Anne L. Dalle Ave MD, MS , Daniel P. Sulmasy MD, PhD
{"title":"Does Sedation Affect Patients’ Spiritual Experience at the End of Life? An Intersection Between Medicine and Spirituality","authors":"Anne L. Dalle Ave MD, MS , Daniel P. Sulmasy MD, PhD","doi":"10.1016/j.jpainsymman.2023.10.023","DOIUrl":"10.1016/j.jpainsymman.2023.10.023","url":null,"abstract":"","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages e86-e89"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49691005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Freeman Jodie, Klingele Anna Msc, Wolf Ursula Pro. Dr. med
{"title":"Effectiveness of music therapy, aromatherapy, and massage therapy on patients in palliative care with end-of-life needs: A systematic review","authors":"Freeman Jodie, Klingele Anna Msc, Wolf Ursula Pro. Dr. med","doi":"10.1016/j.jpainsymman.2024.07.024","DOIUrl":"10.1016/j.jpainsymman.2024.07.024","url":null,"abstract":"<div><h3>Background</h3><div>Music therapy, aromatherapy and massage therapy are widely used in palliative care in patients near end-of-life with the aim to reduce symptom burden and improve quality of life (QoL). Recent research shows an increase in popularity and use of complementary and integrative medicine however a more thorough evidence base about their usefulness is required.</div></div><div><h3>Objectives</h3><div>The aim of this study was to evaluate the available evidence on the use of music therapy, aromatherapy and massage therapy in palliative and hospice care and summarize findings.</div></div><div><h3>Methods</h3><div>A defined search strategy was used in reviewing literature from two major databases, MEDLINE and Embase for the period between 2010 and 2022. Studies were selected for further evaluation based on intervention type and relevancy. After evaluation using quality assessment tools, findings were summarised, and potential benefits were identified.</div></div><div><h3>Results</h3><div>Out of 1261 studies initially identified, 26 were selected for further evaluation. Sixteen evaluated music therapy, four aromatherapy and massage therapy. The most represented outcomes were pain, anxiety, well-being and QoL. Many studies demonstrated a short-term benefit in symptom improvement. Qualitative studies showed that these complementary methods are highly valued.</div></div><div><h3>Conclusion</h3><div>Main results found that music and massage therapy had the most potential benefits on a range of outcome parameters, including pain and QoL. Future studies may consider using more qualitative and/or mixed methods to provide a more comprehensive evaluation of treatment.</div></div>","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages 102-113"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141982575","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"For Betty and the Magic That is You","authors":"William E. Rosa PhD, MBE, APRN","doi":"10.1016/j.jpainsymman.2024.10.005","DOIUrl":"10.1016/j.jpainsymman.2024.10.005","url":null,"abstract":"","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages e25-e26"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142864692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Complimentary Role of Comprehensive Palliative Care Treatment to Intrathecal Therapy: Case Report","authors":"Sebastiano Mercadante MD","doi":"10.1016/j.jpainsymman.2024.10.023","DOIUrl":"10.1016/j.jpainsymman.2024.10.023","url":null,"abstract":"<div><div>Intrathecal therapy with implanted devices is often reported in some recommendations.for the management of difficult cancer pain However, data is often biased by optimistic view and poor assessment.</div><div>We report a case of patient in which a comprehensive and complex palliative care treatment was effective in managing a patient who was implanted a subcutaneous port for intrathecal analgesia</div><div>This patient had many characteristics of a difficult pain, really defined as refractory due to various negative prognostic pain factors, such as neuropathic pain and psychological distress..</div><div>A comprehensive pain management with a balanced approach including both interventional therapy and palliative care simultaneously, allowed to achieve optimal pain control. Terms such as intractable or refractory pain, have been ambiguously used in literature to select patients as candidates for implated pumps. A meaningful evaluation and a comprehensive treatment should be mandatory when using intrathecal anlgesia in patients with very difficult pain conditions.</div></div>","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages e82-e85"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142502466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tania Pastrana PD , Liliana De Lima Msc , Deborah Dudgeon MD, FRCPC , Anna Voeuk MD, CCFP , Ebtesam Ahmed PhD , Lukas Radbruch MD
{"title":"Use of Essential Medicines for Pain Relief and Palliative Care: A Global Consensus Process","authors":"Tania Pastrana PD , Liliana De Lima Msc , Deborah Dudgeon MD, FRCPC , Anna Voeuk MD, CCFP , Ebtesam Ahmed PhD , Lukas Radbruch MD","doi":"10.1016/j.jpainsymman.2024.10.024","DOIUrl":"10.1016/j.jpainsymman.2024.10.024","url":null,"abstract":"<div><h3>Context</h3><div>The WHO Model List of Essential Medicines includes 24 medications under the section Medicines for Pain and Palliative Care (EML). The Lancet Commission on Pain and Palliative Care developed the Lancet Essential Package (LEP), including 35 medications designed to alleviate serious health-related suffering worldwide.</div></div><div><h3>Objectives</h3><div>This study aims to provide recommendations on the appropriate use of essential of medicines in palliative care.</div></div><div><h3>Methods</h3><div>The global palliative care community was invited to submit guidelines, of which 19/22 were selected. Data was extracted on initial dose, frequency, and maximum daily dose for medications in the LEP and in the WHO EML. For medications where guidance was not available or information differed, a 2-round Delphi process was conducted with 70 experts across regions and income levels. Consensus was set to ≥70% agreement.</div></div><div><h3>Results</h3><div>Consensus in the guidelines was identified for 24 medications on three parameters. Open questions (mostly on maximum daily dose) were included in the Delphi. 63 experts from 49 countries responded (RR = 90%). No consensus was achieved for the maximum daily dose for nine medications. Significant disparities in medication availability were noted between high-income and low/middle-income countries.</div></div><div><h3>Conclusion</h3><div>We were able to partly achieve our goal, with limited evidence and a wide range of clinical practice described by the experts. This highlights an important gap in critical information which affects mostly the provision of palliative care at the primary care. Both limited availability and lack of training on the adequate use of essential medications may affect how clinicians manage symptoms, possibly relying on personal experience or trial and error, rather than evidence-based information.</div></div>","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages 53-64"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142564455","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Progressive Responsibility Map: Effective Training in Hospice and Palliative Medicine Fellowships","authors":"Ethan J. Silverman MD , Rebecca Sands DO, FAAHPM","doi":"10.1016/j.jpainsymman.2024.09.022","DOIUrl":"10.1016/j.jpainsymman.2024.09.022","url":null,"abstract":"","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages e78-e81"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142468137","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
May Hua MD, MS , Ling Guo MD, MPH , Caleb Ing MD, MS , Shuang Wang PhD , R. Sean Morrison MD
{"title":"Variation in Palliative Care Program Performance for Patients With Metastatic Cancer","authors":"May Hua MD, MS , Ling Guo MD, MPH , Caleb Ing MD, MS , Shuang Wang PhD , R. Sean Morrison MD","doi":"10.1016/j.jpainsymman.2024.10.021","DOIUrl":"10.1016/j.jpainsymman.2024.10.021","url":null,"abstract":"<div><h3>Context</h3><div>While specialist palliative care is associated with improved end-of-life quality metrics for patients with advanced cancer, its effectiveness may differ between hospitals.</div></div><div><h3>Objectives</h3><div>To examine variation in palliative care program performance on end-of-life care quality metrics.</div></div><div><h3>Methods</h3><div>Retrospective cohort study of palliative care programs that participated in the National Palliative Care Registry, 2018–2019. Medicare data for patients age ≥65 who died with metastatic cancer were aggregated on a program-level. Variation in program performance on outcomes (use of hospice, hospice enrollment ≥3 days, use of intensive care in the last 30 days of life, and use of chemotherapy in the last 14 days of life) was quantified by risk-standardized outcome rates (RSOR) and adjusted median odds ratios (aMOR).</div></div><div><h3>Results</h3><div>The cohort comprised 235 palliative care programs who delivered care to 33,015 patients. There was substantial variation in use of hospice (median RSOR 65.6%, interquartile range (IQR) 57.5%–74.3%), hospice enrollment ≥3 days (median RSOR 53.6%, IQR 48.6%–58.2%), and use of intensive care (median RSOR 14.1%, IQR 13.1%–15.3%), but not use of chemotherapy (median RSOR 1.5%, IQR 1.4%–1.5%). Variation was greatest for hospice use (aMOR 1.48 [1.39–1.57]), suggesting that patients at programs with high hospice use would be 48% more likely to use hospice than if they received care at programs with low use.</div></div><div><h3>Conclusion</h3><div>We found variation in most end-of-life quality metrics for patients with metastatic cancer. Further work is needed to better understand why variations exist and whether such variations reflect a difference in quality of care.</div></div>","PeriodicalId":16634,"journal":{"name":"Journal of pain and symptom management","volume":"69 1","pages":"Pages 23-33.e2"},"PeriodicalIF":3.2,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142502369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}