Journal of Pediatric Hematology-Oncology Nursing最新文献

The Moderating Effect of Family Functioning on the Association Between Family Burden and Posttraumatic Stress Symptoms Among Parents of Children With Leukemia in Northwest China: A Cross-Sectional Study. 家庭功能对西北地区白血病患儿父母家庭负担与创伤后应激症状关系的调节作用：一项横断面研究

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-10-08 DOI: 10.1177/27527530251365227

Zixuan Liu, Ping Yan, Guiyuan Ma, Yuqiao Xiao, Li Liu, Cho Lee Wong, Hong Zhang, Tianruixue Zhang, Jia Xu, Can Gu

{"title":"The Moderating Effect of Family Functioning on the Association Between Family Burden and Posttraumatic Stress Symptoms Among Parents of Children With Leukemia in Northwest China: A Cross-Sectional Study.","authors":"Zixuan Liu, Ping Yan, Guiyuan Ma, Yuqiao Xiao, Li Liu, Cho Lee Wong, Hong Zhang, Tianruixue Zhang, Jia Xu, Can Gu","doi":"10.1177/27527530251365227","DOIUrl":"https://doi.org/10.1177/27527530251365227","url":null,"abstract":"Background: Parents of children with leukemia are at a high risk of developing posttraumatic stress symptoms (PTSS). Evidence suggests that family functioning, family burden, and PTSS are closely related, but there is a lack of exploration of the relationships between these three. This study aimed to analyze the current levels of PTSS among parents of children with leukemia in Xinjiang, China, and to explore whether family functioning moderates the association between family burden and PTSS. Method: A cross-sectional survey was conducted with 197 parents of children with leukemia from a tertiary hospital in Xinjiang, China. Participants completed a social demographic questionnaire, the Family Adaptation, Partnership, Growth, Affection, and Resolve (APGAR) Index for measuring family functioning, the Family Burden Scale of Disease, and the Posttraumatic Stress Disorder Checklist for DSM-5 (PCL-5). The PROCESS macro was performed to analyze the moderating effect of family functioning. Results: In our study, the prevalence of parental PTSS was 35.0%. Family burden had a significant positive effect on PTSS (β = .263, p < .001), and family functioning significantly moderated this relationship (β = -.634, p = .018). For the same family burden scores, the high family functioning group exhibited lower levels of PTSS compared with the low family functioning group. Discussion: Family functioning could mitigate the negative impact of family burden on PTSS among parents of children with leukemia. Health professionals should develop targeted family-centered care measures to ameliorate family functioning and decrease family burden, thus improving parents' mental health.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"27527530251365227"},"PeriodicalIF":1.5,"publicationDate":"2025-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145253196","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Quality of Discharge Teaching Scale Validity, Reliability, and Measurement Invariance in Pediatric Hematopoietic Stem Cell Transplant. 儿童造血干细胞移植出院教学量表效度、信度及测量不变性的研究。

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-10-01 DOI: 10.1177/27527530251369751

Kimberly L Klages, Courtney Gibson, Julia K Herriott, Lauren Szulczewski, Ahna L H Pai

{"title":"Quality of Discharge Teaching Scale Validity, Reliability, and Measurement Invariance in Pediatric Hematopoietic Stem Cell Transplant.","authors":"Kimberly L Klages, Courtney Gibson, Julia K Herriott, Lauren Szulczewski, Ahna L H Pai","doi":"10.1177/27527530251369751","DOIUrl":"10.1177/27527530251369751","url":null,"abstract":"BackgroundAdherence to treatment following hematopoietic stem cell transplant (HSCT) is critical, yet the complexity and demands of postdischarge regimens often lead to suboptimal adherence among families unprepared for the transition home. Discharge teaching has been reliably evaluated using the Quality of Discharge Teaching Scale (QDTS) across several health conditions, with higher scores associated with improved parental readiness and pediatric health outcomes. This scale may be helpful in identifying areas for improvement in pediatric HSCT discharge teaching if validated in a pediatric HSCT population.MethodThis study recruited 120 caregivers of children who recently underwent HSCT to complete the QDTS along with measures of parental efficacy/control, psychological distress, and psychosocial risk factors. Confirmatory factor analysis (CFA) was used to examine the factor structure and measurement invariance of the scale, while internal reliability was assessed using Cronbach's alpha and correlations with related constructs.ResultsCFA showed that the QDTS had adequate model fit and was invariant across biological sex and income, but not diagnosis. The QDTS demonstrated good internal reliability (content α = .76; delivery α = .90) and criterion validity, with significant correlations with the subscales of related constructs. Independent samples t-tests revealed that caregivers of children with malignant diagnoses reported worse quality of discharge teaching compared to those with nonmalignant diagnoses.DiscussionThis study supports the use of the QDTS as a valid and reliable tool for assessing the quality of discharge teaching for caregivers of children undergoing pediatric HSCT.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"27527530251369751"},"PeriodicalIF":1.5,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12490800/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145207840","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Fun Leads the Way-Healthcare Staff's Experiences of Promoting Physical Activity Among Children Who Survived a Brain Tumor: A Qualitative Study. 乐趣引领道路——医疗人员在脑肿瘤存活儿童中促进体育活动的经验：一项定性研究。

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-09-01 DOI: 10.1177/27527530251356250

Åsa Persson Dobruna, Helena Igelström, Pernilla Åsenlöf, Gustaf Ljungman, Sara Frygner-Holm

{"title":"Fun Leads the Way-Healthcare Staff's Experiences of Promoting Physical Activity Among Children Who Survived a Brain Tumor: A Qualitative Study.","authors":"Åsa Persson Dobruna, Helena Igelström, Pernilla Åsenlöf, Gustaf Ljungman, Sara Frygner-Holm","doi":"10.1177/27527530251356250","DOIUrl":"https://doi.org/10.1177/27527530251356250","url":null,"abstract":"Background: The majority of children who survive a brain tumor suffer from late effects. Physical activity can have a positive impact on physical fitness and mitigate late effects. Despite this, survivors are less physically active than their peers. The aim of the study was to explore healthcare staff's experiences of promoting physical activity for these children. Method: A qualitative design was used with semi-structured online focus group interviews with 24 experienced healthcare staff from all of Sweden's pediatric oncology centers. The interviews were analyzed with inductive content analysis. Results: Six main categories were identified: (a) child-centered approach to physical activity; (b) physical activity is for everyone; (c) late effects and consequences have an impact on physical activity; (d) cancer is not the only influence; (e) the importance of information and support; and (f) bridging knowledge between stakeholders. Discussion: The healthcare staff discussed the complexity of late effects, in particular fatigue, as a barrier to physical activity. The social component of doing activities together with peers was highlighted, and group activities were suggested. The value of involving children in decision-making and letting them choose a fun activity was stressed. In conclusion, the health care staff emphasized that physical activity interventions for children who survived a brain tumor should be joyful, individually tailored, and child-centered to enhance motivation and adherence. However, less significance was put on the amount of physical activity necessary to improve physical fitness.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"27527530251356250"},"PeriodicalIF":1.5,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144971960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluating the Impact of a Patient Family Advocate for Latino Families With Non-English Language Preference in the Pediatric Oncology Setting: A Process Paper. 评估患者家庭倡导对儿童肿瘤环境中非英语语言偏好的拉丁裔家庭的影响：一篇过程论文。

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-08-06 DOI: 10.1177/27527530251356972

Austin P Rondou, Jeanne Little

{"title":"Evaluating the Impact of a Patient Family Advocate for Latino Families With Non-English Language Preference in the Pediatric Oncology Setting: A Process Paper.","authors":"Austin P Rondou, Jeanne Little","doi":"10.1177/27527530251356972","DOIUrl":"https://doi.org/10.1177/27527530251356972","url":null,"abstract":"BackgroundNon-English language preference (NELP) is a major barrier to accessing and navigating the U.S. health care system and exacerbates health disparities. Patient family advocates historically serve as health educators, cultural liaisons, and system navigators. A Spanish NELP advocate has worked at a large pediatric hematology and oncology program for several years, but the impact and specific tasks of the role had not been examined.MethodAn evaluation process was developed to (a) examine the role's potential impact on Spanish NELP families' enrollment in treatment studies compared to non-Spanish NELP families; (b) review patient experience survey responses; and (c) compare survivorship data for children with cancer from Latino, White, and non-Latino families of color.ResultsSpanish NELP families enrolled in research studies more frequently than non-Spanish NELP families and refused study enrollment the least. Spanish NELP families had higher survey response rates but were less satisfied. Latino children with cancer treated at the health system had lower 5-year relative survival compared to their White peers locally and nationally, but Latino children with leukemia had better relative survival than their national peers.DiscussionThe high enrollment in research studies and higher than national leukemia survival rates suggests that the advocate may contribute to outcomes, but more insight into patient experience and relative survival rates of Latino children is warranted. Expanding the number of advocates with updated position qualifications, enhancing advocate documentation, adding reimbursement potential, and improving compensation are recommendations to further develop the role.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"27527530251356972"},"PeriodicalIF":1.5,"publicationDate":"2025-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144790221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Impact of a Virtual Art Program on Quality of Life for Children, Adolescents, and Young Adults With Cancer. 虚拟艺术项目对儿童、青少年和年轻癌症患者生活质量的影响。

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-08-05 DOI: 10.1177/27527530251346730

Sarah M Wolff, Howard L Smith, Neill F Piland, Kerstin Lynam

{"title":"Impact of a Virtual Art Program on Quality of Life for Children, Adolescents, and Young Adults With Cancer.","authors":"Sarah M Wolff, Howard L Smith, Neill F Piland, Kerstin Lynam","doi":"10.1177/27527530251346730","DOIUrl":"https://doi.org/10.1177/27527530251346730","url":null,"abstract":"BackgroundPediatric cancer impacts children's physical, cognitive, and psychological well-being. Evidence-based interventions are needed to improve quality of life (QOL) and address social isolation. Virtual art programs may address these needs by enhancing accessibility.MethodThis study analyzed secondary data from the virtual Pablove Shutterbugs Photography Program (vPSPP), a 6-week virtual photography course for pediatric cancer patients. QOL was measured at baseline, midprogram, and postprogram using the PedsQL 4.0 SF15 scale (n = 201). Multilevel modeling was employed to assess change in QOL, accounting for individual variation. Semistructured interviews (n = 15 participants and parents) explored perceived program benefits.ResultsMultilevel modeling showed significant increases in QOL over time for both children and teens. The effect size was medium (d = 0.67). Participants with lower baseline QOL experienced the greatest gains, and random slope variance highlighted individual differences in program response. Qualitative themes included (a) reduced isolation and stronger social connections, (b) identity development, (c) increased confidence and personal agency, and (d) improved motivation and distraction from pain.DiscussionFindings suggest that participation in the vPSPP may have contributed to improvements in QOL among pediatric cancer patients, highlighting the potential value of virtual art programs in supporting emotional expression, social connection, and self-esteem. Future research should investigate long-term outcomes, scalability, and strategies to address access barriers to expand the reach of art-based interventions in pediatric oncology care.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"27527530251346730"},"PeriodicalIF":1.5,"publicationDate":"2025-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144790222","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Beyond the Bundle: Reducing Central Line-Associated Bloodstream Infections on a Pediatric Hematology, Oncology, and Bone Marrow Transplant Unit. 超越捆绑：减少儿童血液学，肿瘤学和骨髓移植单位的中央静脉相关血流感染。

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-07-01 Epub Date: 2025-07-16 DOI: 10.1177/27527530251346733

Mindy Bibart, Emily A Eisel, Kimberly Taylor, Randal Olshefski, Cheryl Camacho, Micheal Welty, Robert Gajarski, Terri Guinipero

{"title":"Beyond the Bundle: Reducing Central Line-Associated Bloodstream Infections on a Pediatric Hematology, Oncology, and Bone Marrow Transplant Unit.","authors":"Mindy Bibart, Emily A Eisel, Kimberly Taylor, Randal Olshefski, Cheryl Camacho, Micheal Welty, Robert Gajarski, Terri Guinipero","doi":"10.1177/27527530251346733","DOIUrl":"10.1177/27527530251346733","url":null,"abstract":"BackgroundPediatric patients with cancer or undergoing hematopoietic stem cell transplantation (HSCT) are at an increased risk for central line-associated bloodstream infections (CLABSIs). Previous reports show that while primary prevention bundle elements have resulted in clinically important reductions in CLABSI events, they have not eliminated events in this patient population.MethodThe quality improvement (QI) project team implemented four interventions to reduce CLABSI in a pediatric inpatient combined hematology/oncology/bone marrow transplant (PHOB) unit, using the Plan-Do-Study-Act improvement model. (a) In situ simulation provided a practical application to bedside nurses to practice skills and critical thinking without disrupting care. (b) Interdisciplinary proactive safety huddles provided an opportunity to generate patient-specific strategies for patients with unique risks. (c) Prevantics® Device swabs for catheter hub disinfection, replacing single agent isopropyl alcohol. (d) Levofloxacin prophylaxis was expanded to a broader scope of patients.ResultsDuring the 30-month project period, the inpatient PHOB unit experienced a reduced nonmucosal barrier injury (non-MBI) CLABSI rate from a baseline of 2.19 infections per 1,000 catheter days to 0.52 infections per 1,000 catheter days. MBI CLABSI rates remained unchanged.DiscussionWhile traditional prevention bundle elements play an essential role in CLABSI prevention efforts, pediatric patients with cancer or undergoing HSCT may require additional targeted strategies to achieve desired results. Our QI project, implemented at a large, freestanding pediatric academic center effectively reduced CLABSI rates during a 30-month project. We believe the interventions may be effective in other PHOB programs.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"183-192"},"PeriodicalIF":1.5,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144643691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parent Resolution of Their Child's Cancer Diagnosis: Associations With Parent Stress and Quality of Life. 父母对孩子癌症诊断的解决：与父母压力和生活质量的关系。

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-07-01 Epub Date: 2025-06-12 DOI: 10.1177/27527530251342155

Marcia A Winter, Jessica Greenlee, Nour Al Ghriwati, Megan Carlson, Olle Jane Z Sahler, Thomas G O'Connor

{"title":"Parent Resolution of Their Child's Cancer Diagnosis: Associations With Parent Stress and Quality of Life.","authors":"Marcia A Winter, Jessica Greenlee, Nour Al Ghriwati, Megan Carlson, Olle Jane Z Sahler, Thomas G O'Connor","doi":"10.1177/27527530251342155","DOIUrl":"10.1177/27527530251342155","url":null,"abstract":"BackgroundTrauma or profound distress has been reported in parents responding to their child's cancer diagnosis. Parent resolution of their child's medical diagnosis reflects acceptance and forward movement from the initial shock, grief, and intense emotionality. This short-term, longitudinal study examined the stability of resolution over the first 3 months from cancer diagnosis and whether parents' resolution of their children's diagnosis was associated with concurrent mood and illness-related stress and subsequent quality of life (QOL).MethodForty-one parents/guardians (77% mothers) of children newly diagnosed with cancer or malignant tumor were recruited from pediatric oncology clinics. Parent semistructured interview responses at 2 weeks and 3 months postdiagnosis were coded as resolved or unresolved with respect to child diagnosis. Parents reported their mood and stress at 2 weeks postdiagnosis and their QOL at 6 months postdiagnosis.ResultsResolution was stable over time: parents' resolution status stayed the same from diagnosis to the 3-month follow-up. Unresolved status was associated with greater concurrent parent mood problems (p = .05, Mdifference = 7.512) and stress about their own physical and emotional problems (p = .04, Mdifference = 0.537), and poorer subsequent physical (p = .00, Mdifference = -33.11) and emotional (p = .03, Mdifference = -21.11) QOL.DiscussionParents' resolution of their child's diagnosis was evident soon after diagnosis, remained stable, and was associated with parent health and QOL. Further research is needed to examine if the manner in which parents adapt to, and make meaning of, their child's diagnosis predicts long-term functioning for children with cancer and their parents.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"145-154"},"PeriodicalIF":1.5,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144286642","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

How Pediatric Oncology Nurses Can Foster the Establishment of Trust With Children and Their Parents: A Review of the Literature. 儿科肿瘤护士如何培养与儿童及其父母建立信任：文献综述。

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-07-01 Epub Date: 2025-08-11 DOI: 10.1177/27527530251342177

Lyndsay Jerusha MacKay, Emma Nickel, Una Chang, Elizabeth Kreiter, Nolan LagrisolaI

{"title":"How Pediatric Oncology Nurses Can Foster the Establishment of Trust With Children and Their Parents: A Review of the Literature.","authors":"Lyndsay Jerusha MacKay, Emma Nickel, Una Chang, Elizabeth Kreiter, Nolan LagrisolaI","doi":"10.1177/27527530251342177","DOIUrl":"10.1177/27527530251342177","url":null,"abstract":"BackgroundChildren with cancer and their parents experience high levels of stress and can struggle with their mental health during active treatment. Pediatric oncology nurses are well positioned to establish therapeutic relationships with children/parents and offer support. Since trust is the foundation of therapeutic relationships, the purpose of this review was to provide a comprehensive overview of how pediatric oncology nurses develop trust with children and their parents.MethodA sub-analysis of 28 articles retrieved from a large scoping review using the Joanna Briggs methodology was completed to synthesize evidence on how trust is established between pediatric oncology nurses and children/parents. Data from included studies were extracted and thematically analyzed to present key themes.ResultsTrust was foundational to the provision of quality, patient- and family-centered nursing care. Key themes include: relationships, communication, nurses' approach, nurses' expertise, parental support, partnership, and mistrust.DiscussionPediatric oncology nurses should be made aware of the trust-building strategies identified in this review. Findings from this review should be utilized to inform future research that further investigates how trust is established between pediatric oncology nurses and children/parents, including how trust creates an environment for establishing therapeutic relationships and the provision of psychosocial support.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"165-182"},"PeriodicalIF":1.5,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144817720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Sustainable Virtual Model for Comprehensive Childhood Cancer Survivorship Care. 一个可持续的儿童癌症生存综合护理虚拟模型。

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-07-01 Epub Date: 2025-07-31 DOI: 10.1177/27527530251348185

Kelly Anderson, Laura Dorneman, Jessice Busse, Lori Knowles, Jennifer L Raybin, W Michael Vanderlind, Melinda D Wu, Susan Lindemulder

{"title":"A Sustainable Virtual Model for Comprehensive Childhood Cancer Survivorship Care.","authors":"Kelly Anderson, Laura Dorneman, Jessice Busse, Lori Knowles, Jennifer L Raybin, W Michael Vanderlind, Melinda D Wu, Susan Lindemulder","doi":"10.1177/27527530251348185","DOIUrl":"10.1177/27527530251348185","url":null,"abstract":"Background: Childhood cancer survivorship care is complex and requires access to an interdisciplinary team. The COVID-19 pandemic altered in-person care and limited support for survivors. We report here our virtually based interdisciplinary clinic model, which provides education, screening, and psychosocial assessment/interventions to childhood cancer survivors (CCSs). Method: We initiated a virtual model for up to seven interdisciplinary providers (physician, advanced practice provider, neuropsychologist, social worker, educational specialist, dentist, registered nurse, dietician, or research associate) in separate locations to see patients in an integrated clinic. The patient virtually joined one appointment and completed successive encounters as a continuous patient visit experience. Results: We maintained our patient volume with virtual survivorship visits compared to the traditional in-person model. Between 2020 and 2023, we completed 593 interdisciplinary virtual survivorship visits, sustaining our clinic numbers after the pandemic subsided. Providers reported a high level of acceptance. Virtual comprehensive survivorship visits continue to be offered at our institution. Discussion: Our findings suggest that this model is feasible, sustainable, and preferred for a subset of the CCS population. Preferred reasons reported by families included: flexibility, decreased time off work, less cost/time for travel, more comfort in their home, and avoidance of traumatic response to the hospital environment. This process paper presents a guiding framework for interdisciplinary teams to provide a virtual care option to CCSs in a more accessible, flexible format.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"193-201"},"PeriodicalIF":1.5,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144754629","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Effect of Parental Active Participation on Pain and Anxiety in Supporting Children With Cancer Experiencing a Venipuncture: A Randomized Controlled Study. 父母积极参与对支持癌症儿童静脉穿刺疼痛和焦虑的影响：一项随机对照研究。

IF 1.5 4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2025-07-01 Epub Date: 2025-07-31 DOI: 10.1177/27527530251342170

Münevver Erkul, Pınar Bekar, Emine Efe

{"title":"The Effect of Parental Active Participation on Pain and Anxiety in Supporting Children With Cancer Experiencing a Venipuncture: A Randomized Controlled Study.","authors":"Münevver Erkul, Pınar Bekar, Emine Efe","doi":"10.1177/27527530251342170","DOIUrl":"10.1177/27527530251342170","url":null,"abstract":"BackgroundDuring cancer treatment, children are exposed to many painful procedures. In some areas of the world, the most common exposure may be the venipuncture procedure. This painful process causes increased anxiety in children. Studies have reported that sometimes pain procedures are more traumatic than the disease itself. In general pediatrics, parent support is effective in reducing pain and anxiety during venipuncture. This study aimed to evaluate the effect of parental involvement on relieving pain and anxiety in children with cancer during venipuncture compared to children whose parents were present but not involved.MethodThis randomized controlled trial included 60 participants receiving hospitalized in the pediatric oncology clinic. Through randomization, 30 children had parents coached in supportive behaviors (parental involvement) and 30 children had parents present but without coaching as a usual care control group.ResultsCompared to children in the control group, children in the parental involvement group had significantly lower pain (p < .001) and anxiety (p < .001) scores reported after the procedure and lower heart rates during the procedure (p < .05).DiscussionResults support the efficacy of parental involvement compared to routine procedures such as venipuncture. Building on these results, future research is needed on how to involve the parent during the procedure and for which types of children and parental presence have the best effect.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":" ","pages":"155-164"},"PeriodicalIF":1.5,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144754637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0