Journal of Geriatric Psychiatry and Neurology最新文献

筛选
英文 中文
Geriatric dizziness 老年眩晕
IF 2.6 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-06-15 DOI: 10.53991/jgn.2023.00024
Sampaio Ha
{"title":"Geriatric dizziness","authors":"Sampaio Ha","doi":"10.53991/jgn.2023.00024","DOIUrl":"https://doi.org/10.53991/jgn.2023.00024","url":null,"abstract":"The prevalence of vertigo and dizziness in the elderly is rapidly increasing due to aging of population. The presence of dizziness in the aged may be connected to falls, which is the leading cause of accidental death in older people. The geriatric dizziness may manifest differently, as patients tend to report less rotatory vertigo and more non-specific and complex dizziness than younger patients. The understanding of pathophysiology in the geriatric dizziness and systematic approach for this symptom help a clinician to find proper management. In this review, we present age-related degenerative changes in nervous system and diagnostic and therapeutic approaches focusing on the elderly patients with dizziness.","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"80 1","pages":""},"PeriodicalIF":2.6,"publicationDate":"2023-06-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88529203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The reality and future of home visit care from an economic point of view 从经济角度看家访护理的现实与未来
IF 2.6 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-05-11 DOI: 10.53991/jgn.2023.00017
D. Oh
{"title":"The reality and future of home visit care from an economic point of view","authors":"D. Oh","doi":"10.53991/jgn.2023.00017","DOIUrl":"https://doi.org/10.53991/jgn.2023.00017","url":null,"abstract":"","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"71 1","pages":""},"PeriodicalIF":2.6,"publicationDate":"2023-05-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86053787","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Impact of the COVID-19 Pandemic on Informal Caregivers of People With Parkinson's Disease Residing in the UK: A Qualitative Study. COVID-19大流行对居住在英国的帕金森病患者的非正式照顾者的影响:一项定性研究
IF 2.6 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-05-01 DOI: 10.1177/08919887221135555
Daniel Rippon, Annette Hand, Lorelle Dismore, Roberta Caiazza
{"title":"The Impact of the COVID-19 Pandemic on Informal Caregivers of People With Parkinson's Disease Residing in the UK: A Qualitative Study.","authors":"Daniel Rippon,&nbsp;Annette Hand,&nbsp;Lorelle Dismore,&nbsp;Roberta Caiazza","doi":"10.1177/08919887221135555","DOIUrl":"https://doi.org/10.1177/08919887221135555","url":null,"abstract":"<p><p>Informal caregivers can experience various demands when providing care and support for People with Parkinson's disease (PwP) in their own homes. The outbreak of SARS-CoV-2 and public health strategies employed to mitigate the spread of COVID-19 have presented challenges to the general populace on a global basis. The present study used a qualitative research design to explore how the COVID-19 pandemic has impacted informal caregivers in their role of providing care for PwP in their own homes. A series of 1:1 semi-structured interviews were conducted with 11 informal caregivers of PwP (<i>M</i> age = 72.64 years, <i>SD</i> = 8.94 years). A thematic analysis indicated that 1) vulnerabilities to COVID-19, 2) home maintenance & activities of daily living and 3) engagement with healthcare services were 3 themes that provided indications on how the COVID-19 pandemic impacted informal caregivers of PwP. The present study provides illustrations of how being an informal caregiver of PwP and being identified as high risk to COVID-19 can present challenges to the process of caring for loved ones who are also vulnerable to SARS-CoV-2. The results of the present study highlights the necessity to develop strategies to ensure that informal caregivers have the necessary resources to provide care for PwP in their homes and also maintain their own well-being in the post COVID-19 era.</p>","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"36 3","pages":"233-245"},"PeriodicalIF":2.6,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9596687/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9618709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
Family Carers of People with Dementia in Japan, Spain, and the UK: A Cross-Cultural Comparison of the Relationships between Experiential Avoidance, Cognitive Fusion, and Carer Depression. 日本、西班牙和英国痴呆症患者的家庭照顾者:经验回避、认知融合和照顾者抑郁关系的跨文化比较
IF 2.6 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-05-01 DOI: 10.1177/08919887221130269
Naoko Kishita, Hiroshi Morimoto, María Márquez-González, Samara Barrera-Caballero, Carlos Vara-García, Elien Van Hout, Milena Contreras, Andrés Losada-Baltar
{"title":"Family Carers of People with Dementia in Japan, Spain, and the UK: A Cross-Cultural Comparison of the Relationships between Experiential Avoidance, Cognitive Fusion, and Carer Depression.","authors":"Naoko Kishita,&nbsp;Hiroshi Morimoto,&nbsp;María Márquez-González,&nbsp;Samara Barrera-Caballero,&nbsp;Carlos Vara-García,&nbsp;Elien Van Hout,&nbsp;Milena Contreras,&nbsp;Andrés Losada-Baltar","doi":"10.1177/08919887221130269","DOIUrl":"https://doi.org/10.1177/08919887221130269","url":null,"abstract":"<p><p><b>Objective and research design</b> This study investigated whether the relationship between experiential avoidance and carer depression is mediated by cognitive fusion using path analysis and whether this model differs between family carers from Japan, Spain, and the UK using multi-group path analysis. <b>Results</b> The whole sample model (<i>N</i> = 745) showed a good fit to the data. The direct effect of experiential avoidance on carer depression (<i>β</i> = .10) and its indirect effect on carer depression through cognitive fusion (<i>β</i> = .15) were significant. Examined variables accounted for 45% of the variance of depression. Multi-group path analysis confirmed the same pattern of indirect path across 3 countries, while the direct path was no longer significant in Spanish and UK samples.<b>Conclusion</b> These findings suggest that targeting cognitive fusion may be particularly critical in culturally diverse carers and pre-emptive efforts to reduce experiential avoidance using psychological techniques may be beneficial among family carers prone to cognitive fusion regardless of cultural differences.</p>","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"36 3","pages":"254-264"},"PeriodicalIF":2.6,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10114255/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9616145","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Demographic and Symptom Correlates of Initial Idiopathic Psychiatric Diagnosis in Frontotemporal Dementia. 前额颞叶痴呆症患者初始特发性精神病诊断的人口统计学和症状相关性。
IF 2.9 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-05-01 Epub Date: 2022-11-07 DOI: 10.1177/08919887221130267
Corinne Sejourne, Jordan D Dworkin, Megan S Barker, Masood Manoochehri, Reena T Gottesman, Eric M Wassermann, Michael C Tierney, Edward D Huey, Jordan Grafman
{"title":"Demographic and Symptom Correlates of Initial Idiopathic Psychiatric Diagnosis in Frontotemporal Dementia.","authors":"Corinne Sejourne, Jordan D Dworkin, Megan S Barker, Masood Manoochehri, Reena T Gottesman, Eric M Wassermann, Michael C Tierney, Edward D Huey, Jordan Grafman","doi":"10.1177/08919887221130267","DOIUrl":"10.1177/08919887221130267","url":null,"abstract":"<p><strong>Introduction: </strong>This study aims to measure frequency and correlates of initial idiopathic psychiatric diagnosis in a cohort of 147 patients with Frontotemporal Dementia (FTD)-spectrum disorders.</p><p><strong>Methods: </strong>Participants were evaluated at the National Institutes of Health in Bethesda, Maryland. Initial participant diagnoses were determined by chart review and patient and informant interviews. Logistic regression was used to assess the relationships between diagnosis and age of symptom onset, gender, education, family history of psychiatric illness, and family history of dementia. Additional exploratory analyses investigated patients' first symptom type.</p><p><strong>Results: </strong>25% (n=43) of all the patients reviewed were initially misdiagnosed with an idiopathic psychiatric illness, which is less than half the commonly cited 50% rate.<sup>3</sup> Depression was the most common misdiagnosis (46.5%). Family history of dementia, family history of mental illness and an exploratory analysis of behavioral first symptoms suggested significant association with a greater likelihood of initial idiopathic psychiatric diagnosis in FTD patients.</p><p><strong>Discussion: </strong>This data confirms patterns of initial idiopathic psychiatric diagnosis in FTD and elucidates potential factors underlying misdiagnosis. Potential implications for patient outcomes, caregiver burden and healthcare costs are discussed.</p>","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"36 3","pages":"193-200"},"PeriodicalIF":2.9,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11279523/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9616152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Effect of the Art Therapy Interventions on Depression Symptoms Among Older Adults: A Meta-analysis of Controlled Clinical Trials. 艺术治疗干预对老年人抑郁症状的影响:一项对照临床试验的荟萃分析
IF 2.6 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-05-01 DOI: 10.1177/08919887221130264
Ensiyeh Jenabi, Saeid Bashirian, Erfan Ayubi, Masoud Rafiee, Mozhdeh Bashirian
{"title":"The Effect of the Art Therapy Interventions on Depression Symptoms Among Older Adults: A Meta-analysis of Controlled Clinical Trials.","authors":"Ensiyeh Jenabi,&nbsp;Saeid Bashirian,&nbsp;Erfan Ayubi,&nbsp;Masoud Rafiee,&nbsp;Mozhdeh Bashirian","doi":"10.1177/08919887221130264","DOIUrl":"https://doi.org/10.1177/08919887221130264","url":null,"abstract":"<p><strong>Background: </strong>To our knowledge, no systematic reviews and meta-analyses have yet been published that examine the effect of art therapy (AT) interventions on depression symptoms among older adults, and this study aimed to systematically review and meta-analysis of clinical trials, summarize eligible relevant studies and provide a true effect measure for the association between AT and depression symptoms in older adults.</p><p><strong>Methods: </strong>The databases of PubMed, Web of Science, Scopus, and the Cochrane Central Register of Controlled Trials were searched until 15 February 2022. The methodological quality of the included studies was evaluated by the Delphi checklist<b>.</b> The heterogeneity across studies was conducted by chi-squared test and measured its quantity by the I<sup>2</sup> statistic. We performed this meta-analysis to obtain a summary measure of the mean difference in depression scores between AT and control groups using a random-effects model<b>.</b> All statistical analyses were carried out at a significance level of .05 using Stata software, version 14.</p><p><strong>Results: </strong>Until 15 February 2022, 222 studies through databases and 199 studies through review of references were included in the present meta-analysis. In total, the analysis covered 8 studies. The difference in mean depression score between the intervention and control groups showed significant reductions in the AT group (MD -.78; 95% CI: -1.17, -.38; I 2 = 67.9%).</p><p><strong>Conclusion: </strong>Our findings suggest that AT can be considered an effective intervention for reducing depression symptoms among older adults and art therapists/psychotherapists can use this method to reduce the symptoms of depression among older adults.</p>","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"36 3","pages":"185-192"},"PeriodicalIF":2.6,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9618703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Psychological Factors Associated With Fear of Falling Avoidance Behavior in Parkinson's Disease: The Role of Depression, Anxiety, and Catastrophizing. 帕金森氏症患者害怕避免跌倒行为的相关心理因素:抑郁、焦虑和灾难化的作用
IF 2.6 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-05-01 DOI: 10.1177/08919887221119974
John V Rider, Jason K Longhurst, Nirmala Lekhak, James W Navalta, Daniel L Young, Merrill R Landers
{"title":"Psychological Factors Associated With Fear of Falling Avoidance Behavior in Parkinson's Disease: The Role of Depression, Anxiety, and Catastrophizing.","authors":"John V Rider,&nbsp;Jason K Longhurst,&nbsp;Nirmala Lekhak,&nbsp;James W Navalta,&nbsp;Daniel L Young,&nbsp;Merrill R Landers","doi":"10.1177/08919887221119974","DOIUrl":"https://doi.org/10.1177/08919887221119974","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of this study was to examine the relationship between psychological factors (depression, anxiety, and catastrophizing) and fear of falling avoidance behavior (FFAB) among individuals with Parkinson's disease (PD).</p><p><strong>Methods: </strong>A secondary analysis of cross-sectional data from 59 individuals with PD using hierarchical multiple regression.</p><p><strong>Results: </strong>Disease severity (Movement Disorder Society - Unified PD Rating Scale) and catastrophizing (Consequences of Falling Questionnaire (CoF)) explained approximately 48.2% of the variance in the FFAB Questionnaire scores (<i>P</i> < .001). Catastrophizing was the only significant psychological variable (<i>P</i> < .001). The <i>damage to identity</i> subscale of the CoF was significant in the final model (<i>P</i> < .001).</p><p><strong>Conclusions: </strong>Catastrophizing about the consequences of falls explained the largest portion of variability in FFAB after controlling for disease severity. Catastrophizing about the immediate consequences of falling may play a prominent role in FFAB and may be a potential treatment target for mitigating FFAB.</p>","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"36 3","pages":"215-224"},"PeriodicalIF":2.6,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9669035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Dance-Specific Activity in People Living With Dementia: A Conceptual Framework and Systematic Review of Its Effects on Neuropsychiatric Symptoms. 痴呆症患者舞蹈特异性活动:概念框架及其对神经精神症状影响的系统评价
IF 2.6 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-05-01 DOI: 10.1177/08919887221130268
Henning Schroeder, Peter Haussermann, Tim Fleiner
{"title":"Dance-Specific Activity in People Living With Dementia: A Conceptual Framework and Systematic Review of Its Effects on Neuropsychiatric Symptoms.","authors":"Henning Schroeder,&nbsp;Peter Haussermann,&nbsp;Tim Fleiner","doi":"10.1177/08919887221130268","DOIUrl":"https://doi.org/10.1177/08919887221130268","url":null,"abstract":"<p><strong>Objectives: </strong>Dance as a non-pharmacological therapy is commonly used in dementia care, although the evidence of its effects remains unclear. This study systematically reviewed the effects of dance interventions on neuropsychiatric symptoms (NPS) in people living with dementia. To systematically identify and evaluate dance interventions, a standardized terminology for Dance-Specific Activity (DSA) is proposed.</p><p><strong>Methods: </strong>Literature search was conducted on electronic databases until April 30<sup>th</sup> 2021. Studies were included when they quantified the effects of DSA on NPS in people with clinical diagnosis of dementia. Included studies were analyzed in detail for NPS. Study quality was assessed by PEDro scale (German version).</p><p><strong>Results: </strong>4 studies were included. The studies differed in study design, intervention protocols, dance styles, or measurement tools, and were generally of low study quality. Two trials showed improvements in NPS and 2 trials showed no exacerbation of NPS after DSA.</p><p><strong>Conclusions: </strong>The results of the 4 available trials indicate a positive tendency towards the effects of DSA, but considering the limitations of the few available studies, a clear statement about the effects of DSA is not possible yet. Based on the included trials, the following implications for clinical research and routine care can be derived: (1) DSA seems to be a practical terminology for identifying dance interventions (2) DSA seems to be a safe intervention for people living with dementia. (3) Different dance styles can be used. (4) DSA approaches should be better structured by differentiating between the domains <i>type, content, intention, and protocol of the intervention.</i></p>","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"36 3","pages":"175-184"},"PeriodicalIF":2.6,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10641380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Do Adult Attachment Style or Personality Mediate the Relationship Between Childhood Maltreatment and Late-Life Depression in Poor Communities? 成人依恋类型或人格是否在贫困社区儿童虐待与晚年抑郁的关系中起中介作用?
IF 2.6 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-05-01 DOI: 10.1177/08919887221119979
Gabriel Behr Gomes Jardim, Irenio Gomes, Gholam Mehdi, Setareh Ranjbar, Paula Engroff, Milena Antunes Santos, Alfredo Cataldo Neto, Armin von Gunten
{"title":"Do Adult Attachment Style or Personality Mediate the Relationship Between Childhood Maltreatment and Late-Life Depression in Poor Communities?","authors":"Gabriel Behr Gomes Jardim,&nbsp;Irenio Gomes,&nbsp;Gholam Mehdi,&nbsp;Setareh Ranjbar,&nbsp;Paula Engroff,&nbsp;Milena Antunes Santos,&nbsp;Alfredo Cataldo Neto,&nbsp;Armin von Gunten","doi":"10.1177/08919887221119979","DOIUrl":"https://doi.org/10.1177/08919887221119979","url":null,"abstract":"<p><strong>Objective: </strong>Childhood maltreatment is associated with late-life depression. Preliminary evidence indicates that personality characteristics, in particular neuroticism and extroversion, and an anxious attachment style mediate this association. The objective is to evaluate 3 models, in which personality and attachment are considered mediators between childhood maltreatment and late-life depression in a socioeconomically disadvantaged Brazilian population.</p><p><strong>Methods: </strong>This study included participants (n = 260) from socioeconomically disadvantaged neighborhoods of Porto Alegre, Brazil, who completed measures of childhood maltreatment (Childhood Trauma Questionnaire - CTQ), personality characteristics (NEO-Five Factor Inventory), attachment styles (Relationship Scales Questionnaire), and geriatric depression (Mini-International Neuropsychiatric Interview-Plus). General multiple and sequential mediation analyses were used to test for possible associations.</p><p><strong>Results: </strong>Attachment anxiety but not attachment avoidance is a mediator between childhood maltreatment and geriatric depression. Neuroticism is a full mediator. At that, attachment anxiety was found to be a predictor of neuroticism. Finally, sequential mediation analysis shows a path from childhood maltreatment to geriatric depression through attachment anxiety and neuroticism.</p><p><strong>Conclusions: </strong>The results suggest a pathway from childhood maltreatment to anxious attachment, which in turn predicts higher neuroticism that itself may favor late-life depression. This hypothesis could have implications for older adults living in low socioeconomic settings in that treating the high-risk group of maltreated children may help prevent late-life depression.</p>","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"36 3","pages":"246-253"},"PeriodicalIF":2.6,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/c1/10/10.1177_08919887221119979.PMC10114258.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9614867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Living With Frontotemporal Degeneration: Diagnostic Journey, Symptom Experiences, and Disease Impact. 与额颞叶变性共存:诊断历程、症状体验和疾病影响。
IF 2.6 4区 医学
Journal of Geriatric Psychiatry and Neurology Pub Date : 2023-05-01 Epub Date: 2022-08-09 DOI: 10.1177/08919887221119976
Megan S Barker, Shana G Dodge, Debra Niehoff, Sharon Denny, Penny A Dacks, Susan Dickinson, Stephanie Cosentino, Dianna K H Wheaton
{"title":"Living With Frontotemporal Degeneration: Diagnostic Journey, Symptom Experiences, and Disease Impact.","authors":"Megan S Barker, Shana G Dodge, Debra Niehoff, Sharon Denny, Penny A Dacks, Susan Dickinson, Stephanie Cosentino, Dianna K H Wheaton","doi":"10.1177/08919887221119976","DOIUrl":"10.1177/08919887221119976","url":null,"abstract":"<p><p>Frontotemporal degeneration (FTD) is an umbrella term encompassing a range of rare neurodegenerative disorders that cause progressive declines in cognition, behavior, and personality. Hearing directly from individuals living with FTD and their care partners is critical in optimizing care, identifying meaningful clinical trial endpoints, and improving research recruitment and retention. The current paper presents a subset of data from the FTD Insights Survey, chronicling the diagnostic journey, symptoms, and the impact of FTD on distress, quality of life, and independence, in the mild to moderate stages of the disease. Survey respondents included 219 individuals diagnosed with FTD and 437 current care partners, representing a range of FTD diagnoses. Around half of survey respondents reported seeing three or more doctors before an FTD diagnosis was given, and a range of prior diagnoses were noted. Most frequently endorsed symptoms tended to be consistent with clinical characteristics of the specific diagnosis, though there was significant variability in symptoms reported within diagnostic categories as well as considerable overlap in symptoms between diagnostic categories. Cognitive and language symptoms of FTD were generally most distressing to the person diagnosed, and a loss of independence was endorsed as affecting quality of life. The distinct perspectives of diagnosed persons and care partners regarding disease impact differed notably for bvFTD/Pick's disease. Participating independently in a range of activities, within the home, outside the home, and with other people, were reported as challenging for people living with FTD, underscoring the degree to which the lives of these individuals are affected even at the mild and moderate stages of disease. Overall, by heeding the perspectives of those living with FTD, we can begin to design more meaningful research studies, provide better care, and develop therapies that improve quality of life.</p>","PeriodicalId":16028,"journal":{"name":"Journal of Geriatric Psychiatry and Neurology","volume":"36 3","pages":"201-214"},"PeriodicalIF":2.6,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/6a/a4/10.1177_08919887221119976.PMC10114256.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9607082","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信