Rianne DJ Golbach , Nanda Kleinenberg-Talsma , Fons van der Lucht , Johannes SM Hobbelen , Harriët Jager-Wittenaar , Evelyn J Finnema
{"title":"Understanding frailty and its opposites from community-dwelling older peoples’ perspectives: A phenomenological qualitative study","authors":"Rianne DJ Golbach , Nanda Kleinenberg-Talsma , Fons van der Lucht , Johannes SM Hobbelen , Harriët Jager-Wittenaar , Evelyn J Finnema","doi":"10.1016/j.ijnsa.2024.100238","DOIUrl":"10.1016/j.ijnsa.2024.100238","url":null,"abstract":"<div><h3>Background</h3><p>the global population is ageing. As older people become more susceptible to frailty, an increase in frailty prevalence is also expected. Although frailty has been defined before in research, older peoples’ perceptions of frailty do not always coincide with those used in research or medical settings. Further exploring community-dwelling older people's viewpoints regarding frailty is essential for tailored care and policy.</p></div><div><h3>Aim</h3><p>the aim of this study was to explore the perspectives of Dutch community-dwelling older people regarding frailty and its opposing concepts.</p></div><div><h3>Methods</h3><p>a phenomenological qualitative study was conducted for which we carried out semi-structured interviews with independently living older people aged ≥65. Following the interviews, the participants filled out the Tilburg Frailty Indicator.</p></div><div><h3>Results</h3><p>the different domains of frailty: ‘physical’, ‘psychological’, and ‘social’, were recognized by participants. In addition, other aspects, such as financial capacity and digital functioning, have been identified. Four aspects of the meaning of frailty were identified in the category of other frailty definitions: ‘dependency’, ‘frailty as getting hurt’, ‘frailty as prone to deterioration’, and ‘frailty as experiences of loss and sacrifice’. Participants also described the opposites of frailty, which could also be distinguished according to the ‘physical’, ‘psychological’, and ‘social’ domains. In addition, participants mentioned the following concepts as opposing frailty: ‘vitality’, ‘resilience’, ‘independence’, ‘autonomy’, and ‘ambition’.</p></div><div><h3>Conclusion</h3><p>we found that frailty and its opposites share similar aspects, including physical, psychological, and social dimensions. Additionally, older people perceived cognition as an essential aspect of frailty. The psychological dimension seemed more dominant in concepts opposed to frailty, which raises opportunities to focus on the positive aspects and build on older people's (psychological) capabilities in managing frailty and its consequences. Based on these findings, policymakers and care professionals should consider the perspectives of older people regarding frailty and its opposing concepts.</p></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100238"},"PeriodicalIF":3.1,"publicationDate":"2024-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000651/pdfft?md5=4ca8c4072a808f90efdde1f131df01bf&pid=1-s2.0-S2666142X24000651-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142162464","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Influential factors affecting nursing performance amid COVID-19: A cross-sectional study on nurse preparedness for infectious diseases","authors":"Kyung-sook Cha , Dohyun Lee","doi":"10.1016/j.ijnsa.2024.100239","DOIUrl":"10.1016/j.ijnsa.2024.100239","url":null,"abstract":"<div><h3>Background</h3><div>The emergence of infectious diseases such as SARS, MERS, and COVID-19 underscores the need for effective nursing preparedness.</div></div><div><h3>Objectives</h3><div>This cross-sectional study sought to pinpoint the factors that impact nursing performance during the COVID-19 pandemic, focusing on nurses' self-efficacy, work environment, knowledge, and attitudes.</div></div><div><h3>Design</h3><div>The study utilized a cross-sectional design.</div></div><div><h3>Settings & participants</h3><div>Between December 13, 2021, and January 21, 2022, an online and offline survey was conducted with 314 nurses who provided in-person care in tertiary and general hospitals throughout South Korea.</div></div><div><h3>Methods</h3><div>Using <em>t</em>-tests and ANOVA, the research compared nursing performance based on various demographic and work-related characteristics like age, gender, education, marital status, and other working conditions. A research model was formulated via structural equation modeling, positioning nursing performance as the dependent variable. The independent variables included career experience (indirect effect), work environment (indirect effect), COVID-19 knowledge (indirect effect), attitude toward COVID-19 (direct effect), and self-efficacy (direct effect). Data analysis was carried out using SPSS 26 and AMOS 28.</div></div><div><h3>Results</h3><div>The study demonstrated that self-efficacy and attitude toward COVID-19 significantly influence nursing performance, as reflected by robust critical ratios (CR) for self-efficacy (CR = 11.291, <em>p</em> < 0.001) and attitude (CR = 5.133, <em>p <</em> 0.001). They account for 43 % (<em>R</em><sup>2</sup> = 0.43) of the variability of nursing performance. Self-efficacy was positively predicted by clinical experience (CR = 3.160, p = 0.002) and work environment (CR = 4.328, <em>p <</em> 0.001), while attitude was similarly influenced (CR = 3.557 and 2.926, respectively). However, clinical experience and work environment only explained 8 % (<em>R</em><sup>2</sup> = 0.08) of self-efficacy and 16 % (<em>R</em><sup>2</sup> = 0.16) of attitude. Knowledge about COVID-19 exhibited a statistically insignificant influence in the dynamics.</div></div><div><h3>Conclusions</h3><div>This study, conducted among Korean nurses during the COVID-19 pandemic, reveals that self-efficacy and attitudes towards COVID-19 are key predictors of nursing performance, overshadowing knowledge's influence. These findings suggest the critical role of psychological factors in healthcare delivery during crises and underscore the need for enhanced focus on developing self-efficacy and positive attitudes in nursing education and professional development. Additionally, demographic and professional variables, including age, clinical experience, educational level, and marital status affect nursing performance.</div></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100239"},"PeriodicalIF":3.1,"publicationDate":"2024-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142326823","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Carolyn Blair , Joanne Shields , Robert Mullan , William Johnston , Andrew Davenport , Denis Fouque , Kamyar Kalantar-Zadeh , Peter Maxwell , Clare McKeaveney , Helen Noble , Sam Porter , David Seres , Adrian Slee , Ian Swaine , Miles Witham , Joanne Reid
{"title":"The lived experience of renal cachexia: An interpretive phenomenological analysis","authors":"Carolyn Blair , Joanne Shields , Robert Mullan , William Johnston , Andrew Davenport , Denis Fouque , Kamyar Kalantar-Zadeh , Peter Maxwell , Clare McKeaveney , Helen Noble , Sam Porter , David Seres , Adrian Slee , Ian Swaine , Miles Witham , Joanne Reid","doi":"10.1016/j.ijnsa.2024.100235","DOIUrl":"10.1016/j.ijnsa.2024.100235","url":null,"abstract":"<div><h3>Background</h3><p>Chronic kidney disease is common, affecting up to 13 % of the global population, and is predicted to become the fifth leading cause of 'life years lost' by 2040. Individuals with end-stage kidney disease commonly develop complications such as protein-energy wasting and cachexia which further worsens their prognosis. The syndrome of ‘renal cachexia’ is poorly understood, under-diagnosed and even if recognised has limited treatment options.</p></div><div><h3>Objective</h3><p>To explore the lived experience of renal cachexia for individuals with end-stage kidney disease and the interrelated experiences of their carers.</p></div><div><h3>Design</h3><p>This interpretive phenomenological study was designed to facilitate an in-depth exploration of how patients and carers experience of renal cachexia. To improve and document the quality, transparency, and consistency of patient and public involvement in this study the Guidance for Reporting Involvement of Patients and the Public-Short Format was followed.</p></div><div><h3>Setting</h3><p>The study was conducted across two nephrology directorates, within two healthcare trusts in the United Kingdom.</p></div><div><h3>Participants</h3><p>Seven participants who met the inclusion criteria were recruited for this study, four patients (three female, one male) and three carers (two male, one female).</p></div><div><h3>Methods</h3><p>We employed a purposive sampling strategy. Data collection was conducted between July 2022 and December 2023. Interviews were semi-structured, audio-recorded, transcribed verbatim and analysed in six steps by two researchers using interpretive phenomenological analysis. Ethical approval was approved by the Office for Research Ethics Committees Northern Ireland (Reference: 22/NI/0107).</p></div><div><h3>Results</h3><p>Analysis generated six group experiential themes: the lived experience of appetite loss, functional decline and temporal coping, weight loss a visual metaphor of concern, social withdrawal and vulnerability, the emotional toll of eating challenges and psychological strain amidst a lack of information about cachexia.</p></div><div><h3>Conclusion</h3><p>This is the first qualitative study exploring the lived experience of renal cachexia for patients and carers. Our study highlights that psycho-social and educational support is urgently needed. Additionally, healthcare professionals need better information provision to help them to recognise and respond to the needs of this population. Further research is required to develop models of holistic support which could help patients and carers cope with the impact of renal cachexia and optimally manage this syndrome within the family unit.</p></div><div><h3>Registration</h3><p>N/A.</p></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100235"},"PeriodicalIF":3.1,"publicationDate":"2024-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000626/pdfft?md5=ec906371cb41ebd24b2b06fe016e369f&pid=1-s2.0-S2666142X24000626-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142272801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Liu Shichang, Zhang Jufang, Yang Xiangying, Wu Yali, Ning Li
{"title":"Self-management in the post-hair transplantation recovery period among patients with androgenetic alopecia: A qualitative study","authors":"Liu Shichang, Zhang Jufang, Yang Xiangying, Wu Yali, Ning Li","doi":"10.1016/j.ijnsa.2024.100234","DOIUrl":"10.1016/j.ijnsa.2024.100234","url":null,"abstract":"<div><h3>Background</h3><p>The success of hair transplantation surgeries for androgenetic alopecia is evaluated by postoperative long-term outcomes. Patients' self-management during the long recovery period affects this outcome.</p></div><div><h3>Objective</h3><p>This study aimed to explore patients' self-management status, facilitators, and impediments in the postoperative period and to provide a reference for developing a postoperative self-management intervention program.</p></div><div><h3>Methods</h3><p>Patients who underwent hair transplantation for androgenetic alopecia were selected using purposive sampling. They were interviewed using one-to-one semi-structured interviews at a general tertiary hospital in Hangzhou from March to April 2022. Qualitative research analysis software Nvivo 12.0 was used to analyze the collected data.</p></div><div><h3>Results</h3><p>The self-management of postoperative patients with androgenetic alopecia during the recovery period encompasses six areas: more problems with postoperative medication (e.g., not being able to take medication on time) and wound care (e.g., not daring to shampoo, etc.), not being able to review their postoperative condition on time (due to busy schedules at work and at home), more hindrances to the establishment of good living habits (affected by overtime work, socialising, and bad habits of the people around them), and seeking positive ways of relieving bad emotions (stress, anxiety, depression, etc.), worrying about one's image during recovery and taking the initiative to obtain and use resources to promote recovery (through the Internet, books, etc.)</p></div><div><h3>Conclusions</h3><p>Various factors impact the postoperative self-management abilities of patients, including medication, shampooing, and emotions. It is essential to design support programs to enhance these abilities and improve long-term hair transplantation outcomes.</p></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100234"},"PeriodicalIF":3.1,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000614/pdfft?md5=8af42989f33b1735ea2ebe669bceda3b&pid=1-s2.0-S2666142X24000614-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142089038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marco Enea , Laura Maniscalco , Neeltje de Vries , Anke Boone , Olivia Lavreysen , Kamil Baranski , Silvana Miceli , Alessandra Savatteri , Walter Mazzucco , Santo Fruscione , Malgorzata Kowalska , Peter de Winter , Szymon Szemik , Lode Godderis , Domenica Matranga
{"title":"Exploring the reasons behind nurses' intentions to leave their hospital or profession: A cross-sectional survey","authors":"Marco Enea , Laura Maniscalco , Neeltje de Vries , Anke Boone , Olivia Lavreysen , Kamil Baranski , Silvana Miceli , Alessandra Savatteri , Walter Mazzucco , Santo Fruscione , Malgorzata Kowalska , Peter de Winter , Szymon Szemik , Lode Godderis , Domenica Matranga","doi":"10.1016/j.ijnsa.2024.100232","DOIUrl":"10.1016/j.ijnsa.2024.100232","url":null,"abstract":"<div><h3>Background</h3><p>Multiple factors can fuel nurses’ intention to leave their employing hospital or their profession. Job dissatisfaction and burnout are contributors to this decision. Sociodemographic and work context factors can also play a role in explaining nurses’ intention to leave.</p></div><div><h3>Objective</h3><p>To investigate the role of sociodemographic and work context factors, including job resources, job demands, job dissatisfaction, depersonalization, and emotional exhaustion, on nurses’ intention to leave their hospital or their profession.</p></div><div><h3>Design</h3><p>Multicentre cross-sectional study.</p></div><div><h3>Setting(s)</h3><p>Eight European hospitals, two per each country, including Belgium, the Netherlands, Italy, and Poland.</p></div><div><h3>Participants</h3><p>From May 16 to September 30, 2022, we collected 1,350 complete responses from nurses working at the selected hospitals (13 % response rate).</p></div><div><h3>Methods</h3><p>The intention to leave was assessed through two 5-Likert scale outcomes, agreeing with the intention to leave the profession and the intention to leave the hospital. Logistic regression models were used for statistical analysis.</p></div><div><h3>Results</h3><p>At the multivariable analysis, a higher intention to leave the hospital was observed for: younger age, having served on the frontline against COVID-19, lack of quipment, living in the Netherlands, emotional exhaustion, dissatisfaction with work prospects, and dissatisfaction with the use of professional abilities. There was a higher intention to leave the profession for: younger age, living in the Netherlands, having work-related health problems, depersonalization, emotional exhaustion, low possibilities of professional development, dissatisfaction with work prospects, lack of use of professional abilities, overall ob issatisfaction, and dissatisfaction with salary. Nurses living in Italy expressed the lowest intention to leave.</p></div><div><h3>Conclusion</h3><p>While confirming the role of job dissatisfaction and burnout, we found higher intention to leave for young nurses, nurses with work-related health problems, and caregivers during the COVID-19 pandemic. Dissatisfaction with work prospects, professional development, and salary also increased the intention to leave. We call for educators, managers, and policymakers to address these factors to retain at-risk nursing categories, implementing strategies to mitigate intentions to leave.</p></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100232"},"PeriodicalIF":3.1,"publicationDate":"2024-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000596/pdfft?md5=5786b4fcfb295a5ce60831d93399fa16&pid=1-s2.0-S2666142X24000596-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141978864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anna Louisa Hoffmann-Hoffrichter , Mike Rommerskirch-Manietta , Johannes Michael Bergmann , Martina Roes , Bernhard Holle , Rebecca Palm
{"title":"Describing the status quo of person-centred dementia care in different types of care units in German nursing homes: A convergent mixed methods study","authors":"Anna Louisa Hoffmann-Hoffrichter , Mike Rommerskirch-Manietta , Johannes Michael Bergmann , Martina Roes , Bernhard Holle , Rebecca Palm","doi":"10.1016/j.ijnsa.2024.100233","DOIUrl":"10.1016/j.ijnsa.2024.100233","url":null,"abstract":"<div><h3>Background</h3><p>The policies and mission statements of nursing homes support the implementation of person-centred dementia care. The Dementia Policy Questionnaire assesses the content of person-centred dementia care in policies. To date, it is unknown whether these policies exist exclusively in dementia care units and whether the policies are consistent with the mission statements of nursing homes.</p></div><div><h3>Objective</h3><p>We aimed to (1) investigate nursing home care unit types regarding the existence of policies measured by the Dementia Policy Questionnaire, (2) explore whether these policies are addressed in the mission statements of the nursing homes, and (3) integrate both results.</p></div><div><h3>Design</h3><p>This is a convergent mixed methods study performed with a quantitative and qualitative dataset that was collected in the BeStaDem survey (2020).</p></div><div><h3>Setting</h3><p>The BeStaDem survey included licensed nursing homes in Germany.</p></div><div><h3>Participants</h3><p>A total of 134 nursing home administrators provided informed consent to participate in the BeStaDem survey.</p></div><div><h3>Methods</h3><p>For quantitative data, we performed Fisher's exact test to identify differences in the Dementia Policy Questionnaire item distribution of several types of care units (aim 1). To support the results of Fisher's exact test, we additionally applied logistic regression analysis. For qualitative data, we analyzed the mission statements deductively with the qualitative content analysis method (aim 2). For integration, we used a convergent triangulation approach (aim 3).</p></div><div><h3>Results</h3><p>The quantitative data collected from 134 German nursing homes show significant associations among person-centred dementia care policies, such as behavior assessment, and nursing homes with dementia care units. Regarding the qualitative data, of the 60 mission statements in total, eight mission statements of nursing homes with dementia care units exclusively address aspects such as dementia-specific interventions. The convergent triangulation approach shows that the answers given by the nursing homes in the quantitative survey are not always consistent with what they address in their mission statements.</p></div><div><h3>Conclusions</h3><p>Nursing homes with dementia care units provide more person-centred dementia care policies than other care unit types do but mostly do not address these aspects in their mission statements. The implementation of person-centredness benefits from the existence of policies and mission statements if nursing homes clearly address what is meant by person-centred dementia care in their nursing home.</p></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100233"},"PeriodicalIF":3.1,"publicationDate":"2024-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000602/pdfft?md5=648f449905d505b3f344a0ec63ffeee6&pid=1-s2.0-S2666142X24000602-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141997794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Wenjing Luo , Qiuhong Zhou , Jingcan Xu , Zheyu Tan , Xinyi Li , Ying Ye , Honglin Wang , Shuyi Peng
{"title":"Development and validation of a brief diabetic foot risk screening scale for diabetic patients","authors":"Wenjing Luo , Qiuhong Zhou , Jingcan Xu , Zheyu Tan , Xinyi Li , Ying Ye , Honglin Wang , Shuyi Peng","doi":"10.1016/j.ijnsa.2024.100230","DOIUrl":"10.1016/j.ijnsa.2024.100230","url":null,"abstract":"<div><h3>Objective</h3><div>To develop a concise screening tool for diabetic foot risk assessment in patients with diabetes, and rigorously evaluate its reliability and validity.</div></div><div><h3>Methods</h3><div>390 adults diagnosed with diabetes were selected for a study in Changsha, China. The study was conducted in two phases. In the first phase, initial items were developed by amalgamating existing diabetic foot risk screening tools and group discussions. Additionally, diabetic foot experts established content validity during this phase. In the second phase, the validity and reliability of the developed items were evaluated through various methods such as item analysis, exploratory factor analysis, confirmatory factor analysis, Cronbach's alpha coefficient, retest reliability, inter-rater reliability, ROC curve and AUC.</div></div><div><h3>Results</h3><div>The Brief Diabetic Foot Risk Screening Scale consists of 6 dimensions and 19 items. An exploratory factor analysis was conducted on the scale, revealing six principal factors that accounted for 74.139 % of the total variance. The I-CVI was greater than 0.8, indicating good content validity, while the S-CVI was 0.737. Confirmatory factor analysis showed that the model fit well. The scale's Cronbach's α coefficient was 0.770, indicating good internal consistency, and its test-retest reliability was 0.958. The AUC suggests that the Brief Diabetic Foot Risk Screening Scale is an effective measure for identifying diabetic foot.</div></div><div><h3>Conclusion</h3><div>The Scale is a reliable and valid tool for assessing foot risk.</div></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100230"},"PeriodicalIF":3.1,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142322688","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Louise Engelbrecht Buur , Hilary Louise Bekker , Henning Søndergaard , Michell Kannegaard , Jens Kristian Madsen , Dinah Sherzad Khatir , Jeanette Finderup
{"title":"Feasibility and acceptability of the ShareD dEciSIon making for patients with kidney failuRE to improve end-of-life care intervention: A pilot multicentre randomised controlled trial","authors":"Louise Engelbrecht Buur , Hilary Louise Bekker , Henning Søndergaard , Michell Kannegaard , Jens Kristian Madsen , Dinah Sherzad Khatir , Jeanette Finderup","doi":"10.1016/j.ijnsa.2024.100231","DOIUrl":"10.1016/j.ijnsa.2024.100231","url":null,"abstract":"<div><h3>Background</h3><p>Kidney failure is associated with a high disease burden and high mortality rates. National and international guidelines recommend health professionals involve patients with kidney failure in making decisions about end-of-life care, but implementation of these conversations within kidney services varies. We developed the DESIRE (ShareD dEciSIon-making for patients with kidney failuRE to improve end-of-life care) intervention from our studies investigating multiple decision maker needs and experiences of end-of-life care in kidney services. The DESIRE intervention's three components are a training programme for health professionals, a patient decision aid, and a kidney service consultation held to facilitate shared decision-making conversations about planning end-of-life care.</p></div><div><h3>Objectives</h3><p>To assess the feasibility and acceptability of integrating the DESIRE intervention within kidney services.</p></div><div><h3>Design</h3><p>A pilot study using a multicentre randomised controlled design.</p></div><div><h3>Setting</h3><p>Four Danish nephrology departments.</p></div><div><h3>Participants</h3><p>Patients with kidney failure who were 75 years of age or above, their relatives, and health professionals.</p></div><div><h3>Methods</h3><p>Patients were randomised to either the intervention or usual care. Feasibility data regarding delivering the intervention, the trial design, and outcome measures were collected through questionnaires and audio recordings at four points in time: before, during, post, and 3 months after the intervention. Acceptability data were collected through semi-structured interviews with patients and relatives, as well as a focus group with health professionals post the intervention.</p></div><div><h3>Results</h3><p>Twenty-seven patients out of the 32 planned were randomised either to the intervention (<em>n</em>= 14) or usual care (<em>n</em>= 13). In addition, four relatives and 12 health professionals participated. Follow-up was completed by 81 % (<em>n</em>= 22) of patient participants. We found that both feasibility and acceptability data suggested health professionals improved their decision support and shared decision-making skills via the training. Patient and relative participants experienced the intervention as supporting a shared decision-making process; from audio recordings, we showed health professionals were able to support proactively decision-making about end-of-life care within these consultations. All stakeholders perceived the intervention to be effective in promoting shared decision-making and relevant for supporting end-of-life care planning.</p></div><div><h3>Conclusions</h3><p>Participant feedback indicated that the DESIRE intervention can be integrated into practice to support patients, relatives, and health professionals in planning end-of-life care alongside the management of worsening kidney failure. Minimising exhaustion and enhancing engagement with the in","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100231"},"PeriodicalIF":3.1,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000584/pdfft?md5=298dc81b7c55b102912551e388ef2639&pid=1-s2.0-S2666142X24000584-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141952824","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hege Wathne , Carl May , Ingvild Margreta Morken , Marianne Storm , Anne Marie Lunde Husebø
{"title":"Acceptability and usability of a nurse-assisted remote patient monitoring intervention for the post-hospital follow-up of patients with long-term illness: A qualitative study","authors":"Hege Wathne , Carl May , Ingvild Margreta Morken , Marianne Storm , Anne Marie Lunde Husebø","doi":"10.1016/j.ijnsa.2024.100229","DOIUrl":"10.1016/j.ijnsa.2024.100229","url":null,"abstract":"<div><h3>Background</h3><p>Patients living with long-term chronic illnesses often need ongoing medical attention, lifestyle adjustments, and psychosocial support beyond the initial diagnosis and treatment phases. Many experience illness deterioration and subsequently require hospitalisation, especially in the transition period after hospital discharge. A promising strategy for managing long-term conditions is promoting self-management. eHealth interventions involving remote patient monitoring have the potential to promote self-management and offer a more seamless bridge between the hospital and the patient´s home environment. However, such interventions can only significantly impact health and health care if they are effective, accepted and adopted by users, normalised into routine practice and everyday life, and able to be widely implemented. Feasibility studies are used to determine whether an intervention is suitable for the target population and effective in achieving its intended goal. They may also provide critical information about an intervention´s acceptability and usability.</p></div><div><h3>Objectives</h3><p>We aimed to evaluate the acceptability and usability of a nurse-assisted remote patient monitoring intervention for the post-hospital follow-up of patients with long-term illnesses by use of the core constructs of normalisation process theory.</p></div><div><h3>Design</h3><p>A descriptive and explanatory qualitative approach was used, with patients observed during training and semi-structured interviews conducted with patients and nurses after study completion.</p></div><div><h3>Settings</h3><p>Participants were recruited from two university hospitals in Norway between December 2021 and February 2023.</p></div><div><h3>Participants</h3><p>Ten patients were observed during training, and 27 patients and eight nurses were interviewed after study completion.</p></div><div><h3>Methods</h3><p>Structured and overt observations were made while the patients received training to operate the remote patient monitoring service, guided by an observation guide. Semi-structured interviews were conducted with patients and nurse navigators about their experiences of remote follow-up care, guided by open ended questions. Data analysis followed a stepwise deductive inductive method.</p></div><div><h3>Results</h3><p>`Achieving acceptance and usability through digital social interaction´ emerged as a unifying theme that bridged the experiences of patients with long-term illnesses and the nurse navigators. This overarching theme was illustrated by four sub-themes, which all reflected the usability and acceptability of the nurse-assisted remote patient monitoring service in various ways.</p></div><div><h3>Conclusion</h3><p>Acceptability and usability are critical factors to consider when evaluating remote patient monitoring interventions. In this study, the most important feature for promoting acceptability and usability was the interaction between patie","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100229"},"PeriodicalIF":3.1,"publicationDate":"2024-07-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000560/pdfft?md5=51ef0fc17c6d65888894aeae87fc8e1f&pid=1-s2.0-S2666142X24000560-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141849590","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Health economic evaluations of programs reducing preterm birth: A scoping review","authors":"Anvitaa Chadha, Suzanne Moore, Sue Kildea, Yu Gao","doi":"10.1016/j.ijnsa.2024.100228","DOIUrl":"10.1016/j.ijnsa.2024.100228","url":null,"abstract":"<div><h3>Background</h3><p>Preterm birth has lifelong implications, placing a burden on individuals, families, communities and the health system. While several interventions to reduce preterm birth have been economically evaluated, no scoping review has been undertaken.</p></div><div><h3>Objective</h3><p>To conduct a scoping review of economic evaluations of interventions that have reduced preterm birth, identify gaps in the literature and inform future health care providers and researchers on the economic value of preterm birth reduction interventions.</p></div><div><h3>Methods</h3><p>Databases such as PubMed, Cumulative Index to Nursing and Allied Health Literature, EBSCO, Medline (OVID), EMBASE, NHS Health Technology Assessment, the Cost-Effectiveness Analysis Registry, and the NHS Economic Evaluation Database and grey literature were comprehensively searched for economic evaluations of interventions that reduced preterm birth conducted since 2000. Items included: preterm birth reduction, intervention, method of economic evaluation, time-horizon of analysis, study population, perspective of evaluation, effectiveness, and costs. Review processes were undertaken by two reviewers, and disagreements were resolved by the larger team.</p></div><div><h3>Results</h3><p>Fifteen publications met the inclusion criteria, including pharmacological interventions (5), telemedicine (1), diagnostic procedures (2), public and community health (2), prenatal care and nutrition (2), father's involvement (1), doula care (1) and a comprehensive maternity service redesign (1). Variations were observed in study design, time-horizon, study population and method of evaluation. Most studies (n = 13) adopted either a healthcare payer, provider, or system perspective. Shorter timehorizons for analysis were adopted in all studies, except one that conducted a lifetime economic evaluation. All included interventions, except one, were found to be costeffective, cost-beneficial or led to cost-savings.</p></div><div><h3>Conclusion</h3><p>Despite preterm birth placing a high economic burden on health systems and society, we found a dearth of long-term economic evaluations of prevention and reduction initiatives. Future research on preterm birth reduction initiatives should include economic evaluations.</p></div>","PeriodicalId":34476,"journal":{"name":"International Journal of Nursing Studies Advances","volume":"7 ","pages":"Article 100228"},"PeriodicalIF":3.1,"publicationDate":"2024-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2666142X24000559/pdfft?md5=e4ffbef59c6e7a295335188b8b3d3211&pid=1-s2.0-S2666142X24000559-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141839385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}