Sociology of health & illness最新文献_第10页

Troubling complaint: Addressing hepatitis C‐related stigma and discrimination through complaint mechanisms 令人不安的投诉：通过投诉机制解决与丙型肝炎相关的羞辱和歧视问题

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-04-10 DOI: 10.1111/1467-9566.13776

Emily Lenton, Dion Kagan, Kate Seear, Sean Mulcahy, Adrian Farrugia, kylie valentine, Michael Edwards, Danny Jeffcote

{"title":"Troubling complaint: Addressing hepatitis C‐related stigma and discrimination through complaint mechanisms","authors":"Emily Lenton, Dion Kagan, Kate Seear, Sean Mulcahy, Adrian Farrugia, kylie valentine, Michael Edwards, Danny Jeffcote","doi":"10.1111/1467-9566.13776","DOIUrl":"https://doi.org/10.1111/1467-9566.13776","url":null,"abstract":"The need to grapple with hepatitis C‐related stigma and discrimination in Australian health‐care settings has been recognised in public policy, and work is underway to address it. But how likely are people to raise a complaint when they experience stigma or discrimination? And how effective and accessible are complaints mechanisms? Given complaint procedures are considered important parts of the delivery of safe and ethical health care, these are important questions that have yet to be substantially explored. Drawing on interviews with people with lived experience of hepatitis C (n = 30), this article considers how affected people feel about complaints processes and the act of complaining. Alongside these perspectives, we discuss complaint mechanisms, and the views of stakeholders who work with hepatitis C‐affected communities in policy, health, legal and advocacy roles (n = 30) on the institutional and cultural dynamics of complaint. We draw on Sara Ahmed’s Complaint! and Fraser et al.’s work on drug‐related stigma to analyse these concerns that have yet to be researched, and argue that the (unlikely) prospect of successful complaint is a key part of the network of forces that perpetuate stigma, discrimination and disadvantage among people who have (lived with) hepatitis C. Although people with lived experience are often powerful advocates and acutely aware of the deficiencies in the quality of their treatment, our interviews suggest that the obstacles they face to accessing health care are seen as commonplace, intractable and insurmountable; and, that mechanisms for addressing them—where they exist at all—treat complaints in narrowly individualising terms and expose complainants to dismissal. Following Ahmed, we call for a ‘troubling’ of complaints—responding to them not as individual problems but rather as collective, structural concerns, necessitating new approaches.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140585099","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Navigating the cultures of health care and health insurance: Highly skilled migrants in the US. By N.Zeldes, London: UCL Press. 2023. pp. 202–216. £20 (pbk); £40.00 (hbk). ISBN: 978‐1‐80008‐365‐3 驾驭医疗保健和医疗保险文化：美国的高技能移民。N.Zeldes 著，伦敦：UCL Press.2023. pp.20 英镑（平装本）；40.00 英镑（精装本）。ISBN: 978-1-80008-365-3

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-04-03 DOI: 10.1111/1467-9566.13773

Matthew S. Hanchard

引用次数: 0

Emotion work and emotional labour, neglected facets of parental health information work. Analysing mothers of neurodivergent children 情感工作和情感劳动，父母健康信息工作中被忽视的方面。分析神经变异儿童的母亲

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-04-03 DOI: 10.1111/1467-9566.13775

Emma Laurin, Lisa Andersson

{"title":"Emotion work and emotional labour, neglected facets of parental health information work. Analysing mothers of neurodivergent children","authors":"Emma Laurin, Lisa Andersson","doi":"10.1111/1467-9566.13775","DOIUrl":"https://doi.org/10.1111/1467-9566.13775","url":null,"abstract":"The neoliberal and biomedical ‘good caregiver’ discourse neglects the many facets of everyday information work that parents of children with special needs are required to do as they seek, receive and share information concerning their children’s health and wellbeing. Along with time and skills, one such neglected facet is emotion work, the management of feelings in relation to societal norms. The purpose of this article is to explore emotion work, as a facet in parental health information work in the care and education sector, among mothers of neurodivergent children. Our analysis draws on interviews with 50 Swedish mothers of neurodivergent children. We present three primary insights. 1. Emotion work, on the self as well as on others, is pivotal to the information work that the mothers carry out in the education and care sector as they strive to ameliorate their children’s situation. 2. Contested diagnoses, such as diagnoses associated with neurodivergent conditions, result in intense parental information and emotion work. 3. Fragmented and complex education and care systems, alongside traditional gender structures, compel mothers to undertake extensive information and emotion work.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140583109","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Incivility experiences of racially minoritised hospital staff, consequences for them and implications for patient care: An international scoping review. 医院少数种族员工的不礼貌经历、对他们造成的后果以及对患者护理的影响：一项国际范围的综述。

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-03-20 DOI: 10.1111/1467-9566.13760

Olivia Joseph, Ghazala Mir, Beth Fylan, Pam Essler, Rebecca Lawton

{"title":"Incivility experiences of racially minoritised hospital staff, consequences for them and implications for patient care: An international scoping review.","authors":"Olivia Joseph, Ghazala Mir, Beth Fylan, Pam Essler, Rebecca Lawton","doi":"10.1111/1467-9566.13760","DOIUrl":"https://doi.org/10.1111/1467-9566.13760","url":null,"abstract":"Workplace incivility is a pervasive complex problem within health care. Incivility manifests as subtle disrespectful behaviours, which seem inconsequential. However, evidence demonstrates that incivility can be harmful to targets and witnesses through negative emotions, poorer mental health, reduced job satisfaction, diminished performance and compromised patient care. It is unclear to what extent existing research critically explores how ethnicity, culture and racism influence how hospital staff experience incivility. This global scoping review systematically analysed existing research exploring the specific ways incivility manifests and impacts racially minoritised hospital workers. Of 2636 academic and 101 grey literature articles, 32 were included. Incivility experiences were categorised into four themes: (1) Cultural control, (2) Rejection of work contributions, (3) Disempowerment at work and (4) Managerial indifference. The included articles highlighted detrimental consequences, such as negative emotions, silencing, withdrawal and reduced support-seeking behaviours. Few studies presented evidence regarding the negative impacts of incivility on patient care. Racialisation and racial dynamics are a significant factor for hospital-based incivility. Currently we do not know the extent to which racialised incivility is associated directly or, perhaps either via burnout or disengagement, indirectly with poorer care. This knowledge can inform the creation of comprehensive, evidence-based interventions to address this important issue.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140176324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Proposing a new history of grief's medicalisation: A critical discourse analysis. 提出悲伤医疗化的新历史：批判性话语分析。

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-03-20 DOI: 10.1111/1467-9566.13770

D Grace Smith

{"title":"Proposing a new history of grief's medicalisation: A critical discourse analysis.","authors":"D Grace Smith","doi":"10.1111/1467-9566.13770","DOIUrl":"https://doi.org/10.1111/1467-9566.13770","url":null,"abstract":"Conceptualisations of grief have transformed significantly in recent decades, from an experience accepted and expressed in community spaces to a diagnosable clinical phenomenon. Narratives of this transformation tend to focus on grief's relationship to major depression, or on recent nosological changes. This paper examines the possibility of a new narrative for medicalisation by grounding in the networks of language and power created around 'grief' through a critical discourse analysis of psy-discipline articles (n = 70) published between 1975 and 1995. Focusing on shifts in definitions of, methods used to approach, and rationales motivating study of the experience, it posits that the psy-disciplines exerted exclusive expertise over grief decades before its creation as a diagnosis. By reconceptualising grief in the terms of psy-specific symptoms and functional performance and by approaching it with the decontextualising and interventionist methods of an increasingly scientific psy-discipline, the psy-community medicalised grief between 1975 and 1995. Identifying neoliberal and other cultural influences shaping this process of medical construction and reconsidering narratives of grief's history mindful of the powers exerted in medicalisation, this paper establishes that these moments played a critical role in the development of the present's grief.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140176325","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Sociology of Diagnosis Index 诊断社会学索引

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-03-19 DOI: 10.1111/1467-9566.13766

引用次数: 0

The moral evaluation of Emergency Department patients: An ethnography of triage work in Romania. By M.Wamsiedel, London: Lexington Books. 2023. pp. 198. ISBN: 978‐1‐66691‐654‐6 (hbk); $95.000 (£73.00) (hbk); $45.00 (£35.00) (ebk). ISBN: 978-1-66691-655-3 (ebk) 急诊科病人的道德评价：罗马尼亚分诊工作的人种学研究。M.Wamsiedel 著，伦敦：Lexington Books.2023. pp.ISBN: 978-1-66691-654-6 (hbk); $95.000 (£73.00) (hbk); $45.00 (£35.00) (ebk).ISBN: 978-1-66691-655-3 (ebk)

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-03-02 DOI: 10.1111/1467-9566.13768

Bella Wheeler, Catherine Pope

引用次数: 0

The long tail of COVID and the tale of long COVID: Diagnostic construction and the management of ignorance. COVID的长尾和长COVID的故事:诊断构建和无知的管理。

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-03-01 Epub Date: 2022-12-29 DOI: 10.1111/1467-9566.13599

Kristin Kay Barker, Owen Whooley, Erin F Madden, Emily E Ahrend, R Neil Greene

{"title":"The long tail of COVID and the tale of long COVID: Diagnostic construction and the management of ignorance.","authors":"Kristin Kay Barker, Owen Whooley, Erin F Madden, Emily E Ahrend, R Neil Greene","doi":"10.1111/1467-9566.13599","DOIUrl":"10.1111/1467-9566.13599","url":null,"abstract":"We bring together insights from the sociology of diagnosis and the sociology of ignorance to examine the early diagnostic unfolding of 'Long COVID' (LC). Originally described by patient activists, researchers set out to ponder its unwieldy clinical boundaries. Using a scoping review method in tandem with qualitative content analytic techniques, we analyse medicine's initial struggles to construct a LC diagnosis. Paying attention to the dynamics of ignorance, we highlight three consequential conceptual manoeuvres in the early classifications of LC: causal agnosticism concerning the relationship between COVID-19 and LC, evasion of lumping LC with similar conditions; and the predictable splitting off of medically explainable cases from the LC designation. These manoeuvres are not maleficent, inept or unreasonable. They are practical but impactful responses to the classificatory dilemmas present in the construction of diagnoses amidst ignorance. Although there are unique aspects to LC, we suggest that its early fate is nevertheless emblematic of medicine's diagnostic standardisation processes more generally. To varying degrees, diagnoses are ignorance management strategies; they create a pathway through the uncertainty at the core of disease realities. However, while diagnoses circumscribe some types of ignorance, they produce others through the creation of blind spots and paths not taken.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9880676/pdf/SHIL-9999-0.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9200723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Competing realities, uncertain diagnoses of infectious disease: Mass self-testing for COVID-19 and liminal bio-citizenship. 相互竞争的现实，不确定的传染病诊断：COVID-19 和边缘生物公民身份的大规模自我检测。

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-03-01 Epub Date: 2023-08-01 DOI: 10.1111/1467-9566.13694

Alan Petersen, Kiran Pienaar

{"title":"Competing realities, uncertain diagnoses of infectious disease: Mass self-testing for COVID-19 and liminal bio-citizenship.","authors":"Alan Petersen, Kiran Pienaar","doi":"10.1111/1467-9566.13694","DOIUrl":"10.1111/1467-9566.13694","url":null,"abstract":"Diagnoses of infectious diseases are being transformed as mass self-testing using rapid antigen tests (RATs) is increasingly integrated into public health. Widely used during the COVID-19 pandemic, RATs are claimed to have many advantages over 'gold-standard' polymerase chain reaction tests, especially their ease of use and production of quick results. Yet, while laboratory studies indicate the value of RATs in detecting the SARS-CoV-2 virus antigen, uncertainty surrounds their deployment and ultimate effectiveness in stemming infections. This article applies the analytic lens of biological citizenship (or bio-citizenship) to explore Australia's experience of implementing a RAT-based mass self-testing strategy to manage COVID-19. Drawing on Annemarie Mol's (1999, The Sociological Review, 47(1), 74-89) concept of ontological politics and analysing government statements, scientific articles and news media reporting published during a critical juncture of the strategy's implementation, we explore the kind of bio-citizenship implied by this strategy. Our analysis suggests the emergence of what we call liminal bio-citizenship, whereby citizens are made responsible for self-managing infection risk without the diagnostic certitude this demands. We discuss how the different realities of mass self-testing interact to reinforce this liminal citizenship and consider the implications for the sociology of diagnosis.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9912101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring valuation practices in diagnosis-as-category: The rising dominance of clinical practice in the categorisation of Sepsis, 1991-2016. 探索诊断即分类的估值实践：1991-2016 年败血症分类中临床实践主导地位的上升。

IF 2.9 2区医学

Sociology of health & illness Pub Date : 2024-03-01 Epub Date: 2023-01-30 DOI: 10.1111/1467-9566.13619

Simon Carmel, Erik Jacobi

{"title":"Exploring valuation practices in diagnosis-as-category: The rising dominance of clinical practice in the categorisation of Sepsis, 1991-2016.","authors":"Simon Carmel, Erik Jacobi","doi":"10.1111/1467-9566.13619","DOIUrl":"10.1111/1467-9566.13619","url":null,"abstract":"This article contributes to the sociology of diagnosis by exploring how an acute medical condition, sepsis, was categorised over a 25-year period. We focus on publications reporting the outcomes of three consensus conferences that were convened to stabilise definitions of sepsis and on the failure of a controversial drug. We also focus on the category of severe sepsis by exploring why it was considered useful when introduced in 1991 but redundant by 2016. Drawing on insights from the sociology of valuation, our analysis of pivotal events within this period involving actors from clinical practice, biomedical science, regulation and industry identifies numerous and often contesting evaluative frameworks that came to bear on the categorisation of sepsis. Our analysis further reveals that the evaluative framework of clinical practice, mobilised by the professional specialty of intensive and critical care, became dominant in this categorisation, and that this did not reflect a dominance of biomedicine despite concerning an acute medical condition. Our contributions are to posit the ontological purpose of diagnostic categories and the role of valuation practices and strategic agency in diagnosis-as-category.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10626047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0