Disability, CBR and Inclusive Development最新文献

Healthcare-seeking Behaviour among Working Women with Disability in Karnataka, India 印度卡纳塔克邦残疾职业妇女的求医行为

Disability, CBR and Inclusive Development Pub Date : 2021-05-06 DOI: 10.47985/DCIDJ.441

H. Babu, Senthil Kumar, C. Abraham, J. Lekha

{"title":"Healthcare-seeking Behaviour among Working Women with Disability in Karnataka, India","authors":"H. Babu, Senthil Kumar, C. Abraham, J. Lekha","doi":"10.47985/DCIDJ.441","DOIUrl":"https://doi.org/10.47985/DCIDJ.441","url":null,"abstract":"Purpose: In India women constitute 44% of the total population with disabilities, which roughly amounts to around 10 million persons. This study explores healthcare-seeking behaviour among working women with disabilities in the country. Method: A cross-sectional study using a quantitative survey was conducted among 72 working women with disability to explore their patterns of health-seeking behaviour. Women with disability, between 18 and 45 years of age, who were currently working full-time and who had experienced a serious health problem in the past year were included in the study. A pre-structured questionnaire was used for the survey. Results:Body pain (78%) followed by Urinary Tract Infections (9%) were the commonly cited health problems by the study participants. Eighty percent (80%) of women with disability sought care for their health issues. The actions that they took for their health problems depended on the severity of the disability (p-value-0.001), type of the disability (p-value-0.05), marital status (p-value-0.035) and savings (p-value-0.042) they had set aside for themselves. Monthly family income and years of disability showed correlation with the type of care that they opted for. Conclusion: Employed women with disability show a positive healthcare seeking behaviour pattern. The action they take in addressing their health issues and the type of care that they opt for depends on factors associated with their disability, marital status and financial stability or available savings.","PeriodicalId":179630,"journal":{"name":"Disability, CBR and Inclusive Development","volume":"29 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132886187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"I Need to Love and to Be Loved": Perspective of Young Adults with Hearing Loss in Kabul-Afghanistan “我需要爱，也需要被爱”:阿富汗喀布尔有听力损失的年轻人的观点

Disability, CBR and Inclusive Development Pub Date : 2021-05-06 DOI: 10.47985/DCIDJ.386

Freba Amarkhail, Fahima Ibrahimkhil, S. Sidek

引用次数: 0

The Land of Unequal Opportunities 机会不平等之地

Disability, CBR and Inclusive Development Pub Date : 2021-05-06 DOI: 10.47985/DCIDJ.480

H. Cornielje

引用次数: 0

Comprehensive Management of People with Cerebral Palsy: An Indian Perspective 脑瘫患者的综合管理:印度视角

Disability, CBR and Inclusive Development Pub Date : 2021-05-06 DOI: 10.47985/DCIDJ.415

K. Raja, Saumen Gupta, P. Shirsath

{"title":"Comprehensive Management of People with Cerebral Palsy: An Indian Perspective","authors":"K. Raja, Saumen Gupta, P. Shirsath","doi":"10.47985/DCIDJ.415","DOIUrl":"https://doi.org/10.47985/DCIDJ.415","url":null,"abstract":"Purpose: Guidelines for the management of people with cerebral palsy are available from many countries. However, these cannot be adopted in their entirety in other countries due to socio-cultural differences and varied health systems. This study set out to develop guidelines for the management of people with cerebral palsy, throughout their lifetime, in India. Methods: A mixed methodology with a multiphasic approach was used. The first phase involved an extensive literature review to compile current evidence about the management of people with cerebral palsy. In the second phase, a questionnaire was given to stakeholders in order to explore current practices. The third phase consisted of consensus-building meetings with stakeholders, to develop resolutions that incorporate global best-practice recommendations for India. Results: Responses from the second phase were compiled and categorised based on discipline. Proceedings of the consensus meetings were transcribed verbatim and best evidence was synthesised to understand current global practice guidelines. Resolutions were formed within the framework of the results of phases I and II. These were ratified by experts and then formalised. Conclusion: Sixty-four resolutions were formed, detailing a framework for multidisciplinary management of persons with cerebral palsy throughout their lifetime. A card with guidelines was developed to document all aspects of rehabilitation, development and care. However, the utilisation and application of these guidelines have not been explored as yet.","PeriodicalId":179630,"journal":{"name":"Disability, CBR and Inclusive Development","volume":"9 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121870989","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Inclusive Education and Disabilities: Narratives from Ghana 全纳教育与残疾:来自加纳的叙述

Disability, CBR and Inclusive Development Pub Date : 2021-05-06 DOI: 10.47985/DCIDJ.385

Emma Seyram Hamenoo, Victoria Dayan

{"title":"Inclusive Education and Disabilities: Narratives from Ghana","authors":"Emma Seyram Hamenoo, Victoria Dayan","doi":"10.47985/DCIDJ.385","DOIUrl":"https://doi.org/10.47985/DCIDJ.385","url":null,"abstract":"Purpose: Inclusive Education (IE) has been recognised internationally as the ideal model of educational access to all. Despite this, it faces many challenges. The present study explored the narratives of 10 participants with diverse disabilities in Accra, Ghana, keeping the focus on (a) how children with disabilities in an Inclusive Educational facility understand their educational experiences, (b) how they perceive their relationship with peers and teachers in school, and (c) how accessible they find existing school infrastructures. Method: Using a phenomenological approach, data was generated through in-depth interviews with 10 participants from two selected schools. Results: The experiences of participants, in some instances, were found to be two-sided. While participants felt accepted by some of their peers, they also experienced bullying by others. While some of the teachers were supportive, others were not. All the participants agreed that the physical school environment was disability-unfriendly. Conclusion: Despite limited participation of children with special needs, greater stakeholder commitment was observed. This is promising for the future success of Inclusive Education in Ghana.","PeriodicalId":179630,"journal":{"name":"Disability, CBR and Inclusive Development","volume":"10 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133185631","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Effectiveness of Caregiver Education for Prevention of Shoulder Pain in Acute Stroke Survivors: A Randomised Controlled Trial 护理人员教育预防急性脑卒中幸存者肩痛的有效性:一项随机对照试验

Disability, CBR and Inclusive Development Pub Date : 2021-05-06 DOI: 10.47985/DCIDJ.378

Jerome Dany Praveen Raj, S. A. Dsouza, A. Sitaram, S. Umakanth

{"title":"Effectiveness of Caregiver Education for Prevention of Shoulder Pain in Acute Stroke Survivors: A Randomised Controlled Trial","authors":"Jerome Dany Praveen Raj, S. A. Dsouza, A. Sitaram, S. Umakanth","doi":"10.47985/DCIDJ.378","DOIUrl":"https://doi.org/10.47985/DCIDJ.378","url":null,"abstract":"Purpose: This study aimed to determine the effectiveness of caregiver education to prevent or reduce hemiplegic shoulder pain, a complication following stroke that adversely affects functional outcomes and prolongs rehabilitation. Method: The study was a randomised controlled trial involving acute stroke survivors in the hospital and their primary caregivers. The participants were conveniently selected and randomly allocated to the experimental (n = 20) and control groups (n = 20) using block randomisation. The stroke survivors of both the study groups received conventional therapy. In the experimental group, caregivers participated in three individual sessions of the education programme for shoulder care, which comprised provision of information, demonstration and training. The outcome measures at pre-assessment were the Visual Analogue Scale (VAS) for shoulder pain and the Fugyl-Meyer Assessment for Upper Extremity for Motor Recovery. Caregiver feedback scores were obtained following the intervention. The VAS scores were obtained at 30 days following intervention and 30 days following post-assessment (follow-up assessment) through the posted envelopes. Mann-Whitney U test and Chi- square test were used for statistical analysis. Results: There was no significant difference between the groups on VAS at follow-up assessment. The number of stroke survivors reporting “no pain” increased by 29% in the experimental group and decreased by 6% in the control group. Caregiver feedback scores were higher in the experimental group than in the control group (P Conclusion: This study indicates that educating caregivers on shoulder care during acute management at the hospital, improves their confidence in handling and positioning the stroke survivor after discharge and could reduce hemiplegic shoulder pain.","PeriodicalId":179630,"journal":{"name":"Disability, CBR and Inclusive Development","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125294841","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Evolution from Negative Identity to affirmation of ‘Disability Identity’: Life story of a Woman with Spina Bifida in India 从消极身份到肯定“残疾身份”的演变:印度脊柱裂妇女的生活故事

Disability, CBR and Inclusive Development Pub Date : 2021-05-06 DOI: 10.47985/DCIDJ.409

Ritu Singh, Geeta Chopra

{"title":"Evolution from Negative Identity to affirmation of ‘Disability Identity’: Life story of a Woman with Spina Bifida in India","authors":"Ritu Singh, Geeta Chopra","doi":"10.47985/DCIDJ.409","DOIUrl":"https://doi.org/10.47985/DCIDJ.409","url":null,"abstract":"Purpose: This paper is part of a research study that explored the lived experiences of adults with physical disability in Delhi, India. It traces the evolution of a positive outlook towards disability in a young woman living with spina bifida. Method: This paper is part of a larger study, and is one of the twelve narrative accounts of adults with physical disability, who had been selected to be part of the study using purposive sampling. The study adopted a life story approach wherein the participant talked about their life events in a chronological order. It is believed that stories constitute the psychological realities, including identity, and identity is expressed in sociocultural relations through talk. This paper is the life story of one woman with spina bifida and it recounts her journey depicting the dynamic nature of identity construction. Her life story gives rich insights in terms of personal and social experiences that enabled the researcher to explore the complexities in identity construction. A pseudonym, Ashima, has been used to maintain confidentiality. Results: By describing her childhood experiences, medical journey, relationships, and marriage, the participant was able to make sense of the events leading up to the emergence of a positive disability identity. The daily lived realties of exclusion had instilled a sense of negativity in her but she began to affirm the disability identity after contact with disability groups. The positive role of the family was an additional factor in the participant’s acceptance of her disability identity. Conclusion: The paper presents the emergence of a positive identity by challenging the traditional approaches and oppressive social constructions of disability. It underscores the importance of voice, agency and the celebration of disability identity, and paves the way for future researchers to listen to the insider’s perspective in order to create a culture of valuing differences.","PeriodicalId":179630,"journal":{"name":"Disability, CBR and Inclusive Development","volume":"3 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115340723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Training in Qualitative Research Methods for Professionals working with Persons with Disabilities 为从事残疾人工作的专业人员提供定性研究方法培训

Disability, CBR and Inclusive Development Pub Date : 2021-05-06 DOI: 10.47985/DCIDJ.447

Richard Rose, H. Das, J. Narayan, Johnson Jament

{"title":"Training in Qualitative Research Methods for Professionals working with Persons with Disabilities","authors":"Richard Rose, H. Das, J. Narayan, Johnson Jament","doi":"10.47985/DCIDJ.447","DOIUrl":"https://doi.org/10.47985/DCIDJ.447","url":null,"abstract":"Purpose: The study aimed to investigate the impact of intensive in-service training in qualitative research methods on the research competencies of a cohort of rehabilitation professionals. Method: A series of three-day workshops was held on professional development in the promotion and utilisation of qualitative research in the field of disability and rehabilitation. It was organised at five centres across India for professionals working in that field. Data was collected through a survey of workshop participants, to ascertain the impact and efficacy of the training provided. Results: The results suggest that practitioners working in the area of disability and rehabilitation see considerable value in the application of qualitative research and are enthusiastic about its potential to improve the lives of those with whom they work. They believe that such an approach will provide useful data and increased knowledge in respect of the lives of individuals with disabilities and those interventions that provide them with greatest benefits. The survey revealed that the knowledge of qualitative research methods was limited even among professionals who had studied for research degrees. Conclusion: There is the need for more intensive training in qualitative methods in order to enhance the quality of research in disability and rehabilitation in India, and to assist in improving the lives of individuals with disabilities, their families, carers and those who work with them.","PeriodicalId":179630,"journal":{"name":"Disability, CBR and Inclusive Development","volume":"29 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2021-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114306535","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ground Realities of Autism Spectrum Disorders in Sri Lanka 斯里兰卡自闭症谱系障碍的实际情况

Disability, CBR and Inclusive Development Pub Date : 2021-05-06 DOI: 10.47985/DCIDJ.383

N. Muttiah

引用次数: 0

Parents, Teachers and Rehabilitation Professionals: Are all needed in enabling children with disabilities? 家长、教师和康复专业人员:是否需要所有人来帮助残疾儿童?

Disability, CBR and Inclusive Development Pub Date : 2021-02-23 DOI: 10.47985/DCIDJ.469

H. Cornielje

引用次数: 0