Journal of pain and symptom management最新文献_第5页

Developing a Scale for Home-Visit Nurses to Start End-of-life Discussions with Cancer Patients 为家访护士开发一个量表，以便与癌症患者展开临终讨论。

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2024.09.003

Kurumi Asaumi RN, PhD , Masataka Oki RN, PhD , Wataru Ohashi PhD

{"title":"Developing a Scale for Home-Visit Nurses to Start End-of-life Discussions with Cancer Patients","authors":"Kurumi Asaumi RN, PhD , Masataka Oki RN, PhD , Wataru Ohashi PhD","doi":"10.1016/j.jpainsymman.2024.09.003","DOIUrl":"10.1016/j.jpainsymman.2024.09.003","url":null,"abstract":"<div><h3>Context</h3><div>Home-visit nurses find it challenging to determine the appropriate time to initiate end-of-life discussions with cancer patients.</div></div><div><h3>Objective</h3><div>This study aimed to develop the Timing of End-of-Life Discussions (T-EOLD) scale to help home-visit nurses determine the appropriate time to initiate end-of-life discussions with cancer patients and to test its reliability and validity.</div></div><div><h3>Methods</h3><div>The scale items were developed based on qualitative data extracted from interviews, literature reviews, and expert panel discussions. We conducted a preliminary study involving 93 home-visit nurses and evaluated the construct validity, consistency, and test-retest reliability of the scale. Finally, using a sample of 234 home-visit nurses, we conducted the primary study and assessed the construct validity and scale consistency.</div></div><div><h3>Results</h3><div>A total of 41 items were initially developed. Floor effect, item-total correlation, good-poor, and exploratory factor analysis in the preliminary and primary studies yielded a three-factor, 16-item model. The model's goodness-of-fit was CFI = 0.94, GFI = 0.90, AGFI = 0.87, and RMSEA = 0.06. Cronbach's alpha for the overall scale was 0.91.</div></div><div><h3>Conclusions</h3><div>The reliability and validity of the T-EOLD is acceptable, as it is an appropriate scale that home-visit nurses can use to determine the time to initiate end-of-life discussions with cancer patients. However, further study is required to examine T-EOLD's clinical utility, both nationally and internationally.</div></div>","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages 1-9.e1"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142289573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parental Attitudes Towards Palliative Care in Pediatric Oncology: Insights From Bereaved Families 父母对儿科肿瘤姑息治疗的态度：来自丧亲家庭的启示

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2024.09.001

Isaac Martinez BA , Elizabeth S. Davis MSPH , Courtney E. Wimberly MS , Lisa Towry M.Ed , Emily E. Johnston MD, MS , Kyle M. Walsh PhD

{"title":"Parental Attitudes Towards Palliative Care in Pediatric Oncology: Insights From Bereaved Families","authors":"Isaac Martinez BA , Elizabeth S. Davis MSPH , Courtney E. Wimberly MS , Lisa Towry M.Ed , Emily E. Johnston MD, MS , Kyle M. Walsh PhD","doi":"10.1016/j.jpainsymman.2024.09.001","DOIUrl":"10.1016/j.jpainsymman.2024.09.001","url":null,"abstract":"<div><h3>Context</h3><div>Palliative care (PC) has shown significant growth in the US and is associated with improved patient and caregiver experiences. Nevertheless, there are concerns that PC is underutilized in pediatric oncology. Understanding parental attitudes towards PC is crucial to improving PC utilization.</div></div><div><h3>Objectives</h3><div>This study aimed to explore bereaved parent attitudes towards PC in pediatric oncology.</div></div><div><h3>Methods</h3><div>This study used data from Alex's Lemonade Stand: My Childhood Cancer Bereavement Survey. The survey included questions regarding bereaved parents' attitudes towards PC.</div></div><div><h3>Results</h3><div>The survey included 72 bereaved families. Parents completed the survey a median of 11 years after their child's death. PC was involved in 71% of cases. These families were more likely to have do not resuscitate (DNR) orders, an advanced care plan, hospice care, a planned death location, and for their child to die outside the hospital. Although most parents (86%) agreed that it is a doctor's obligation to inform all patients with cancer about PC. PC referrals appeared to happen later than parents preferred. Lack of PC involvement was primarily due to PC not being offered or sudden death of the child.</div></div><div><h3>Conclusions</h3><div>Parental hesitancy should not be viewed as a barrier to PC involvement. Although parents held mixed attitudes about PC, families accepted PC, desired earlier referrals, and believed it was a doctor's obligation to offer PC. These findings highlight the need for timely PC referrals, improved education, and increased awareness of PC services to enhance the integration of PC in pediatric oncology.</div></div>","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages e27-e36"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142289577","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Does Sedation Affect Patients’ Spiritual Experience at the End of Life? An Intersection Between Medicine and Spirituality 镇静是否会影响患者临终时的精神体验？

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2023.10.023

Anne L. Dalle Ave MD, MS , Daniel P. Sulmasy MD, PhD

引用次数: 0

Concerns Regarding Adherence to Inclusion Criteria in Meta-Analysis of Gabapentinoids for Pruritus 加巴喷丁类药物治疗瘙痒的 Meta 分析中对纳入标准的关注。

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2024.09.019

Meenalotchini Prakash Gurunthalingam MD, Madhusudan Prasad Singh MD, Sanjeev Khanth MD, Vikas Katiyara MD, Pugazhenthan Thangaraju MD, PhD

引用次数: 0

Effectiveness of music therapy, aromatherapy, and massage therapy on patients in palliative care with end-of-life needs: A systematic review 音乐疗法、芳香疗法和按摩疗法对有临终需求的姑息关怀患者的疗效：系统综述。

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2024.07.024

Freeman Jodie, Klingele Anna Msc, Wolf Ursula Pro. Dr. med

{"title":"Effectiveness of music therapy, aromatherapy, and massage therapy on patients in palliative care with end-of-life needs: A systematic review","authors":"Freeman Jodie, Klingele Anna Msc, Wolf Ursula Pro. Dr. med","doi":"10.1016/j.jpainsymman.2024.07.024","DOIUrl":"10.1016/j.jpainsymman.2024.07.024","url":null,"abstract":"<div><h3>Background</h3><div>Music therapy, aromatherapy and massage therapy are widely used in palliative care in patients near end-of-life with the aim to reduce symptom burden and improve quality of life (QoL). Recent research shows an increase in popularity and use of complementary and integrative medicine however a more thorough evidence base about their usefulness is required.</div></div><div><h3>Objectives</h3><div>The aim of this study was to evaluate the available evidence on the use of music therapy, aromatherapy and massage therapy in palliative and hospice care and summarize findings.</div></div><div><h3>Methods</h3><div>A defined search strategy was used in reviewing literature from two major databases, MEDLINE and Embase for the period between 2010 and 2022. Studies were selected for further evaluation based on intervention type and relevancy. After evaluation using quality assessment tools, findings were summarised, and potential benefits were identified.</div></div><div><h3>Results</h3><div>Out of 1261 studies initially identified, 26 were selected for further evaluation. Sixteen evaluated music therapy, four aromatherapy and massage therapy. The most represented outcomes were pain, anxiety, well-being and QoL. Many studies demonstrated a short-term benefit in symptom improvement. Qualitative studies showed that these complementary methods are highly valued.</div></div><div><h3>Conclusion</h3><div>Main results found that music and massage therapy had the most potential benefits on a range of outcome parameters, including pain and QoL. Future studies may consider using more qualitative and/or mixed methods to provide a more comprehensive evaluation of treatment.</div></div>","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages 102-113"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141982575","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

For Betty and the Magic That is You 《贝蒂与魔法，那就是你》

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2024.10.005

William E. Rosa PhD, MBE, APRN

引用次数: 0

Complimentary Role of Comprehensive Palliative Care Treatment to Intrathecal Therapy: Case Report 综合姑息治疗在鞘内治疗中的作用：病例报告。

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2024.10.023

Sebastiano Mercadante MD

引用次数: 0

Dr. Betty Ferrell and the Extraordinary Pursuit of Worldwide Palliative Nursing Education 贝蒂·法瑞尔博士和全球姑息护理教育的非凡追求。

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2024.10.008

Judith A. Paice PhD, RN, FAAN, FASCO , Pamela Malloy MN, RN, FPCN, FAAN , Polly Mazanec PhD, FPCN, FAAN , Patrick J. Coyne MSN, ACNS-BC, ACHPN, FPCN, FAAN , Rose M. Virani-Cooksey RN, BSN, MHA, FPCN

引用次数: 0

The Betty I know—A Spiritual Being 我认识的贝蒂——一个有灵性的人。

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2024.10.011

Nessa Coyle PhD, APN, FAAN

引用次数: 0

Progressive Responsibility Map: Effective Training in Hospice and Palliative Medicine Fellowships 渐进责任图：安宁疗护与姑息医学研究班的有效培训。

IF 3.2 2区医学

Journal of pain and symptom management Pub Date : 2025-01-01 DOI: 10.1016/j.jpainsymman.2024.09.022

Ethan J. Silverman MD , Rebecca Sands DO, FAAHPM

引用次数: 0