Global Bioethics最新文献_第5页

The features and qualities of online training modules in research ethics: a case study evaluating their institutional application for the University of Botswana. 研究伦理在线培训模块的特点和质量:博茨瓦纳大学机构应用评估案例研究

Global Bioethics Pub Date : 2019-03-26 DOI: 10.1080/11287462.2019.1592305

Dolly Mogomotsi Ntseane, Joseph Ali, Kristina Hallez, Boikanyo Mokgweetsi, Mary Kasule, Nancy E Kass

{"title":"The features and qualities of online training modules in research ethics: a case study evaluating their institutional application for the University of Botswana.","authors":"Dolly Mogomotsi Ntseane, Joseph Ali, Kristina Hallez, Boikanyo Mokgweetsi, Mary Kasule, Nancy E Kass","doi":"10.1080/11287462.2019.1592305","DOIUrl":"10.1080/11287462.2019.1592305","url":null,"abstract":"Research ethics remains a cornerstone of the scientific enterprise as it defines the boundaries of responsible conduct of research. Our aim was to systematically identify, review and test online training courses in research ethics which could be considered most appropriate for future training at the University of Botswana (UB). We used an evaluative tool that included both descriptive and evaluative criteria for assessing the strengths, weaknesses and appropriateness of 10 online research ethics courses which are publicly accessible. We then assembled Focus Group Discussions (FGDs) to engage the UB community to select the best 2-3 online courses that are considered most suited for use in future training of research ethics at UB. Twenty respondents participated in three FGDs. Our findings show that there is limited research ethics training capacity in low resourced academic institutions like UB. Online training opportunities could be used to address this challenge. Our analysis reveal that out of the 10 online courses reviewed, CITI program, Family Health International, and Training and Resource in Research Ethics Evaluation have characteristics that would make them suitable for utilization in Botswana. We believe the findings from this case study will be of value to other similarly situated research institutions.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":"31 1","pages":"133-154"},"PeriodicalIF":0.0,"publicationDate":"2019-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7733899/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38732982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia. 在基因组学研究中使用广泛同意和相关程序:来自赞比亚一所大学教学医院风湿性心脏病遗传学(RHDGen)研究参与者的观点。

Global Bioethics Pub Date : 2019-03-24 DOI: 10.1080/11287462.2019.1592868

Oliver Mweemba, John Musuku, Bongani M Mayosi, Michael Parker, Rwamahe Rutakumwa, Janet Seeley, Paulina Tindana, Jantina De Vries

{"title":"Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia.","authors":"Oliver Mweemba, John Musuku, Bongani M Mayosi, Michael Parker, Rwamahe Rutakumwa, Janet Seeley, Paulina Tindana, Jantina De Vries","doi":"10.1080/11287462.2019.1592868","DOIUrl":"https://doi.org/10.1080/11287462.2019.1592868","url":null,"abstract":"The use of broad consent for genomics research raises important ethical questions for the conduct of genomics research, including relating to its acceptability to research participants and comprehension of difficult scientific concepts. To explore these and other challenges, we conducted a study using qualitative methods with participants enrolled in an H3Africa Rheumatic Heart Disease genomics study (the RHDGen network) in Zambia to explore their views on broad consent, sample and data sharing and secondary use. In-depth interviews were conducted with RHDGen participants (n = 18), study staff (n = 5) and with individuals who refused to participate (n = 3). In general, broad consent was seen to be reasonable if reasons for storing the samples for future research use were disclosed. Some felt that broad consent should be restricted by specifying planned future studies and that secondary research should ideally relate to original disease for which samples were collected. A few participants felt that broad consent would delay the return of research results to participants. This study echoes findings in other similar studies in other parts of the continent that suggested that broad consent could be an acceptable consent model in Africa if careful thought is given to restrictions on re-use.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":"31 1","pages":"184-199"},"PeriodicalIF":0.0,"publicationDate":"2019-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/11287462.2019.1592868","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38732985","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 20

What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda. 什么是非洲基因组研究的良好伦理实践？乌干达基因组研究参与者的观点。

Global Bioethics Pub Date : 2019-03-24 DOI: 10.1080/11287462.2019.1592867

Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba, Janet Seeley

{"title":"What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda.","authors":"Rwamahe Rutakumwa, Jantina de Vries, Michael Parker, Paulina Tindana, Oliver Mweemba, Janet Seeley","doi":"10.1080/11287462.2019.1592867","DOIUrl":"10.1080/11287462.2019.1592867","url":null,"abstract":"Previous research has consistently highlighted the importance of stakeholder engagement in identifying and developing solutions to ethical challenges in genomic research, especially in Africa where such research is relatively new. In this paper, we examine what constitutes good ethical practice in research, from the perspectives of genomic research participants in Uganda. Our study was part of a multi-site qualitative study exploring these issues in Uganda, Ghana and Zambia. We purposively sampled various stakeholders including genomic research participants, researchers, research ethics committee members, policy makers and community members. This paper presents the findings from in-depth interviews with 27 people with diabetes who had participated in a diabetes genomic study. Data were collected using semi-structured interviews. Manual thematic content analysis was conducted using a framework approach. Findings indicate three key requirements that research participants see as vital for genomic research to be more responsive to research participants' needs and contextual realities: (1) de-emphasising the role of experts and institutions in the consenting process, (2) clarity about the timing and nature of feedback both of findings relevant to the health of individuals and about the broad progress of the study, and (3) more effective support for research participants during and after the study.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":"31 1","pages":"169-183"},"PeriodicalIF":0.0,"publicationDate":"2019-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7734109/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38732984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Precarity, clinical labour and graduation from Ebola clinical research in West Africa. 西非埃博拉临床研究的不稳定、临床分娩和毕业。

Global Bioethics Pub Date : 2019-01-17 eCollection Date: 2019-01-01 DOI: 10.1080/11287462.2019.1566973

Arsenii Alenichev, Vinh-Kim Nguyen

{"title":"Precarity, clinical labour and graduation from Ebola clinical research in West Africa.","authors":"Arsenii Alenichev, Vinh-Kim Nguyen","doi":"10.1080/11287462.2019.1566973","DOIUrl":"https://doi.org/10.1080/11287462.2019.1566973","url":null,"abstract":"The provision of gifts and payments for healthy volunteer subjects remains an important topic in global health research ethics. This paper provides empirical insights into theoretical debates by documenting participants' perspectives on an Ebola vaccine trial in West Africa. This trial provided hundreds of Africans with regular payments, food packages and certificates for participation. The researchers conducting the trials considered these socioeconomic provisions to be gifts in accordance with contemporary ethical standards and principles. Trial participants viewed them differently, however, approaching trial participation as a means for training and employment in what was from their perspective a new job market: the post-Ebola expansion of research and health care systems. This paper analyses participation in contemporary research by viewing the context-specific histories of trial participants through the lens of prior interventions, specifically participatory reintegration programmes conducted in Anglophone West Africa to overcome civil war crises. In particular, we argue that participation in the Ebola vaccine trial was inadvertently shaped by the design and outcomes of past reintegration programmes. Our results highlight the need to investigate existing socioeconomic landscapes which surround and indeed permeate clinical research as a prerequisite for understanding the participatory motives of vulnerable participants in West Africa and elsewhere.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":"30 1","pages":"1-18"},"PeriodicalIF":0.0,"publicationDate":"2019-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/11287462.2019.1566973","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"36906354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 10

Interpersonal stranger violence and American Muslims: an exploratory study of lived experiences and coping strategies 人际陌生人暴力与美国穆斯林:生活经历与应对策略的探索性研究

Global Bioethics Pub Date : 2019-01-01 DOI: 10.1080/11287462.2019.1683934

Priyanka Agrawal, Yousra Yusuf, O. Pasha, Shahmir H. Ali, Homayra Ziad, A. Hyder

{"title":"Interpersonal stranger violence and American Muslims: an exploratory study of lived experiences and coping strategies","authors":"Priyanka Agrawal, Yousra Yusuf, O. Pasha, Shahmir H. Ali, Homayra Ziad, A. Hyder","doi":"10.1080/11287462.2019.1683934","DOIUrl":"https://doi.org/10.1080/11287462.2019.1683934","url":null,"abstract":"ABSTRACT Hate crimes in the United States have drastically increased since 2015, particularly for the American Muslim population. There was a 17% hike in hate crimes against American Muslims in 2017 compared with the previous year. The objectives of the study were to document the experiences of interpersonal stranger violence, coping strategies and recommendations by American Muslims. We applied qualitative research methods to conduct seven focus group discussions with 37 participants in the Maryland area, throughout 2017. There were reports of verbal abuse, discrimination (in schools, workplace, college campuses, airports, Visa offices), bullying and microaggression. Individuals were torn between the public anxieties of being Muslim and their private attachment to their religious identity. Despite reports of fear and uncertainty, individuals applied caution, positive religious coping, and encouraged family and community engagement to gain and provide support to each other. This study illustrates the consequences that the 2016 US presidential election and Islamophobic rhetoric had on American Muslims. Further research will elucidate the long-term impact on health outcomes of these behaviors.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":"30 1","pages":"28 - 42"},"PeriodicalIF":0.0,"publicationDate":"2019-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/11287462.2019.1683934","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47832065","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 5

Improving institutional research ethics capacity assessments: lessons from sub-Saharan Africa. 改进机构研究伦理能力评估：撒哈拉以南非洲的经验教训。

Global Bioethics Pub Date : 2018-10-04 DOI: 10.1080/11287462.2018.1528660

Molly Deutsch-Feldman, Joseph Ali, Nancy Kass, Nthabiseng Phaladze, Charles Michelo, Nelson Sewankambo, Adnan A Hyder

{"title":"Improving institutional research ethics capacity assessments: lessons from sub-Saharan Africa.","authors":"Molly Deutsch-Feldman, Joseph Ali, Nancy Kass, Nthabiseng Phaladze, Charles Michelo, Nelson Sewankambo, Adnan A Hyder","doi":"10.1080/11287462.2018.1528660","DOIUrl":"10.1080/11287462.2018.1528660","url":null,"abstract":"The amount of biomedical research being conducted around the world has greatly expanded over the past 15 years, with particularly large growth occurring in low- and middle-income countries (LMICs). This increased focus on understanding and responding to disease burdens around the world has brought forth a desire to help LMIC institutions enhance their own capacity to conduct scientifically and ethically sound research. In support of these goals the Johns Hopkins-Fogarty African Bioethics Training Program (FABTP) has, for the past six years, partnered with three research institutions in Africa (University of Botswana, Makerere University in Uganda, and the University of Zambia) to support research ethics capacity. Each partnership began with a baseline evaluation of institutional research ethics environments in order to properly tailor capacity strengthening activities and help direct limited institutional resources. Through the course of these partnerships we have learned several lessons regarding the evaluation process and the framework used to complete the assessments (the Octagon Model). We believe that these lessons are generalizable and will be useful for groups conducting such assessments in the future.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":"31 1","pages":"120-132"},"PeriodicalIF":0.0,"publicationDate":"2018-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7734104/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10077069","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Providing monetary and non-monetary goods to research participants: perspectives and practices of researchers and Research Ethics Committees in Zambia. 向研究参与者提供货币和非货币物品：赞比亚研究人员和研究伦理委员会的观点和做法。

Global Bioethics Pub Date : 2018-10-04 DOI: 10.1080/11287462.2018.1527672

Chris Mweemba, Joseph Ali, Adnan A Hyder

{"title":"Providing monetary and non-monetary goods to research participants: perspectives and practices of researchers and Research Ethics Committees in Zambia.","authors":"Chris Mweemba, Joseph Ali, Adnan A Hyder","doi":"10.1080/11287462.2018.1527672","DOIUrl":"10.1080/11287462.2018.1527672","url":null,"abstract":"There are disagreements among ethicists on what comprises an \"appropriate\" good to offer research participants. Debates often focus on the type, quantity, timing, and ethical appropriateness of such offers, particularly in settings where participants may be socio-economically vulnerable, such as in parts of Zambia. This was a Cross-sectional online survey of researchers and Research Ethics Committees (RECs) designed to understand practices, attitudes and policies associated with provision of goods to research participants. Of 122 responding researchers, 69 met eligibility criteria. Responses were also received from five of the six Zambian RECs involved in reviewing research proposals. Forty-nine researchers (71.0%) confirmed previous experience offering goods to participants. Of these, 21 (42.9%) offered participants money only, 18 (36.7%) offered non-monetary goods, while the rest offered both monetary and non-monetary goods. Generally, goods were offered and approved by RECs to compensate for time, lost wages and transportation. One REC and 34.8% of researchers reported being subject to an institutional policy on offering goods to participants. While reimbursement is the main reason for offering goods to participants in Zambia, caution is required when deciding on the type and quantity of goods to offer given the potential for community mistrust and manipulation.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":" ","pages":"90-103"},"PeriodicalIF":0.0,"publicationDate":"2018-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7734108/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38731089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ethical challenges in research on post-abortion care with adolescents: experiences of researchers in Zambia. 青少年堕胎后护理研究中的伦理挑战：赞比亚研究人员的经验。

Global Bioethics Pub Date : 2018-10-03 DOI: 10.1080/11287462.2018.1528657

Joseph M Zulu, Joseph Ali, Kristina Hallez, Nancy E Kass, Charles Michelo, Adnan A Hyder

{"title":"Ethical challenges in research on post-abortion care with adolescents: experiences of researchers in Zambia.","authors":"Joseph M Zulu, Joseph Ali, Kristina Hallez, Nancy E Kass, Charles Michelo, Adnan A Hyder","doi":"10.1080/11287462.2018.1528657","DOIUrl":"10.1080/11287462.2018.1528657","url":null,"abstract":"Post-abortion care (PAC) research is increasingly being conducted in low- and middle-income countries (LMICs) to help reduce the high burden of unsafe abortion. This study aims to help address the evidence gap about ethical challenges that researchers in LMICs face when carrying out PAC research with adolescents. Employing an explorative qualitative approach, the study identified several ethics challenges encountered by PAC researchers in Zambia, including those associated with seeking ethics and regulatory approvals at institutional and national levels. Persistent stigma around abortion and community perceptions that PAC studies encourage adolescents to seek abortion affected adolescents' right to exercise their autonomy and to make decisions as well as exposed adolescents to social stigmatization risks. Challenges with recruitment was reported to result in abandoning of studies, thereby undermining development of PAC services that are more responsive to adolescent needs. Training needs identified included knowledge of best practices for conducting and disseminating PAC research. Strategies for addressing the ethical challenges included trust building and using less value-laden terminology when seeking permission and consent. It is essential to the future of PAC research in Zambia and globally that these important challenges be addressed through the development of comprehensive ethics guidance.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":" ","pages":"104-119"},"PeriodicalIF":0.0,"publicationDate":"2018-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7733980/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38731090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Quality of medicines in resource-limited settings: need for ethical guidance. 资源有限环境中的药品质量：需要道德指导。

Global Bioethics Pub Date : 2018-09-18 DOI: 10.1080/11287462.2018.1522991

Raffaella Ravinetto, Wim Pinxten, Lembit Rägo

{"title":"Quality of medicines in resource-limited settings: need for ethical guidance.","authors":"Raffaella Ravinetto, Wim Pinxten, Lembit Rägo","doi":"10.1080/11287462.2018.1522991","DOIUrl":"10.1080/11287462.2018.1522991","url":null,"abstract":"The quality of medicines is generally adequately assured by manufacturers and regulatory authorities for well-resourced settings, while the implementation of existing quality standards is challenged in many low- and middle-income countries. This situation of multiple pharmaceutical standards raises the question whether it could ever be ethically justified to compromise on the quality assurance of medicines depending on what individuals, communities, or societies can afford. In this paper, we contend that ethically, any unjustified exceptions to medicines' quality assurance represents a violation of the principles of beneficence and non-maleficence. Exceptions are only acceptable in exceptional and temporary circumstances, if based on a meaningful quality risk assessment, guided by a rigorous ethical framework built on the principles of independence, technical competence, transparency, and accountability. We also discuss how such exceptional and temporary circumstances should be defined/justified. Finally, we propose that empirical bioethics should acknowledge the existence of these dilemmas in public health, and help to build a normative approach to dealing with them. Ideally, an international group of experts in quality assurance/regulatory affairs and health ethicists should be set up to take up this topic and formulate a Guide to Ethical Principles of Quality Assurance of Medical Products.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":" ","pages":"81-94"},"PeriodicalIF":0.0,"publicationDate":"2018-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/11287462.2018.1522991","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"36517587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 19

"Not just dogs, but rabid dogs": tensions and conflicts amongst research volunteers in Malawi. “不仅仅是狗，还有疯狗”:马拉维研究志愿者之间的紧张和冲突。

Global Bioethics Pub Date : 2018-09-03 eCollection Date: 2018-01-01 DOI: 10.1080/11287462.2018.1509925

Mackwellings Phiri, Kate Gooding, Deborah Nyirenda, Rodrick Sambakunsi, Moses Kelly Kumwenda, Nicola Desmond

{"title":"\"Not just dogs, but rabid dogs\": tensions and conflicts amongst research volunteers in Malawi.","authors":"Mackwellings Phiri, Kate Gooding, Deborah Nyirenda, Rodrick Sambakunsi, Moses Kelly Kumwenda, Nicola Desmond","doi":"10.1080/11287462.2018.1509925","DOIUrl":"https://doi.org/10.1080/11287462.2018.1509925","url":null,"abstract":"Building trust between researchers and communities involved in research is one goal of community engagement. This paper examines the implications of community engagement for trust within communities, including trust among community volunteers who assist with research and between these volunteers and other community members. We describe the experiences of two groups of community volunteers recruited as part of an HIV and TB intervention trial in Malawi: cluster representatives, recruited both to act as key informants for TB suspects and mortality reporting and to identify and report community concerns, and community counsellors, recruited to provide semi-supervised HIV self-testing. We examine tensions experienced due to playing multiple roles, and the implications of volunteer responsibilities for short- and long-term community relationships. Data was collected through a workshop, in-depth interviews and focus group discussions with volunteers and community members. While the volunteer system initially enhanced trust among volunteers and with the community, relationships deteriorated when cluster representatives assumed an additional supervisory role part-way through the trial. Combined with challenging recruitment targets and unequal power relations between volunteers, this new role damaged trust, with implications for volunteer well-being and social relationships. These experiences suggest researchers should consider potential social implications when designing community engagement systems.","PeriodicalId":36835,"journal":{"name":"Global Bioethics","volume":" ","pages":"65-80"},"PeriodicalIF":0.0,"publicationDate":"2018-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/11287462.2018.1509925","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"36477953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 5