Journal of Pediatric Hematology-Oncology Nursing最新文献_第10页

Resilience-Promoting Programs in Families of Children With Cancer: A Systematic Review 癌症儿童家庭的恢复力促进项目:系统回顾

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2022-02-05 DOI: 10.1177/27527530211055997

Mina Park, Eun Kyoung Choi, H. Lee, Hyeon Eun Park, Altantuya Chinbayar

{"title":"Resilience-Promoting Programs in Families of Children With Cancer: A Systematic Review","authors":"Mina Park, Eun Kyoung Choi, H. Lee, Hyeon Eun Park, Altantuya Chinbayar","doi":"10.1177/27527530211055997","DOIUrl":"https://doi.org/10.1177/27527530211055997","url":null,"abstract":"Purpose: Pediatric cancer is a difficult experience for children and their families. It is thus necessary to promote family resilience for the effective treatment and quality of life improvement among children with cancer. The aim of this systematic review was to identify the components of a resilience-promoting program for children with cancer and their families and to synthesize the literature findings on the outcomes of the resilience-promoting program. Method: A systematic search of the literature was conducted using five databases (PubMed, CHIAHL, PsycINFO, Web of Science, and Research Information Sharing Service) up to July 22, 2020. The search was limited to studies published in English and Korean, and to grey literature published in Korea. Studies were critically appraised using the Mixed Methods Appraisal Tool and Cochrane Risk of Bias tool. Extracted data were summarized as tables. Results: Eight studies were selected. The main components of the resilience-promoting program were providing information (on strategies, medical and psychoeducation, and community resources) and emotional coping (expressing feeling, reappraising cognition about adversity, and stress management). The main outcomes of these programs were reinforced outcomes (resilience, benefit finding, coping, positive affect, problem-solving skills, family adaptation, and self-concept) and improved outcomes (in depression, posttraumatic stress, anxiety, impact of illness of the family, and mood). Conclusion: As the components and outcomes of family resilience-promoting programs vary, it is necessary to consistently use valid tools to effectively identify interventions. Additionally, various methodological studies are required to further analyze the effect of these programs.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":"39 1","pages":"185 - 201"},"PeriodicalIF":0.0,"publicationDate":"2022-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43370348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Usability and Acceptability of the QuestLeukemia Mobile Application: A Pilot Study for An Educational and Psychological Intervention for Children with Chronic Illnesses QuestLeukemia移动应用程序的可用性和可接受性:慢性疾病儿童教育和心理干预的试点研究

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2022-01-25 DOI: 10.1177/27527530221068422

Rachel Meyer, Kira Wang, Alexander Yearley, Sydney Grob, Jacob Zeitlin, Jack Bloomfeld, Melissa You, Diane Lee, Melanie Bonner, N. Shah, Kristin Page

{"title":"Usability and Acceptability of the QuestLeukemia Mobile Application: A Pilot Study for An Educational and Psychological Intervention for Children with Chronic Illnesses","authors":"Rachel Meyer, Kira Wang, Alexander Yearley, Sydney Grob, Jacob Zeitlin, Jack Bloomfeld, Melissa You, Diane Lee, Melanie Bonner, N. Shah, Kristin Page","doi":"10.1177/27527530221068422","DOIUrl":"https://doi.org/10.1177/27527530221068422","url":null,"abstract":"It is widely accepted that educational interventions benefit children with chronic diseases (disease awareness and autonomy) or those undergoing medical procedures (decreased anxiety and improved satisfaction). Hematopoietic cell transplantation (HCT) is an intensive procedure to treat life-threatening diseases but is associated with multiple adverse medical experiences. QuestLeukemia (QuestED, Durham, NC) is a mobile app designed to educate pediatric patients preparing for HCT through age-appropriate videos and quizzes. Here we describe the results of the initial pilot study assessing acceptability and feasibility of QuestLeukemia app. Eligible participants were selected from a convenience sample (inpatient HCT unit and outpatient clinic). Participants spent 30–60 min using the app then completed a survey assessing the app for usability, accessibility, and user satisfaction. Participants identified the app as a useful tool for gaining disease-related knowledge and reported greater autonomy over their disease process. On average, patients indicated that the app was easy to use (M = 4.93), enjoyable (M = 4.79), and comprehensive (M = 4.71). Parents followed similar trends of satisfaction with the app. Pediatric HCT providers likewise reported that the app was easy to use (M = 4.22), enjoyable (M = 4.85), and educationally comprehensive (M = 4.77). The QuestLeukemia mobile application prototype provides an easy, enjoyable, and educational tool for pediatric patients undergoing HCT. This application was well received by patients, parents, and providers. These findings will be used to design future iterations of the game in clinical care.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":"39 1","pages":"137 - 142"},"PeriodicalIF":0.0,"publicationDate":"2022-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46096954","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Music Therapy for Children with Oncology & Hematological Conditions and Their Families: Advancing the Standards of Psychosocial Care. 音乐治疗儿童肿瘤和血液疾病及其家庭:推进社会心理护理标准。

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2022-01-01 DOI: 10.1177/27527530211059726

David Knott, Caitlin Krater, Jessica MacLean, Kim Robertson, Kristin Stegenga, Sheri L Robb

{"title":"Music Therapy for Children with Oncology & Hematological Conditions and Their Families: Advancing the Standards of Psychosocial Care.","authors":"David Knott, Caitlin Krater, Jessica MacLean, Kim Robertson, Kristin Stegenga, Sheri L Robb","doi":"10.1177/27527530211059726","DOIUrl":"https://doi.org/10.1177/27527530211059726","url":null,"abstract":"Background: Diagnosis and treatment of cancer and blood disorders in childhood, adolescence and young adulthood has a significant impact on patients and families. The Psychosocial Standards of Care project, initiated in 2012, resulted in 15 Psychosocial Standards (PSS) that guide the care patients and families receive throughout treatment. As members of the multidisciplinary psychosocial care team, music therapists play an important role in the advancing the PSS. Most surveys have focused on other commonly provided services (e.g., social work, child life), leaving gaps in our understanding about the availability and use of music therapy services to advance PSS. This paper offers an initial description of how music therapy services contribute to the provision of care under these Standards. Methods: We analyze how music therapy services promote PSS through synthesis of a music therapy clinical practice survey, published literature, and scope of practice documents. A brief overview of music therapy services structure, PSS that music therapy services currently address, and two clinical program descriptions are included. Results: Music therapy services address 9 of the 15 PSS and are well integrated within the larger program of psychosocial care. Findings suggest integration of music therapy services can help ensure personalized, comprehensive care and efficient use of often-limited psychosocial care resources. Discussion: Nurses, as members of the psychosocial and medical teams are uniquely positioned to identify patient and family care needs and refer patients for services. Understanding how music therapy services address PSS and most importantly, the needs of patients and families, will optimize their care.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":"39 1","pages":"49-59"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/3b/c4/10.1177_27527530211059726.PMC9839310.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10545295","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 5

Factors Associated with Interest in Complementary and Alternative Medicine Among Young Adult Survivors of Childhood Cancer. 儿童癌症年轻成人幸存者对补充和替代医学兴趣的相关因素。

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2022-01-01 DOI: 10.1177/27527530211059421

Mary Baron Nelson, Yoonji Kim, Lauren Hamilton, Anneke Dekker, Kimberly Miller, Ann S Hamilton, Joel Milam

{"title":"Factors Associated with Interest in Complementary and Alternative Medicine Among Young Adult Survivors of Childhood Cancer.","authors":"Mary Baron Nelson, Yoonji Kim, Lauren Hamilton, Anneke Dekker, Kimberly Miller, Ann S Hamilton, Joel Milam","doi":"10.1177/27527530211059421","DOIUrl":"https://doi.org/10.1177/27527530211059421","url":null,"abstract":"Background: Use of complementary and alternative medicine (CAM) by those undergoing cancer treatment is common. While some childhood cancer survivors (CCS) may use CAM to treat late effects, others may lack information about available alternative therapies. We sought to determine characteristics associated with seeking more information about CAM among an ethnically diverse sample of young adult CCS. Methods: Young adult CCS were selected from the population-based Los Angeles SEER cancer registry and surveyed at ages 18 to 39 as part of the Project Forward Cohort. Associations between demographic, clinical, and other factors with seeking information on CAM were examined with t-tests, Chi Square analyses, and logistic regression. Results: Among 1106 participants surveyed, 182 (18%) reported interest in obtaining more information on CAM. Interest in CAM was highest among males, older (vs. younger) participants, those born outside the U.S., those with a history of relapsed/recurrent or second cancers, those with greater depressive symptoms, and those with poorer self-rated health. Among Hispanic/Latino/Latinx respondents, depressive symptoms, birth outside the U.S., and higher Latino culture orientation was positively associated with CAM interest. Discussion: Depressive symptoms and unresolved health problems are associated with a need for information about alternative forms of therapy, particularly in those with born outside the U.S. Healthcare providers caring for CCS can incorporate appropriate CAM information to help address unmet physical and mental health needs.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":"39 1","pages":"30-39"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9839309/pdf/10.1177_27527530211059421.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10545294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mindfulness Practices for Children and Adolescents Receiving Cancer Therapies. 接受癌症治疗的儿童和青少年的正念练习。

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2022-01-01 DOI: 10.1177/27527530211056514

Shelley Murphy, Ani Jamyang Donma, Sara Ahola Kohut, Elli Weisbaum, Jacqueline H Chan, Erin Plenert, Deborah Tomlinson

{"title":"Mindfulness Practices for Children and Adolescents Receiving Cancer Therapies.","authors":"Shelley Murphy, Ani Jamyang Donma, Sara Ahola Kohut, Elli Weisbaum, Jacqueline H Chan, Erin Plenert, Deborah Tomlinson","doi":"10.1177/27527530211056514","DOIUrl":"https://doi.org/10.1177/27527530211056514","url":null,"abstract":"Background: Mindfulness is our innate capacity to pay full, conscious, and compassionate attention to something in the moment. It is also a skill that can be strengthened by mental practice. More recently, mindfulness-based interventions (MBIs) are identified within clinical practice guidelines as an intervention in the treatment of certain symptoms for children with cancer. However, there is little guidance available on the practice of using MBIs in the pediatric oncology population. The aim of this paper is to provide an overview of mindfulness, highlights symptoms where mindfulness practices may be of benefit, identifies trauma-sensitive considerations, and provides examples of MBIs that may be considered in the context of pediatric oncology. Methods: Collaboration of expert opinion, which included The Mindfulness Project Team, has enabled this collective informative paper. Results: Mindfulness has been recommended to help with the symptom of fatigue in children with cancer. Emotional symptoms such as anxiety, sadness, and anger may also benefit from the use of MBIs. Ideal MBIs for this population may include mindful movement, mindfulness of the senses, mindfulness of breath, mindfulness of emotions, and the body scan. These approaches can easily be adapted according to the age of the child. Many approaches have been administered with minimal training, with very few requiring a facilitator. However, hospitals have started to incorporate mindfulness experts within their care provision. Conclusion: Future research should continue to investigate the use of MBI programs for children with cancer.","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":"39 1","pages":"40-48"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9163650/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10528522","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Leucovorin.

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2020-02-07 DOI: 10.32388/9wk4gm

D. Betcher, N. Burnham

引用次数: 2

Evaluating a Model of Fatigue in Children with Cancer 评估儿童癌症患者的疲劳模型

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2001-03-01 DOI: 10.1177/104345420101802s03

V. Mock

引用次数: 8

Developing a Research Program on Fatigue in Children and Adolescents Diagnosed with Cancer 发展癌症诊断儿童和青少年的疲劳研究项目

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2001-03-01 DOI: 10.1177/104345420101802S02

P. Hinds, M. Hockenberry‐Eaton

引用次数: 53

Cancer-Related Fatigue in Children 儿童癌症相关疲劳

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2001-03-01 DOI: 10.1177/104345420101802s01

L. Clarke-Steffen

{"title":"Cancer-Related Fatigue in Children","authors":"L. Clarke-Steffen","doi":"10.1177/104345420101802s01","DOIUrl":"https://doi.org/10.1177/104345420101802s01","url":null,"abstract":"THE CONCEPT OF FATIGUE as a symptom in children being treated for cancer has been described only recently, yet it is a phenomenon that children, parents, and nurses have been observing since pediatric cancer treatment became more aggressive. Pediatric oncology nurses have always advocated scheduling activities in such a way that allows the child to rest. It seems natural to recommend that a parent allow a child to nap more frequently during treatment. Pediatric oncology nurses and parents also notice that children who are being treated for cancer do not play with the same intensity and duration as they did before treatment. They wear out sooner than their peers or siblings, and parents and nurses make adjustments to take that into account. Yet we do not routinely assess fatigue in our patients. We do not usually discuss fatigue as a side effect of treatment, and we often use different words to describe the phenomenon. Fatigue has been a recognized side effect of cancer treatment in adults, and in recent years there has been an increase in research in regard to measurement, prevention, and intervention to manage treatment-related fatigue in adults; however, for children, the area of inquiry is still new. The questions regarding how a child experiences fatigue are still being answered. The questions about how parents or health care professionals per-","PeriodicalId":29692,"journal":{"name":"Journal of Pediatric Hematology-Oncology Nursing","volume":"26 1","pages":"1 - 2"},"PeriodicalIF":0.0,"publicationDate":"2001-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"65345064","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 8

Consensus Statements: Analyzing a New Model to Evaluate Fatigue in Children with Cancer 共识声明:分析一个评估癌症儿童疲劳的新模型

4区医学

Journal of Pediatric Hematology-Oncology Nursing Pub Date : 2001-03-01 DOI: 10.1177/104345420101802S05

L. Clarke-Steffen, M. Hockenberry‐Eaton, P. Hinds, V. Mock, B. Piper, Andrea M. White

引用次数: 6