Ellen Wilkinson, Alexis M Brewe, Richard P Hastings, Andrew Jahoda, Susan W White, Vanessa H Bal
{"title":"Adapting Measures of Anxiety and Mood Disorders for Use with Autistic Adults: A Systematic Review.","authors":"Ellen Wilkinson, Alexis M Brewe, Richard P Hastings, Andrew Jahoda, Susan W White, Vanessa H Bal","doi":"10.1007/s40474-026-00348-3","DOIUrl":"10.1007/s40474-026-00348-3","url":null,"abstract":"<p><strong>Purpose of review: </strong>The aim of this systematic review is to investigate the adaptations made to existing anxiety and mood disorder measures used with autistic adults. It addresses the types of modifications made to such measures, the processes behind them, and the involvement of autistic individuals.</p><p><strong>Recent findings: </strong>Following PRISMA guidelines, the review searched four major databases for studies published in English since 1994 that used mood or anxiety measures with autistic adults. Out of 14,583 identified studies, 32 met the inclusion criteria for reporting adaptations. Data extraction used modified FRAME and GRIPP2 frameworks to capture the nature and justification of adaptations and the role of stakeholder involvement.</p><p><strong>Summary: </strong>The review found that only 8% of studies using mood or anxiety measures with autistic adults reported any adaptations, most of which involved using tools developed for children or converting self-report measures to proxy-report without clear justification. Very few studies included psychometric validation of the adapted tools, and only one study explicitly involved autistic adults in the adaptation process. The findings highlight a critical need for transparency in reporting adaptations, involvement of autistic individuals in tool development, and validation of adapted instruments to ensure accurate mental health assessment in autistic populations.</p><p><strong>Supplementary information: </strong>The online version contains supplementary material available at 10.1007/s40474-026-00348-3.</p>","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"13 1","pages":"4"},"PeriodicalIF":2.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12992341/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147481790","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
N. Cantin, Sandrine Gagné-Trudel, Janine Farragher, Sabine Vinçon, Emmanuel Madieu, Helene J. Polatajko, Rose Martini
{"title":"A Systematic Review of the CO-OP Approach for Children and Adults With Developmental Coordination Disorder","authors":"N. Cantin, Sandrine Gagné-Trudel, Janine Farragher, Sabine Vinçon, Emmanuel Madieu, Helene J. Polatajko, Rose Martini","doi":"10.1007/s40474-023-00290-8","DOIUrl":"https://doi.org/10.1007/s40474-023-00290-8","url":null,"abstract":"","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"11 2","pages":"1-13"},"PeriodicalIF":2.0,"publicationDate":"2024-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139380216","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sue Fletcher-Watson, Holly Joseph, Laura Crane, Georgia Pavlopoulou, Steve Lukito, Eloise Funnell, Alyssa M Alcorn, Catherine J Crompton
{"title":"Applied Principles for Inclusive Practice in Neurodevelopmental Research: A Selection and Report of Illustrative Case Studies.","authors":"Sue Fletcher-Watson, Holly Joseph, Laura Crane, Georgia Pavlopoulou, Steve Lukito, Eloise Funnell, Alyssa M Alcorn, Catherine J Crompton","doi":"10.1007/s40474-025-00318-1","DOIUrl":"10.1007/s40474-025-00318-1","url":null,"abstract":"<p><strong>Purpose of review: </strong>Inclusive research practices are important for neurodevelopmental studies, facilitating the involvement of community members throughout the research process. Highlighting this value, we reiterate our previously proposed framework for inclusive research practice and present a selection of case studies showcasing successful implementation of inclusive approaches.</p><p><strong>Recent findings: </strong>Across four invited case studies, authors illustrate how neurodivergent people can be effectively involved in research, providing meaningful input and shaping outcomes. Our report concludes that these case studies underscore the significance of building relationships, prioritizing community well-being, and considering diverse identities in neurodevelopmental research. We call for careful evaluation of the impact of inclusive practices on community representatives and advocate for enhanced reporting in academic journals, and use of online repositories to share the materials that support coproduction.</p><p><strong>Summary: </strong>Despite the recognized benefits, a lack of detailed reporting on inclusive methods poses a challenge for researchers. This report provides valuable insights for researchers aiming to instigate, establish or develop their inclusive practice.</p>","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"12 1","pages":"7"},"PeriodicalIF":2.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11832739/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143459682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"ELearning Sensory Approaches Used by Caregivers of People with Developmental Disorders: a Rapid Review","authors":"Tawanda Machingura, Smrithi Natanasubramanian, Shalini Quadros","doi":"10.1007/s40474-023-00287-3","DOIUrl":"https://doi.org/10.1007/s40474-023-00287-3","url":null,"abstract":"","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"18 10","pages":""},"PeriodicalIF":2.0,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138601055","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"I Am What I Can Do: Self-Identity Among Adolescents with Developmental Coordination Disorder (DCD)","authors":"Miri Tal-Saban, Shahar Zaguri-Vittenberg","doi":"10.1007/s40474-023-00281-9","DOIUrl":"https://doi.org/10.1007/s40474-023-00281-9","url":null,"abstract":"","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"33 3","pages":""},"PeriodicalIF":2.0,"publicationDate":"2023-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138602417","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Correction to: Early Interplay of Smell and Sight in Human Development: Insights for Early Intervention With High-Risk Infants","authors":"Giulia Purpura, Stefania Petri","doi":"10.1007/s40474-023-00289-1","DOIUrl":"https://doi.org/10.1007/s40474-023-00289-1","url":null,"abstract":"","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"39 8","pages":"239"},"PeriodicalIF":2.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139192636","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Valerie S. Swisher, Talia Y. Leman, John Piacentini, E. Ricketts
{"title":"Obsessive–Compulsive Disorder and Tourette’s Disorder Symptom Presentations: Differential Diagnosis and Treatment Considerations","authors":"Valerie S. Swisher, Talia Y. Leman, John Piacentini, E. Ricketts","doi":"10.1007/s40474-023-00284-6","DOIUrl":"https://doi.org/10.1007/s40474-023-00284-6","url":null,"abstract":"","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"42 1","pages":""},"PeriodicalIF":2.0,"publicationDate":"2023-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139213308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Early Interplay of Smell and Sight in Human Development: Insights for Early Intervention With High-Risk Infants","authors":"Giulia Purpura, Stefania Petri","doi":"10.1007/s40474-023-00285-5","DOIUrl":"https://doi.org/10.1007/s40474-023-00285-5","url":null,"abstract":"","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"15 1","pages":"232-238"},"PeriodicalIF":2.0,"publicationDate":"2023-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139231385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Iron Triangle of Familiarity for Severe Mental Illness, Developmental Coordination Disorder and Risk of Psychosis: Recognize to Prevent","authors":"Michele Poletti","doi":"10.1007/s40474-023-00286-4","DOIUrl":"https://doi.org/10.1007/s40474-023-00286-4","url":null,"abstract":"","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"19 1","pages":"286-292"},"PeriodicalIF":2.0,"publicationDate":"2023-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139234567","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Recommendations for Assessing and Managing Sleep Problems in Children with Neurodevelopmental Conditions","authors":"Anna Hamilton, Anna Joyce, Jayne Spiller","doi":"10.1007/s40474-023-00283-7","DOIUrl":"https://doi.org/10.1007/s40474-023-00283-7","url":null,"abstract":"","PeriodicalId":36446,"journal":{"name":"Current Developmental Disorders Reports","volume":"51 7","pages":"274-285"},"PeriodicalIF":2.0,"publicationDate":"2023-11-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139239798","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}