American journal of Alzheimer's disease and other dementias最新文献

{"title":"Book Review: Staying Connected While Letting Go: The Paradox of Alzheimer's Caregiving","authors":"S. Albrecht","doi":"10.1177/153331750401900112","DOIUrl":"https://doi.org/10.1177/153331750401900112","url":null,"abstract":"Studying Greek tragedies, Nelson Mandela noticed that characters were measured upon dealing with difficult situations and that a hero was a person who did not break even under difficult circumstances. This book is about optimism in the face of the tragedy of Alzheimer disease. It illustrates how caregivers become heroes through struggling and transcending the chaos caused by dementia, into a situation in which the dignity of both the patient and the caregiver is preserved. The authors illustrate how in the actual phases of care for a demented patient caregivers can cope with the problems they are confronted with, starting with dealing with the first signs until recovery after the patient’s death. They use the principles of cognitive reframing to illustrate how untapped individual potentials can be used to deal with difficult situations. In the beginning, there is the ambivalence of getting a diagnosis, the “wanting to know” versus the “not wanting to know.” The actual information on the diagnosis causes dual feelings of upsetting on the one hand and relief and validation of expectations on the other hand. The disclosure of the diagnosis is considered to be essential to come to terms with the illness. The patient’s changed behavior can now be defined as an illness, out of the patient’s control. Knowing the diagnosis also enables sharing this information with family and friends, thereby usually decreasing the risk of isolation by hiding the patient. As there is little knowledge about the impact of disclosure of the diagnosis dementia, the cases presented in this book provide insight into the patient’s world. Becoming a caregiver requires adaptations of the premorbid relationship. It is important that the caregiver sees himself or herself as a whole person, an individual with own rights, separate from the patient. Caregivers describe how they were confronted with negative thoughts about dealing with the patient’s illness. It is essential that the caregiver give himself or herself permission to be angry and resentful. These are natural and normal feelings. However, in the communication with the patient, it is better to preserve patient’s dignity instead of arguing. The acknowledgments of negative thoughts and the emotional and practical suggestions to deal with these feelings are very valuable for those involved in caregiving. In the middle stage, competence in memory and other activities is uneven; one moment the patient is quite well another less capable than ever. A major challenge for caregivers is to accommodate and adjust to this disease in such a way that adaptation includes compassion for both themself and the patient. Awareness of the increasing stress and alertness for symptoms of burnout are required. The authors manage to vividly describe this difficult balance, including both the struggle and the victories of the caregivers. The idea through all stages of caregiving, even the late middle stage, is that caregivers have a choice. To mainta","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"7 1","pages":"50 - 51"},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82159761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"2003 Cumulative Subject Index","authors":"","doi":"10.1177/153331750401900116","DOIUrl":"https://doi.org/10.1177/153331750401900116","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"1 1","pages":"60 - 63"},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76283182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"2003 Cumulative Author Index","authors":"","doi":"10.1177/153331750401900115","DOIUrl":"https://doi.org/10.1177/153331750401900115","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"95 1","pages":"55 - 59"},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80375777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Book Review: Losing My Mind: An Intimate Look at Life with Alzheimer's","authors":"Alta F. McDonald","doi":"10.1177/153331750401900111","DOIUrl":"https://doi.org/10.1177/153331750401900111","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"20 1","pages":"50 - 50"},"PeriodicalIF":0.0,"publicationDate":"2004-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85507424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Book Review: Counseling the Alzheimer's Caregiver: A Resource for Health Care Professionals","authors":"Joanne Koenig Coste","doi":"10.1177/153331750301800602","DOIUrl":"https://doi.org/10.1177/153331750301800602","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"19 1","pages":"383 - 383"},"PeriodicalIF":0.0,"publicationDate":"2003-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82849746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Memory and loss","authors":"C. Rowland","doi":"10.1177/153331750301800601","DOIUrl":"https://doi.org/10.1177/153331750301800601","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"1 1","pages":"NP - NP"},"PeriodicalIF":0.0,"publicationDate":"2003-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88407478","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Domentia and education","authors":"C. Rowland","doi":"10.1177/153331750301800501","DOIUrl":"https://doi.org/10.1177/153331750301800501","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"6 1","pages":"NP - NP"},"PeriodicalIF":0.0,"publicationDate":"2003-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84893420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Vignettes Scenes of Lee, Part Four","authors":"Mary Donnarumma Sharnick","doi":"10.1177/153331750301800412","DOIUrl":"https://doi.org/10.1177/153331750301800412","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"1 1","pages":"252 - 253"},"PeriodicalIF":0.0,"publicationDate":"2003-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88618672","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Book Review: Community Resources for Older Adults: Programs and Services in an Era of Change","authors":"K. Hepburn","doi":"10.1177/153331750301800403","DOIUrl":"https://doi.org/10.1177/153331750301800403","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"34 4(Supplementary) 1","pages":"254 - 254"},"PeriodicalIF":0.0,"publicationDate":"2003-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90857884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Change and directions","authors":"C. Rowland","doi":"10.1177/153331750301800401","DOIUrl":"https://doi.org/10.1177/153331750301800401","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"15 1","pages":"NP - NP"},"PeriodicalIF":0.0,"publicationDate":"2003-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77676164","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}