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Recommendations to Enhance Comprehensive Care for Children With Chronic Health Conditions and Their Families 加强对慢性疾病儿童及其家庭的综合护理的建议
Children's Services Pub Date : 2001-10-01 DOI: 10.1207/S15326918CS0404_07
D. Drotar, Natalie Walders, E. Burgess, C. Nobile, M. Dasari, Shoshana Y. Kahana, Victoria A. Miller, Lisa A Schwartz, E. Schaefer, K. Zebracki
{"title":"Recommendations to Enhance Comprehensive Care for Children With Chronic Health Conditions and Their Families","authors":"D. Drotar, Natalie Walders, E. Burgess, C. Nobile, M. Dasari, Shoshana Y. Kahana, Victoria A. Miller, Lisa A Schwartz, E. Schaefer, K. Zebracki","doi":"10.1207/S15326918CS0404_07","DOIUrl":"https://doi.org/10.1207/S15326918CS0404_07","url":null,"abstract":"","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"131106591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 10
Navigating Systems of Care: Results From a National Survey of Families of Children With Special Health Care Needs 导航系统的护理:结果从全国调查的儿童有特殊的卫生保健需求
Children's Services Pub Date : 2001-10-01 DOI: 10.1207/S15326918CS0404_02
M. W. Krauss, N. Wells, Stephen P. Gulley, Betsy Anderson
{"title":"Navigating Systems of Care: Results From a National Survey of Families of Children With Special Health Care Needs","authors":"M. W. Krauss, N. Wells, Stephen P. Gulley, Betsy Anderson","doi":"10.1207/S15326918CS0404_02","DOIUrl":"https://doi.org/10.1207/S15326918CS0404_02","url":null,"abstract":"In this article we focus on the contemporary experiences of families of children with special health care needs (CSHCN) and illustrates the extent to which they are embedded in multiple systems of care that include health insurance plans, public supports, community-based programs, and a variety of specialized providers. Data are presented from the Family Partners Project, a national survey of 2,220 parents of CSHCN conducted from 1998 to 1999 in 20 states. We address 4 critical issues, including the complexity of current service delivery systems, the problems experienced in obtaining needed specialty services, the coordination of services and the role of case managers, and parental ratings of health plans.","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"2 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130381422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 55
Comprehensive Care for Children With Cancer and Their Families: A Social Ecological Framework Guiding Research, Practice, and Policy 癌症儿童及其家庭的综合护理:一个指导研究、实践和政策的社会生态框架
Children's Services Pub Date : 2001-10-01 DOI: 10.1207/S15326918CS0404_05
A. Kazak
{"title":"Comprehensive Care for Children With Cancer and Their Families: A Social Ecological Framework Guiding Research, Practice, and Policy","authors":"A. Kazak","doi":"10.1207/S15326918CS0404_05","DOIUrl":"https://doi.org/10.1207/S15326918CS0404_05","url":null,"abstract":"Comprehensive care for children with cancer is complex, multisystemic, and dynamic. At its optimum, it includes an organizing model or framework, effective and cost efficient clinical services for children and their families, and a close feedback link between clinical research and practice. Treatment teams for children with cancer at most children's hospitals in the United States include psychosocial professionals. Using a social ecological perspective, we illustrate multiple opportunities and challenges related to the sustenance of a comprehensive care program for children with cancer and their families program over time, and across systems. The interplay between clinical practice and research is emphasized, along with examples of interdisciplinary family-centered collaboration related to procedural pain, psychological sequelae of childhood cancer survival, and assessment of risk for ongoing psychological distress.","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"21 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115951933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 56
Promoting Comprehensive Care for Children With Chronic Health Conditions and Their Families: Introduction to the Special Issue 促进对慢性疾病儿童及其家庭的全面照顾:特刊简介
Children's Services Pub Date : 2001-10-01 DOI: 10.1207/S15326918CS0404_01
D. Drotar
{"title":"Promoting Comprehensive Care for Children With Chronic Health Conditions and Their Families: Introduction to the Special Issue","authors":"D. Drotar","doi":"10.1207/S15326918CS0404_01","DOIUrl":"https://doi.org/10.1207/S15326918CS0404_01","url":null,"abstract":"","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"363 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115962395","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 22
Comprehensive, Family-Focused Outpatient Care for Very Young Children Living With Chronic Disease: Lessons From a Program in Pediatric Diabetes 综合的，以家庭为中心的门诊护理非常年幼的儿童生活慢性病:从儿童糖尿病项目的经验教训
Children's Services Pub Date : 2001-10-01 DOI: 10.1207/S15326918CS0404_06
B. Anderson, Carrie Loughlin, E. Goldberg, L. Laffel
{"title":"Comprehensive, Family-Focused Outpatient Care for Very Young Children Living With Chronic Disease: Lessons From a Program in Pediatric Diabetes","authors":"B. Anderson, Carrie Loughlin, E. Goldberg, L. Laffel","doi":"10.1207/S15326918CS0404_06","DOIUrl":"https://doi.org/10.1207/S15326918CS0404_06","url":null,"abstract":"Very young children with chronic diseases are at an increased risk for medical and psychosocial adjustment problems. Yet few programs exist that provide comprehensive care for these families. This article focuses on the unique challenges faced by families of very young children with diabetes, and on a comprehensive program to address these needs. The outpatient program integrated parent and child groups into patients' regular follow-up health care. Psychosocial, medical, and nutritional issues were addressed in a multifamily group setting. A needs assessment of parent concerns revealed that the impact of diabetes on child behavior and family interactions was their highest priority. An evaluation indicated increased long-term diabetes follow-up care and improved diabetes control in children of families who had participated regularly in the program. This success points toward the need for similar comprehensive programs to support families coping with other chronic diseases in their very young children.","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"42 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114198640","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 43
Home-Based Comprehensive Care Services for Children With Chronic Conditions 为慢性疾病儿童提供居家综合照顾服务
Children's Services Pub Date : 2001-10-01 DOI: 10.1207/S15326918CS0404_03
R. Stein
{"title":"Home-Based Comprehensive Care Services for Children With Chronic Conditions","authors":"R. Stein","doi":"10.1207/S15326918CS0404_03","DOIUrl":"https://doi.org/10.1207/S15326918CS0404_03","url":null,"abstract":"Home care for children with chronic conditions includes a wide range of activities designed to provide health care and related services outside an institutional setting. The purpose of this article is to review the history of home care for children in the United States with special emphasis on the care of children with chronic conditions. The discussion traces the development of home care and the studies that provide evidence of the efficacy and effectiveness of home care, including our own studies of a noncategorical institution-based program. After this review, the article discusses some of the lessons learned in providing home care and raises questions that need to be addressed in the future in both the research and policy arenas.","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"15 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"124210192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 8
Outcomes of Community-Based Family-to-Family Support: Lessons Learned From a Decade of Randomized Trials 基于社区的家庭对家庭支持的结果:十年随机试验的经验教训
Children's Services Pub Date : 2001-10-01 DOI: 10.1207/S15326918CS0404_04
H. Ireys, R. Chernoff, R. Stein, K. Devet, E. Silver
{"title":"Outcomes of Community-Based Family-to-Family Support: Lessons Learned From a Decade of Randomized Trials","authors":"H. Ireys, R. Chernoff, R. Stein, K. Devet, E. Silver","doi":"10.1207/S15326918CS0404_04","DOIUrl":"https://doi.org/10.1207/S15326918CS0404_04","url":null,"abstract":"Parent-to-parent support programs have become an important part of the service system for children with chronic health conditions. Despite this growth, few empirical studies have examined the processes or outcomes of these support interventions. We review results of 3 randomized controlled trials of community-based support programs for parents of children with chronic illnesses. The 12- to 15-month programs provided informational, affirmational, and emotional support to mothers of school-aged children with chronic illnesses. Support was provided by trained \"veterans\" (mothers who were raising or had raised children with similar conditions). Results indicate that each program reduced anxiety in high-risk mothers assigned to the experimental group compared to their counterparts in the control group. Results are discussed in terms of \"lessons learned\" for research, practice, and policy.","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"9 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130920521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 73
Applied Research in Child Maltreatment: Practicalities and Pitfalls 儿童虐待的应用研究:现实与陷阱
Children's Services Pub Date : 2001-07-01 DOI: 10.1207/S15326918CS0403_3
J. Lutzker, A. Tymchuk, Kathryn M. Bigelow
{"title":"Applied Research in Child Maltreatment: Practicalities and Pitfalls","authors":"J. Lutzker, A. Tymchuk, Kathryn M. Bigelow","doi":"10.1207/S15326918CS0403_3","DOIUrl":"https://doi.org/10.1207/S15326918CS0403_3","url":null,"abstract":"Presented here is a model of applied research in child maltreatment. Applied research is defined and 3 examples from an ecobehavioral perspective are presented. The advantages of these models along with the inherent systemic, cultural, and familial difficulties of conducting applied research in this area are discussed. Particular attention is paid to problems of attrition and intervention adherence. Potential solutions are presented covering working with social service agencies, use of memoranda of understanding, and the use of focus groups.","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"15 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121796952","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 26
The Effects of Parent Empowerment on Adjustment for Children Receiving Comprehensive Mental Health Services 父母赋权对接受综合心理健康服务的儿童适应的影响
Children's Services Pub Date : 2001-07-01 DOI: 10.1207/S15326918CS0403_1
J. Taub, Theodore A. Tighe, J. Burchard
{"title":"The Effects of Parent Empowerment on Adjustment for Children Receiving Comprehensive Mental Health Services","authors":"J. Taub, Theodore A. Tighe, J. Burchard","doi":"10.1207/S15326918CS0403_1","DOIUrl":"https://doi.org/10.1207/S15326918CS0403_1","url":null,"abstract":"In this study we examine the relations between family empowerment, children's mental health, and longitudinal changes in family empowerment. Data were gathered from 131 children and caregivers in a study evaluating children's mental health services. Family empowerment increased significantly over time while a child was receiving mental health services. There was also a trend for an increase in parent-reported community empowerment. Parents' reports of children's adjustment were found to correlate significantly with both family and service system empowerment at follow-up. Change in family empowerment over time was found to be a significant predictor of change in children's externalizing problems while in services. Hours of mental health services received was the only significant predictor of change in internalizing problems. Implications for services in this study, future services, and future research are discussed.","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"2 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129215200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 41
Multi-Sector Complexity of Systems of Care for Youth With Mental Health Needs 有心理健康需要的青少年护理系统的多部门复杂性
Children's Services Pub Date : 2001-07-01 DOI: 10.1207/S15326918CS0403_2
A. Garland, R. Hough, J. Landsverk, S. Brown
{"title":"Multi-Sector Complexity of Systems of Care for Youth With Mental Health Needs","authors":"A. Garland, R. Hough, J. Landsverk, S. Brown","doi":"10.1207/S15326918CS0403_2","DOIUrl":"https://doi.org/10.1207/S15326918CS0403_2","url":null,"abstract":"Children's mental health services have been revolutionized to reflect the realization that youth with mental health needs are served by multiple service sectors, including child welfare, juvenile justice, special education, primary health care, mental health, and alcohol and drug services. \"Systems of care\" models have attempted to improve integration of services across these multiple sectors and have been influential in driving policy and funding changes, but these models have focused primarily on cross-sectional service use. The goal of this conceptual article is to expand on these models by identifying factors that affect dynamic, longitudinal multi-sector service use. Greater understanding of these longitudinal patterns may suggest effective targets for intervention. In addition, this conceptual framework may provide a contextual template for current studies of multi-sector service need, use, and effectiveness.","PeriodicalId":105976,"journal":{"name":"Children's Services","volume":"12 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2001-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126944891","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 72
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