{"title":"Surviving in the midst of 'Nowhere': Disrupting the conceptualisation of a maternity care desert.","authors":"Rose E Archer","doi":"10.1111/1467-9566.13847","DOIUrl":"10.1111/1467-9566.13847","url":null,"abstract":"<p><p>The conceptualisation of 'care deserts' has gained increased public attention in recent years. This paper engages a reproductive justice framework to investigate the (mis)alignment of a maternity care desert within a predominantly Black rural community in the United States. I draw on a case study of Gadsden County, Florida-a community that is perceived by its members to be a maternity care desert but that is not technically defined as one-to demonstrate how Black birthing people are cultivating a reproductive liberatory consciousness. Semi-structured interviews with birthing persons and reproductive health experts reveal three overarching processes-naming barriers to health equity, resisting health inequity and cultivating health equity-that characterise a reproductive liberatory consciousness, which I identify as an analytical tool to outline how local social actors are identifying structural constraints as well as developing strategies of communal care and resistance. This work contributes to sociological research on reproductive justice and health equity by exploring the limitations of 'desert' frameworks. Pointing to the need to carefully consider the mechanisms that actively disrupt and potentially transform spatial stratifications and inequities, this paper advances a new understanding of birthing space that captures the layered movements of those living within a perceived maternity care desert.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"e13847"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142353087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Where Are the Irish in Research on Ethnic Health Inequalities in Britain? A State-Of-The-Art Literature Review.","authors":"Rosalind Willis","doi":"10.1111/1467-9566.13874","DOIUrl":"10.1111/1467-9566.13874","url":null,"abstract":"<p><p>Decisions about ethnic groups studied in health research shape recommendations. If a group is not included in research, its ability to call for policy change is limited. Despite health inequalities for the Irish in Britain in the 20th century, recent research on health is likely to combine the White Irish with White British, whereas Irish people of colour are not mentioned at all. This paper aims to understand why the interest in this group has declined. A state-of-the-art literature review of 140 papers on Irish health in Britain from 2001 to 2023 was conducted. Findings show the Irish are still disadvantaged in mortality, mental health and suicide, with important socioeconomic status and gender disparities. The shifting way the Irish are constructed over time is critically examined, paying attention to historical depictions and postcolonial identities. Sociological theories of migration are challenged by the Irish because this migrant group does not conform to theoretical assumptions. The Irish may have dropped from the agenda because of incorrect assumptions about assimilation and the relationship between Ireland and the UK. Given that the health outcomes of the Irish in Britain differ from those of the White British population, they should be recognised in health research as a distinct group.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"47 1","pages":"e13874"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11694090/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142915558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christina Weis, Georgia Spiliopoulos, Agnieszka Ignatowicz, Simon Conroy, Russell Mannion, Daniel Lasserson, Carolyn Tarrant
{"title":"Help-seeking and access to care for stroke and heart attack during the COVID-19 pandemic: A qualitative study.","authors":"Christina Weis, Georgia Spiliopoulos, Agnieszka Ignatowicz, Simon Conroy, Russell Mannion, Daniel Lasserson, Carolyn Tarrant","doi":"10.1111/1467-9566.13848","DOIUrl":"10.1111/1467-9566.13848","url":null,"abstract":"<p><p>In this article we explore how people who experienced a stroke, transient ischaemic attack, or heart attack sought health care during the COVID-19 lockdown periods. Semi-structured interviews were conducted with 27 patients admitted to hospital between March 2020 and May 2021, and one carer who was recruited from cardiac and stroke rehabilitation services in two large acute NHS trusts in England. Drawing on concepts of candidacy, illness and moral work, we discuss how people's sense-making about their symptoms fundamentally shaped both their decisions about seeking help and the impact of COVID-19 on help seeking. Risk perception and interactional ritual chain theory allow further exploration of constructing symbols of national identity in times of crises, managing risk and levels of acceptable risk and critique of ambiguous national messaging over accessing health-care services for people with emergency health-care needs. Our findings have wider implications for supporting access into health care for those with life-threatening conditions under highly publicised strain on the health system, including winter pressure and staff strikes, as well as policymaking and public messaging.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"e13848"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11684498/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142294512","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Extending Fundamental Cause Theory to Holistic Health.","authors":"Samantha Nousak","doi":"10.1111/1467-9566.13875","DOIUrl":"10.1111/1467-9566.13875","url":null,"abstract":"<p><p>Fundamental Cause Theory (FCT) offers a unique middle range and longitudinal understanding of the lasting social causational relationships between certain social conditions and disease/death. In this research note, I argue that FCT should extend its outcome measures beyond physical disease and death into holistic health. I briefly review how FCT is evaluated, explore the proposed extension and discuss some operational and conceptual challenges using mental illness and positive mental health outcomes as exemplars. I conclude by discussing the benefits of extending FCT for 1) the theory's own validity, 2) social health inequalities research more broadly, and 3) public health policy.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"47 1","pages":"e13875"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11681744/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142897076","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Janna Goijaerts, Natascha van der Zwan, Jet Bussemaker
{"title":"From Straight Lines to Twists and Turns: Finding Patterns Between Socio-Economics and Unequal Health Outcomes in the Life Course.","authors":"Janna Goijaerts, Natascha van der Zwan, Jet Bussemaker","doi":"10.1111/1467-9566.13879","DOIUrl":"10.1111/1467-9566.13879","url":null,"abstract":"<p><p>Despite welfare state expansion in liberal democracies during the 20th century, health inequalities between socio-economic groups persist. Understanding individuals' lived experiences can inform policy for reducing unequal health outcomes in these lives. We build on Fundamental Cause Theory (FCT), which posits that low socio-economic status is the fundamental cause of health problems in (later) life. We argue that this theory is incomplete in developing policy interventions to tackle unequal health outcomes, because it assumes the relationship between socio-economic status and health to be linear and unidirectional. Based on our findings from biographic interviews of 15 disadvantaged individuals in the Netherlands, we propose a refinement of FCT by taking into account the complex life trajectories of individuals experiencing unequal health outcomes. Specifically, we argue that these individuals' trajectories can be broken down into at least five distinct patterns (ping-pong, snowball, escalator, quicksand and lever) between socio-economic and health issues. These patterns provide a theoretical addition to the existing FCT on the dynamics of life trajectories, the intensity with which problems develop and the importance of external factors. This helps not only to understand the emergence of health problems, but also to imagine more suitable policy responses.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"47 1","pages":"e13879"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11696486/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142922811","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lara Bianchi, Mihaela Kelemen, Alysha Kate Shivji, Jonathan Tallant, Stephen Timmons
{"title":"The Role of Boundary Spanning in Building Trust: A Place-Based Study on Engaging Hardly Reached Groups in Community Healthcare Settings.","authors":"Lara Bianchi, Mihaela Kelemen, Alysha Kate Shivji, Jonathan Tallant, Stephen Timmons","doi":"10.1111/1467-9566.13870","DOIUrl":"10.1111/1467-9566.13870","url":null,"abstract":"<p><p>This paper investigates the impact of boundary spanning activities on building trust as a means of tackling health inequalities in hardly reached communities. Lack of trust has been identified as a barrier to engagement with healthcare services, resulting in poorer health outcomes. Engaging with hardly reached communities is challenging due to the social and symbolic boundaries prevalent in community healthcare settings. Drawing on empirical data from a recent year-long collaborative research project with communities from seven economically deprived areas in the City of Nottingham, we identify two boundary spanning activities that facilitate the development of trust: communication across boundaries and intergroup relationship building. By cross fertilising sociological accounts on trust with insights derived from philosophy, the study finds that for hardly reached communities, trusting relevant individuals is more potent and widespread than the trust they have in healthcare institutions. By developing individual trust, hardly reached communities are more likely to consequently perceive the existence of institutional goodwill and competence. This counter-intuitive finding invites us to regard trust as context specific and relational rather than as a binary choice between trusting individuals or institutions and to situate cross boundary activities focused on trust development within the power asymmetries in which they unfold.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"47 1","pages":"e13870"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11667093/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142882799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Shadreck Mwale, Andy Northcott, Katie Featherstone
{"title":"Privileges, and Permissions: Theorising Intersectionality and Cultures of Control in the Care of People Living With Dementia in Acute Hospital Settings.","authors":"Shadreck Mwale, Andy Northcott, Katie Featherstone","doi":"10.1111/1467-9566.13869","DOIUrl":"10.1111/1467-9566.13869","url":null,"abstract":"<p><p>A longstanding body of public enquiries and research identifies people living with dementia experience systemic inequalities within hospital settings, concluding a focus on improving care cultures is required. Drawing on a 3-year multi-sited hospital ethnography, this paper examines everyday cultures of care in NHS acute hospital wards to interrogate how ethnicity, gender and social class intersects to shape the care of people living with dementia. Drawing on Collins' concept of intersectionality and the relational nature of power, the analysis reveals that while cared for by diverse teams of healthcare professionals, a patients' age, ethnicity, gender and social class, as interconnected categories, influences the tightening of ward rules for some people living with dementia and the granting of significant privileges for others. Focussing on walking within the ward, with a large number of people living with dementia classified as 'wandering', we explore ways in which intersectional identities informed who was granted privileges to leave the bedside and 'wander' the ward, and who experienced further control. The paper concludes that institutional racism and attitudes to gender, social class and ageing permeate the routine organisation and delivery of care within NHS acute hospital wards to significantly impact people living with dementia, and in turn, increases the consideration of care pathways that emphasise their discharge to institutional settings.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"47 1","pages":"e13869"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11697222/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142922813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The promise of artificial intelligence in health: Portrayals of emerging healthcare technologies.","authors":"Ash Watson, Vaughan Wozniak-O'Connor","doi":"10.1111/1467-9566.13840","DOIUrl":"10.1111/1467-9566.13840","url":null,"abstract":"<p><p>Emerging technologies of artificial intelligence (AI) and automated decision-making (ADM) promise to advance many industries. Healthcare is a key locus for new developments, where operational improvements are magnified by the bigger-picture promise of improved care and outcomes for patients. Forming the zeitgeist of contemporary sociotechnical innovation in healthcare, media portrayals of these technologies can shape how they are implemented, experienced and understood across healthcare systems. This article identifies current applications of AI and ADM within Australian healthcare contexts and analyses how these technologies are being portrayed within news and industry media. It offers a categorisation of leading applications of AI and ADM: monitoring and tracking, data management and analysis, cloud computing, and robotics. Discussing how AI and ADM are depicted in relation to health and care practices, it examines the sense of promise that is enlivened in these representations. The article concludes by considering the implications of promissory discourses for how technologies are understood and integrated into practices and sites of healthcare.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"e13840"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11694777/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142294514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Crafting the unsayable: Making meaning out of racialised maternal health-care encounters.","authors":"Sarah Milton, Ulla McKnight","doi":"10.1111/1467-9566.13830","DOIUrl":"10.1111/1467-9566.13830","url":null,"abstract":"<p><p>There are persistent and profound racialised inequalities in maternal and reproductive health in the UK. Yet in multiple settings, these disparities have been blamed on class or ethnicity, individuals and communities rather than the structures within which they live. In this study, we draw on narratives told within a 'slow-stitch' craft workshop, organised in southern England for racialised women with reproductive trauma, to show how processes of racialisation and racism shape experiences of maternal and reproductive healthcare. Experiences of reproductive trauma were multiple and cumulative. The burden of knowledge of racialised disparities was carried into health-care spaces, with plans made in advance to self-manage in risky spaces. The constant management of racialised stereotypes and subsequent strategies of bodily and emotional containment ultimately was not protective and there was little agency over levels of care received in health-care spaces. Perceptions surrounding racialised bodies shaped treatment, whilst proximities to whiteness afforded alternative realities. Taking a phenomenological approach we analyse race as a sensory, spatial and relational constellation haunted by long-standing histories of fraught inequality. Bringing together in the crafting circle a group of women racialised in different ways enabled the sharing of \"unspeakable\" stories surrounding racism and reproductive trauma, and allowed race to be brought into being as a form of solidarity and connection.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"e13830"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142081458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Institutional, humane, therapeutic: Towards an understanding of caregiver violence through third sector violence prevention discourse in Finland.","authors":"Liina Sointu","doi":"10.1111/1467-9566.13844","DOIUrl":"10.1111/1467-9566.13844","url":null,"abstract":"<p><p>Violence in family caregiving, once a social taboo, is now emerging as a topic of scientific inquiry. Engaging with a non-normative approach to care and critical reflection on research of abusive caregiver behaviour and elder abuse, this study argues that as caregiver violence is increasingly addressed in research, it is crucial to understand it as a complex issue within its social context. The study adds to this understanding by conducting a discourse analysis of violence prevention programmes in Finland, where third sector organisations have taken the initiative in addressing caregiver violence. Based on analysis of project materials, media texts and expert interviews related to two such violence prevention programmes, the study illuminates how caregiver violence is made intelligible through a combination of three kinds of understanding: institutional, humane and therapeutic. It is suggested that these understandings offer a way forward in thinking about the complex, sensitive topic of caregiver violence in sociological research on care.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"e13844"},"PeriodicalIF":2.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11684500/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142353085","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}