{"title":"Safety Evaluation in Healthy Adults of Motion-Based Virtual Reality Dichoptic Training for Pediatric Patients With Amblyopia: Prospective Intervention Study.","authors":"Masakazu Hirota, Yuichi Okumura, Ken Nagino, Takao Hayashi, Takashi Negishi, Shintaro Nakao, Hitoshi Kawasaki, Takenori Inomata","doi":"10.2196/69801","DOIUrl":"https://doi.org/10.2196/69801","url":null,"abstract":"<p><strong>Background: </strong>Amblyopia, a unilateral or bilateral visual disorder, affects up to 5% of the general population and is a leading cause of childhood visual impairment. Current treatments, such as patching therapy, aim to improve amblyopia by temporarily occluding the unaffected eye, thereby promoting the use of the amblyopic eye. However, adherence to patch therapy can be challenging, as the forced use of the amblyopic eye can be stressful for children. Moreover, despite improvements in visual acuity by patch therapy, children with amblyopia often face difficulties with hand-eye coordination; therefore, a treatment that reduces stress for them while simultaneously improving hand-eye coordination could address the limitations of existing amblyopia therapies.</p><p><strong>Objective: </strong>This study investigated the safety of our motion-based virtual reality (VR) dichoptic training app using Japanese Kendama in healthy adult participants, which was designed to improve hand-eye coordination in pediatric patients with amblyopia.</p><p><strong>Methods: </strong>This prospective intervention study involved 20 healthy young adults (median age 21, IQR 21-28.3 y), including 16 women. The participants played the motion-based VR dichoptic training app for 30 minutes and then completed a subjective symptom questionnaire, which comprised 9 questions (Q1-Q9) with each item scored on a 4-point scale, except Q9, which was assessed on a binary scale. Q1-Q3 focused on subjective eye symptoms, Q4-Q7 evaluated physical and mental discomfort, Q8 assessed the degree of VR session-induced arm fatigue, and Q9 assessed the severity of visually induced motion sickness.</p><p><strong>Results: </strong>No significant differences were observed in the reported ocular symptoms before and after the VR session, including eye fatigue (mean before vs after: 1.25, SD 0.94 points vs 1.35, SD 0.85 points), blurred vision (0.55, SD 0.50 points vs 0.80, SD 0.40 points), eye dryness (0.95, SD 0.74 points vs 1.25, SD 0.83 points), and visually induced motion sickness (0.00, SD 0.00 points vs 0.05, SD 0.22 points). These results suggested that the motion-based VR dichoptic training did not induce significant adverse ocular effects.</p><p><strong>Conclusions: </strong>The motion-based VR dichoptic training app demonstrated minimal adverse ocular effects in healthy adult participants, suggesting that it is safe for use in this population. These findings demonstrate the feasibility and good tolerability of this VR-based intervention in healthy adults. Further studies, including clinical studies in adult and pediatric patients with amblyopia, are warranted to evaluate its applicability and therapeutic effects.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e69801"},"PeriodicalIF":2.0,"publicationDate":"2025-06-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144316977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Dana M Bakula, Alexandra Zax, Sarah Edwards, Kristina Nash, April Escobar, Rachel Graham, Amy Ricketts, Ryan Thompson, Sarah Bullard, Julianne Brogren, Leah Shimmens, Lori A Erickson
{"title":"Applying the Nonadoption, Abandonment, Scale-Up, Spread, and Sustainability (NASSS) Framework to Adapt the CHAMP App for Pediatric Feeding Tube Weaning: Application and Case Report.","authors":"Dana M Bakula, Alexandra Zax, Sarah Edwards, Kristina Nash, April Escobar, Rachel Graham, Amy Ricketts, Ryan Thompson, Sarah Bullard, Julianne Brogren, Leah Shimmens, Lori A Erickson","doi":"10.2196/67398","DOIUrl":"https://doi.org/10.2196/67398","url":null,"abstract":"<p><strong>Background: </strong>Evidence-based tube feeding (TF) weaning involves reducing the volume of tube feeds to induce hunger, with interdisciplinary monitoring to allow for proactive medical, nutritional, and behavioral intervention as needed. This can be done outpatient; however, the current standard of care requires a high degree of medical monitoring and care coordination, which can be challenging to implement. The CHAMP App is a mobile app designed for remote patient monitoring of children born with congenital heart conditions who are at high risk for medical morbidity and mortality. The CHAMP App remote patient monitoring program would be ideally suited to improve medical monitoring and care coordination.</p><p><strong>Objective: </strong>This study aims to determine the feasibility of adapting the CHAMP App for children ready to wean from TF.</p><p><strong>Methods: </strong>We used the Non-adoption, Abandonment, Scale-up, Spread, and Sustainability (NASSS) framework as a formative tool and conducted a case study beta test.</p><p><strong>Results: </strong>The level of complexity for the digital innovation's adaptation supported a high likelihood of success for the TF population. Most issues were simple, such as expanding the types of data that could be entered into the app, and some were more complicated, for instance, training all relevant staff to use and maintain the technology. The case study beta test was conducted with \"Greyson\", a 10-month old child weaning from TF (name changed for confidentiality). Once a week, the team reviewed the parent-entered data and communicated with Greyson's parents, recommending a 25% reduction in tube feeding each week. With the CHAMP App facilitating 2-way communication between the family and the team, Greyson successfully transitioned from receiving 30% of his feeds orally and 70% via tube feeding to 100% oral feedings over the course of 1 month in a home setting.</p><p><strong>Conclusions: </strong>The CHAMP App is likely to be incredibly valuable in TF weaning. The NASSS framework helped identify key considerations for adapting the CHAMP App for TF weaning at a Midwestern children's hospital. Interviews with the health care team highlighted issues like data entry expansion and staff training. The framework confirmed TF weaning as a suitable application with no major barriers. The CHAMP App successfully supported a test patient, Greyson, in weaning from his feeding tube. It may improve access, communication efficiency, and satisfaction among families and health care teams while reducing costs and enhancing safety monitoring. The app could also make TF weaning more accessible to families with lower health literacy.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e67398"},"PeriodicalIF":2.0,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144309945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Danielle Ransom, Brant Tudor, Sarah Irani, Mohamed Rehman, Stacy Suskauer, P Patrick Mularoni, Luis Ahumada
{"title":"Feasibility of Data Collection Via Consumer-Grade Wearable Devices in Adolescent Student Athletes: Prospective Longitudinal Cohort Study.","authors":"Danielle Ransom, Brant Tudor, Sarah Irani, Mohamed Rehman, Stacy Suskauer, P Patrick Mularoni, Luis Ahumada","doi":"10.2196/54630","DOIUrl":"https://doi.org/10.2196/54630","url":null,"abstract":"<p><strong>Background: </strong>Recent advancements in sports medicine have been fueled by innovative technologies, particularly consumer-grade wearable devices like Fitbit, Apple Watch, and Garmin. These devices offer physiological and biomechanical data and hold promise for personalized, real-time, and remote assessment of athlete recovery. However, few studies have been conducted with these devices in adolescent student athletes.</p><p><strong>Objective: </strong>The primary objective of this study was to assess the feasibility of integrating consumer-grade wearable technology into injury recovery monitoring of adolescent student athletes.</p><p><strong>Methods: </strong>The study included 34 high school student athletes aged 14-18 diagnosed with either concussion or orthopedic injury, enrolled within 10 days of injury. Participants were equipped with a Fitbit Sense for continuous monitoring of physiological markers, including cardiovascular metrics, physical activity levels, and sleep patterns. Data collection extended 4-6 weeks beyond injury clearance, during which adherence rates were assessed at both hourly and daily intervals. Hourly adherence was defined as the proportion of participants with at least 1 recorded heart rate data point per hour, while daily adherence was defined as the proportion of participants with at least 1 recorded heart rate data point per 24-hour period.</p><p><strong>Results: </strong>The study demonstrated high participant adherence to wearing the device. The orthopedic injury cohort exhibited a median adherence rate of 95%, with individual rates ranging from 82% to 100%. Similarly, the concussion cohort demonstrated a median adherence rate of 93%, with adherence rates spanning from 37% to 100%. Notably, the study encountered minimal issues related to device functionality, with only 1 participant necessitating a device replacement.</p><p><strong>Conclusions: </strong>These findings demonstrate successful integration of wearable technology in data collection for adolescent student athletes recovering from sports-related injuries. However, it is important to consider current limitations, including factors that may influence data accuracy and precision. In conclusion, this feasibility study demonstrates the practicality of using consumer-grade wearable technology for the collection of physiological and biomechanical parameters in adolescent student athletes recovering from sport-related injuries. The high level of adherence highlights the potential applicability of consumer-grade wearable devices in this population. Study findings lay the foundation for future investigations with larger and more diverse cohorts to identify the utility of device metrics in identifying unique patterns of injury-specific recovery (ie, sport-related concussion). Consumer-grade wearable devices offer promise for optimizing assessment and management of injured athletes through wearable technology integration into standard clinical protocol","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e54630"},"PeriodicalIF":2.0,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144289447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Akua Frimpong, Alvaro Granados, Thomas Chang, Julia Fu, Shannan G Moore, Serina Applebaum, Bolatito Adepoju, Mahima Kaur, Vignesh Hari Krishnan, Amanda Levi, Terika McCall, Kristen Harris Nwanyanwu
{"title":"Recommendations for Designing a Digital Health Tool for Blindness Prevention Among High-Risk Diabetic Retinopathy Patients: Qualitative Focus Group Study of Adults With Diabetes.","authors":"Akua Frimpong, Alvaro Granados, Thomas Chang, Julia Fu, Shannan G Moore, Serina Applebaum, Bolatito Adepoju, Mahima Kaur, Vignesh Hari Krishnan, Amanda Levi, Terika McCall, Kristen Harris Nwanyanwu","doi":"10.2196/65893","DOIUrl":"https://doi.org/10.2196/65893","url":null,"abstract":"<p><strong>Background: </strong>Diabetic retinopathy (DR) is a leading cause of preventable blindness among working-aged adults. Black, Latine, and low-income individuals are screened less for DR, diagnosed later, treated less often, and go blind more than White individuals.</p><p><strong>Objective: </strong>This study aimed to engage members to co-design a digital health tool that is accessible, user-friendly, and culturally relevant, through a community-led research approach,.</p><p><strong>Methods: </strong>Using a qualitative approach, we conducted 4 semistructured focus group interviews with 19 individuals from the Greater New Haven area, aged 18 years or older, and diagnosed with diabetes. We transcribed and coded the focus group interviews and categorized them into themes using affinity mapping. The specific aims were to complete a comprehensive needs assessmen for the development of a community-responsive digital health tool and to increase access to information about DR screening in high-risk populations. We transcribed the focus group interviews, used rapid qualitative analysis to generate themes, and completed affinity mapping to identify content and features for a digital health tool for preventing blindness from DR.</p><p><strong>Results: </strong>We interviewed 19 individuals (68% [13/19] female, 47% [9/19] Black, 26% [5/19]) Hispanic) in 4 focus groups. Over 80% (15/19) had access to smart devices, including smartphones (17/19, 89%), smartwatches (4/19, 21%), computers (14/19, 74%), and tablets (11/19, 58%). Many participants had access to multiple devices (17/19, 89%). Participants self-reported hemoglobin A1c (mean hemoglobin A1c 6.77, SD 1.93) and age (mean age 58.79, SD 19.54). Education levels among participants varied. Almost half of all the participants (9/19, 47%) completed some college, a little less than a quarter (4/19, 21%) achieved a high school diploma or general education development certificate, and a little less than a quarter (4/19, 21%) completed less than a high school equivalent of education. Household income levels across nearly all participants (14/19, 74%) were below US $50,000, but household size data were not collected. Participants reported extensive experience with diabetes or prediabetes (mean years with diabetes or prediabetes 17.06, SD 17.53). The themes obtained from coding focus group interviews included the mental toll of diabetes, peer support like accountability and local community events, education about diabetes management, barriers to DR screening like long wait times for appointments or cost of medications, and diet-related topics like how to find cost-effective healthy food.</p><p><strong>Conclusions: </strong>DR is one of the leading causes of blindness, and many treatments exist. Despite the existence of treatments, historically marginalized populations experience poor health outcomes, including blindness. Our community-based approach aids in the creation of a culturally responsive digital","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e65893"},"PeriodicalIF":2.0,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144289449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ben Knudsen, Amr Madkour, Preetam Cholli, Alyson Haslam, Vinay Prasad
{"title":"Analysis of the Political Viewpoint of Policy Statements From Professional Medical Organizations Using ChatGPT With GPT-4: Cross-Sectional Study.","authors":"Ben Knudsen, Amr Madkour, Preetam Cholli, Alyson Haslam, Vinay Prasad","doi":"10.2196/66204","DOIUrl":"https://doi.org/10.2196/66204","url":null,"abstract":"<p><strong>Background: </strong>Professional medical organizations publish policy statements that are used to impact legislation or address societal issues. Many organizations are nonpartisan, yet it is uncertain whether their policy statements balance liberal and conservative values.</p><p><strong>Objective: </strong>This study aims to evaluate the political viewpoint of policy statements from 6 influential medical organizations, including the American Academy of Pediatrics, American College of Surgeons, American Psychiatric Association, American College of Obstetricians and Gynecologists, American College of Physicians, and American Academy of Family Physicians.</p><p><strong>Methods: </strong>Between December 2023 and February 2024, policy statements from the 6 organizations were identified and evaluated using ChatGPT with GPT-4 to reduce bias. Each statement was pasted into a new ChatGPT session following the phrase \"Does this text align with a liberal or conservative viewpoint?\" Two authors reviewed each response and categorized the statement as liberal, probably liberal, neutral, probably conservative, or conservative.</p><p><strong>Results: </strong>One-third of policy statements (529/1592, 33.2%) were found to be aligned with a political ideology. Among these 529 statements, 516 (97.5%) were liberal or probably liberal and 13 (2.5%) were conservative or probably conservative. For each organization, among policy statements with a political leaning, the percentage of liberal or probably liberal statements was as follows: 100% (69/69) for the American Academy of Pediatrics, 100% (24/24) for the American College of Obstetricians and Gynecologists, 100% (12/12) for the American College of Surgeons, 99% (72/73) for the American Psychiatric Association, 97% (174/180) for the American Academy of Family Physicians, and 96% (165/171) for the American College of Physicians.</p><p><strong>Conclusions: </strong>One in 3 policy statements from these 6 professional organizations align with a partisan political viewpoint. Among these, positions are 40 times more likely to be liberal or probably liberal than conservative or probably conservative. Whether or not organizations are politically neutral and seek viewpoint diversity warrants further exploration.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e66204"},"PeriodicalIF":2.0,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144289446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Bettina M Zimmermann, Theresa Willem, Michael Rost, Nina Matthes, Alena Buyx
{"title":"Perceptions of Stigma Among Patients With Hepatitis B in Germany: Cross-Sectional Survey.","authors":"Bettina M Zimmermann, Theresa Willem, Michael Rost, Nina Matthes, Alena Buyx","doi":"10.2196/66379","DOIUrl":"https://doi.org/10.2196/66379","url":null,"abstract":"<p><strong>Background: </strong>Many studies find associations between hepatitis B and stigma, but studies from the Western European context are lacking. Based on available studies, we hypothesized that younger age, higher education, male gender, higher privacy needs, and non-German mother tongue were positively associated with perceived hepatitis B-related stigma.</p><p><strong>Objective: </strong>This study aims to describe the prevalence of perceived social stigma among patients with hepatitis B in Germany and to assess what factors are associated with perceptions of hepatitis B-related stigma.</p><p><strong>Methods: </strong>Applying the short version of the Berger stigma scale, we surveyed 195 patients with hepatitis B about their perceptions of hepatitis B-related stigma, privacy needs, and demographic variables through a paper-based questionnaire. Venue-based recruitment of adult patients diagnosed with acute or chronic hepatitis B was implemented at 3 clinical centers in Germany. Patients who could not read German were excluded from the study.</p><p><strong>Results: </strong>From the 195 valid questionnaires, 45.1% (88/195) of participants identified as female, 36.6% (71/195) had a high school diploma, and 56.9% (111/195) reported a mother tongue other than German. The mean (SD) stigma score throughout the sample was 5.52 (6.02; range 0-24) and the median was 3.50 (IQR=9.75). Regression analysis revealed that non-German mother tongue, individual data privacy needs, and participants' secrecy regarding their hepatitis B diagnosis independently predicted perceived hepatitis B-related stigma. More precisely, the higher the data privacy need and the more secret the hepatitis B diagnosis, the higher the perceived stigma, and perceived stigma was higher for patients with a non-German mother tongue. Age, gender, and education were no predictors of perceived stigma.</p><p><strong>Conclusions: </strong>The surveyed patients with hepatitis B in Germany reported lower levels of hepatitis B-related stigma than found in other studies conducted in Asian countries. The association with non-German mother tongue indicates an important cultural and social component in the perception of stigma. Community-based interventions and the sensibilization of health care professionals might help overcome perceptions of stigma among hepatitis B-affected populations.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e66379"},"PeriodicalIF":2.0,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144289448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Fatima Nadeem, Jessica Azmy, Asieh Yousefnejad Shomali, Benjamin Diette, Lloyd J Gregory, Angela C Davies, Kurt C Wilson
{"title":"Using Real Electronic Health Records in Undergraduate Education: Roundtable Discussion.","authors":"Fatima Nadeem, Jessica Azmy, Asieh Yousefnejad Shomali, Benjamin Diette, Lloyd J Gregory, Angela C Davies, Kurt C Wilson","doi":"10.2196/60789","DOIUrl":"https://doi.org/10.2196/60789","url":null,"abstract":"<p><strong>Background: </strong>Simulated electronic health records (EHRs) are used in structured teaching for health care students. This partly addresses inconsistent student exposure to EHRs while on clinical placements. However, simulated records are poor replacements for the complexity of data encountered in real EHRs. While routinely collected health care data are often used for research, secondary use does not include education. We are exploring the perceptions, governance, and ethics required to support the use of real patient records within teaching.</p><p><strong>Objective: </strong>The aim of the study is to explore the perspectives of health care professionals regarding the use of real patient records to deliver interprofessional EHR education to undergraduate health care students.</p><p><strong>Methods: </strong>We held 90-minute group discussions with 10 health care professionals from nursing, pharmacy, medicine, and allied health disciplines. We used the GRIPP2 (Guidance for Reporting Involvement of Patients and the Public 2) checklist for reporting Patient and Public Involvement and Engagement to present our reflections.</p><p><strong>Results: </strong>There was consensus on the need to upskill health care students in the use of EHRs. Participants emphasized teaching general EHR competencies and transferable skills to overcome the diversity in EHR systems. They highlighted limitations in current teaching due to accessibility issues, disparities within clinical teaching, and curricular gaps on important topics such as clinical documentation and coding. Highlighted benefits of using real EHRs in teaching included learning from the complexities and inaccuracies of real patient data, grasping real-world time frames, and better appreciation of multidisciplinary interactions. Concerns included exposing individual clinicians to unfounded scrutiny and the potential consequences of incidental findings within EHRs. The ethical implications of overlooking perceived errors within EHRs versus the impracticality of acting on them were discussed. To mitigate concerns, it was suggested that data donors would provide informed consent ensuring they understand that they will not be recontacted should any such errors be found.</p><p><strong>Conclusions: </strong>Innovative solutions are needed to realign health care education with clinical practice in rapidly evolving digital environments. Real patient records are optimal for teaching students to handle complex and abundant real-world data. Data within EHRs represent a wealth of clinical knowledge encompassing professional and personal experiences spanning the lifetimes of patients and their caregivers. Drawing experiences and events from real EHRs will prepare health care students to anticipate, confront, and manage real patients in a variety of real-life scenarios. Our reflections highlight the processes and safeguards to consider when using real patient records to deliver EHR education to health ca","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e60789"},"PeriodicalIF":2.0,"publicationDate":"2025-06-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144284401","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christina K Holub, Amy L Barrera, Rosalva Romero Gonzalez, Diane Hoang, Luna Prieto, Samuelu Fesili, Tiana Smith, Harleen Kaur, Cassandra Surban, Michael Markidis, Tana Lepule, Konane Martinez
{"title":"Identifying Themes for an Initial Beta Version of a Mobile Health App for Latino and Native Hawaiian/Pacific Islander Communities: Co-Design and Community-Based Participatory Research in a Code to Community Study.","authors":"Christina K Holub, Amy L Barrera, Rosalva Romero Gonzalez, Diane Hoang, Luna Prieto, Samuelu Fesili, Tiana Smith, Harleen Kaur, Cassandra Surban, Michael Markidis, Tana Lepule, Konane Martinez","doi":"10.2196/76178","DOIUrl":"10.2196/76178","url":null,"abstract":"<p><p>Through a co-design and community-based participatory approach with Latino and Native Hawaiian/Pacific Islander communities, we identified key themes for an initial beta version of a mobile health app, including priorities regarding mental health, access to resources, and chronic disease prevention. Social and cultural connectedness and generational approaches emerged as important strategies for successful intervention design and long-term adoption.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":" ","pages":"e76178"},"PeriodicalIF":2.0,"publicationDate":"2025-06-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144159204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sharon Cuppen, Mayke van Leunen, Tamara Henken, Mayra Goevaerts, Martijn Scherrenberg, Maarten Falter, Paul Dendale, Hareld Kemps, Willem J Kop
{"title":"Association of Technology-Related Skills and Self-Efficacy With Willingness to Participate in Heart Failure Telemonitoring: Cross-Sectional Observational Study.","authors":"Sharon Cuppen, Mayke van Leunen, Tamara Henken, Mayra Goevaerts, Martijn Scherrenberg, Maarten Falter, Paul Dendale, Hareld Kemps, Willem J Kop","doi":"10.2196/68992","DOIUrl":"https://doi.org/10.2196/68992","url":null,"abstract":"<p><strong>Background: </strong>The adoption of telemonitoring in patients with heart failure (HF) is influenced by technology-related skills and self-efficacy, as well as psychological, clinical, and demographic factors. However, the relative importance of these factors with regard to willingness to use telemonitoring is insufficiently understood.</p><p><strong>Objectives: </strong>This cross-sectional observational study examines the extent to which technology-related skills and self-efficacy are related to willingness to participate in telemonitoring in patients with HF.</p><p><strong>Methods: </strong>Patients completed questionnaires during hospitalization. Associations of technological skills and self-efficacy with willingness to participate in telemonitoring (dichotomous and continuous scale) were examined using regression models. Mediation-moderation analyses were used to investigate the role of self-efficacy in the association of technological skills with willingness to participate.</p><p><strong>Results: </strong>This study recruited 61 patients admitted for decompensated HF (mean age 79.9, SD 9.5 years; 24 women). Higher levels of technological skills were associated with higher willingness to participate in telemonitoring (odds ratio [OR] 1.073 per scale unit, 95% CI 1.031-1.117). Technological self-efficacy and learnability were also related to willingness to participate (OR 1.141, 95% CI 1.039-1.252; OR 1.029, 95% CI 1.006-1.052) but did not mediate the association of technological skills with willingness to participate in telemonitoring. Psychological factors (anxiety, depressive symptoms, and perceived social support), age, and cognitive and physical functioning did not moderate the association of technological skills with willingness to participate in telemonitoring.</p><p><strong>Conclusions: </strong>Technological skills, self-efficacy, and learnability are interrelated factors that need to be considered in patients with HF who are eligible for telemonitoring. Future intervention studies that target these factors could increase patients' willingness and competence in using telemonitoring after admission for HF.</p>","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e68992"},"PeriodicalIF":2.0,"publicationDate":"2025-06-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144284387","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hamideh Ghanadian, Isar Nejadgholi, Hussein Al Osman
{"title":"Improving Suicidal Ideation Detection in Social Media Posts: Topic Modeling and Synthetic Data Augmentation Approach.","authors":"Hamideh Ghanadian, Isar Nejadgholi, Hussein Al Osman","doi":"10.2196/63272","DOIUrl":"https://doi.org/10.2196/63272","url":null,"abstract":"<p><strong>Background: </strong>In an era dominated by social media conversations, it is pivotal to comprehend how suicide, a critical public health issue, is discussed online. Discussions around suicide often highlight a range of topics, such as mental health challenges, relationship conflicts, and financial distress. However, certain sensitive issues, like those affecting marginalized communities, may be underrepresented in these discussions. This underrepresentation is a critical issue to investigate because it is mainly associated with underserved demographics (eg, racial and sexual minorities), and models trained on such data will underperform on such topics.</p><p><strong>Objective: </strong>The objective of this study was to bridge the gap between established psychology literature on suicidal ideation and social media data by analyzing the topics discussed online. Additionally, by generating synthetic data, we aimed to ensure that datasets used for training classifiers have high coverage of critical risk factors to address and adequately represent underrepresented or misrepresented topics. This approach enhances both the quality and diversity of the data used for detecting suicidal ideation in social media conversations.</p><p><strong>Methods: </strong>We first performed unsupervised topic modeling to analyze suicide-related data from social media and identify the most frequently discussed topics within the dataset. Next, we conducted a scoping review of established psychology literature to identify core risk factors associated with suicide. Using these identified risk factors, we then performed guided topic modeling on the social media dataset to evaluate the presence and coverage of these factors. After identifying topic biases and gaps in the dataset, we explored the use of generative large language models to create topic-diverse synthetic data for augmentation. Finally, the synthetic dataset was evaluated for readability, complexity, topic diversity, and utility in training machine learning classifiers compared to real-world datasets.</p><p><strong>Results: </strong>Our study found that several critical suicide-related topics, particularly those concerning marginalized communities and racism, were significantly underrepresented in the real-world social media data. The introduction of synthetic data, generated using GPT-3.5 Turbo, and the augmented dataset improved topic diversity. The synthetic dataset showed levels of readability and complexity comparable to those of real data. Furthermore, the incorporation of the augmented dataset in fine-tuning classifiers enhanced their ability to detect suicidal ideation, with the F<sub>1</sub>-score improving from 0.87 to 0.91 on the University of Maryland Reddit Suicidality Dataset test subset and from 0.70 to 0.90 on the synthetic test subset, demonstrating its utility in improving model accuracy for suicidal narrative detection.</p><p><strong>Conclusions: </strong>Our results demonstrate that","PeriodicalId":14841,"journal":{"name":"JMIR Formative Research","volume":"9 ","pages":"e63272"},"PeriodicalIF":2.0,"publicationDate":"2025-06-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144274877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}