Sociology of health & illness最新文献_第4页

Future-Making From Afar: Digital Twins in Medicine. 从远处创造未来：医学中的数字双胞胎。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-06-01 DOI: 10.1111/1467-9566.70217

Elisa Elhadj, Maiju Tanninen, Ine Van Hoyweghen

{"title":"Future-Making From Afar: Digital Twins in Medicine.","authors":"Elisa Elhadj, Maiju Tanninen, Ine Van Hoyweghen","doi":"10.1111/1467-9566.70217","DOIUrl":"10.1111/1467-9566.70217","url":null,"abstract":"Digital twins in medicine are packaged as inevitable, disruptive technologies that will revolutionise healthcare, yet their integration into clinical practice remains slow. In this article, we extend current research on digital twins by shifting attention to the actors behind the technology and their visions. Drawing on multi-sited fieldwork, we identify from where and how the In Silico medicine community envisions the future of medicine and trace embedded ideas and logics. Our analysis reveals a friction between the narrowing of visions of medicine, the human body and clinicians and the technical features of digital twins, which are intended to open futures and possibilities through virtual interventions. We show how digital twins are developed at a distance from the very practices they seek to revolutionise and how the field attempts to navigate this distance through conversion and training. As with other digital health technologies, the burden of adjustment is placed on clinicians. By attending to how distance between modellers and clinical settings plays out in practice, we show how this \"future-making from afar\" constrains but also enables specific modes of engagement. It offers a starting point for demystifying digital twins in medicine and reflects on the kinds of futures the field promotes.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 5","pages":"e70217"},"PeriodicalIF":2.6,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13282570/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148284344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

From Scale to Situated: Sociotechnical Imaginaries and the Configuration of Algorithmic Health Research. 从规模到位置：社会技术想象和算法健康研究的配置。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-06-01 DOI: 10.1111/1467-9566.70205

Kate Lyle, Gabrielle Samuel, Anneke Lucassen

{"title":"From Scale to Situated: Sociotechnical Imaginaries and the Configuration of Algorithmic Health Research.","authors":"Kate Lyle, Gabrielle Samuel, Anneke Lucassen","doi":"10.1111/1467-9566.70205","DOIUrl":"10.1111/1467-9566.70205","url":null,"abstract":"Contemporary healthcare systems generate vast volumes of data, with algorithmic interrogation promising disease prediction, improved diagnoses, and optimised treatment. Despite significant investment, biases in data used for algorithmic interrogation persist, leading to inequities in health outcomes. Scale alone cannot address these biases. Rather, considerations of the contextual dimensions of data need to be reflected upon. Nevertheless, calls for more data to 'iron out' such issues are common. Drawing on qualitative interviews with UK-based health data researchers, we use Lucy Suchman's concept of configuration to explore how sociotechnical imaginaries of 'big data', which lead to calls for more data, are sustained, operationalised and enacted in everyday research practice. Specifically, we identify three interconnected processes that sustain these imaginaries: (1) risk-oriented narratives that organise research around calculable futures; (2) decontextualising translation processes that align data with algorithmic requirements and (3) a persistent gap between algorithmic capacity and data availability. We conceptualise this third mechanism as a productive gap, as it continually renews commitments to scale by attributing limitations to insufficient data. We argue this gap represents a critical juncture for reconfiguration, revealing where assumptions about decontextualisation might be challenged to create space for more situated approaches to health data research.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 5","pages":"e70205"},"PeriodicalIF":2.6,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13254224/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148219583","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Choreographing Triage: Making Patient Requests 'Flow' Through Digitally Enabled Systems of Access and Decision-Making in NHS Primary Care. 编排分流：通过NHS初级保健的数字化访问和决策系统使患者请求“流动”。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-05-01 DOI: 10.1111/1467-9566.70172

Natassia Brenman, Sophie Spitters, Sharon Spooner, Jospeh Wherton, Michael Gill, Deborah Swinglehurst, Sara Paparini, Sara Shaw

{"title":"Choreographing Triage: Making Patient Requests 'Flow' Through Digitally Enabled Systems of Access and Decision-Making in NHS Primary Care.","authors":"Natassia Brenman, Sophie Spitters, Sharon Spooner, Jospeh Wherton, Michael Gill, Deborah Swinglehurst, Sara Paparini, Sara Shaw","doi":"10.1111/1467-9566.70172","DOIUrl":"10.1111/1467-9566.70172","url":null,"abstract":"This paper explores the altered landscape of primary care following the accelerated process of implementing digitally enabled triage across UK general practice in response to COVID-19. Traditional understandings of triage are based on a static 'pile sorting' logic, which suggests that triage outcomes depend upon a single decision in time and space. With the introduction of remote, asynchronous and distributed decision-making, triage needs a more dynamic conceptualisation. Drawing on a team ethnography in three GP practices in England, we develop the concept of triage choreography to explore the (often hidden) work involved in achieving the flow of patient requests through triage systems. We ask who participates in this work, who might be excluded and the consequences for triage outcomes. Our findings extend the literature on digital in/exclusion in primary care, providing a critical analysis of 'flow' in digitally enabled triage and what it means for patients. We show how, as patient requests enter digital systems, triaging work becomes distributed, often in uneven ways. And although digitally enabled routes through systems afford faster and smoother movement, they can also limit patients' ability to influence how they access care and the modality in which it is delivered.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 4","pages":"e70172"},"PeriodicalIF":2.6,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13047242/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147609466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

At the Right Time: Temporal Precision in Personalised Medicine. 在合适的时间：个体化医疗的时间精度。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-05-01 DOI: 10.1111/1467-9566.70180

Dominik Hofmann, Elena Esposito

{"title":"At the Right Time: Temporal Precision in Personalised Medicine.","authors":"Dominik Hofmann, Elena Esposito","doi":"10.1111/1467-9566.70180","DOIUrl":"10.1111/1467-9566.70180","url":null,"abstract":"Personalised medicine was initially heralded as delivering 'the right drug to the right patient at the right time'. Although molecular precision has dominated recent developments, the temporal dimension has remained underexplored. This paper examines how temporal precision is emerging as a defining feature of next-generation precision medicine, driven by algorithmic tools and multiomics data integration. Drawing on qualitative interviews with leading experts in personalised immunotherapy and chronic inflammatory disease (CID) medicine, we identify five ways in which temporal precision is reshaping therapeutic practice: extended prediction, timing, synchronisation, coordination of treatments and feedback effects. We show how personalised cancer vaccines and precision inflammation approaches rely on algorithmic assemblages to anticipate therapy effects, coordinate interventions and dynamically adapt treatment schedules. These innovations highlight a shift from molecular precision to personalisation that incorporates the evolving temporality of both disease and therapy, signalling a new development in precision medicine: Diseases are increasingly treated as dynamic processes, therapies as sequences of timed interventions and patients as embedded in feedback loops between body rhythms, pathology and treatment regimens.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 4","pages":"e70180"},"PeriodicalIF":2.6,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13051249/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147623730","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Health Messaging in Menstrual Product Marketing on Social Media: Neoliberalism and Normalisation. 社交媒体上月经产品营销中的健康信息：新自由主义和正常化。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-05-01 DOI: 10.1111/1467-9566.70156

Lucy Frost, Sharon Dixon, Maria Tomlinson, Francesca Dakin, Alice Roberts, Sue Ziebland

{"title":"Health Messaging in Menstrual Product Marketing on Social Media: Neoliberalism and Normalisation.","authors":"Lucy Frost, Sharon Dixon, Maria Tomlinson, Francesca Dakin, Alice Roberts, Sue Ziebland","doi":"10.1111/1467-9566.70156","DOIUrl":"10.1111/1467-9566.70156","url":null,"abstract":"Menstrual product advertisements have undergone shifts in discourse over recent decades, from messages surrounding hygiene towards those of liberation, but discretion narratives have remained. Social media marketing is prominent for menstrual product companies, and much menstrual advocacy is also on social media. This paper explores health messaging, a neglected area, in menstrual product advertising on social media. Multi-modal critical discourse analysis on 480 unique Instagram and TikTok menstrual product advertisements, collected by five researchers over 1 month. There are tensions in menstrual brand marketing incorporating health messaging around which that we have characterised as: normal or not, challenging or maintaining stereotypes, breaking taboos-or reinforcing them, combatting shame or perpetuating social norms, activism or neoliberal co-option. These are explored through the lenses of bio-medicalisation and doctorability. Marketing strategies co-opt language from advocacy and health messaging. It remains uncertain whether and how marketing campaigns on experiences of menstruation and conceptualisations of menstruation affect healthcare-related decision making. Our analysis demonstrates how inconsistent messaging may exacerbate shame, reinforce menstrual inequities and expand the corporate role in women's health and illness.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 4","pages":"e70156"},"PeriodicalIF":2.6,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147514656","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Rethinking Risk: Intersectional Inequalities in Long COVID in the United States. 重新思考风险：美国长期COVID中的交叉不平等。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-05-01 DOI: 10.1111/1467-9566.70174

Bita Nezamdoust

{"title":"Rethinking Risk: Intersectional Inequalities in Long COVID in the United States.","authors":"Bita Nezamdoust","doi":"10.1111/1467-9566.70174","DOIUrl":"10.1111/1467-9566.70174","url":null,"abstract":"Post-acute sequelae of coronavirus disease 2019 (PASC), also known as Long COVID, is a chronic, multisystem condition affecting millions of U.S. adults, with profound social, medical and economic consequences. Despite its widespread impact, disparities in who is most affected remain poorly understood, especially through an intersectional sociological lens. Using a sociological and intersectional framework, this study analyses a national sample (N = 535,300) from the Household Pulse Survey to explain disparities in Long COVID risk across race, gender and socioeconomic status. The analysis demonstrates that socioeconomic advantage does not equally protect all groups; specifically, higher-SES Black women show significantly elevated Long COVID prevalence compared to White counterparts, challenging claims of racial parity in Long COVID rates. Moreover, although women generally show higher Long COVID risk, intersectional analysis uncovers that the gender gap narrows among high-SES White women, suggesting that social privilege can mitigate health risks. These findings emphasise that structural inequalities, rather than biology, may primarily drive Long COVID inequities and highlight the importance of intersectional sociological analyses for understanding health disparities. The results call for equity-focused interventions addressing the unequal social burden of Long COVID and advancing sociological theory on the social determinants of health.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 4","pages":"e70174"},"PeriodicalIF":2.6,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147582279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Remote Access to Primary Care: Theorising 'Care Navigation'. 远程访问初级保健：理论化“护理导航”。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-05-01 DOI: 10.1111/1467-9566.70184

Gemma Hughes, Sarah Rybczynska-Bunt, Sarah O'Rourke, Sara Shasha'h, Joseph Wherton, Sara Shaw, Trisha Greenhalgh

{"title":"Remote Access to Primary Care: Theorising 'Care Navigation'.","authors":"Gemma Hughes, Sarah Rybczynska-Bunt, Sarah O'Rourke, Sara Shasha'h, Joseph Wherton, Sara Shaw, Trisha Greenhalgh","doi":"10.1111/1467-9566.70184","DOIUrl":"10.1111/1467-9566.70184","url":null,"abstract":"The use of digital technology to facilitate remote access to care can increase inequalities, especially for people with complex health and social care needs. Care navigation, human input to support access, is one potential solution. We aimed to understand how care navigation is practised in the context of increasing remote access in primary care in the United Kingdom. We used the concepts of social navigation and infrastructure to analyse empirical data from a study of care navigation in general practices in 2023. Our dataset included interviews with 18 care navigators. We focused on people with additional social care needs including those being homeless or insecurely housed, refugees, asylum-seekers and vulnerable migrants, and older people requiring residential or voluntary social care and support. Our data showed the importance of people working outside of health services in a range of organisational settings. These findings allowed us to extend the concept of care navigation from a signposting and gateway role to a set of distributed sociotechnical practices. We conceptualised the problem of access as difficulty in connecting to the infrastructure of primary care. Care navigators' relational work, therefore, offered 'nodes' in the network of primary care: opportunities for interactions that supported connection.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 4","pages":"e70184"},"PeriodicalIF":2.6,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13051250/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147623662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ambiguity at the End of Life: Clinical Heuristics and the Problem of Terminal Illness. 生命终结时的歧义：临床启发式与绝症问题。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-05-01 DOI: 10.1111/1467-9566.70197

Timothy B Elder

{"title":"Ambiguity at the End of Life: Clinical Heuristics and the Problem of Terminal Illness.","authors":"Timothy B Elder","doi":"10.1111/1467-9566.70197","DOIUrl":"10.1111/1467-9566.70197","url":null,"abstract":"This paper examines how clinicians in Hospice and Palliative Medicine (HPM) help patients and colleagues resolve ambiguous clinical situations at the end of life. 'Clinical ambiguity' is advanced as a concept to describe how the heuristics used to match medical knowledge to patient interests produce diverging imperatives when patients are terminally ill. Separate from uncertainty, clinical ambiguity captures not a lack of definitive information or knowledge, but the limits of routinised knowledge and practice when applied to patient care. HPM clinicians, typically at the request of other clinicians, reorient decision-making around normative concerns-what ought to be done-rather than relying on descriptive clinical facts. This approach departs from dominant medical models that privilege impartial, fact-based reasoning. Using interviews with clinicians in the United States and ethnographic observations at a large teaching hospital, this paper shows that HPM's distinctive role at the end of life, foregrounding patient preferences, creating shared understanding and establishing achievable goals, derives not from clinician virtues or failures but from this speciality's structural niche in the division of medical labour.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 4","pages":"e70197"},"PeriodicalIF":2.6,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147869340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Biographical Discovery, Affirmation, and Disruption: Trans and Nonbinary Peoples' Experiences Negotiating Gender and Polycystic Ovary Syndrome. 传记的发现、肯定与破坏：跨性别与非二元族群协商性别与多囊卵巢症候群的经验。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-05-01 DOI: 10.1111/1467-9566.70191

Annie McGhee, Ashlyn Arthur

{"title":"Biographical Discovery, Affirmation, and Disruption: Trans and Nonbinary Peoples' Experiences Negotiating Gender and Polycystic Ovary Syndrome.","authors":"Annie McGhee, Ashlyn Arthur","doi":"10.1111/1467-9566.70191","DOIUrl":"10.1111/1467-9566.70191","url":null,"abstract":"Polycystic ovary syndrome (PCOS) is the most common endocrine irregularity in people who are assigned-female-at-birth and are of reproductive age. PCOS causes infertility, irregular periods and hirsutism. Cis women with PCOS describe these symptoms as 'masculinising,' which makes them feel inauthentic as women. However, trans and nonbinary people with PCOS may desire a more masculine appearance, but little attention has been given to how these people may experience PCOS. Using Apify, we collected 450 posts from three popular PCOS Reddit communities. We examined titles, posts, and comments for discussions of gender identity and expression. A total of 60 posts with 3889 comments were selected for analysis. We find that, despite broad literature that characterises illnesses as disruptive to one's self, trans and nonbinary people often view PCOS favourably. We propose two theoretical frameworks to better capture their experiences: biographical discovery, where PCOS is a catalyst for self-discovery, and biographical affirmation, where symptoms validate their sense of self and ease gender expression. We also discuss how these users experience biographical disruption. These findings elucidate the ways that social identities shape perception of bodily changes as a result of chronic illness and highlight the need for an embodied approach within medical sociology.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 4","pages":"e70191"},"PeriodicalIF":2.6,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13101570/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147780133","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Tensions Between Hidden Work and Hiding Work for Care Workers in Residential Aged Care. 养老院护理员隐性工作与隐性工作之间的紧张关系。

IF 2.6 2区医学

Sociology of health & illness Pub Date : 2026-05-01 DOI: 10.1111/1467-9566.70199

Louisa Smith, Emma Kirby, Isabelle Chesher, Lyn Phillipson

{"title":"The Tensions Between Hidden Work and Hiding Work for Care Workers in Residential Aged Care.","authors":"Louisa Smith, Emma Kirby, Isabelle Chesher, Lyn Phillipson","doi":"10.1111/1467-9566.70199","DOIUrl":"10.1111/1467-9566.70199","url":null,"abstract":"Although care workers in residential aged care are pivotal to maintaining the dignity of older people, little is known about their experiences of work. We know they are undervalued, invisible and unrecognised. This paper explores embodied experiences of care workers supporting older people in residential aged care. Two interactive workshops using the arts-based method of body mapping were conducted with 11 care workers. In making body maps, participants made visible the complex and hidden physical and temporal job demands. They also illustrated ways they hid strain, pain and stress to successfully care for older people. Care workers agreed that hiding some emotions was essential to care and dementia work, but emphasised that organisational and managerial expectations meant they hid emotions they needed to express. Moreover, care workers felt that organisations transferred responsibility for person-centred care onto them. We unpack tensions between hidden labour and the ways in which hiding can be at once individualised, collectively or relationally negotiated and structurally and culturally imposed. Understanding and recognising how the maintenance of care work relies on this tension between hidden labour and different kinds of hiding helps to understand how to improve care and avoid hiding's more insidious consequences.","PeriodicalId":21685,"journal":{"name":"Sociology of health & illness","volume":"48 4","pages":"e70199"},"PeriodicalIF":2.6,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148006219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0