First Nations Health and Wellbeing - The Lowitja Journal最新文献

{"title":"Scoping review of knowledge translation in Aboriginal and Torres Strait Islander research contexts in Australia","authors":"Makayla-May Brinckley (Wiradjuri) ,&nbsp;Sarah Bourke (Gamilaroi, Jaru and Gidja) ,&nbsp;Felecia Watkin Lui (Erub and Mabuiag) ,&nbsp;Raglan Maddox (Bagumani and Modewa Clans) ,&nbsp;Leone Malamoo (Juru and Pentecost, Epi, Tanna) ,&nbsp;Carla McGrath (Torres Strait Islander) ,&nbsp;Raymond Lovett (Ngiyampaa/Wongaibon)","doi":"10.1016/j.fnhli.2024.100024","DOIUrl":"10.1016/j.fnhli.2024.100024","url":null,"abstract":"<div><h3>Purpose</h3><p>Knowledge translation (KT) has always been an essential part of Indigenous lives and cultures. Indigenous communities worldwide develop, share, translate and apply knowledge for community benefit. As a result of settler-colonial structures, KT processes in academia are predominately informed by Euro-Western ways of thinking that are inappropriate for Indigenous communities and undermine Indigenous ways of knowing, being and doing.</p></div><div><h3>Methods</h3><p>A scoping review of KT literature in Aboriginal and Torres Strait Islander research contexts in Australia was conducted to lay the groundwork for developing KT methods and tools for this context. Items were eligible if they purposefully recruited Aboriginal and/or Torres Strait Islander participants, were in English and described ongoing or completed KT processes. Item screening and charting was iteratively conducted by Aboriginal and Torres Strait Islander peoples.</p></div><div><h3>Main findings</h3><p>Forty-seven items were found. Of these, eight were considered examples of KT and aligned with cultural ways of translating knowledge. There was limited information on KT in the included items: 35 did not state a theory, 19 did not define KT, 26 did not state Indigeneity of authors and 23 did not disclose any Aboriginal and/or Torres Strait Islander governance or partnership.</p></div><div><h3>Principal conclusions</h3><p>Knowledge translation has always been a core component of Indigenous cultures and there is opportunity to leverage this strong base to incorporate Indigenous KT in research. The meaningful application of Indigenous KT will ensure that research agendas and priorities are identified and driven by Aboriginal and Torres Strait Islander peoples, and that knowledge is appropriately translated to ensure long-term benefit for these communities.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100024"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000159/pdfft?md5=167182a72cce71c2876fdb8eec024940&pid=1-s2.0-S2949840624000159-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141949606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Physiotherapy-led restorative care enabling improved frailty measures in adults after starting dialysis in Northern Territory of Australia: The ‘Frailty-to-Fit’ pilot study","authors":"Richard Modderman ,&nbsp;Onika Paolucci ,&nbsp;Sara Zabeen ,&nbsp;Clee Tonkin ,&nbsp;Anne-Marie Eades ,&nbsp;Deborah Roe ,&nbsp;Rebecca Jarman ,&nbsp;Kerry Dole ,&nbsp;Gwendoline Lowah ,&nbsp;Emidio Coccetti ,&nbsp;Anne Weldon ,&nbsp;Jacqueline Kent ,&nbsp;Kirsty Annesley ,&nbsp;Matthias Jing ,&nbsp;Margaret Purnell ,&nbsp;Tolbert Dharromanba Gaykamangu ,&nbsp;Wayne Alum ,&nbsp;Edna May Wittkopp ,&nbsp;Anne-Marie Puruntatameri ,&nbsp;Jaquelyne T. Hughes","doi":"10.1016/j.fnhli.2024.100020","DOIUrl":"https://doi.org/10.1016/j.fnhli.2024.100020","url":null,"abstract":"<div><h3>Purpose</h3><p>Aboriginal and Torres Strait Islander peoples’ culture is integral to health and wellbeing; this includes access to traditional Country, maintenance of kinship relationships, to speak traditional language and participate in cultural practices. Most clients commencing dialysis in remote Australia, including the Northern Australia region, identify as Aboriginal and/or Torres Strait Islander peoples. Aboriginal people who need kidney replacement therapy and are physically fit to access home dialysis report additional health and cultural benefits beyond achieved dialysis adequacy. This study aimed, within the setting of local COVID-19 pandemic preparations and response phases, to design and pilot a physical frailty assessment tool to inform the support needs of physically frail adults in the Northern Territory of Australia after starting haemodialysis.</p></div><div><h3>Methods</h3><p>Informed by a literature review and patient advisors, the tool incorporated patient-important domains of dyspnoea, strength, mobility and fitness using the Medical Research Council dyspnoea scale, hand grip strength, de Morton Mobility Index and 1-minute sit-to-stand test. During April to September 2021, frailty measures were recorded at baseline and 16 weeks at one outpatient location, alongside optional restorative care and individualised physical function goal setting. Data were presented as median (IQR) and percentage.</p></div><div><h3>Main findings</h3><p>Twenty adults completed the baseline assessment: median age was 51 (47, 67) years, 80% were Aboriginal and/or Torres Strait Islander peoples, 80% were utilising haemodialysis and 53 (35, 74) days after incident dialysis. All study participants identified physical function goals, including walking improvement. Baseline measures for the dyspnoea scale and de Morton Mobility Index were 3 (1, 4) and 74 (67, 96); hand grip strength was 21.1 (21.1, 27.4) kg, and 1-minute sit-to-stand repetitions was 16.0 (3.3, 21.0), respectively. Ten patients returned for follow-up measures, with a 70% goal achievement and statistically significantly improved measures for hand grip strength (<em>P</em> = 0.03), de Morton Mobility Index (<em>P</em> = 0.04) and 1-minute sit-to-stand (<em>P</em> = 0.02).</p></div><div><h3>Principal conclusions</h3><p>Baseline physical frailty and subsequent personal physical goal attainment were associated with improvements in strength, fitness and mobility in adults after starting dialysis.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100020"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000111/pdfft?md5=1175003d125e09b64cede4bab6b462d4&pid=1-s2.0-S2949840624000111-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141243335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Cedar Project: Intergenerational child apprehension and HIV health and wellness among young Indigenous peoples who have used drugs: A mixed methods study","authors":"Kate Jongbloed (white occupier) ,&nbsp;Sherri Pooyak (nêhiyawak) ,&nbsp;Margo E. Pearce ,&nbsp;April Mazzuca ,&nbsp;Richa Sharma ,&nbsp;Wenecwtsin M. Christian (Splatsin te Secwepemc) ,&nbsp;Mary Teegee (Maaxw Gibuu) (Gitx'san, Carrier from the Takla Nation) ,&nbsp;Lou Demerais (Cree & Métis) ,&nbsp;Richard T. Lester ,&nbsp;Martin T. Schechter ,&nbsp;Patricia M. Spittal","doi":"10.1016/j.fnhli.2024.100030","DOIUrl":"10.1016/j.fnhli.2024.100030","url":null,"abstract":"<div><h3>Purpose</h3><p>Wellbeing is eroded when Indigenous children are forcefully removed from families and communities. This study explored how intergenerational child apprehension shapes human immunodeficiency virus (HIV) health and wellness among young Indigenous peoples who have used drugs and are living with HIV.</p></div><div><h3>Methods</h3><p>This exploratory sequential mixed-methods study took place within the Cedar Project cohort and involved young Indigenous peoples who have used drugs in British Columbia, Canada. In-depth interviews addressing HIV cascade of care experiences involved 12 participants living with HIV in 2016. Interpretive description identified themes. Based on qualitative findings, longitudinal generalised linear mixed effects models involving 52 participants investigated relationships between intergenerational child apprehension and HIV viral suppression using data collected between 2011–14.</p></div><div><h3>Main findings</h3><p>Family connections, child apprehension and parenting concerns were identified as central to HIV health and wellness. Themes highlighting intersections included: (1) impact of removal from families on long-term health and wellbeing; (2) (re)connecting with family; (3) intersections of substance use, child apprehension and HIV; (4) fear, stress and demands of maintaining/regaining custody of children; and (5) traditional wellness practices being valued but complicated. Having been apprehended as a child (aOR 0.23; 95% CI 0.06–0.82) and having had a child apprehended (aOR 0.24; 95% CI 0.07–0.77) were associated with reduced odds of HIV viral suppression.</p></div><div><h3>Principal conclusions</h3><p>Young Indigenous peoples who have used drugs were &gt;75% less likely to be virally suppressed if they had been apprehended from their parents as children, or their own children had been apprehended. It is believed that this is the first study to demonstrate statistical links between intergenerational child apprehensions and negative HIV outcomes among Indigenous people with HIV. Respecting Indigenous rights to self-determination over child welfare processes is urgent. HIV care for young Indigenous peoples who have used drugs must acknowledge and address ongoing impacts of intergenerational child apprehensions. Supporting parenting and family connections is essential to culturally-safe, healing-centred HIV care.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100030"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000214/pdfft?md5=a82f4ab6470e6ca7ef5bd63127a1649f&pid=1-s2.0-S2949840624000214-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142241611","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluation of an innovative Live Strong COVID-mitigating healthcare delivery for adults after starting dialysis in the Northern Territory: A qualitative study","authors":"Sara Zabeen ,&nbsp;Anne-Marie Eades (Aboriginal and/or Torres Strait Islander) ,&nbsp;Onika Paolucci (Aboriginal and/or Torres Strait Islander) ,&nbsp;Richard Modderman ,&nbsp;Clee Tonkin ,&nbsp;Kerry Dole ,&nbsp;Gwendoline Lowah (Aboriginal and/or Torres Strait Islander) ,&nbsp;Kirsty Annesley ,&nbsp;Jacqueline Kent ,&nbsp;Emidio Coccetti ,&nbsp;Anne Weldon ,&nbsp;Matthias Jing ,&nbsp;Deborah Roe ,&nbsp;Rebecca Jarman ,&nbsp;Anne-Marie Puruntatameri (Aboriginal and/or Torres Strait Islander and Indigenous Patient Reference Group member) ,&nbsp;Edna May Wittkopp (Aboriginal and/or Torres Strait Islander and Indigenous Patient Reference Group member) ,&nbsp;Wayne Alum (Aboriginal and/or Torres Strait Islander and Indigenous Patient Reference Group member) ,&nbsp;Tolbert Dharromanba Gaykamangu (Aboriginal and/or Torres Strait Islander and Indigenous Patient Reference Group member) ,&nbsp;Jaquelyne T. Hughes (Aboriginal and/or Torres Strait Islander)","doi":"10.1016/j.fnhli.2023.100001","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100001","url":null,"abstract":"<div><h3>Purpose</h3><p>During March 2021 to February 2022, within a local pandemic preparation and response phase in the Northern Territory (Australia), the New Start Dialysis Transition Programme (NSDTP) extended usual services by designing and implementing three activities aimed to support patients with kidney failure to <em>Live Strong</em> after starting dialysis: a) incorporation of COVID-safe education at group health education sessions, b) <em>Frailty to Fit</em> restorative physiotherapy and c) a COVID and culturally-safe, frailty-enabled transport service. This qualitative study evaluated these initiatives within the broader socio-environmental context.</p></div><div><h3>Methods</h3><p>The study was guided by an evolved Grounded Theory approach. Feedback was gained from 61 participants, involving Aboriginal and Torres Strait Islander people with lived experience of dialysis care, their family caregivers, health professionals and Indigenous Patient Reference Group members.</p></div><div><h3>Main findings</h3><p>Multiple data sources and a related comprehensive thematic analysis generated six key themes: 1) COVID-safe education delivery enabled family learning, was culturally respectful and strengths-based; 2) physiotherapy was personalised and patients experienced enjoyment; and 3) the transport service accommodated frailty needs and supported COVID safety needs. Participants also reported that within the broader socio-environmental context <em>Live Strong</em> meant: 4) living with purpose and dignity; and 5) living for the family, culture and the Country. Thus, participants recommended that 6) health systems could enable patients to ‘Live Strong’ by providing cultural understanding and patient safety across all healthcare settings they used.</p></div><div><h3>Principal conclusions</h3><p>Participants confirmed acceptability and recommended sustainability of three innovative services. These were designed, delivered and incorporated within usual care during the local COVID pandemic preparation and response. Success was credited to service flexibility that prioritised patient needs, family-inclusive care, and empathetic and respectful staff who had good cultural understanding of kidney care and strong team collaboration. Participants also recommended health systems to support the transferability of those success attributes to other healthcare settings.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100001"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000013/pdfft?md5=ad010ffb53840a9577cf5ea3c70115df&pid=1-s2.0-S2949840623000013-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138480129","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Research ACCORDing to whom? Developing a South Australian Aboriginal and Torres Strait Islander Health Research Accord","authors":"Kim Morey (Anmatyerre & Eastern Arrernte) ,&nbsp;Christine Franks (Yuin) ,&nbsp;Odette Pearson (Kuku Yalanji & Torres Strait Islander) ,&nbsp;Karen Glover (Mein:tnk & Wotjobaluk) ,&nbsp;Alex Brown (Yuin)","doi":"10.1016/j.fnhli.2023.100003","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100003","url":null,"abstract":"<div><p>Documents regarding ethical research conduct are available to guide researchers in the field of Aboriginal and Torres Strait Islander (Aboriginal) health, yet their implementation lacks consistency within and between research institutions. South Australia has taken a conscious approach to implement locally appropriate ethical practice in Aboriginal health research by developing a South Australian Aboriginal Health Research Accord (Accord).</p><p>The Accord was developed through an iterative mixed-methods approach, involving a literature review, stakeholder consultations and consensus-building process. The Accord comprises nine key principles that guide Aboriginal health research in South Australia: priorities, involvement, partnership, respect, communication, reciprocity, ownership, control, and knowledge translation and exchange. Each principle is presented with a summary explanation and description of its application in research practice. The Accord aims to guide researchers, universities, research institutes, consultants, governments and service providers in the appropriate processes required when developing and conducting health research with Aboriginal people in South Australia and can serve as a guide for ethics committees. It provides a voice for Aboriginal communities to inform researchers on how they would like health research to be conducted in their communities. Consistently applying the nine principles of the Accord will increase the impact and benefit of health research for Aboriginal people in Australia.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100003"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000037/pdfft?md5=a06849637b0416b7714b1d1e8a2a8f7d&pid=1-s2.0-S2949840623000037-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138480489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Time for a First Nations-led health and wellbeing research renaissance","authors":"Catherine Chamberlain (Trawlwoolway/Palawa) ,&nbsp;Janine Mohamed (Narungga/Kaurna)","doi":"10.1016/j.fnhli.2023.100006","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100006","url":null,"abstract":"","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100006"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000062/pdfft?md5=f7192f3c351dc93b4f439b04be6211ab&pid=1-s2.0-S2949840623000062-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138548855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Researching Indigenous people living with a disability: The urgent need for an intersectional and decolonising approach (BlakAbility)","authors":"Sheelagh Daniels-Mayes","doi":"10.1016/j.fnhli.2023.100004","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100004","url":null,"abstract":"<div><p>According to available data, significant numbers of Indigenous people live with a disability and encounter both racism and disability-related discrimination. Yet, research about the impact of these intersecting sites of discrimination remains vastly under-researched. This commentary argues that research using intersectionality embedded with decolonising knowledges and practices and Indigenous Standpoints on disability, that is informed and led by those with lived experience, is urgently needed.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100004"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000049/pdfft?md5=00743702b358c9e78ca1f8d30eaef1e7&pid=1-s2.0-S2949840623000049-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138480490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Do it for yourself: Australia’s first experience of universal eligibility for self-collection cervical screening increases access for Aboriginal and Torres Strait Islander women","authors":"Kristy Meiselbach (Gunditjmara) ,&nbsp;Claire Nightingale ,&nbsp;Sandy Anderson ,&nbsp;Amanda Ryan (Indigenous) ,&nbsp;Clare O’Reilly ,&nbsp;Marion Saville ,&nbsp;Lisa Whop (Wagadagam Gumulgal) ,&nbsp;Margaret Kelaher ,&nbsp;Julia Brotherton","doi":"10.1016/j.fnhli.2023.100002","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100002","url":null,"abstract":"<div><h3>Purpose</h3><p>Australia’s National Cervical Screening Program implemented a self-collection pathway in December 2017 that was specifically designed to engage never-screened and under-screened people with a cervix. Initially only available to those under-screened, a revised policy (implemented in July 2022) now allows all women and people with a cervix the choice to participate in cervical screening through self-collection. While self-collection offers opportunities for Aboriginal Community Controlled Organisations (ACCO) to increase cervical screening participation, implementation evidence is lacking.</p></div><div><h3>Methods</h3><p>Semi-structured interviews were conducted with Aboriginal women (n = 7) and health service staff (n = 2) at a regional Aboriginal Community Controlled Organisation, in November to December 2019, to identify barriers and facilitators to cervical screening participation. A co-design workshop followed in mid-2020 with participants reviewing data, leading to the design and implementation of a demonstration project – <em>Do it for yourself!</em> – providing universal access to self-collection in the context of a consultation.</p></div><div><h3>Main findings</h3><p>Thirty-seven women participated in <em>Do it for yourself!</em> between April 2021 and March 2022. One-third would not have participated in cervical screening if self-collection had not been available. Most women (84%) were confident that they had properly collected the sample. Most women who had screened before preferred self-collection (81%), would be more likely to screen on-time if self-collection was available (95%), and all would recommend the screening pathway. Universal access to self-collection appeared to engage Aboriginal women who would otherwise not have screened.</p></div><div><h3>Principal conclusions</h3><p>Early implementation experience demonstrated that self-collection, offered in the context of a consultation with a cervical screening provider, is highly acceptable and facilitates the engagement of women who would otherwise not have screened.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100002"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000025/pdfft?md5=6051dce989d67d36955690df6f97a840&pid=1-s2.0-S2949840623000025-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138739043","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Is all that glitters gold? Assessing the quality and ethics of ‘gold standard’ randomised controlled trials conducted in Aboriginal and Torres Strait Islander settings","authors":"Joanne Luke (Stolen Generations - Alyawarre) ,&nbsp;Ebony Verbunt ,&nbsp;Muriel Bamblett (Yorta Yorta, Dja Dja Wurrung) ,&nbsp;Connie Salamone ,&nbsp;Sarah Gafforini ,&nbsp;Angela Zhang ,&nbsp;David Thomas ,&nbsp;Sandra Eades (Noongar) ,&nbsp;Lina Gubhaju ,&nbsp;Margeret Kelaher ,&nbsp;Amanda Jones","doi":"10.1016/j.fnhli.2023.100007","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100007","url":null,"abstract":"<div><h3>Purpose</h3><p>Evidence-based practice methods assign randomised controlled trials (RCTs) as the ‘gold standard’ study design for interventional research. However, privileging RCTs on the criterion of study design without consideration of their broader methodology can be problematic, particularly in Aboriginal and Torres Strait Islander settings. This review assessed RCTs conducted in Aboriginal and Torres Strait Islander settings for ‘standard quality’ and ‘ethical quality’.</p></div><div><h3>Methods</h3><p>The RCTs were retrieved from PubMed, Scopus and the Australian New Zealand Clinical Trials Registry between January 2000 and July 2021. Standard quality was assessed using the revised Cochrane risk-of-bias tool for randomized trials (RoB 2.0). To assess ethical quality, this review assessed whether research incorporated ethical principles of: Aboriginal and/or Torres Strait Islander ethics committee endorsement, organisational endorsement, governance, partnership, data sovereignty, priority setting, worldview, authorship, and involvement in design, implementation and/or evaluation.</p></div><div><h3>Main findings</h3><p>Seventy-three published RCTs were retrieved. For quality, 85% of RCTs were assessed as having a ‘high’ risk of bias, largely owing to issues with deviations from the intervention, missing outcome data and measurement biases. The RCTs varied greatly in terms of ethical quality, with most attending poorly to ethical principles of priority setting (12%), involving stakeholders in evaluation of intervention (18%) and data sovereignty (7%). The RCTs conducted with Aboriginal and/or Torres Strait Islander co-authors were ranked as having greater ethical quality.</p></div><div><h3>Principal conclusions</h3><p>This review found notable concerns with the standard and ethical quality of RCTs conducted in these settings. To improve the ethical quality of research there must be a greater focus on control and participation by Aboriginal and Torres Strait stakeholders.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100007"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000074/pdfft?md5=6c4f5273e4a47a0a71b1e7dbcaaa345c&pid=1-s2.0-S2949840623000074-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138839461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘Wellah planted a good seed’: How an online health and wellbeing program supported Aboriginal and Torres Strait Islander peoples during the COVID-19 pandemic","authors":"Stella Mulder ,&nbsp;Laura Thompson ,&nbsp;Sarah Sheridan ,&nbsp;Lena Charles ,&nbsp;Emily Munro-Harrison ,&nbsp;Helen Kennedy ,&nbsp;Ngaree Blow ,&nbsp;Stephanie J. Brown ,&nbsp;Graham Gee","doi":"10.1016/j.fnhli.2023.100005","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100005","url":null,"abstract":"<div><h3>Purpose</h3><p>With COVID-19 pandemic restrictions in place throughout Australia in 2021, Aboriginal-led Clothing The Gaps Foundation (CTGF) delivered a 6-week health and wellbeing program known as Wellah Together Online. The aim of the program was to strengthen the healthy lifestyle choices, resilience and social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. Three staff members from Victorian Aboriginal Community Controlled Health Organisation Goolum Goolum Aboriginal Co-operative participated to consider the feasibility of other organisations offering similar programs. Wellah Together was evaluated by an Aboriginal-led team at Murdoch Children’s Research Institute in collaboration with CTGF and Goolum Goolum. The evaluation aimed to (i) investigate the impact of the program; (ii) identify core elements of success; and (iii) provide guidance to Aboriginal and Torres Strait Islander organisations interested in developing similar programs.</p></div><div><h3>Methods</h3><p>The evaluation was a multi-method study including surveys and yarning circles. This paper reports on findings from the qualitative data collected through yarning circles with program participants, CTGF and Goolum Goolum staff.</p></div><div><h3>Main findings</h3><p>Forty-six people participated in the program; of these, 34 participated in the evaluation. Participants were overwhelmingly positive about the benefits of taking part in Wellah Together Online. These included: (i) increased knowledge and motivation in relation to health and wellbeing; (ii) increased social connection at a difficult time; and (iii) a stronger sense of cultural identity and belonging. Core elements of program success identified in the research were: (i) create an affirming and power-equal environment; (ii) deliver health education through active participation and fun; (iii) build engagement throughout the program; and (iv) centre Aboriginal and Torres Strait Islander knowledge and leadership. Considerations for other organisations included: (i) planning for diversity; (ii) the availability of existing resources; and (iii) the mode of delivery (online vs. in-person). Based on the findings, the evaluation team generated seven themes to support understanding of the underlying principles and approach of the program. These themes highlight the necessity of engaging with issues of cultural connection, identity and healing in designing health and wellbeing programs for Aboriginal and Torres Strait Islander peoples.</p></div><div><h3>Principal conclusions</h3><p>The findings of the evaluation highlight the importance of Aboriginal and Torres Strait Islander-designed programs in strengthening the health and social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples at all times, including times of social upheaval.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100005"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000050/pdfft?md5=3fc841dcdb2e43b781a523a5fc6c3d99&pid=1-s2.0-S2949840623000050-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138480130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}