Journal of evaluation in clinical practice最新文献

{"title":"Research Progress on the Conceptual Evolution, Theoretical Modelling and Measurement Tools of Electronic Health Literacy","authors":"Yun Wang,&nbsp;Xinwen Zhang,&nbsp;Lijing Wang,&nbsp;Meiyi Guo,&nbsp;Yanling Li,&nbsp;Lingling Li","doi":"10.1111/jep.70248","DOIUrl":"https://doi.org/10.1111/jep.70248","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>This study aimed to collect and analyse electronic health (eHealth) and eHealth literacy (eHL)-related research, expound the development of eHL evaluation tools at home and abroad, provide reference for the theoretical and applied research of eHL in China and promote the improvement of eHL in the Chinese population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>By collating relevant research articles, the concept evolution, theoretical models and development of eHL at home and abroad were analysed and summarized; furthermore, the content, measurement performance and application of eHL were explored.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The concept of eHL has not yet been generally recognized. There are six known theoretical models of eHL, namely the Lily Model, the Comprehensive Model of eHealth Literacy, Andersen's Behavioural Model of Health Services Use, the eHealth Literacy Extended User–Task–Context Matrix Model, the Comprehensive Model of eHealth Utilization and the eHealth Literacy Interactive Model. The above models have matured through research but have not been fully evaluated and empirically studied. The assessment tools of eHL, such as the eHealth Literacy Scale, Digital Health Literacy Instrument and Electronic Health Literacy Assessment Toolkit, are diverse for different populations and types of application scenarios; however, although the scales are rich, they are not ideally suited for use in China. Therefore, the concepts, models and scale tools for eHL continue to be explored and investigated.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>At present, definitions of eHL-related concepts exist, and the models and measurement tools of eHL are diverse and rich; however, it is necessary to continue to explore the measurement tools suitable for Chinese people and enrich the theoretical basis and models in China.</p>\u0000 </section>\u0000 </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144869992","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family Members' Needs in Internal Medicine Wards and the ICU: A Comparison","authors":"Tatyana Lupyan,&nbsp;Revital Zelker,&nbsp;Shadi Abomokh,&nbsp;Adena Brickman,&nbsp;Sigal Shafran-Tikva,&nbsp;Rely Alon,&nbsp;Muriel Cohen,&nbsp;Julie Benbenishty","doi":"10.1111/jep.70239","DOIUrl":"https://doi.org/10.1111/jep.70239","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Rationale</h3>\u0000 \u0000 <p>Families of patients being mechanically ventilated in hospital ward or ICU settings, may experience significant morbidities. A comparison of the needs in these two populations is necessary to address the challenges they experience.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>Explore the needs of families of ventilated patients located in the ICU compared to those whose family member is being ventilated in an internal medicine ward.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This was a cross-sectional secondary analysis of data collected between 2013 and 2019 in ICU and internal medicine departments. Participants in both settings were aged over 18 years, gave their consent to participate in the questionnaire-based study, and were either family or legal relatives of a hospitalised patient. Inclusion criteria required a hospital length of stay of more than 2 days.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 221 family members were recruited: 89 from the ICU and 132 from internal medicine departments. The results indicated that families of a patient in an internal medicine ward required significantly more support and proximity than those with a family member in the ICU. In contrast, the ICU associated families demonstrated significantly higher needs for information than those with a family member in an internal medicine ward.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Families of ventilated patients in internal medicine wards and ICUs have unfulfilled needs that should be considered. Different clinical settings present diverse challenges, which clinicians need to know how to address. The climate and nature of the clinical ward or unit influence the family's needs.</p>\u0000 </section>\u0000 </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70239","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144869995","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Is Readability a Proxy for Reliability? A Qualitative Evaluation of ChatGPT-4.0 in Orthopaedic Trauma Communication","authors":"Mehmet Okan Atahan,&nbsp;Çağrı Üner,&nbsp;Mehmet Aydemir,&nbsp;Mehmet Fatih Uzun,&nbsp;Mustafa Yalın,&nbsp;Fatih Gölgelioğlu","doi":"10.1111/jep.70238","DOIUrl":"https://doi.org/10.1111/jep.70238","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>This study aimed to evaluate the accuracy, readability, and safety of ChatGPT-4.0's responses to frequently asked questions (FAQs) related to orthopaedic trauma and to examine whether readability is associated with the quality and reliability of content.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Ten common patient questions related to orthopaedic emergencies were submitted to ChatGPT-4.0. Each response was assessed independently by three orthopaedic trauma surgeons using a 4-point ordinal scale for accuracy, clinical appropriateness, and safety. Readability was calculated using the Flesch-Kincaid Grade Level (FKGL). Inter-rater agreement was analysed using intraclass correlation coefficients (ICC). The presence of disclaimers was also recorded.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>ChatGPT-4.0's responses had a mean FKGL score of 10.5, indicating high school-level readability. Stratified analysis showed comparable readability scores across response quality categories: excellent (10.0), poor (9.8), and dangerous (10.1), suggesting that readability does not predict content reliability. Accuracy and safety scores varied considerably among responses, with the highest inter-rater agreement in clinical appropriateness (ICC = 0.81) and the lowest in safety assessments (ICC = 0.68). Notably, nine out of 10 responses included a disclaimer indicating the nonprofessional nature of the content, with one omission observed in a high-risk clinical scenario.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Although ChatGPT-4.0 provides generally readable responses to orthopaedic trauma questions, readability does not reliably distinguish between accurate and potentially harmful information. These findings highlight the need for expert review when using AI-generated content in clinical communication.</p>\u0000 </section>\u0000 </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144833125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Trust in Medical AI: The Case of mHealth Diabetes Apps","authors":"Sophie Materne,&nbsp;Stefano Canali,&nbsp;Daniele Chiffi","doi":"10.1111/jep.70216","DOIUrl":"https://doi.org/10.1111/jep.70216","url":null,"abstract":"<p>Over the past few years, mobile health applications (mHealth apps) have gained popularity regarding the management of chronic conditions, such as diabetes, as they are considered to enhance follow-up and treatment. Indeed, these applications are powerful tools that support individualised pharmaceutical and non-pharmaceutical care by remotely monitoring the patient's health status in real-time. Nevertheless, concerns have been raised regarding trust and trustworthiness towards their use, in particular, when they are powered by Artificial Intelligence (AI). Trust in AI is a multifaceted notion that encompasses aspects such as reliance, risk, as well as ethical principles (e.g., respect for human autonomy and prevention of harm). In this paper, we provide an analysis of trust and trustworthiness in AI-powered mHealth apps for diabetes through the lens of philosophy and risk analysis to promote the patient's well-being.</p>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70216","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144833092","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"From Stagnation to Strategy: Challenges in Advancing Long COVID Research","authors":"Appleby Ellen","doi":"10.1111/jep.70180","DOIUrl":"https://doi.org/10.1111/jep.70180","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Long COVID is a debilitating multisystemic condition and is a major public health burden, yet the pathophysiology remains poorly understood and there are no effective treatments. Despite the urgent need for better management strategies, research into long COVID is losing momentum.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objectives</h3>\u0000 \u0000 <p>To help tackle this loss of momentum, this article analyses the major challenges impeding progress and proposes innovative strategies to navigate them and to reinvigorate this research field.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>The analysis of the long COVID research domain drew on a broad range of scientific literature to identify major barriers to research and potential pathways forward.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The research highlighted critical obstacles, including the lack of reliable biomarkers which has necessitated a reliance on symptom reporting that is inherently heterogenous, temporally complex and often confounded by symptoms arising from pre-existing comorbidities. The absence of pre-infection baseline data further complicates the distinction between long COVID-specific pathophysiology and the effects of pre-existing co-morbidities. Additionally, the long COVID patient population has heterogenous multiorgan pathology, and this diversity makes it difficult to identify and interpret clinical findings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Addressing these methodological and conceptual challenges is essential to accelerate the understanding of long COVID pathophysiology and guide the development of effective interventions.</p>\u0000 </section>\u0000 </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70180","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144833091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How to Evaluate Hospital Care in the Dying Phase—Development of a Data Extraction Tool for Retrospective Medical Record Analysis","authors":"Sukhvir Kaur,&nbsp;Sophie Meesters,&nbsp;Aneta Schieferdecker,&nbsp;Annika Dangendorf,&nbsp;Barbara Strohbücker,&nbsp;Nikolas Oubaid,&nbsp;Anneke Ullrich,&nbsp;Viola Milke,&nbsp;Karin Oechsle,&nbsp;Holger Schulz,&nbsp;Raymond Voltz,&nbsp;Kerstin Kremeike","doi":"10.1111/jep.70174","DOIUrl":"https://doi.org/10.1111/jep.70174","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Hospitals are the most common place of death in European countries, including Germany, where nearly half of the population dies in hospitals, mostly outside specialised palliative care wards. At the same time, quality of hospital care in the dying phase is reported as poor. Although existing (inter-)national guidelines provide outcome variables, their evaluation of implementation is lacking. This study aims to develop and test a structured tool for data extraction from medical records (MRs) to evaluate hospital care in the dying phase. The provision of such a tool can help to identify needs for improvement of care.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We developed a data extraction tool by operationalizing recommendations for the dying phase of the evidenced-&lt;i&gt;based German National Palliative Care Guideline&lt;/i&gt;. The tool was used to extract notes from MRs of &lt;i&gt;n&lt;/i&gt; = 400 deceased patients of 10 general wards and intensive care units at two University Medical Centres. We analysed the tool's information density and content validity. Descriptive statistics were calculated as frequencies and percentages.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The final tool consists of 39 variables in six domains. Initially, 55 variables were derived from guideline recommendations. With regard to content validity, notes for 37 (67%) variables could be extracted from the MRs, while 16 variables were removed due to poor or unclear documentation. Two additional variables were identified inductively and included in the final tool. Notes could be extracted for all domains, while information density (% of MR with notes) varied: (1) Dying process and death (&lt;i&gt;n&lt;/i&gt; = 380, 95.0%), (2) Medication and interventions (&lt;i&gt;N&lt;/i&gt; = 323, 80.7%), (3) Information and involvement of patients and informal caregivers (&lt;i&gt;n&lt;/i&gt; = 155, 38.8%), (4) Symptom assessment (&lt;i&gt;n&lt;/i&gt; = 105, 26.3%), (5) Involvement of specialised palliative care (&lt;i&gt;n&lt;/i&gt; = 78, 19.5%), (6) Goals-of-care (&lt;i&gt;n&lt;/i&gt; = 76, 19.0%). Variation in documentation can reflect differences in care provision or recording practices, suggesting a need for documentation standards.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The tool enables a structured retrospective analysis of guideline-recommended aspects of care in the dying phase in MRs, applicable to both general wards and intensive care units. It can support quality improvement by identifying documentation gaps and areas of care improvement, and can contribute to target interventions in different hospital setting","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70174","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144832585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"On Missed Appointments: The Ethics of Nonattendance in General Practice","authors":"Richard C. Armitage","doi":"10.1111/jep.70222","DOIUrl":"https://doi.org/10.1111/jep.70222","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>A substantial number of general practice appointments in England are missed each year, which incurs considerable cost to the NHS. In the absence of an authoritative policy, there is variation in how GPs manage missed appointments in this setting. There are various reasons for why patients miss their GP appointments, many of which lie outside the patients' control.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This paper undertakes an ethical analysis, using the framework of Principlism, of missed GP appointments in the NHS.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>This paper finds that missed appointments might prevent the patient's autonomy (which requires the health problem for which the GP appointment was booked to be adequately addressed) from being upheld, frustrate the possibility of promoting beneficence (particularly among patients with multimorbidity and mental health problems), threaten non-maleficence (also particularly among patients with multimorbidity and mental health problems), and violate the principle of justice due to exacerbating health inequalities and wasted scarce healthcare resources.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This paper suggests that GPs should make efforts to contact patients who miss their appointments, via telephone in cases of missed in-person appointments, and via multiple attempted calls in cases of missed telephone or online appointments.</p>\u0000 </section>\u0000 </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70222","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144833093","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ethical Awareness in the Use of Large Language Models: Development and Validation of a Scale for Healthcare Professionals","authors":"Maha Gamal Ramadan Asal,&nbsp;Samira Ahmed Alsenany,&nbsp;Talal Emad Ahmed Badoman,&nbsp;Ahmed Abdelwahab Ibrahim El-Sayed","doi":"10.1111/jep.70241","DOIUrl":"https://doi.org/10.1111/jep.70241","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The integration of large language models (LLMs) into healthcare offers transformative potential but raises significant ethical challenges. Addressing these challenges requires a comprehensive framework to assess healthcare professionals' ethical awareness of LLMs usage.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>To develop and validate a scale designed to evaluate healthcare professionals' ethical awareness regarding the integration of LLMs into clinical practice.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This two-phase methodological study was conducted in 2024 across nine healthcare institutions—five in Egypt and four in Saudi Arabia. In Phase I, a comprehensive literature review and semi-structured interviews with healthcare professionals guided the development of the initial scale and item pool. In Phase II, the psychometric properties of the scale were evaluated using data collected from 658 healthcare professionals. Construct validity was assessed through exploratory and confirmatory factor analyses, while internal consistency reliability was examined using Cronbach's alpha (<i>α</i>) coefficients and item–total correlation metrics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>An initial pool of 36 items was refined to 21 items across 6 dimensions: data privacy and confidentiality, consent and autonomy, transparency and accountability, bias and equity, safety and professional integrity, and education and sustainability. EFA identified a six-factor structure accounting for 71.5% of the variance. CFA confirmed the scale's structure with strong model fit indices for first-order analysis (CMIN/DF = 1.798, CFI = 0.967, RMSEA = 0.050) and second-order analysis (CMIN/DF = 2.862, CFI = 0.927, RMSEA = 0.058). The scale demonstrated excellent internal consistency (overall Cronbach's <i>α</i> = 0.90; dimensions ranging from 0.780 to 0.964) and achieved satisfactory composite reliability, convergent validity and discriminant validity. Moderate statistically significant inter-factor correlations confirmed the multidimensional nature of the scale.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The developed scale is a valid and reliable tool for assessing healthcare professionals' ethical awareness in the use of LLMs in healthcare. It provides a comprehensive framework for evaluating and enhancing ethical considerations, promoting the responsible and informed use of LLMs technologies in clinical practice.</p>\u0000 </section>\u0000 </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144814833","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Enhancing Rare Disease Awareness and Education Among Medical Professionals and Students in Türkiye","authors":"Öznur Karagöz,&nbsp;Buşranur Tırtır,&nbsp;Dilek Güneş,&nbsp;Özge Özgen,&nbsp;Mustafa Özçetin,&nbsp;Gülbin Gökçay,&nbsp;Gülden F. Gökçay,&nbsp;Abdolrahman S. Nateri,&nbsp;Fatmahan Atalar","doi":"10.1111/jep.70242","DOIUrl":"https://doi.org/10.1111/jep.70242","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Rare diseases (RDs), which are often chronic, degenerative, and life-threatening conditions, pose significant challenges due to their complexity and limited awareness among healthcare professionals. This study assessed the knowledge, awareness, and educational needs related to RDs among 5th- and 6th-year medical students at Atatürk University, Başkent University, and Istanbul University, as well as pediatric and non-pediatric specialists in Türkiye, with a focus on differences between these groups.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Materials and Methods</h3>\u0000 \u0000 <p>A total of 258 physicians and 132 medical students participated. Data were collected through surveys examining demographics, self-assessed knowledge, awareness, and perceptions of RD-related education. Statistical analyses evaluated differences in knowledge and awareness across the groups.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Pediatric specialists reported significantly higher self-assessed RD knowledge than non-pediatric specialists. However, both groups showed notable gaps in awareness, particularly concerning RD prevalence and diagnostic timelines in Türkiye. Most participants expressed interst in further education but were unaware of available resources. Among students, 65.9% rated their RD knowledge as ‘Poor’ or ‘Very Poor,’ with no significant differences observed across institutions despite curriculum variations.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The findings highlight a critical lack of competence in RD-related knowledge among healthcare professionals, especially non-pediatric specialists. To address this gap, we recommend integrating integrating RD-specific into medical curricula, promoting continuous professional development through specialized training events, and enhancing the visibility of reliable RD information sources. These measures are crucial for improving early diagnosis and management of RDs, ultimately enhancing patient care and outcomes in Türkiye.</p>\u0000 </section>\u0000 </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70242","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144814832","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bibliometric and Visual Analysis of Research in Food Insecurity and Malnutrition","authors":"Nurhayat Tugra Ozer,&nbsp;Izzet Ulker","doi":"10.1111/jep.70234","DOIUrl":"https://doi.org/10.1111/jep.70234","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Aims</h3>\u0000 \u0000 <p>Food insecurity (FI) is defined as a multifaceted condition encompassing limited or uncertain access to safe food, adequate availability, utilization, and stability of nutritionally appropriate foods—shaped by economic disadvantage, social inequities, climate shocks, and health crises like epidemics. It is particularly prevalent among vulnerable populations and directly drives malnutrition as well as other adverse health outcomes. The aim of this study is to provide a comprehensive overview of the evolution of research on FI and its linkage to malnutrition, identifying principal authors, scientific collaborations, and thematic trends.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A bibliometric analysis was conducted of 570 relevant articles indexed in Web of Science (1991–2024), focusing on original research examining the FI-malnutrition nexus. The R package programme, VOSviewer, and WOS analytical tools were employed for data extraction, network analysis, and visualization.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The analysis revealed an annual growth rate of 8.87%, with publication output surging after 2009 and peaking in 2020 (55 articles). The USA dominated research production (<i>n</i> = 232 studies), yet 47.89% of studies involved international collaborations, primarily targeting low- and middle-income populations. The average citation rate was 28.0 per article, with thematic shifts toward HIV/AIDS (post-2009) and COVID-19 (post-2019) alongside persistent focus on poverty.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>FI-malnutrition research is shaped by both structural drivers (poverty, inequality) and health crises (HIV, COVID-19). Despite geographic disparities in research leadership (Global North) versus study populations (Global South), the field shows strong cross-border collaboration—highlighting opportunities for more equitable partnerships.</p>\u0000 </section>\u0000 </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 5","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144814831","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}