JMIR Formative Research最新文献

{"title":"Exploring Empowerment in Online Support Communities for People Living With Tic Disorders and Tourette Syndrome: Qualitative Survey Study of User Experiences.","authors":"Ella C Ford, Neil S Coulson, E Bethan Davies","doi":"10.2196/66912","DOIUrl":"https://doi.org/10.2196/66912","url":null,"abstract":"<p><strong>Background: </strong>People with tic disorders (TDs)-such as Tourette syndrome-report poorer quality of life compared to non-TD peers, and experience considerable difficulties, including societal stigmatization and barriers to accessing health care and evidence-based interventions. Peer support can help improve psychological outcomes, and online support communities (OSCs) are one way to access psychological support. Empowerment involves improving an individual's cognitive processes to increase their ability to assert control over their health condition. OSCs have been suggested to facilitate empowerment, but this has not yet been investigated in users of OSCs for TDs.</p><p><strong>Objective: </strong>This study aimed to explore empowerment processes and outcomes present in OSCs as perceived and reported by users of OSCs for TDs living with a TD.</p><p><strong>Methods: </strong>A web-based survey of current users of OSCs for TDs (n=39) was conducted in summer 2022. The survey included four free-text questions about the impact of using OSCs for TDs in relation to empowerment, such as how it has affected their interactions with health care professionals (HCPs), decisions about treatment, and their experiences of living with a TD. Survey responses were analyzed using deductive and inductive reflexive thematic analysis guided by an initial coding structure derived from the empowering processes and outcomes theoretical framework.</p><p><strong>Results: </strong>Analysis of responses identified a range of empowering processes (eg, exchanging information, encountering emotional support, finding recognition, and sharing experiences) and outcomes (eg, being better informed, feeling more confident in the relationship with HCPs and in making treatment decisions, and enhanced well-being) as related to OSC use in people with TDs that were consistent with the theoretical framework. Additionally, the process of changing stereotypes and stigma, the outcomes of raising awareness, and \"one size does not fit all\" were identified. A small number of disempowering processes and outcomes were identified, notably the outcome of feeling less confident in the relationship with HCPs.</p><p><strong>Conclusions: </strong>These findings contribute to evidence for empowerment processes and outcomes experienced by users of health OSCs generally and highlight unique aspects of empowerment for users of OSCs with TDs and how these affect their experiences. OSCs appear to be an important tool in improving mental well-being through validation and recognition from peers, related to the acknowledgment of feelings of imposterism. Using OSCs can expand knowledge through exchanging information and experiences they may not have otherwise had access to-increasing empowerment through improvements in self-management and confidence in treatment decisions. However, this can also decrease trust in HCPs and negatively impact relationships due to decreased hope of assistance and fear o","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e66912"},"PeriodicalIF":2.0,"publicationDate":"2025-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145258150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Medicine Beyond Machines: Viewpoint on the Art of Thinking in the Age of AI.","authors":"Isabella B B Ferreira, Rodrigo C Menezes, Luis Cláudio L Correia, Bruno B Andrade","doi":"10.2196/76669","DOIUrl":"https://doi.org/10.2196/76669","url":null,"abstract":"<p><strong>Unlabelled: </strong>The widespread adoption of large language models is increasingly shaping clinical decision-making by altering how physicians engage with data and reasoning. While these tools enhance diagnostic capacity, streamline workflows, and support learning, their misuse may diminish critical, contextual, and humanized thinking, reducing physicians to passive validators of algorithmic outputs. This paper explores the evolution of medical cognition and proposes strategies for integrating artificial intelligence in ways that preserve cognitive autonomy, such as structuring information, reducing bias, and strengthening metacognition. We argue that artificial intelligence should serve as a \"cognitive stethoscope,\" a tool that refines reasoning without compromising its essence.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e76669"},"PeriodicalIF":2.0,"publicationDate":"2025-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145258112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring the Acceptability and Suitability of Synchronous Online Focus Groups for Health Research With Métis Nation of Ontario Citizens: An Internet-Based Survey.","authors":"Abigail J Simms, Noel Tsui, Robynn Sadler, Amy Mersereau, Cindi Rye, C David Crenna, Jeff Evenson, Sarah A Edwards","doi":"10.2196/70986","DOIUrl":"https://doi.org/10.2196/70986","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;The COVID-19 pandemic forced many researchers to adjust research methods from in-person to online formats. This paper explores the acceptability and suitability of synchronous online focus groups used to explore housing and health with Métis Nation of Ontario (MNO) citizens, one of 3 constitutionally recognized Indigenous Peoples in Canada.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;The objective of this internet-based survey was to understand the experiences of MNO citizens participating in synchronous online focus groups.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;Only participants of the \"Understanding Housing and Health\" project were eligible to complete the survey and were recruited via a 'thank you' email. The survey asked respondents to rate their experience, satisfaction, and preference, as well as the feasibility and cultural appropriateness of the online focus group. An open textbox allowed respondents to share additional thoughts. Demographic and personal information (ie, age, gender, MNO region, and email) were collected. A total of 33/35 eligible participants completed the survey. A content analysis was conducted to generate themes from the open textbox responses and used to triangulate the results. The survey was developed collaboratively with MNO staff.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Most respondents identified as women and were 45-65 years and older. All respondents had used Zoom before, and most (n=28, 85%) were either strongly or somewhat confident in their ability to use Zoom. One hundred percent of respondents strongly or somewhat agreed that they would participate in an online focus group in the future, and 86% of respondents strongly (n=22, 67%) or somewhat (n=7, 21%) agreed that an online focus group was culturally appropriate for Métis health research. A total of 82% (n=27) of respondents strongly or somewhat agreed that an online focus group was more feasible. Moreover, 58% (n=19) of respondents strongly or somewhat disagreed that they would have preferred to participate in an in-person focus group, while 27% (n=9) were neutral. Around 58% (n=19) of respondents could see other participants all of the time and did not experience lag at any point, while 25 (76%) could hear other participants all of the time, indicating fewer issues with audio. A total of 70% (n=23) of respondents felt they could connect with others all or most of the time, while 30% (n=10) felt they could do this some of the time or rarely. Content analysis of the open textbox responses generated 4 themes: internet and technology issues, accessibility, structure of the group discussion, and positive feedback.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;The use of online focus groups for research with MNO citizens is acceptable; however, internet and technology issues can affect a participant's ability to fully engage. Considerations around cultural appropriateness and connecting with others should be made. This information will help inform method selec","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e70986"},"PeriodicalIF":2.0,"publicationDate":"2025-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145258152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Correction: Advancing Mental Health and Psychological Support for Health Care Workers Using Digital Technologies and Platforms.","authors":"","doi":"10.2196/84386","DOIUrl":"https://doi.org/10.2196/84386","url":null,"abstract":"<p><p>[This corrects the article DOI: 10.2196/22075.].</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e84386"},"PeriodicalIF":2.0,"publicationDate":"2025-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145251132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Alongside Digital Wellness Program for Youth: Longitudinal Pre-Post Outcomes Study.","authors":"Katherine Cohen, Andy Rapoport, Elsa Friis, Shannon Hill, Sergey Feldman, Jessica Schleider","doi":"10.2196/73180","DOIUrl":"https://doi.org/10.2196/73180","url":null,"abstract":"<p><strong>Background: </strong>Youth are increasingly experiencing psychological distress. Schools are ideal settings for disseminating mental health support, but they are often insufficiently resourced to do so. Digital mental health tools represent a unique avenue to address this gap. The Alongside digital program is one such tool, intended as a universal prevention and early intervention. The platform includes social-emotional learning and self-help wellness features as well as an artificial intelligence-powered chatbot designed to build coping skills.</p><p><strong>Objective: </strong>This evaluation aimed to examine the near-term impact of Alongside app use on students' self-reported mental health outcomes.</p><p><strong>Methods: </strong>We conducted a nonrandomized pilot pragmatic evaluation leveraging anonymized user data. All data came from current Alongside users attending public middle and high schools in Texas and New Mexico, between 10 and 18 years old. Schools were actively engaged in partnership with Alongside and approved all procedures. Users were asked to complete mental health questionnaires upon app registration and at 1 and 3 months post registration. We conducted preregistered analyses as well as exploratory analyses to determine how symptoms changed over time and what factors (eg, demographic and app use) predicted changes in distress.</p><p><strong>Results: </strong>Analyses revealed statistically significant within-person decreases in overall distress (Young Person's CORE; primary outcome) from baseline to 1 month with a small effect size (t₄₂=2.21, P=.03, r=0.34); however, there was no evidence that scores significantly decreased from baseline to 3 months (W=1821, n=85, P=.16). We found that at 3 months, identifying as part of the lesbian, gay, bisexual, transgender, queer, and questioning community predicted greater decreases in distress; otherwise, no demographic factors were significant predictors. In a nonregistered exploratory analysis of a subsample of users who reported elevated distress at baseline, decreases in distress were seen at both 1 month (W=128, n=20, P=.02, r=0.52) and 3 months (W=682, n=42, P=.004, r=0.45).</p><p><strong>Conclusions: </strong>There may be short-term benefits associated with using the Alongside digital program. Further studies are required to determine potential preventative effects.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e73180"},"PeriodicalIF":2.0,"publicationDate":"2025-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145251108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Monitoring People With COVID-19 at Home With the COVIDFree@Home Program: Feasibility Cohort Study.","authors":"Andrea S Gershon, Alex Mariakakis, Eyal de Lara, Joseph Munn, Maryann Calligan, Daniyal Liaqat, Salaar Liaqat, Junlin Chen, Teresa To, Philip W Lam, Andrew Simor, Adrienne K Chan, Nisha Andany, Sameer Masood, Nick Daneman, Tiffany Chan, Christopher Graham, Vikram Comondore, Andre de Moulliac, Alice Y Tu, Robert Wu","doi":"10.2196/69140","DOIUrl":"10.2196/69140","url":null,"abstract":"<p><strong>Background: </strong>During the COVID-19 pandemic, many with acute infection isolated at home, with a small but significant number requiring hospitalization. At the time, since the pathogen was fairly unknown, clinicians were uncertain about which patients would rapidly deteriorate and need hospitalization. We developed the COVIDFree@Home smartphone app and clinician dashboard to monitor and support people managing at home with acute COVID-19 infection. It was uncertain whether such an app would be used by patients and whether it would support patient care. This knowledge would inform telemedicine and digital health tools being used to deliver care to patients remotely at that time.</p><p><strong>Objective: </strong>This study aimed to determine the feasibility of using a smartphone app and clinician dashboard for remote clinical monitoring of people with COVID-19 at home.</p><p><strong>Methods: </strong>A feasibility study set at 3 hospital sites (University Health Network, Sunnybrook Health Sciences Centre, and Trillium Health Partners) between 2020 and 2022 was conducted. Participants newly diagnosed with COVID-19 were asked to enter data into a smartphone app called COVIDFree@Home twice daily for 10 days while isolating at home. Their data, including symptoms, temperature, and oxygen saturation, were monitored on a clinician-facing dashboard. The primary outcome of feasibility was the number of patients who used the app. We also examined patient satisfaction through a survey questionnaire.</p><p><strong>Results: </strong>A total of 431 patients were recruited, out of which 229 (56.5%) were females and the average age was 38.9 (SD 12.8) years. There were 376 (87.2%) participants who used the app to report symptoms or oxygen saturation at least once. Among these participants, 373 (99.2%) reported symptoms and 363 (96.5%) reported oxygen saturation. Participants reported symptoms an average of 1.7 (SD 1.1) times per day for a median of 5 (IQR 3-8) days. Oxygen saturation levels were reported 1.5 times per day for a median of 6 (IQR 4-9) days. There were 19 hospitalizations (4.4%) among study participants. Most patients felt comfortable using the app, felt reassured their data was being monitored and did not have privacy concerns.</p><p><strong>Conclusions: </strong>Patients with acute COVID-19 infection engaged with a remote home monitoring platform, however, not at the recommended frequency or duration. Remote patient monitoring of acute respiratory infection appears viable and can offer patients reassurance. It has the potential to reduce strain on the health care system during future pandemics, but further evidence is required to demonstrate improved health outcomes.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e69140"},"PeriodicalIF":2.0,"publicationDate":"2025-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12507130/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145251191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Sprint-Intensity Arm Interval Training May Improve Cardiorespiratory Fitness and Cardiometabolic Health Among Children With Mobility Disabilities: Case Report.","authors":"Natalie Dean, Tanvee Sinha, Larsen Bright, Katie M Ellison, Drew Sayer, Raven Young, Drew Davis, James H Rimmer, Byron Lai","doi":"10.2196/64440","DOIUrl":"10.2196/64440","url":null,"abstract":"<p><strong>Background: </strong>There are limited options for aerobic exercise options that improve cardiorespiratory fitness and manage cardiometabolic health that are also age-appropriate and suitable for children with mobility disabilities. Children with disabilities require exercise programs that incorporate adapted movements to meet various functional needs, which offer brief training durations to accommodate busy schedules and use remote training methods at home to bypass logistical transportation barriers.</p><p><strong>Objective: </strong>The aim of this study is to test the potential effects and safety of a sprint-intensity arm-exercise interval training program, combined with music and telehealth, on cardiorespiratory fitness and cardiometabolic health in a child with cerebral palsy.</p><p><strong>Methods: </strong>This study was a 12-week exercise intervention from pretrial to posttrial for a single child with cerebral palsy (male, age 17 y). The intervention was conducted at the participant's homes. The participant exercised 3 times per week while following along with YouTube exercise videos. Videos included 4-second maximal sprint bouts followed by periods of rest, which were repeated 30 times during a single exercise session (total of ~2 minutes of maximal exercise). Exercise sessions were supervised by research staff using videoconferencing. Cardiorespiratory fitness was indicated by peak oxygen consumption (pVO2), which was measured by a portable metabolic cart during a graded exercise test. Cardiometabolic health outcomes included body composition by dual-energy x-ray absorptiometry scan and a cardiometabolic blood profile by a dried blood spot test. Outcomes were descriptively analyzed.</p><p><strong>Results: </strong>The participant achieved a 33.6% increase in pVO2 (14.6 to 19.5 mL/kg-1/min-1), a 37.8% improvement in blood triglycerides (82 to 51 mg/dL), and a 15.4% improvement in the total cholesterol to high-density lipoprotein ratio (6.5 to 5.5). Additionally, he had a 5.9% reduction in body weight (171 to 161 lbs) and a 9.6% reduction in total body fat (61.35 to 55.48 lbs) from the arms, legs, and trunk. The participant experienced no adverse events or problems during the intervention. After completing the program, the participant elicited a maximal intensity of exercise using armbands, as demonstrated through pVO2.</p><p><strong>Conclusions: </strong>Sprint-intensity interval training that uses the arms may be safe and potentially effective for enhancing cardiorespiratory fitness and cardiometabolic health in children with physical disabilities. Further research is needed to verify the outcomes of this case report.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e64440"},"PeriodicalIF":2.0,"publicationDate":"2025-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12507328/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145251155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Noninvasive Multiparameter Monitoring for the Detection of Decompensated Heart Failure: Exploratory Study.","authors":"Cyrille Herkert, Mayke van Leunen, Ignace Luc Johan De Lathauwer, Valerie Albertina Antonetta van Es, Jialu Tang, Aaqib Saeed, Rudolph Ferdinand Spee, Yuan Lu, Hareld Marijn Clemens Kemps","doi":"10.2196/59116","DOIUrl":"10.2196/59116","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Remote patient monitoring strategies in patients with heart failure (HF) are often based on manual readings and interpretation of various parameters by health care professionals. Automated multiparameter predictive models (MPMs) have the potential to improve early recognition of decompensated HF and to reduce the workload for both health care professionals and patients. To reduce costs and facilitate large-scale implementation, these models should preferably be based on noninvasive measurements, with user-friendly devices.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This exploratory study aimed to evaluate whether an MPM, using various parameters from a wrist-worn device supplied with a photoplethysmography sensor and a triaxial accelerometer, contributes to the detection of decompensated HF and death in patients with unstable HF.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;Patients who were admitted to the hospital with acute decompensated HF, regardless of etiology or left ventricular ejection fraction, were instructed to wear a research-grade wrist-worn device from the moment of discharge. The device measured heart rate (HR), interbeat intervals (IBIs), respiration rate (RR), activity counts (AC), energy expenditure (EE), and sleep. Participants were instructed to wear the device 24 hours a day for 3 consecutive months. We evaluated 7 classifiers under four strategies for handling extreme class imbalance; the best model was then tested via leave-one-subject-out cross-validation on untouched data. The combined end point of interest was hospital readmission due to decompensated HF, decompensated HF treated at the outpatient clinic by increasing the loop diuretic dose, or death due to HF.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;A total of 17 patients participated in the study (median age 77, IQR 70-84 y; n=9, 53% male). During follow-up, the device-wearing compliance was 78% (55%-81%). The activity-related parameters (EE and AC) performed best with respect to data quality: 72% and 79% of the data were of high quality, respectively. Concerning HR, 46% of the data were of high quality, whereas only 29% of the IBI and 14% of the RR data were of high quality. Sleep data were lacking 99% of the time during follow-up, resulting in exclusion from training the classifier. The most optimal model for the detection of the combined end point of HF deterioration showed a specificity of 97.2% and a sensitivity of 5.3% in the 2 weeks prior to an event (area under the curve=0.59) after leave-one-subject-out cross-validation analysis.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;An MPM using a noninvasive wrist-worn device, measuring HR, IBI, RR, AC, and EE, showed high specificity but low sensitivity for the prediction of decompensated HF and HF-related mortality. Low sensitivity likely reflects the extreme class imbalance and sequences with low data quality (especially HR, RR, and sleep), resulting in exclusion from training the MPM in our older, real-world HF cohort.","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e59116"},"PeriodicalIF":2.0,"publicationDate":"2025-10-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12507380/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145251160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility and Acceptability of a Positive Psychological Intervention for Patients With Metastatic Breast Cancer: Pre-Post Pilot Study.","authors":"Claire C Conley, Elizabeth L Addington, Mikaela Velazquez-Sosa, Brenna Mossman, Lesley Glenn, Shontè Drakeford, Roxana Guerra, Claudine Isaacs, Ami Chitalia, Christopher Gallagher, Suzanne C O'Neill, Judith T Moskowitz","doi":"10.2196/77636","DOIUrl":"10.2196/77636","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Depression and anxiety are prevalent among patients with metastatic breast cancer (MBC), but there are few evidence-based psychological interventions specifically designed for this population.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This study aimed to assess the feasibility, acceptability, and clinical impact of a multicomponent positive psychological intervention, enhanced with an ecological momentary intervention for symptom management, for patients with MBC.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;We recruited patients with MBC from a National Cancer Institute-designated comprehensive cancer center. Participants completed 5 weekly virtual individual sessions with a study counselor focused on positive emotion regulation skills. Participants also reported physical and psychological symptoms daily between sessions via SMS text messaging. Clinically elevated symptoms triggered a personalized coaching SMS text message tailored to the symptoms reported and the skills learned that week. Primary outcomes were intervention feasibility and acceptability. We also examined pre- to postintervention changes in depression, anxiety, positive affect, and positive emotion regulation skill use. Finally, a subset of participants completed qualitative exit interviews focusing on their experience in the study; interview data were analyzed using rapid qualitative analysis.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;We approached 20 patients with MBC, established contact with 15 (75%), received consent from 10 (67%), and retained 9 (90%) patients through the end of the study. Participants were 55 (SD 14.4, range 35-75) years old on average and identified as non-Hispanic White (5/10, 50%), non-Hispanic Black (4/10, 40%), or Latina (1/10, 10%). Participants attended 92% (46/50) of intervention sessions (mean 50, SD 9, range 36-71 min). On average, they completed 85% (SD 18%, range 46%-100%) of daily symptom assessments and received 23 (SD 5, range 13-31) coaching messages. Participants reported high perceived intervention feasibility (mean 4.81/5, SD 0.44), acceptability (mean 4.78/5, SD 0.33), and appropriateness for patients with MBC (mean 4.83/5, SD 0.35), above our a priori cutoff of ≥4. All 9 participants (n=9, 100%) recommended the intervention for other patients with MBC. We observed pre- to postintervention decreases in depression (d=-0.32) and anxiety (d=-0.27) and increases in positive affect (d=0.30) and positive emotion regulation skill use (d=0.99). Rapid qualitative analysis results demonstrate participants' positive experiences with the intervention, as well as suggestions for improvement.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;This pilot study supports the feasibility of enrolling and retaining racially and ethnically diverse patients with MBC to this trial, the acceptability of the positive psychological intervention enhanced with ecological momentary intervention, and preliminary intervention impacts on depression, anxiety, positive affect, and p","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e77636"},"PeriodicalIF":2.0,"publicationDate":"2025-10-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12504039/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145244529","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Digital, Self-Management Behavior Change Intervention for People With Chronic Obstructive Pulmonary Disease: Cohort Study.","authors":"Liam Knox, Rachel Rahman, Gareth Norris, Carol-Anne Davies, Kimberley Littlemore, Claire Hurlin, Sam Rice, Keir Lewis","doi":"10.2196/75683","DOIUrl":"10.2196/75683","url":null,"abstract":"<p><strong>Background: </strong>People with chronic obstructive pulmonary disease (COPD) experience a range of limitations, which have a significant effect on their health. Self-management and pulmonary rehabilitation (PR) are key treatments for people with COPD; however, barriers often limit their uptake and adherence.</p><p><strong>Objective: </strong>To overcome these barriers, a digital self-management intervention called PocketMedic (PM) was developed and evaluated in people with COPD alongside, and in addition, to PR.</p><p><strong>Methods: </strong>A total of 53 participants were recruited to 1 of 3 groups: PM and PR, PM, or PR. Data were collected at baseline and 7 weeks (after the interventions had finished). Questionnaires on health-related quality of life, self-management knowledge, and disease knowledge were collected. Multivariate analysis of variances and ANOVAs were used to analyze the data.</p><p><strong>Results: </strong>The analyses found that the improvements in those receiving PM were not statistically significantly different from those receiving PR, indicating that PM may replicate the benefits underpinning self-management behaviors observed in those attending PR. However, there were no additional benefits when participants received PM and PR in combination.</p><p><strong>Conclusions: </strong>PM may be a useful treatment to support COPD self-management, especially when barriers prevent people with COPD receiving traditional services such as PR. The quantitative results suggest that PM may be less beneficial when delivered alongside PR. Feedback from participants indicated that they would prefer to receive PM while they were on the waiting list for PR, to support them during this time and alleviate the apprehensions associated with attending PR. Implications, limitations, and suggestions for future research are discussed.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e75683"},"PeriodicalIF":2.0,"publicationDate":"2025-10-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12505406/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145251130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}