Shira H Fischer, Zachary Predmore, Elizabeth Roth, Lori Uscher-Pines, Matthew Baird, Joshua Breslau
{"title":"Use Of And Willingness To Use Video Telehealth Through The COVID-19 Pandemic.","authors":"Shira H Fischer, Zachary Predmore, Elizabeth Roth, Lori Uscher-Pines, Matthew Baird, Joshua Breslau","doi":"10.1377/hlthaff.2022.00118","DOIUrl":"https://doi.org/10.1377/hlthaff.2022.00118","url":null,"abstract":"<p><p>We examined use of and willingness to use video telehealth during the COVID-19 pandemic in a longitudinally followed cohort. Between February 2019 and March 2021, use and willingness to use increased among nearly all subgroups, with large increases among Black adults and adults with lower educational attainment. In March 2021 Black adults, adults ages 20-39, and high-income adults reported the greatest willingness to use video telehealth.</p>","PeriodicalId":300542,"journal":{"name":"Health affairs (Project Hope)","volume":" ","pages":"1645-1651"},"PeriodicalIF":9.7,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40472429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Excess Deaths Will Continue In The United States Until The Root Causes Are Addressed.","authors":"Steven H Woolf","doi":"10.1377/hlthaff.2022.01103","DOIUrl":"https://doi.org/10.1377/hlthaff.2022.01103","url":null,"abstract":"<p><p>Estimates of excess deaths in 2020-21 only begin to capture the devastating health impact of the COVID-19 pandemic in the US. More deaths will occur, and a larger number of Americans will experience disease complications as delays in accessing care and increasing socioeconomic precarity take their toll. No other high-income country experienced as high a death rate during the pandemic. For decades Americans have experienced poorer health outcomes than people in peer countries because of deficiencies in the health care system, adverse socioeconomic conditions, unhealthy physical and social environments, systemic racism, and policies that jeopardize health. The pandemic exposed problems in each of these areas and highlighted the power of policy makers, including those in state government, to alter health outcomes.</p>","PeriodicalId":300542,"journal":{"name":"Health affairs (Project Hope)","volume":" ","pages":"1562-1564"},"PeriodicalIF":9.7,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40472432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Willyanne DeCormier Plosky, Ari Ne'eman, Benjamin C Silverman, David H Strauss, Leslie P Francis, Michael A Stein, Barbara E Bierer
{"title":"Excluding People With Disabilities From Clinical Research: Eligibility Criteria Lack Clarity And Justification.","authors":"Willyanne DeCormier Plosky, Ari Ne'eman, Benjamin C Silverman, David H Strauss, Leslie P Francis, Michael A Stein, Barbara E Bierer","doi":"10.1377/hlthaff.2022.00520","DOIUrl":"https://doi.org/10.1377/hlthaff.2022.00520","url":null,"abstract":"<p><p>The exclusion of people with disabilities from clinical research without appropriate justification is discriminatory, is counter to federal regulations and research guidelines, and limits study generalizability. This matter is understudied, and data on the disability status of trial participants are rarely collected or reported. We analyzed ninety-seven recent interventional protocols in four therapeutic areas registered on ClinicalTrials.gov. Eighty-five percent of protocols allowed broad investigator discretion to determine eligibility, whereas only 18 percent explicitly permitted people with disabilities to use forms of support (such as supported decision making or assistive devices) to facilitate study participation. Eligibility criteria affecting people with disabilities included exclusions for psychiatric (68 percent), substance use (62 percent), HIV or hepatitis (53 percent), cognitive or intellectual (42 percent), visual (34 percent), hearing (10 percent), mobility (9 percent), long-term care (6 percent), and speech and communication (3 percent) disability-related domains. Documented justification was provided for only 24 percent of these exclusions. We recommend greater scrutiny of study eligibility criteria, scientific or ethical justification of exclusions, and accessible study design.</p>","PeriodicalId":300542,"journal":{"name":"Health affairs (Project Hope)","volume":" ","pages":"1423-1432"},"PeriodicalIF":9.7,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40394781","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Monika Mitra, Linda Long-Bellil, Ian Moura, Angel Miles, H Stephen Kaye
{"title":"Advancing Health Equity And Reducing Health Disparities For People With Disabilities In The United States.","authors":"Monika Mitra, Linda Long-Bellil, Ian Moura, Angel Miles, H Stephen Kaye","doi":"10.1377/hlthaff.2022.00499","DOIUrl":"https://doi.org/10.1377/hlthaff.2022.00499","url":null,"abstract":"<p><p>Definitions of <i>disability</i> have evolved over time. Consistent with the biopsychosocial model used by the World Health Organization, we conceptualize disability as an interaction between a person's functional impairments or chronic health conditions and the physical and social environment. Having a disability is not synonymous with poor health, and maintaining and improving health is equally important for both people with and people without disabilities. In this article we review estimates of disability prevalence in the US and present evidence of differences in prevalence by race, ethnicity, and sexual orientation; health disparities by disability status and type of disability; and health disparities for people whose disability intersects with other forms of marginalization. We suggest policy changes to advance equity, reduce disparities, and enhance the health and well-being of all Americans with disabilities.</p>","PeriodicalId":300542,"journal":{"name":"Health affairs (Project Hope)","volume":" ","pages":"1379-1386"},"PeriodicalIF":9.7,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40393934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ilhom Akobirshoev, Michael Vetter, Lisa I Iezzoni, Sowmya R Rao, Monika Mitra
{"title":"Delayed Medical Care And Unmet Care Needs Due To The COVID-19 Pandemic Among Adults With Disabilities In The US.","authors":"Ilhom Akobirshoev, Michael Vetter, Lisa I Iezzoni, Sowmya R Rao, Monika Mitra","doi":"10.1377/hlthaff.2022.00509","DOIUrl":"https://doi.org/10.1377/hlthaff.2022.00509","url":null,"abstract":"<p><p>Pandemic-related disruptions in access to medical care services, along with elevated rates of comorbidity, increase the risk for severe illness and death from COVID-19 for people with disabilities. Analyzing data from the 2020 National Health Interview Survey, we examined the impact of the COVID-19 pandemic on adults' access to medical care services by presence and type of disability. Adults with disabilities, including in each disability category, experienced significant disparities in delayed and unmet need for medical care during the first year of the COVID-19 pandemic. Improving data collection on disabled Americans according to disability status and type of disability, designating people with disabilities as a Special Medically Underserved Population under the Public Health Services Act, and incorporating standardized disability data in electronic health record systems would inform policies, programs, and interventions to achieve equitable access to high-quality medical care services that meet the needs of all people with disabilities during the COVID-19 pandemic and beyond.</p>","PeriodicalId":300542,"journal":{"name":"Health affairs (Project Hope)","volume":" ","pages":"1505-1512"},"PeriodicalIF":9.7,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40394456","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Brian W Powers, Charron L Long, Stephanie M Franklin
{"title":"Loneliness Among Older Adults: The Authors Reply.","authors":"Brian W Powers, Charron L Long, Stephanie M Franklin","doi":"10.1377/hlthaff.2022.00810","DOIUrl":"https://doi.org/10.1377/hlthaff.2022.00810","url":null,"abstract":"","PeriodicalId":300542,"journal":{"name":"Health affairs (Project Hope)","volume":" ","pages":"1530"},"PeriodicalIF":9.7,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40394458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Assessing The Dangers Of A Hospital Stay For Patients With Developmental Disability In England, 2017-19.","authors":"Rocco Friebel, Laia Maynou","doi":"10.1377/hlthaff.2022.00493","DOIUrl":"https://doi.org/10.1377/hlthaff.2022.00493","url":null,"abstract":"<p><p>People with developmental disability have higher health care needs and lower life expectancy compared with the general population. Poor quality of care resulting from interpersonal and systemic discrimination may further entrench existing inequalities. We examined the prevalence of five avoidable in-hospital patient safety incidents (adverse drug reactions, hospital-acquired infections, pressure ulcers, postoperative pulmonary embolism or deep vein thrombosis, and postoperative sepsis) for four developmental disability groups (people with intellectual disability, chromosomal abnormalities, pervasive developmental disorders, and congenital malformation syndrome) in the English National Health Service during the period April 2017-March 2019. We found that the likelihood of experiencing harm in disability groups was up to 2.7-fold higher than in patients without developmental disability. Patient safety incidents led to an excess length-of-stay in hospital of 3.6-15.4 days and an increased mortality risk of 1.4-15.0 percent. We show persisting quality differences in patients with developmental disability, requiring an explicit national policy focus on the needs of such patients to reduce inequalities, reach parity of care, and lower the burden on health system resources.</p>","PeriodicalId":300542,"journal":{"name":"Health affairs (Project Hope)","volume":" ","pages":"1486-1495"},"PeriodicalIF":9.7,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40393932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Willi Horner-Johnson, Mekhala Dissanayake, Nicole Marshall, Jonathan M Snowden
{"title":"Perinatal Health Risks And Outcomes Among US Women With Self-Reported Disability, 2011-19.","authors":"Willi Horner-Johnson, Mekhala Dissanayake, Nicole Marshall, Jonathan M Snowden","doi":"10.1377/hlthaff.2022.00497","DOIUrl":"https://doi.org/10.1377/hlthaff.2022.00497","url":null,"abstract":"<p><p>Women with disabilities experience elevated risk for adverse pregnancy outcomes. Most studies have inferred disabilities from diagnosis codes, likely undercounting disabilities. We analyzed data, including self-reported disability status, from the National Survey of Family Growth for the period 2011-19. We compared respondents with and without disabilities on these characteristics: smoking during pregnancy, delayed prenatal care, preterm birth, and low birthweight. A total of 19.5 percent of respondents who had given birth reported a disability, which is a much higher prevalence than estimates reported in US studies using diagnosis codes. Respondents with disabilities were twice as likely as those without disabilities to have smoked during pregnancy (19.0 percent versus 8.9 percent). They also had 24 percent and 29 percent higher risk for preterm birth and low birthweight, respectively. Our findings suggest that studies using diagnosis codes may represent only a small proportion of pregnancies among people with disabilities. Measurement and analysis of self-reported disability would facilitate better understanding of the full extent of disability-related disparities, per the Affordable Care Act.</p>","PeriodicalId":300542,"journal":{"name":"Health affairs (Project Hope)","volume":" ","pages":"1477-1485"},"PeriodicalIF":9.7,"publicationDate":"2022-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40374386","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}