Esca van Blarikom, Nina Fudge, Deborah Swinglehurst
{"title":"Multimorbidity as chronic crisis: 'Living on' with multiple long-term health conditions in a socially disadvantaged London borough.","authors":"Esca van Blarikom, Nina Fudge, Deborah Swinglehurst","doi":"10.1111/1467-9566.13729","DOIUrl":"10.1111/1467-9566.13729","url":null,"abstract":"<p><p>Contemporary health services are primarily designed around single diseases. People with multimorbidity (multiple long-term health conditions) often become burdened by accumulated treatments. Through multimodal fieldwork in a socially disadvantaged London borough, we explore how people living with multimorbidity navigate conditions of 'chronic crisis', encompassing ill-health, overmedicalisation, polypharmacy and social exclusion. Participants in our study frequently experience 'existential stuckness', exacerbated by processes of social exclusion. We argue that diagnoses and treatments should account for people's unique aetiologies, and prioritise the notion of 'flourishing' over 'cure' as the absence of disease is not always achievable. To foster this emphasis on flourishing, we advocate for a dialogical turn in diagnostic processes that better support patients' existential needs in the context of long-term illness.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"608-626"},"PeriodicalIF":2.9,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92156343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gijs Steinmann, Hester van de Bovenkamp, Antoinette de Bont, Diana Delnoij
{"title":"Value-based health care in translation: From global popularity to primary care for Dutch elderly patients.","authors":"Gijs Steinmann, Hester van de Bovenkamp, Antoinette de Bont, Diana Delnoij","doi":"10.1111/1467-9566.13728","DOIUrl":"10.1111/1467-9566.13728","url":null,"abstract":"<p><p>In this article we examine the fragmented interpretation and implementation of a remarkably popular concept, value-based health care (VBHC). By building on a case study of a project team working on the development of value-based primary care services for elderly patients, we shed new light on the way in which VBHC transitions from theory to practice. The concept of 'translation' is used to theoretically frame our analysis. Between June 2021 and May 2022, we gathered data through participant observation (50 h), semi-structured interviews (n = 20) and document analysis (n = 16). Our findings show how VBHC inspired new ways of working, and that, in line with previous studies, parts of the original concept have been neglected, while others have been modified. We identified three reasons for VBHC's locally varied applications: VBHC transforms to enable a growing support base, the originally radical idea is applied conservatively and the concept tends to get mixed up with other policy objectives. In all, VBHC appears to be successful in catalysing cross-disciplinary interaction aimed at improving value for patients.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"683-701"},"PeriodicalIF":2.9,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"107592158","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Wolter de Boer, Bert C Molewijk, Marijke A Bremmer, Baudewijntje P C Kreukels, Eileen M Moyer, Karl Gerritse
{"title":"Doing and undoing transgender health care: The ordering of 'gender dysphoria' in clinical practice.","authors":"Wolter de Boer, Bert C Molewijk, Marijke A Bremmer, Baudewijntje P C Kreukels, Eileen M Moyer, Karl Gerritse","doi":"10.1111/1467-9566.13727","DOIUrl":"10.1111/1467-9566.13727","url":null,"abstract":"<p><p>A formal Gender Dysphoria classification- as outlined in the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders- is a prerequisite for the reimbursement of both gender-affirming medical care and transgender mental health care in the Netherlands. Gender Dysphoria and its conceptual precursors have always been moving targets: moving due to research, policy, care practices and activism both within and outside of medicine. This raises the question of what Gender Dysphoria is exactly. To elucidate this question, we turn to the people who use the concept in clinical practice to come to a diagnosis and treatment indication: mental health professionals working in gender-affirming medical care and transgender mental health care. Using a material semiotics approach, we reflect upon how Gender Dysphoria is done in clinical practice. Based on an analysis of seventeen practice-based interviews with clinicians as well as an examination of clinical guidelines and texts, we describe four modes in which Gender Dysphoria is ordered. These modes of ordering illustrate that Gender Dysphoria is not one, but multiple. We illustrate how in the mode of isolating, Gender Dysphoria is something which is carefully isolated from mental disorders, while in the modes doing the future and narrating, Gender Dysphoria is done as a continuous and predictable object of care. Such orderings of Gender Dysphoria potentially conflict with a fourth mode of ordering: the doing of diversity in transgender health care. The study's findings provide empirical insights into how transgender health care is currently done in The Netherlands and provide a foundation on which ethical debates on what good transgender health care should entail.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"644-663"},"PeriodicalIF":2.9,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"66784268","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Multimorbidity: Inequalities, lived experience and the need for service redesign.","authors":"Karen Lowton","doi":"10.1111/1467-9566.13788","DOIUrl":"10.1111/1467-9566.13788","url":null,"abstract":"","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"579-581"},"PeriodicalIF":2.9,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140912435","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"How a 'good parent' decides on childhood vaccination. Demonstrating independence and deliberation during Dutch healthcare visits.","authors":"Robert Prettner, Hedwig Te Molder, Bogdana Humă","doi":"10.1111/1467-9566.13725","DOIUrl":"10.1111/1467-9566.13725","url":null,"abstract":"<p><p>Childhood vaccination consultations are considered an important phase in parents' decision-making process. To date, only a few empirical studies conducted in the United States have investigated real-life consultations. To address this gap, we recorded Dutch vaccination conversations between healthcare providers and parents during routine health consultations for their newborns. The data were analysed using Conversation Analysis and Discursive Psychology. We found that the topic of vaccination was often initiated with 'Have you already thought about vaccination?' (HYATAV), and that this formulation was consequential for parental identity work. Exploring the interactional trajectories engendered by this initiation format we show that: (1) interlocutors treat the question as consisting of two types of queries, (2) conversational trajectories differ according to which of the queries is attended to and that (3) parents work up a 'good parent' identity in response to HYATAV, by demonstrating that they think about their child's vaccination beforehand and make their decisions independently. Our findings shed new light on the interactional unfolding of parental vaccination decisions.</p>","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":" ","pages":"664-682"},"PeriodicalIF":2.9,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"107592157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Making health public: A manifesto for a new social contract. By P.Littlejohns, D. J.Hunter, A.Weale, J.Johnson, and T.Khatun, Bristol: Bristol University Press. 2024. pp. 120. £40 (hbk); £14.99 (ebook). ISBN: 9781447371267","authors":"Hayley Redman","doi":"10.1111/1467-9566.13782","DOIUrl":"https://doi.org/10.1111/1467-9566.13782","url":null,"abstract":"","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"281 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-04-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140803225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Genres of listening: An ethnography of psychoanalysis in Buenos Aires. By XochitlMarsilli‐Vargas, Durham and London: Duke University Press. 2022. pp. 248. $25.95 US. ISBN: 9781478015918","authors":"Marcos Azevedo","doi":"10.1111/1467-9566.13780","DOIUrl":"https://doi.org/10.1111/1467-9566.13780","url":null,"abstract":"","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"17 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140627393","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alice Faux‐Nightingale, Mihaela Kelemen, Simon Lilley, Kerry Robinson, Caroline Stewart
{"title":"Hospital corridors as lived spaces: The reconfiguration of social boundaries during the early stages of the Covid pandemic","authors":"Alice Faux‐Nightingale, Mihaela Kelemen, Simon Lilley, Kerry Robinson, Caroline Stewart","doi":"10.1111/1467-9566.13777","DOIUrl":"https://doi.org/10.1111/1467-9566.13777","url":null,"abstract":"This article explores the meanings and uses of a hospital corridor through 98 diary entries produced by the staff of an English specialist hospital during the early stages of the COVID‐19 pandemic. Drawing on Lefebvre's (1991, <jats:italic>The production of space</jats:italic>. Blackwell) threefold theorisation of space, corridors are seen as conceived, perceived and lived spaces, produced through and enabling the reconfiguration and reinterpretation of social interactions. The diaries depict two distinct versions of the central hospital corridor: its ‘normal’ operation prior to the pandemic when it was perceived as a social and symbolic space for collective sensemaking and the ‘COVID‐19 empty corridor’ described as a haunting place that divided hospital staff along ostensibly new social and moral boundaries that impacted negatively on lived work experiences and staff relationships. The mobilisation of the central hospital corridor in the daily social construction of meaning and experience during a period of organisational and societal crisis suggests that corridors should not be only seen as a material backdrop for work relationships but as social entities that come into being and are maintained and reproduced through the (lack of) performance of social relations.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"1 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140584661","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Medical humanities and disability studies: In/disciplines. Series: Critical interventions in the medical and health humanities. By S.Murray, London: Bloomsbury Academic. 2023. pp. 134. £45.00 (hbk); £14.99 (pbk); £13.49 (ebk). ISBN: 978‐1‐3501‐7217‐3","authors":"Ruth Bridgens","doi":"10.1111/1467-9566.13772","DOIUrl":"https://doi.org/10.1111/1467-9566.13772","url":null,"abstract":"","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"53 1 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140585101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emily Lenton, Dion Kagan, Kate Seear, Sean Mulcahy, Adrian Farrugia, kylie valentine, Michael Edwards, Danny Jeffcote
{"title":"Troubling complaint: Addressing hepatitis C‐related stigma and discrimination through complaint mechanisms","authors":"Emily Lenton, Dion Kagan, Kate Seear, Sean Mulcahy, Adrian Farrugia, kylie valentine, Michael Edwards, Danny Jeffcote","doi":"10.1111/1467-9566.13776","DOIUrl":"https://doi.org/10.1111/1467-9566.13776","url":null,"abstract":"The need to grapple with hepatitis C‐related stigma and discrimination in Australian health‐care settings has been recognised in public policy, and work is underway to address it. But how likely are people to raise a complaint when they experience stigma or discrimination? And how effective and accessible are complaints mechanisms? Given complaint procedures are considered important parts of the delivery of safe and ethical health care, these are important questions that have yet to be substantially explored. Drawing on interviews with people with lived experience of hepatitis C (<jats:italic>n</jats:italic> = 30), this article considers how affected people feel about complaints processes and the act of complaining. Alongside these perspectives, we discuss complaint mechanisms, and the views of stakeholders who work with hepatitis C‐affected communities in policy, health, legal and advocacy roles (<jats:italic>n</jats:italic> = 30) on the institutional and cultural dynamics of complaint. We draw on Sara Ahmed’s <jats:italic>Complaint!</jats:italic> and Fraser et al.’s work on drug‐related stigma to analyse these concerns that have yet to be researched, and argue that the (unlikely) prospect of successful complaint is a key part of the network of forces that perpetuate stigma, discrimination and disadvantage among people who have (lived with) hepatitis C. Although people with lived experience are often powerful advocates and acutely aware of the deficiencies in the quality of their treatment, our interviews suggest that the obstacles they face to accessing health care are seen as commonplace, intractable and insurmountable; and, that mechanisms for addressing them—where they exist at all—treat complaints in narrowly individualising terms and expose complainants to dismissal. Following Ahmed, we call for a ‘troubling’ of complaints—responding to them not as individual problems but rather as collective, structural concerns, necessitating new approaches.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"24 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140585099","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}