Journal of pediatric and adolescent gynecology最新文献

{"title":"\"Stop Gaslighting Your Patients\": A Quantitative and Qualitative Analysis of User Experiences of IUDs on TikTok.","authors":"Rachel H Allen, Soobin Song, Grace M Weir, Katharine O White","doi":"10.1016/j.jpag.2025.02.003","DOIUrl":"https://doi.org/10.1016/j.jpag.2025.02.003","url":null,"abstract":"<p><strong>Study objective: </strong>TikTok is a social media platform where patients can access and share information about intrauterine devices (IUDs). The primary objective of this study was to identify prominent themes of creators' experiences with IUDs on TikTok.</p><p><strong>Methods: </strong>We conducted a quantitative and qualitative assessment of eligible videos that appeared when searching for \"IUD\" on the TikTok platform between July 2019- August 2022. Eligible videos contained content relevant to IUDs and were spoken and/or written in English.</p><p><strong>Results: </strong>Of the 354 videos that met inclusion criteria, the majority were created by users without healthcare expertise (77%) and mentioned personal experiences with IUDs (68%). However, videos that were educational (27%) or created by users with healthcare expertise (23%) averaged more likes and views than other video types. Common content areas included IUD insertion (45%), side effects (31%), and removal (25%). Perceived gaps in knowledge about the insertion procedure and feeling that providers did not adequately prepare patients for the procedure contributed to dissatisfaction with IUD insertion and motivated creators to share their experiences on TikTok. Video creators often relied on information that they found on TikTok to educate themselves about the IUD insertion process and expressed frustration at unacceptable levels of pain during insertion.</p><p><strong>Conclusion: </strong>Healthcare providers should be aware that adolescent patients who use TikTok have likely seen videos depicting negative experiences with IUDs and be prepared to address patients' concerns, particularly regarding IUD insertion. Additionally, healthcare providers may use TikTok to educate users about IUDs.</p>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143408484","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Current practices in fertility-based counseling among individuals with Turner syndrome: a retrospective study.","authors":"Gabriela Beroukhim, Rama Kastury, Kerri A Davidson, Jenna Bergmann, Alla Vash-Margita","doi":"10.1016/j.jpag.2025.02.002","DOIUrl":"https://doi.org/10.1016/j.jpag.2025.02.002","url":null,"abstract":"<p><strong>Study objective: </strong>To evaluate current practices and examine patient and provider characteristics associated with delivery of fertility-based counseling and pursuit of oocyte cryopreservation or autologous in vitro fertilization among individuals with Turner syndrome (TS) at a large academic institution.</p><p><strong>Methods: </strong>A retrospective study was conducted between January 2010 and December 2020, involving phenotypically female individuals aged 0-26 years with TS.</p><p><strong>Results: </strong>Of 108 included individuals with TS, 65 (60.19%) were classified as monosomy X, and 43 (39.81%) were classified as having TS with another karyotype. Individuals with monosomy X were more likely to have cardiac anomalies, hypertension, and low bone density compared to individuals with TS with other karyotypes. Rates of other comorbidities were similar between groups. Thirty patients (27.78%) received fertility and/or fertility preservation (FP) counseling, of which 6 (5.56%) pursued autologous assisted reproduction technology (ART). A multidisciplinary group of providers offered counseling. Individuals with other TS karyotypes were more likely to receive counseling compared to individuals with monosomy X (43.59% vs. 22.03%, p=0.027). Counseling was significantly associated with pursuing ART (20.00% vs. 0%, p<0.001). Other factors, such as race, ethnicity, and cardiac anomalies, were not associated with the receipt of counseling.</p><p><strong>Conclusions: </strong>Approximately one-third of individuals with TS receive fertility and/or FP counseling, and only few pursued controlled ovarian hyperstimulation (COH). Our large cohort study underscores the need for standardized, system-wide measures to deliver fertility counseling to individuals with TS, including the development of a dedicated multidisciplinary program. Further investigations are necessary to evaluate the effectiveness of proficiency in delivering FP counseling to individuals with TS.</p>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143374198","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"FIGIJ Advocacy Statement on Violence Against Women and Girls in Conflict, Humanitarian Settings, and War Situations.","authors":"Michalina Drejza, Angela Aguilar, Anastasia Vatopoulou, Clara Di Nunzio, Daniela Ivanova Panova, Ellen S Rome, Judith Simms-Cendan, Mariela Orti, Yasmin Jayasinghe, Marisa Labovsky","doi":"10.1016/j.jpag.2025.01.175","DOIUrl":"https://doi.org/10.1016/j.jpag.2025.01.175","url":null,"abstract":"","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143365189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Incomplete non-puerperal uterine inversion in an adolescent girl: a case report.","authors":"Shaojie Zhao, Hua Yuan, Xinkai Zhao, Juanjuan Han, Liyan Gao, Jingyao Wang, Lin Zheng, Hongying Yu, Gulijianati Maowulieti","doi":"10.1016/j.jpag.2025.01.174","DOIUrl":"https://doi.org/10.1016/j.jpag.2025.01.174","url":null,"abstract":"<p><strong>Background: </strong>Non-puerperal uterine inversion (NPUI) is particularly rare and presents a significant diagnostic challenge. This case report describes the youngest case of incomplete NPUI, noteworthy due to the unidentified factor that triggered the uterine inversion.</p><p><strong>Case: </strong>This case report presents a retrospective analysis of a 19-year-old female patient diagnosed with incomplete uterine inversion, the main symptoms of which were vaginal bleeding, abdominal pain. Following hemostasis and broad spectrum antibiotics, the diagnosis of NPUI was confirmed through physical examination and supplementary examinations (ultrasonography and magnetic resonance imaging (MRI)). Surgical intervention involved transvaginal manual reduction, balloon hysteropexy and bilateral round ligament shortening via single-port laparoscopy.</p><p><strong>Summary and conclusion: </strong>The multidisciplinary treatment approach employed in this case offers a novel therapeutic perspective for the treatment and management of NPUI. This report emphasizes the importance of accurate diagnosis and customized treatment strategies for NPUI.</p>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":" ","pages":""},"PeriodicalIF":1.7,"publicationDate":"2025-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143365192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"From Storage to Survivorship: A Scoping Review of Young Adult Cancer Survivors’ Experiences and Preferences in Reproductive Survivorship Care After Fertility Tissue Preservation","authors":"Rebecca Mottram BSc ,&nbsp;Richard G. Feltbower PhD ,&nbsp;Georgina Jones PhD ,&nbsp;Sarah Gelcich PhD ,&nbsp;Heather Rostron BSc ,&nbsp;Majorie Allen Dip ,&nbsp;Adam W. Glaser DM","doi":"10.1016/j.jpag.2024.08.009","DOIUrl":"10.1016/j.jpag.2024.08.009","url":null,"abstract":"<div><div>Despite improved survival rates for childhood cancer, around 60% of survivors suffer lifelong health problems due to their treatment, including fertility issues which account for one third of these problems. Ovarian or testicular tissue cryopreservation can be offered to patients whose cancer treatment puts them at high risk of subsequent subfertility, but it presents unique challenges compared to standard methods of fertility preservation. We report the available information on the experiences of cancer survivors who preserved tissue for future fertility, to support the development of survivorship care informed by recipients’ perspectives and experiences to identify future research priorities. We conducted a scoping review following the recommendations of the Joanna Briggs Institute and the Systematic Reviews and Meta-Analyses Extension for Scoping Review (PRISMA-ScR). From 1956 unique records, 5 met our inclusion criteria. No literature was found reporting on the experiences of people who stored testicular tissue. We found that young women who had stored ovarian tissue faced complex emotional and ethical dilemmas in reproductive decisions post cancer and strongly desired their own biological children. This scoping review is the first to report beyond clinical outcomes by focusing specifically on the self-reported outcomes of patients who preserved ovarian tissue in early life after a cancer diagnosis. Separate consideration of the needs of patients with stored fertility tissue is needed to enable personalized survivorship care. Patient-reported outcomes are also needed from individuals with stored testicular tissue, parents who consented to their child's tissue storage, and the healthcare professionals involved in their care.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"38 1","pages":"Pages 26-34.e2"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142093546","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Menstrual Health Education: School Health Curriculum Topics by Grade Level Recommended by Specialized Medical Professionals in Menstrual Health Clinics","authors":"Sydney C. Jones MD,&nbsp;Maureen K. Baldwin MD, MPH","doi":"10.1016/j.jpag.2024.09.003","DOIUrl":"10.1016/j.jpag.2024.09.003","url":null,"abstract":"<div><h3>Study Objective</h3><div>Evidence-based menstrual health education is not mandated in any US state or territory. Aspects of normal and abnormal menstruation impact quality of life and educational engagement, but many youths are not prepared to know when to seek medical help. We sought to determine which topics should be included in a third- through eighth-grade school-based menstrual health curriculum.</div></div><div><h3>Methods</h3><div>We conducted a cross-sectional online survey of medical professionals who care for patients with menstrual problems. We asked participants to indicate the top 3 menstrual health topics by grade, and we compared the most common responses by year. We also solicited general comments about the curriculum content.</div></div><div><h3>Results</h3><div>Surveys from 55 medical professionals met the criteria for analysis. The topics selected most frequently were normal and abnormal menstruation, reproductive anatomy, puberty timeline, and menstrual products. Most recommended the topics of puberty timeline (38, 69.1%) and reproductive anatomy (34, 61.8%) for third grade, introducing normal menstruation (31, 56.4%) and menstrual products (24, 46.3%) in fourth grade, and abnormal menstruation (27, 49.1%) in sixth grade. More complex topics, such as world cultures around menstruation (14, 25.5%) and period poverty (11, 20.0%), were preferred for eighth grade. Many providers emphasized the importance of teaching normal vs abnormal menstruation in a school health curriculum.</div></div><div><h3>Conclusion</h3><div>Medical professionals provided recommendations for a school-based menstrual health curriculum that introduces topics at developmentally appropriate ages from a medical perspective, teaches basic menstrual symptom management, and instructs on warning signs for abnormal menstruation.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"38 1","pages":"Pages 39-44"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142289681","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Neovaginoplasty With Nile Tilapia Skin Graft in A Patient With Gonadal Dysgenesis: A Case Report","authors":"Samuel Soares Coutinho BM ,&nbsp;Luana Darc de Menezes Braga BM ,&nbsp;Mylena Evilyn Sousa Costa BM ,&nbsp;Mariana Oliveira Veloso BM ,&nbsp;Ana Paula Negreiros Nunes Alves PhD ,&nbsp;Edmar Maciel Lima Júnior MSc ,&nbsp;Zenilda Vieira Bruno PhD ,&nbsp;Manoel Odorico de Moraes Filho PhD ,&nbsp;Carlos Roberto Koscky Paier PhD ,&nbsp;Felipe Augusto Rocha Rodrigues PhD ,&nbsp;Leonardo Robson Pinheiro Sobreira Bezerra PhD","doi":"10.1016/j.jpag.2024.07.008","DOIUrl":"10.1016/j.jpag.2024.07.008","url":null,"abstract":"<div><h3>Background</h3><div>Gonadal dysgenesis, a genetic condition characterized by incomplete of defective formation of the gonads, can present with vaginal agenesis in individuals with 46, XY karyotype.</div></div><div><h3>Case</h3><div>We report an innovative intervention in the management of vaginal agenesis in a 19-year-old female with gonadal dysgenesis. Despite initial attempts with vaginal dilators, the patient presented unresponsive, leading to the adoption of a neovaginoplasty using Nile Tilapia Fish Skin (NTFS) as graft. The procedure, based on the McIndoe technique, involved the creation of a 10 cm x 3 cm vaginal canal with an NTFS-wrapped acrylic mold without complications.</div></div><div><h3>Conclusion</h3><div>The use of NTFS as a graft for neovaginoplasty in gonadal dysgenesis, a novel approach not previously reported in medical literature for this diagnosis, demonstrated favorable outcomes in terms of functionality and patient well-being.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"38 1","pages":"Pages 93-97"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141889559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perioperative and Operative Considerations for Minimally Invasive Surgery in Pediatric and Adolescent Gynecology","authors":"Heather Appelbaum MD, FACOG","doi":"10.1016/j.jpag.2024.07.006","DOIUrl":"10.1016/j.jpag.2024.07.006","url":null,"abstract":"<div><div>Minimally invasive surgery (MIS) techniques, including vaginoscopy, laparoscopy, and robotic-assisted surgery, have revolutionized the field of gynecology, offering numerous benefits, such as reduced postoperative pain, shorter hospital stays, and faster recovery. Although these techniques are widely employed in adult gynecologic surgery, their application in pediatric and adolescent patients requires careful consideration due to anatomic differences, patient size, and specific surgical requirements in children. Various aspects of MIS in pediatric and adolescent gynecology, including patient positioning, laparoscopic and robotic instrument choices, trocar placement, surgical techniques, and perioperative pediatric adaptations to MIS, are discussed. The findings highlight the unique challenges and opportunities in performing MIS for pediatric and adolescent patients undergoing gynecologic surgery, emphasizing the need for specialized training and multidisciplinary collaboration.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"38 1","pages":"Pages 18-25"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141889561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Myth Busting: Virginity and the Hymen","authors":"Paula J Adams Hillard MD (JPAG Editor-in-ChiefShe, her, hers)","doi":"10.1016/j.jpag.2025.01.012","DOIUrl":"10.1016/j.jpag.2025.01.012","url":null,"abstract":"","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"38 1","pages":"Pages 2-3"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143039551","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adult Obstetricians and Gynecologists Lack Knowledge of Anorectal Malformations—A Call for Action","authors":"Shruthi Srinivas MD, MPH ,&nbsp;Jenna Wilson BS ,&nbsp;Katherine C. Bergus MD, MPH ,&nbsp;Chelsea Kebodeaux MD ,&nbsp;Kate McCracken MD ,&nbsp;Richard J. Wood MD ,&nbsp;Geri Hewitt MD","doi":"10.1016/j.jpag.2024.09.001","DOIUrl":"10.1016/j.jpag.2024.09.001","url":null,"abstract":"<div><h3>Objective</h3><div>Patients with anorectal malformations (ARMs) may have concurrent gynecologic abnormalities. As patients grow, they typically transition from pediatric subspeciality care and seek adult obstetrics and gynecology (OB/GYN)-related services. We aimed to assess adult OB/GYN physicians’ knowledge, competency, and comfort regarding meeting the sexual and reproductive health care needs of patients with ARMs.</div></div><div><h3>Methods</h3><div>We performed a cross-sectional observational survey-based study of graduates from a single academic OB/GYN residency program from 2013 to 2022. Physicians were surveyed on experience, comfort, and challenges with caring for patients with ARMs and given a knowledge assessment. Descriptive and comparative statistics between those who did and did not complete a Pediatric and Adolescent Gynecology (PAG) rotation were generated.</div></div><div><h3>Results</h3><div>There were 59 respondents (53.6%). Fewer than half (39.0%) reported caring for a patient with an ARM, an appendicovesicostomy (12.3%), or an appendicostomy (5.4%). Most felt uncomfortable (80.4%) or felt they lacked competence in caring for these patients (81.8%). Most (64.3%) felt that ARMs should be discussed in residency. Only 1 physician (1.7%) answered all questions in the knowledge assessment correctly; 33.9% did not answer any question correctly. On subgroup analysis, more physicians who had completed a pediatric and adolescent gynecology rotation recalled learning about ARMs (83.3% vs 51.9%, <em>P</em> = .03); however, there were no differences in experience, comfort, competence, or willingness to learn.</div></div><div><h3>Conclusion</h3><div>OB/GYN providers report a lack of knowledge and comfort in caring for patients with ARMs. Development of a standardized OB/GYN residency curriculum and education for practicing OB/GYN physicians is necessary to allow access to knowledgeable sexual and reproductive health for this patient population.</div></div>","PeriodicalId":16708,"journal":{"name":"Journal of pediatric and adolescent gynecology","volume":"38 1","pages":"Pages 68-74"},"PeriodicalIF":1.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142289678","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}