Sociology of health & illness最新文献_第9页

Domestication as Stabilisation: Exploring the Incorporation of Social Technology by Older Adults and Their Relatives. 作为稳定的驯化：探索老年人及其亲属对社会技术的融合。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-01-01 DOI: 10.1111/1467-9566.70131

Martin Vinther Bavngaard, Anne Lund, Erik Børve Rasmussen

{"title":"Domestication as Stabilisation: Exploring the Incorporation of Social Technology by Older Adults and Their Relatives.","authors":"Martin Vinther Bavngaard, Anne Lund, Erik Børve Rasmussen","doi":"10.1111/1467-9566.70131","DOIUrl":"10.1111/1467-9566.70131","url":null,"abstract":"As health and care policies in Western societies emphasise ageing at home, loneliness among home-dwelling older adults emerges as a health-related area of intervention and technological innovation. One such intervention is Komp, a social technology designed for families to socially include an older family member struggling to use digital technology. This study couples the concepts of domestication and script to unpack the negotiations of Norwegian older adults and their relatives during Komp's introduction into their sociotechnical constellations. Utilising a multimethod longitudinal design, our inquiry produced 46 interviews, 22 photos and accompanying participant observations. From this empirical foundation, a reflexive thematic analysis was undertaken to develop our understanding of domestication trajectories. Our analysis foregrounds stability, volatility and breakdown as dynamic states involving different degrees of harmony in the negotiated meaning and use of Komp among a constellation of actors. Beyond a novel rendition of domestication as states of (in)stability, this study encourages an understanding of the effects of technological interventions as always in production, sustained by users' continuous negotiations involving the technology's scripted design, other technologies and-importantly-themselves.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 1","pages":"e70131"},"PeriodicalIF":2.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12672974/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145662076","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Buying Time: Incurable Prognosis, Temporal Uncertainty and the Costs of Metastatic Breast Cancer. 购买时间：无法治愈的预后，时间的不确定性和转移性乳腺癌的成本。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-01-01 DOI: 10.1111/1467-9566.70134

Sophie Lewis, Marika Franklin, Giselle Newton, Katherine Kenny, Frances Boyle, Andrea Smith

{"title":"Buying Time: Incurable Prognosis, Temporal Uncertainty and the Costs of Metastatic Breast Cancer.","authors":"Sophie Lewis, Marika Franklin, Giselle Newton, Katherine Kenny, Frances Boyle, Andrea Smith","doi":"10.1111/1467-9566.70134","DOIUrl":"10.1111/1467-9566.70134","url":null,"abstract":"Understandings of living well with incurable, life-limiting disease are limited. This article examines how living with a 'contracted future', albeit of uncertain duration, affects how one spends time (wisely) in the present and plans future time. Mobilising the concept of timescapes and interviews with women with metastatic breast cancer, we examined how an incurable prognosis shaped how women experienced time, what meanings they ascribed to time and at what cost. Thematic analysis derived five themes: 'quality time'-the imperative to spend time well; 'out-of-sync timing'-experiencing temporal disconnect with others; 'making time'-motivation to extend their time through treatments; 'time mis/calculations'-planning amid uncertain certainty; and 'the tempo of living beyond prognosis'-responding to initial contraction and subsequent expansion of temporal horizons. Our analyses reveal how pressures to live well, die well and be remembered well complicated women's experiences of how to be in the present and future, incurring substantial social and economic costs. We illuminate how the quest for improved quality of life and extended longevity can result in emotional and financial precarity, experienced most profoundly by those with limited economic resources, revealing the economic and social factors that shape how time is spent well by those with metastatic disease.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 1","pages":"e70134"},"PeriodicalIF":2.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12690006/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145715720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Anything but Endo: Diagnostic Buck-Passing in Endometriosis Diagnosis. 除了远藤：子宫内膜异位症诊断中的推卸责任。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-01-01 DOI: 10.1111/1467-9566.70142

Rita Dexter, Megan Kitts, Heather Welty, Melanie Jeske

{"title":"Anything but Endo: Diagnostic Buck-Passing in Endometriosis Diagnosis.","authors":"Rita Dexter, Megan Kitts, Heather Welty, Melanie Jeske","doi":"10.1111/1467-9566.70142","DOIUrl":"10.1111/1467-9566.70142","url":null,"abstract":"People living with endometriosis, a disease in which tissue similar to the lining of the uterus grows elsewhere in the body, often experience prolonged diagnostic journeys because of symptom variability, normalisation of period pain and other symptoms, and lack of awareness of the condition. In this article, we analyse the endometriosis diagnostic journey through the lens of epistemic injustice. Drawing on in-depth interviews with 52 people living with endometriosis in the United States, we introduce the concept of diagnostic buck-passing to characterise the phenomenon wherein individuals who seek treatment for their symptoms end up stuck in a cycle of seeing different providers across ranging specialities, which ultimately delays their diagnosis. We describe diagnostic buck-passing and the conditions that give rise to its emergence, grounding our conceptualisation in endometriosis diagnosis. Utilising concepts of undone science and wilful ignorance, we demonstrate how endometriosis diagnosis becomes a site of hermeneutical injustice due to a long history of underinvestment in women's health research and resultant knowledge gaps in clinical care.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 1","pages":"e70142"},"PeriodicalIF":2.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12813254/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145998917","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nothing About Us Without Us in the First 1000 Days: Developing Inclusive Early Years Support With Disabled Families. 在最初的1000天里，没有我们就没有我们：为残疾家庭提供包容性的早期支持。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-01-01 DOI: 10.1111/1467-9566.70118

Angharad E Beckett, Neve McLean, Anna Miller, Rachel Heaton, Daria Borisova

{"title":"Nothing About Us Without Us in the First 1000 Days: Developing Inclusive Early Years Support With Disabled Families.","authors":"Angharad E Beckett, Neve McLean, Anna Miller, Rachel Heaton, Daria Borisova","doi":"10.1111/1467-9566.70118","DOIUrl":"10.1111/1467-9566.70118","url":null,"abstract":"This article reports on co-design workshops with 11 disabled families ('co-designers') as part of developing a 'universal' (for all families) early years programme in health and social care. The programme aims to enhance caregiver and infant well-being. Given well-documented limitations of existing support for disabled families, ensuring disability inclusion from the outset was essential. The term 'disabled families' refers to 2 configurations: families where a parent is disabled and families of disabled children. Intensive workshops employed barrier mapping and solution generation activities. Thematic analysis revealed four domains where co-designers identified exclusionary practices and proposed inclusive alternatives: physical and environmental accessibility, programme design flexibility, content inclusivity and professional practice and empowerment. Co-designers demonstrated how institutional ableism operates through inaccessible venues, rigid attendance policies, normative developmental milestones and dismissal of parental expertise. Solutions moved beyond surface accommodations towards fundamental transformation. Co-designers proposed accessible venues with sensory considerations, flexible attendance, strength-based content, comprehensive facilitator training validating experiential knowledge and enabled peer support. This study demonstrates that meaningful inclusion requires dismantling rather than retrofitting exclusionary systems. Co-designers' insights provide both structural critique of institutional ableism and practical design principles for inclusive provision, showing how participatory approaches can generate alternative possibilities for equitable family support.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 1","pages":"e70118"},"PeriodicalIF":2.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12702093/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145757598","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Forms of Capital in Navigating Health and Welfare Services for Disabled Children: Parental Resources and Institutional Demands. 引导残疾儿童健康和福利服务的资本形式：父母资源和机构需求。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-01-01 DOI: 10.1111/1467-9566.70143

Sigurd Eid Jacobsen

{"title":"Forms of Capital in Navigating Health and Welfare Services for Disabled Children: Parental Resources and Institutional Demands.","authors":"Sigurd Eid Jacobsen","doi":"10.1111/1467-9566.70143","DOIUrl":"10.1111/1467-9566.70143","url":null,"abstract":"This article examines how differences in forms of capital shape families' experience of navigating complex health and welfare institutions within a system formally committed to equality and universal provision. Using Bourdieu's theory of capital, this study explores how parents of disabled children in Norway mobilise various resources to access, coordinate and manage health and welfare services. Based on qualitative interviews with 21 families, the analysis shows how these forms of capital function as both enabling and constraining mechanisms. Cultural capital supports alignment with bureaucratic expectations. Social capital provides access to practical support and insider knowledge. Economic capital offers flexibility and helps fill gaps where services fall short. Crucially, the ability to activate these resources depends on families' mental and physical stamina. This article shows how the navigation of health and welfare services is shaped by the interaction between institutional structures and families' capacity to mobilise resources, producing socially patterned differences in how the process unfolds.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 1","pages":"e70143"},"PeriodicalIF":2.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12812792/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145999048","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

What Can Alcohol Reduction 'Do' for/in Midlife Women's Hopes? A Qualitative Study in Australia. 减少酒精能给中年女性带来什么希望？澳大利亚的一项定性研究。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2025-11-01 DOI: 10.1111/1467-9566.70114

Paul R Ward, Kristen Foley, Belinda Lunnay

{"title":"What Can Alcohol Reduction 'Do' for/in Midlife Women's Hopes? A Qualitative Study in Australia.","authors":"Paul R Ward, Kristen Foley, Belinda Lunnay","doi":"10.1111/1467-9566.70114","DOIUrl":"10.1111/1467-9566.70114","url":null,"abstract":"The proportion of midlife Australian women (45-64 years) whose alcohol consumption is defined as 'long-term risky drinking' increased between 2001 and 2019, with serious health, economic and social impacts. Although overall population consumption trends towards a decline, consumption for this population remains stable, suggesting that current alcohol reduction policies and strategies are ineffective for this population. In this paper, we employ sociological theory on hope to argue for developing alcohol policies that are structured to enable women's hopes for a future that includes alcohol reduction. Drawing on humanistic and positive sociology that is concerned with future-focused enquiries, we undertook semi-structured interviews with 26 midlife women, exploring 'if' they could reduce their drinking, then what hopes might be enabled through alcohol reduction. Women talked about imagined alcohol-reduced futures as enabling hopes for control, responsibility, stability and health in their lives, to support them to care for others and be 'normal'. Quixotic hopes around excitement, freedom and having a 'good life' were expressed to a lesser extent than expected. Our study and findings are analysed in relation to sociological and (post-structural) feminist theories of oppression and political transformation, with implications for alcohol policy scaffolded by engagement with Freire's pedagogy of hope.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"47 8","pages":"e70114"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145401821","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'I'm the One With the Degree:' Challenges to Medical Autonomy in Correctional Healthcare in the United States. “我是有学位的人”：美国惩教保健中医疗自主权的挑战。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2025-11-01 DOI: 10.1111/1467-9566.70103

Allison Gorga

引用次数: 0

Coping With the Spectre of Cardiac Mortality: The Role of Genetic Testing. 应对心脏死亡的幽灵：基因检测的作用。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2025-11-01 DOI: 10.1111/1467-9566.70107

Stefan Timmermans, Will Schupmann, Rebecca Kaufman, Aviad Raz

引用次数: 0

Postfeminist Healthism: Understanding the Gendering of Healthism Using Menstrual Tracking Apps as an Example. 后女权主义健康主义：以月经追踪应用程序为例理解健康主义的性别化。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2025-11-01 DOI: 10.1111/1467-9566.70116

Sarah Riley, Adrienne Evans, Martine Robson

引用次数: 0

Providing Hope or Assigning Blame? Healthism in Print Media Portrayals of Dementia Risk and Responsibility. 提供希望还是推卸责任？印刷媒体对痴呆症风险和责任描述中的健康主义。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2025-11-01 DOI: 10.1111/1467-9566.70115

Felicity Slocombe, Elizabeth Peel, Alison Pilnick, Saul Albert

{"title":"Providing Hope or Assigning Blame? Healthism in Print Media Portrayals of Dementia Risk and Responsibility.","authors":"Felicity Slocombe, Elizabeth Peel, Alison Pilnick, Saul Albert","doi":"10.1111/1467-9566.70115","DOIUrl":"10.1111/1467-9566.70115","url":null,"abstract":"Media representations often imply that dementia is preventable through lifestyle choices, potentially blaming individuals for their condition. Crawford's ideology of healthism outlines this form of responsibilisation. Our thematic discourse analysis of focus group discussions demonstrates how different stakeholder groups interpret print media messages differently, with prevention messaging that promotes health behaviours among the general population, simultaneously felt as stigmatising those already affected by dementia. Participant discussions almost exclusively focused on individual-level risk factors (e.g., diet and genetics) rather than population-level modifiable risks (e.g., air pollution and education), reflecting current print media and policy framings. It is worth noting that while participants saw their own/their loved one's dementia as unpreventable, they viewed other cases, especially vascular dementia, as preventable through health choices. Our analysis shows how healthist ideals especially stigmatise specific dementia diagnoses, highlighting where healthist messaging may be particularly harmful. We recommend that media outlets and policymakers emphasise population-level interventions alongside individual actions, and avoid language implying personal responsibility for developing dementia. Our analysis demonstrates how Crawford's healthism is relevant for understanding media representations of dementia, as well as highlighting some much-needed changes.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"47 8","pages":"e70115"},"PeriodicalIF":2.6,"publicationDate":"2025-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12603681/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145489142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0