Research Ethics最新文献_第6页

Ethics review and conversation analysis 伦理审查和对话分析

IF 1.7

Research Ethics Pub Date : 2022-08-02 DOI: 10.1177/17470161221116552

J. Aguinaldo

{"title":"Ethics review and conversation analysis","authors":"J. Aguinaldo","doi":"10.1177/17470161221116552","DOIUrl":"https://doi.org/10.1177/17470161221116552","url":null,"abstract":"In this case study, I address the procedural ethics of conversation analysis (CA) and the collection of naturally occurring mundane interactions. I draw from the challenges that emerged from the institutional ethics review of the HIV, health and interaction study (the H2I Study), a CA project that sought to identify the practices through which normative assumptions of HIV and other health conditions are produced in conversations. Consistent with CA’s preference for naturally occurring interactions, the H2I Study collected and analysed everyday telephone calls involving people living with HIV. This article offers practical strategies CA researchers might use to navigate two ethical concerns raised about the collection of naturally occurring mundane interactions. The first questions the merits of collecting naturally occurring mundane interactions. For those unfamiliar with CA, the specific advantages of analysing naturally occurring mundane interactions may not be self-evident. This places an evidentiary burden on CA researchers to warrant the collection of this type of data. To address this concern, I suggest demonstrating in ethics applications the analytic value of CA using publicly available interactions. The second concern questions the use of verbal consent necessary for the collection of naturally occurring mundane interactions. Like most CA research, the H2I Study required flexible informed consent protocols appropriate for spontaneous and unpredictable interactions. Drawing from within and outside the CA literature, I offer three rationales for the use of verbal consent. This article is written as a practical resource for conversation analysts seeking approval from their research ethics board (REB) and for REBs who might be unfamiliar with CA research. This article contributes to a small but growing body of literature that documents not only the kinds of challenges CA researchers encounter from institutional ethics review, but the specific procedural ethics they may employ to secure ethics approval.","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"34 1","pages":"319 - 328"},"PeriodicalIF":1.7,"publicationDate":"2022-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73699467","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Can an ethics code help to achieve equity in international research collaborations? Implementing the global code of conduct for research in resource-poor settings in India and Pakistan 道德规范能否帮助实现国际研究合作的公平?在印度和巴基斯坦实施资源贫乏环境下的全球研究行为准则

IF 1.7

Research Ethics Pub Date : 2022-07-07 DOI: 10.1177/17470161221111059

K. Chatfield, C. Lightbody, Ifikar Qayum, H. Ohly, Marena Ceballos Rasgado, C. Watkins, Nicola M. Lowe

引用次数: 1

Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study. 主要研究小组成员在艾滋病毒感染者药物遗传学研究中获得知情同意的经验和做法:一项定性研究。

IF 1.7

Research Ethics Pub Date : 2022-07-01 DOI: 10.1177/17470161221076974

Sylvia Nabukenya, Joseph Ochieng, David Kaawa-Mafigiri, Ian Munabi, Janet Nakigudde, Frederick Nelson Nakwagala, John Barugahare, Betty Kwagala, Charles Ibingira, Adelline Twimwijukye, Nelson Sewankambo, Erisa Sabakaki Mwaka

{"title":"Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV: a qualitative study.","authors":"Sylvia Nabukenya, Joseph Ochieng, David Kaawa-Mafigiri, Ian Munabi, Janet Nakigudde, Frederick Nelson Nakwagala, John Barugahare, Betty Kwagala, Charles Ibingira, Adelline Twimwijukye, Nelson Sewankambo, Erisa Sabakaki Mwaka","doi":"10.1177/17470161221076974","DOIUrl":"https://doi.org/10.1177/17470161221076974","url":null,"abstract":"<p><p>This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in obtaining informed consent from HIV infected individuals in Uganda for participation in pharmacogenetic clinical trials. The study explored two prominent themes: approaches used to convey information and enhance research participants' understanding and challenges faced during the consenting process. Several barriers and facilitators for obtaining consent were identified. Innovative and potentially effective consenting strategies were identified in this study that should be studied and independently verified.</p>","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"18 3","pages":"193-209"},"PeriodicalIF":1.7,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/0e/45/nihms-1839228.PMC9536131.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9703846","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4

The intervening effect of the What Being the Parent of a New Baby is Like-Revised questionnaire on maternal affect “新生儿的父母是什么样的”-修订问卷对母亲情感的干预作用

IF 1.7

Research Ethics Pub Date : 2022-07-01 DOI: 10.1177/17470161221094929

AH Elise van Beeck, K. Pridham, Yvonne J. Kuipers

引用次数: 1

Informed consent in a tuberculosis genetic study in Cameroon: information overload, situational vulnerability and diagnostic misconception 喀麦隆结核病遗传研究中的知情同意:信息超载、情境脆弱性和诊断误解

IF 1.7

Research Ethics Pub Date : 2022-06-14 DOI: 10.1177/17470161221106674

Ali Ibrahim Mohammed-Ali, E. I. Gebremeskel, E. Yenshu, T. Nji, Apungwa Cornelius Ntabe, S. Wanji, G. Tangwa, N. S. Munung

{"title":"Informed consent in a tuberculosis genetic study in Cameroon: information overload, situational vulnerability and diagnostic misconception","authors":"Ali Ibrahim Mohammed-Ali, E. I. Gebremeskel, E. Yenshu, T. Nji, Apungwa Cornelius Ntabe, S. Wanji, G. Tangwa, N. S. Munung","doi":"10.1177/17470161221106674","DOIUrl":"https://doi.org/10.1177/17470161221106674","url":null,"abstract":"Concerns around comprehension and recall of consent information by research participants have typically been associated with low health and research literacy levels. In genomics research, this concern is heightened as the scientific and ethical complexities of genetics research, such as biobanking, genetic susceptibility, data sharing, and incidental findings may be more difficult for potential research participants to understand. However, challenges to research participants’ comprehension of consent information may be compounded by factors beyond health and research literacy levels. To identify factors that may impact research participants’ understanding and recall of consent information, we designed a qualitative study to explore whether participants enrolled in a tuberculosis genetics study (TBGEN-Africa) in Cameroon understood the objectives of the study, the risks and benefits and certain key aspects of the study such as biobanking and data sharing. The results showed that research participants had limited understanding and/or recall of the TBGEN-Africa study goals and methods. Some participants were of the opinion that TBGEN-Africa was not a genetics study because tuberculosis is not an inheritable condition. Factors that may have hindered understanding and/or recall of study information are diagnostic misconception (research participants consider research as part of medical diagnosis), and information overload and situational vulnerability (consent at a time of physical and emotional distress). There is a need for improved practices to support research participants’ understanding of consent information in genetics studies including designing the consent process in ways that minimize psychological distress and diagnostic/therapeutic misconception.","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"16 1","pages":"265 - 280"},"PeriodicalIF":1.7,"publicationDate":"2022-06-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82741137","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Ethical research landscapes in fragile and conflict-affected contexts: understanding the challenges 脆弱和受冲突影响背景下的伦理研究景观:理解挑战

IF 1.7

Research Ethics Pub Date : 2022-04-30 DOI: 10.1177/17470161221094134

Kelsey Shanks, J. Paulson

{"title":"Ethical research landscapes in fragile and conflict-affected contexts: understanding the challenges","authors":"Kelsey Shanks, J. Paulson","doi":"10.1177/17470161221094134","DOIUrl":"https://doi.org/10.1177/17470161221094134","url":null,"abstract":"As the prevalence of conflict and fragility continue to rise around the world, research is increasingly heralded as a solution. However, current ethical guidelines for working in areas suffering from institutional and social fragility, insecurity or violent conflict have been heavily critiqued as highly abstract; focussed only on data collection; detached from the realities of academia in the Global South; and potentially extractive. This article seeks to respond to that assessment by spotlighting some of the most prevalent challenges researchers face in the pursuit of ethical working practices. It explores the material and epistemic injustices that often shape and underpin research structures and relationships in these contexts. The paper draws on the authors’ experiences of research in conflict-affected and fragile contexts over the last fifteen years and on workshop discussions with researchers based in fragile and conflict-affected contexts conducted in Amman, Bogotá and Dhaka in 2019-2020. The paper works from the premise that achieving ethical research in fragile spaces is not dependent solely on activity at the site of research, but also on decisions made across the entire ecosystem of a research project. It therefore interrogates the full research landscape, from funding models, to research design (including research topics, partnerships, methods, participant selection, and researcher positionality), to dissemination plans and ethical gatekeeping. The paper critically reflects on inequities in the processes of knowledge production about conflict and fragility and the key ethical challenges that researchers encounter. It highlights the need for further guidance, support and accountability to ensure ethical research practices.","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"159 1","pages":"169 - 192"},"PeriodicalIF":1.7,"publicationDate":"2022-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79208242","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 5

Reporting incidental findings from non-biological assessments in human subject research 报告人类受试者研究中非生物学评估的偶然发现

IF 1.7

Research Ethics Pub Date : 2022-04-18 DOI: 10.1177/17470161221093877

A. Pingitore, Ashley Mack, Justin Zhang, Eric G. Devine, Jackson Doerr, Caroline Denneen

引用次数: 0

Ethical considerations in social media analytics in the context of migration: lessons learned from a Horizon 2020 project 移民背景下社交媒体分析中的伦理考虑:从地平线2020项目中吸取的经验教训

IF 1.7

Research Ethics Pub Date : 2022-03-16 DOI: 10.1177/17470161221087542

Jamie Mahoney, Kahina Le Louvier, S. Lawson, Diotima Bertel, E. Ambrosetti

{"title":"Ethical considerations in social media analytics in the context of migration: lessons learned from a Horizon 2020 project","authors":"Jamie Mahoney, Kahina Le Louvier, S. Lawson, Diotima Bertel, E. Ambrosetti","doi":"10.1177/17470161221087542","DOIUrl":"https://doi.org/10.1177/17470161221087542","url":null,"abstract":"The ubiquitous use of social platforms across the globe makes them attractive options for investigating social phenomena including migration. However, the use of social media data raises several crucial ethical issues around the areas of informed consent, anonymity and profiling of individuals, which are particularly sensitive when looking at a population such as migrants, which is often considered as ‘vulnerable’. In this paper, we discuss how the opportunities and challenges related to social media research in the context of migration impact on the development of large-scale scientific projects. Building on the EU-funded research project PERCEPTIONS, we explore the concrete challenges experienced in such projects regarding profiling, informed consent, bias, data sharing and ethical approval procedures, as well as the strategies used to mitigate them. We draw from lessons learned in this project to discuss implications and recommendations to researchers, funders and university ethics review panels. This paper contributes to the growing discussion on the ethical challenges associated with big social data research projects on migration by highlighting concrete aspects stakeholders should be looking for and questioning when involved in such large-scale scientific projects where collaboration, data sharing and transformation and practicalities are of importance.","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"59 1","pages":"226 - 240"},"PeriodicalIF":1.7,"publicationDate":"2022-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76348333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 9

Ethical issues in multilingual research situations: a focus on interview-based research 多语言研究情境中的伦理问题:以访谈为基础的研究

IF 1.7

Research Ethics Pub Date : 2022-03-16 DOI: 10.1177/17470161221085857

Natalie Schembri, Alma Jahić Jašić

{"title":"Ethical issues in multilingual research situations: a focus on interview-based research","authors":"Natalie Schembri, Alma Jahić Jašić","doi":"10.1177/17470161221085857","DOIUrl":"https://doi.org/10.1177/17470161221085857","url":null,"abstract":"Interview-based research in multilingual situations can present researchers with specific ethical challenges relating to language-based power play, data handling and presentation. Studies indicate favouring the L1 (first language) as an interviewing language may produce better quality data, but external pressures can favour English as the dominant research language. This article examines researcher perceptions and experiences of the ethical consequences of language choice and the practical issues involved. Interviews were conducted with five European researchers working on an interview-based project with experiences of diverse interviewing scenarios. The four moral principles of respect for autonomy, justice, beneficence and non-maleficence were used as a framework for analysis. The analysis revealed a nuanced picture of ethical issues in both L1- and English-oriented scenarios. This included potential misrepresentation and deculturalisation of the data in the former, and language-based power asymmetries in the latter. The findings highlight the importance of documenting ethics-related methodological details of language use, and advocates publication practices favouring the inclusion and foregrounding of L1 data.","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"29 1","pages":"210 - 225"},"PeriodicalIF":1.7,"publicationDate":"2022-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89175929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 6

Reporting and discoverability of “Tweets” quoted in published scholarship: current practice and ethical implications 发表学术论文中引用的“tweet”的报道和可发现性:当前实践和伦理含义

IF 1.7

Research Ethics Pub Date : 2022-02-03 DOI: 10.1177/17470161221076948

S. Mason, Lenandlar Singh

引用次数: 8