stages of) dementia and the supply of support.</p>","PeriodicalId":38868,"journal":{"name":"Open Nursing Journal","volume":"7 ","pages":"6-13"},"PeriodicalIF":0.0,"publicationDate":"2013-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.2174/1874434601307010006","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31185066","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 122
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