Acta Bioethica最新文献_第7页

Recensiones Recensions

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200299

Lorenzo Agar Corbinos

引用次数: 0

Barriers to Informed Refusal in Korea 韩国的知情拒绝障碍

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200173

Claire Junga Kim

引用次数: 0

Palliative care for Chinese immigrants in New Zealand: experiences and perceptions 新西兰华人移民的姑息治疗:经验与认知

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200193

Jin Tian, Shuqiang An, W. Yuan

{"title":"Palliative care for Chinese immigrants in New Zealand: experiences and perceptions","authors":"Jin Tian, Shuqiang An, W. Yuan","doi":"10.4067/s1726-569x2021000200193","DOIUrl":"https://doi.org/10.4067/s1726-569x2021000200193","url":null,"abstract":": Over the past several decades, palliative care has seen tremendous development in Western countries, but there is still inadequate access to palliative care among non-dominant ethnocultural groups. The Chinese have been the largest immigrant group in New Zealand since the 19 th century (1) . They have unique beliefs and practices around illness, death, dying and filial piety (2) . These differ greatly from those in Western cultures and have notable implications for hospice palliative care planning and provision. However, immigrant Chinese community remains a relatively marginalised and under-researched group in palliative care (3-5) . This results in limited knowledge about its culture and people among health professionals, as well as the lack of experience in providing terminal care to Chinese immigrants. Through the introduction of New Zealand Palliative Care Strategy and the analysis of Chinese immigrants’ difficulties and preferences for palliative care, this aims to increase understanding of how cultural values of Chinese affect their acceptance and decision-making with respect to palliative care so that for efficiently providing palliative care to this ethnic minority group in New Zealand.","PeriodicalId":29643,"journal":{"name":"Acta Bioethica","volume":" ","pages":""},"PeriodicalIF":0.4,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42003942","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Legislation for disabled people in Brazil. From human dignity to social inclusion. Advancing capabilities as an ethical imperative 巴西残疾人立法。从人类尊严到社会包容。将提升能力作为一种道德要求

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200223

Rosylane Nascimento das Mercês Rocha, Josierton Cruz Bezerra, Francisco Cortes Fernandes, Mónica Correia, Rui Nunes

{"title":"Legislation for disabled people in Brazil. From human dignity to social inclusion. Advancing capabilities as an ethical imperative","authors":"Rosylane Nascimento das Mercês Rocha, Josierton Cruz Bezerra, Francisco Cortes Fernandes, Mónica Correia, Rui Nunes","doi":"10.4067/s1726-569x2021000200223","DOIUrl":"https://doi.org/10.4067/s1726-569x2021000200223","url":null,"abstract":"The study analyzes the ethical and legal basis of Brazilian legislation for people with disabilities and verifies whether the instruments used therein are in line with national and international law. It also investigates the coherence and cohesion of the law and its ethical norms to build an inclusive and just society. Through an exploratory and integrative review, it analyzed the legal pro- visions in force in Brazil published on the official websites of the Brazilian federal government and available on the Internet. It was evaluated whether the definition used for persons with disabilities follows the United Nations Convention on the Rights of Persons with Disabilities. Also, whether it is necessary to evaluate disabilities and who should perform this task professionally. Thirty-three legal norms were found, among which only three laws and two decrees are in line with the recommendations of the UN Convention. It is necessary to review the existing norms and promote the consolidation of laws, decrees, ordinances and normative instructions regarding the rights of persons with disabilities in a uniform manner, on an adequate technical-scientific basis. This review should be consistent with the provisions of the 1988 Federal Constitution, the International Convention on the Rights of Persons with Disabilities and the Brazilian Inclusion Law.","PeriodicalId":29643,"journal":{"name":"Acta Bioethica","volume":" ","pages":""},"PeriodicalIF":0.4,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43558031","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

SALVADOR, VICENT & SAMPIETRO, AGNESE. Understanding the discourse of aging. A multifaceted perspective 萨尔瓦多，受害者&SAMPIETRO，意大利。理解衰老的话语。多方面的视角

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200307

F. Lolas Stepke

引用次数: 0

Miscelánea 混杂的

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200295

F. Lolas Stepke

引用次数: 5

Las perplejidades éticas del Rey Ludwig II de Baviera: locura, extravagancia y profesión médica 巴伐利亚路德维希二世国王的伦理困惑：疯狂、奢侈和医学职业

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200161

G. Figueroa

引用次数: 0

La representación del apoyo de la persona con discapacidad. El nuevo esquema de la capacidad jurídica en el Perú 残疾人的支持代表。秘鲁法律能力的新方案

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200211

Enrique Varsi Rospigliosi

{"title":"La representación del apoyo de la persona con discapacidad. El nuevo esquema de la capacidad jurídica en el Perú","authors":"Enrique Varsi Rospigliosi","doi":"10.4067/s1726-569x2021000200211","DOIUrl":"https://doi.org/10.4067/s1726-569x2021000200211","url":null,"abstract":": Capacity is a subject of transversal interest in Law, it is present in all its fields. It is an attribute that every subject has through which he/she can perform acts that are not prohibited. Since 2018, by Legislative Decree 1384, we have a new treat-ment of capacity in the Civil Code that is in line with the guidelines in favor of the autonomy and full legal capacity of persons with disabilities, aligning national legislation to the International Convention on the Rights of Persons with Disabilities. The regime of substitution of the will of incapable persons is replaced by a social model through supports and safeguards. We are facing an inclusive, democratic model, according to the respect for the human rights of all citizens (dignity and equality), based on the principle that people with disabilities have full exercise capacity in equal conditions in each and every aspect of their lives, recognizing their right to make their own decisions as well as the right to make mistakes. The function of the support in favor of the disabled person is developed, analyzing their powers of representation. We start from the principle that the support does not replace the manifestation of will, it only interprets it and collaborates in an adequate manifestation of will so that the person with disability can exercise his legal capacity, enjoying his rights and freedoms.","PeriodicalId":29643,"journal":{"name":"Acta Bioethica","volume":" ","pages":""},"PeriodicalIF":0.4,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41862004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ethical Dilemmas and Principles in Organ Transplantation in China 中国器官移植的伦理困境与原则

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200181

Zhen Zhang, Zheng Zang

{"title":"Ethical Dilemmas and Principles in Organ Transplantation in China","authors":"Zhen Zhang, Zheng Zang","doi":"10.4067/s1726-569x2021000200181","DOIUrl":"https://doi.org/10.4067/s1726-569x2021000200181","url":null,"abstract":": In medical clinical practice, organ transplantation is mainly applied to patients with end-stage organ lesions and organ failure. However, with the development of organ transplantation, many ethical issues and controversies have arisen. From the perspective of bioethics, the article compares the relevant ethical and legal regulations of organ transplantation in various countries. Due to the complexity of the real situation, many ethical dilemmas arise in organ transplantation in China. The article analyzes and researches three aspects of organ donation, distribution, and trading, and finds that there are various ethical problems in these three aspects of organ transplantation in China, such as whether the principle of presumed consent is ethical, whether brain death is legalized, the selection and determination of transplant patients, and whether human organ trading is legalized, etc. With the help of the four principles of bioethics and the current development of organ transplantation in China, the article proposes that organ transplantation in China should follow four ethical principles: the principle of respect for life, the principle of do no harm/benefit, the principle of respect for autonomy, and the principle of justice, in order to provide a defense for the legitimacy of organ transplantation.","PeriodicalId":29643,"journal":{"name":"Acta Bioethica","volume":" ","pages":""},"PeriodicalIF":0.4,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47546864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Percepciones de un equipo de cuidados paliativos pediátricos acerca del clown de hospital 儿科姑息护理团队对医院小丑的看法

IF 0.4 4区哲学

Acta Bioethica Pub Date : 2021-10-01 DOI: 10.4067/s1726-569x2021000200201

Victoria Valdebenito Mac Farlane

{"title":"Percepciones de un equipo de cuidados paliativos pediátricos acerca del clown de hospital","authors":"Victoria Valdebenito Mac Farlane","doi":"10.4067/s1726-569x2021000200201","DOIUrl":"https://doi.org/10.4067/s1726-569x2021000200201","url":null,"abstract":"Resumen : La presente es una síntesis de resultados de una investigación mayor, cuyo objetivo principal fue conocer las perspectivas de familias y equipo de salud respecto de la presencia de clowns de hospital trabajando en cuidados paliativos pediátricos en una unidad en Chile. Guiado por un paradigma interpretativo, estrictos criterios de calidad y éticos, la metodología utilizada fue de tipo cualitativo, aplicando las técnicas de recolección de datos de entrevistas en profundidad, análisis de documentos y grupos de discusión. La sección de datos sobre el equipo aquí presentados, se analizó a través de las técnicas análisis de contenido y análisis crítico del discurso. Los resultados indican que la figura del clown es percibida como un mediador y valorada como terapia complementaria, especialmente por las competencias socioemocionales de esos profesionales y el juego que se utiliza como herramienta de intervención. Las conclusiones señalan que las competencias socioemocionales que promueve el clown de hospital son fundamentales para el trabajo en cuidados paliativos. Abstract : This is a synthesis of results of a major research which main objective was to know the perspectives of families and the health team regarding the presence of hospital clowns working in pediatric palliative care in a unit in Chile. Guided by an interpretivist paradigm, strict quality and ethical criteria, the methodology used was qualitative, applying in-depth interviews, document analysis and discussion groups as data collection techniques. The data section presented here about the health team was analyzed through content analysis and critical discourse analysis techniques. The results indicate that the figure of the clown is perceived as a mediator, valued as complementary therapy, especially due to the socio-emotional competences of these professionals and play used as an intervention tool. The conclusions indicate that the socio-emotional competences promoted by the hospital clown are fundamental to work in palliative care.","PeriodicalId":29643,"journal":{"name":"Acta Bioethica","volume":" ","pages":""},"PeriodicalIF":0.4,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42576306","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0