American journal of Alzheimer's disease and other dementias最新文献

{"title":"Book Review: Ethical Foundations of Palliative Care for Alzheimer Disease","authors":"D. Kuhn","doi":"10.1177/153331750502000102","DOIUrl":"https://doi.org/10.1177/153331750502000102","url":null,"abstract":"During recent years the palliative care movement has rapidly extended its domain. Originated in the field of pain management for patients with terminal metastatic cancer, the model of palliative care has now also found application in the care for patients suffering from chronic diseases. To that end a new term was coined: that of non-cancer palliative care . In this book, a collection of contributions to a working conference in the Netherlands, a group of (Roman Catholic) physicians, moral philosophers, and nursing professionals explores the challenges of applying a palliative care policy to the field of care-giving in dementia. The starting point of their reflections is the observation that the traditional conception of bioethics, with its dominant orientation on autonomy and self-determination, is not easily compatible with the practice of caring for people with dementia. According to the authors, this situation can be remedied by appealing to the values of hospice philosophy and palliative care. The book is composed of six parts. A first one on the epidemiological, clinical, and societal aspects of the disease, which includes an interesting chapter on the relation between neuropathology and behavior in connection to issues such as competence and level of (in) dependence on care, is followed by an overview of palliative care as it is administered in Europe and the United States, with a fine chapter by Olde Rikkert (The Netherlands) and Rigaud (France) on hospital-based palliative care. Part three seeks to explore the philosophical and theological concerns central to Alzheimer disease, such as the questions of dignity, autonomy, and embodiment. In part four the more familiar clinical ethics issues are addressed, such as the dilemmas and pitfalls of decision making with regard to incompetent patients, end-of-life care for Alzheimer disease patients, the role of living wills, and the question of euthanasia. Part five deals with organizational ethics and allocation decisions whereas the final part explores the moral aspects of conducting scientific research in peoplewith dementia. One of the core chapters in this compilation is Ten Have’s contribution on the expanding scope of palliative care. Following Pellegrino, he differentiates between a philosophy in and a philosophy of palliative care. The former refers to the assistance ethicists can give to care givers in elucidating specific problems and in helping them to deal with moral dilemmas. The latter refers to the enrichment that the concepts and values of palliative care can provide to (a critical reflection on) bioethics. In this respect the author calls attention to the tendencywithin contemporary bioethics to neglect the human body: in its striving to secure the autonomy of the patient against medical paternalism, bioethics falls victim to the same dualistic anthropology that characterizes medicine. Palliative care and the hospice movement reject this dualism and focus on the essential embodi","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"9 1","pages":"53 - 54"},"PeriodicalIF":0.0,"publicationDate":"2005-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90621118","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Book Review: Restorative Care Nursing for Older Adults: A Guide for All Care Settings","authors":"M. Parker, R. E. Bergmark","doi":"10.1177/153331750401900603","DOIUrl":"https://doi.org/10.1177/153331750401900603","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"20 1","pages":"383 - 383"},"PeriodicalIF":0.0,"publicationDate":"2004-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89868418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Changes and challenges","authors":"C. Rowland","doi":"10.1177/153331750401900601","DOIUrl":"https://doi.org/10.1177/153331750401900601","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"118 1","pages":"NP - NP"},"PeriodicalIF":0.0,"publicationDate":"2004-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88025940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Book Review: Social Work and Health Care in an Aging Society: Education, Policy, Practice, and Research","authors":"M. Parker","doi":"10.1177/153331750401900503","DOIUrl":"https://doi.org/10.1177/153331750401900503","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"139 1","pages":"319 - 320"},"PeriodicalIF":0.0,"publicationDate":"2004-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74583676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Medication and nonmedication strategies","authors":"C. Rowland","doi":"10.1177/153331750401900501","DOIUrl":"https://doi.org/10.1177/153331750401900501","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"104 1","pages":"NP - NP"},"PeriodicalIF":0.0,"publicationDate":"2004-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75980797","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Book Review: Reflections on Caring for an Aging Parent","authors":"M. Parker","doi":"10.1177/153331750401900414","DOIUrl":"https://doi.org/10.1177/153331750401900414","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"1 1","pages":"255 - 255"},"PeriodicalIF":0.0,"publicationDate":"2004-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79920729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Medications, genetics, and loss","authors":"C. Rowland","doi":"10.1177/153331750401900401","DOIUrl":"https://doi.org/10.1177/153331750401900401","url":null,"abstract":"","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"55 1","pages":"NP - NP"},"PeriodicalIF":0.0,"publicationDate":"2004-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"91156263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Book Review: Living with Grief: Alzheimer's Disease","authors":"D. Kuhn","doi":"10.1177/153331750401900415","DOIUrl":"https://doi.org/10.1177/153331750401900415","url":null,"abstract":"This slender book is exactly what it advertises: a daughter’s guide to coping with the problems of caring for an aging parent. In this case, Lightbody uses unsent letters, journal entries, and highly personal reflections to talk about the long process of caring for her elderly mother with multiple disabilities. The book is intended to examine the impact of this kind of complex caregiving on the person, the family, and the community at large. This is an extremely personal book in which the author freely shares her complicated feelings of joy, anger, disappointment, apathy, sympathy, loss of hope, anger, and love during her caregiving career. The book is written in two parts. Part 1 is written in the form of a personal diary and deals with how Lightbody coped with the role reversal of becoming a “parent” to her own mother. Part 2, the central section, is a collection of unmailed letters to her mother that focus on such topics as her mother’s hearing problems, her blindness, her physical disabilities, her dementia, and her hallucinations. Each of these sections ends with a bulleted list describing ways of dealing with the various issues described. The letters also discuss ways of dealing with difficult people, address the specific financial and legal issues that arise, acknowledge the fact that there simply are no answers to some questions, and describe the many creative ways that Lightbody’s mother provoked guilt in her daughter. In the afterword, Lightbody points out that she wants her book to end on a hopeful, upbeat note. This is difficult, however, in that most of the letters and journal entries were written when the author was experiencing particularly tough spots in the relationship with her mother. A particularly useful feature of this book is the “Notes” section, listing the source of the quotes used throughout the book, and an “Index of Letter Topics,” which allows readers to zero in on a particular area of interest. Audrey Brown Lightbody is now retired in Claremont, California, from a lifetime of ecumenical and administrative ministries at both the local and national levels. Appropriate audiences for this book are clergy, nurses, and social workers seeking to work with elders and their families. Readers should be forewarned that this is not a research or fact-based book, but rather an intensely personal reflection on the frustrations of trying to care for someone in mental and physical decline. The book is well-written, but the content can make for difficult reading at times.","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"3 1","pages":"255 - 256"},"PeriodicalIF":0.0,"publicationDate":"2004-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80186949","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Practicalities and possibilities","authors":"C. Rowland","doi":"10.1177/153331750401900301","DOIUrl":"https://doi.org/10.1177/153331750401900301","url":null,"abstract":": This paper discusses the historical context of the NSW AECG and the NSW Aboriginal Education Policy, and emphasises the need for culturally inclusive policies and effective implementation strategies. It also highlights the relationship between Indigenous educational disadvantage and colonisation, demonstrating the need for dominant educational frameworks to be inclusive of Indigenous ways of knowing, being and doing.","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"56 1","pages":"NP - NP"},"PeriodicalIF":0.0,"publicationDate":"2004-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79781413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Book review: Dementia Practice Guidelines for Treating Disturbing Behaviors","authors":"N. Richeson","doi":"10.1177/153331750401900206","DOIUrl":"https://doi.org/10.1177/153331750401900206","url":null,"abstract":"The disturbing behaviors associated with dementia are a significant problem for older adults, their families, and their caregivers. By the year 2050, the incidence of dementia in the US is expected to climb to 14 million, according to the Alzheimer’s Association. The associated rise in disturbing behaviors will further affect the afflicted’s interpersonal relationships and quality of life, as well as opportunities to experience leisure. Dementia Practice Guidelines for Treating Disturbing Behaviors, a 400-page document, provides a long overdue systematic approach that will help recreational therapists treat these disturbing behaviors. The authors’ focus on the importance of including the best available evidence when formatting treatment decisions distinguishes this text from previous approaches to treatment in recreational therapy. The foundation of the dementia practice guidelines (DPG) is the merging of the Need-Driven DementiaCompromised Behavior (NDB) model and the Neurodevelopmental Sequencing Theory of Prescription (NDSP). The NDB model suggests that the disturbing behaviors of persons with dementia are not a symptom of the disease but rather an unmet need. The NDSP, developed by Buettner in the 1980s, is a comprehensive approach for treating the disturbing behaviors of frail older adults with dementia. While the Omnibus Budget Reconciliation Act of 1987 has long promoted a nonpharmacologic approach to treatment, little has been done to promote alternative treatment interventions. The DPG promotes recreational therapy as the first line of defense, ahead of prescribed psychoactive medication, with its negative side effects. The section on recreational therapy outlines the 10 steps in treating disturbing behaviors, referencing them with appendix materials such as behavior checklists, physician order forms, and evaluation materials. The tools provided in the appendices will ensure a place for the DPG on the practitioner’s desk. Also helpful is a chart of more than 80 protocols that can help the practitioner select the appropriate intervention based on factors such as behavior, stage, level of dementia, and research findings. The criteria for selecting an intervention to decrease a behavior illustrates the application of evidence-based practice. DPG’s literature review incorporates an evidencebased grading system that lets the reader determine the strength of the research. The reference section includes a key to inform the reader if the article is research, literature, national guidelines, or theory. The life work of two researchers, the DPG demonstrates a groundbreaking contribution not just to the therapeutic recreation profession but also to healthcare in general. The focus on evidence-based practice using a nonpharmological approach to treating disturbing behaviors for persons with dementia is an important one. As the authors note, there are many unanswered questions, and for that reason, Dementia Practice Guidelines for Treating Disturbing","PeriodicalId":93865,"journal":{"name":"American journal of Alzheimer's disease and other dementias","volume":"19 1","pages":"135 - 135"},"PeriodicalIF":0.0,"publicationDate":"2004-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85706124","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}