儿童姑息治疗患者经验的标准化评估：国家合作。

IF 3.5 2区医学 Q2 CLINICAL NEUROLOGY

Journal of pain and symptom management Pub Date : 2025-07-24 DOI:10.1016/j.jpainsymman.2025.07.011

Ashley K. Autrey MD , Stacey Rifkin-Zenenberg DO , Tracy Hills DO , Jennifer Salant MD , Rachna May MD , Elliot Rabinowitz MD , Chelsea Heneghan CNP , Laura Drach DO, MSN , Emma Jones MD, MA , Rachel Thienprayoon MD

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引用次数: 0

摘要

背景：使用患者报告的结果测量（PROMs）对于提供以患者为中心的护理至关重要。2022年，儿科姑息治疗改善网络（Pediatric Palliative Improvement Network）开发了一个项目，对PPC服务的患者体验进行标准化评估。措施：到2022年12月31日，我们的目标是：10个参与站点，评估50%的符合条件的PPC患者体验，25%的响应率。干预：项目负责人为研究过程、准确及时的数据收集和协作学习提供指导。数据收集于2022年1月至12月。网站使用了两个标准化的关键指标问题，包括一个国家质量论坛认可的姑息治疗PROM。结果：14个站点参与，调查患者占69%(1631/2360)，收集到304份应答（有效率19%）。患者/家属感到被倾听和理解，并会推荐PPC。结论/经验教训：对PPC患者经历进行标准化评估是可行的，并且具有信息性。prom可以确保PPC服务满足患者需求，确定改进机会，并展示价值。

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Standardized Assessment of Patient Experience in Pediatric Palliative Care: A National Collaboration

Background

Use of patient reported outcome measures (PROMs) are crucial to providing patient-centered care. In 2022, the Pediatric Palliative Improvement Network developed a project to standardize the assessment of patient experiences with PPC services.

Measures

By December 31, 2022, we aimed for: 10 participating sites, 50% of eligible PPC patient experiences assessed, and 25% response rate.

Intervention

Project leaders provided guidance for study processes, accurate timely data gathering, and collaborative learning. Data was collected from January to December, 2022. Sites utilized two standardized key indicator questions, including one National Quality Forum-endorsed palliative care PROM.

Results

Fourteen sites participated with 69% of patients (1631/2360) surveyed and 304 responses (19% response rate) gathered. Patients/Families felt heard and understood and would recommend PPC.

Conclusions/Lessons learned

Standardized assessments of patient experience with PPC are feasible and informative. PROMs can ensure that PPC services meet patient needs, identify opportunities for improvement, and demonstrate value.

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来源期刊

Journal of pain and symptom management 医学-临床神经学

CiteScore

8.90

自引率

6.40%

发文量

821

审稿时长

26 days

期刊介绍： The Journal of Pain and Symptom Management is an internationally respected, peer-reviewed journal and serves an interdisciplinary audience of professionals by providing a forum for the publication of the latest clinical research and best practices related to the relief of illness burden among patients afflicted with serious or life-threatening illness.