{"title":"Medical Big Data for Research Use: Current Status and Related Issues.","authors":"Koichi Benjamin Ishikawa","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Advances in the computerization of information and development of technology have mitigated restrictions on handling of a large amount of information. This has resulted in growth of expectations for the use of large-scale databases, or so-called \"big data.\" This is also the case in the field of healthcare. Projects that involve building of the national receipt database (NDB) of medical fee bill (receipt) information and special health check-up information based on the Act on Assurance of Medical Care for Elderly People and the development of medical information databases have been pursued by the national government, and considerable attention has also been focused on researches conducted through the secondary uses of publicly collected data. Aside from these trends, there are numerous projects which collect diagnosis procedure combination (DPC) data to build large-scale databases for research purposes. Following to the ethics guidelines for epidemiologic studies, they collect and analyze anonymized DPC data from cooperating institutions. This communication concentrates on the use of DPC data, and outlines the scale of data currently available for research use. Examples on the use of DPC data will be shown for analysis on the current status of clinical practice from the microscopic perspective and macroscopic analysis of community medical care provision. Additionally, potential for extending studies to long-term outcomes research, limitations and issues related to the use of medical big data will also be discussed.</p>","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"59 2-3","pages":"110-124"},"PeriodicalIF":0.0,"publicationDate":"2016-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5333614/pdf/jmaj-59-0110.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34816344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Analysis of Free Legal Counselling for the Great East Japan Earthquake and the Outlook for the Field of Disaster Recovery and Revitalization Law.","authors":"Tadashi Okamoto","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Of the free legal counselling conducted by lawyers following the Great East Japan Earthquake, the results of analysis of approx. 40,000 cases have been disclosed by the Japan Federation of Bar Associations. These analysis results have been used as evidence serving as the basis for system revision and new legislation following the disaster, and have been of value to public policy, to a certain extent. In order to identify methods for realizing policy targets as know-how for public policy through the integration and analysis of legal needs in disaster areas, in FY2012 and thereafter, lectures on the \"Disaster Recovery and Revitalization Law\" were initiated by the Graduate School of Public Policy, Chuo University; Keio University Law School; and other institutions. Under the Disaster Recovery and Revitalization Law, new public policy education fusing various fields of government, policy, law, disaster prevention and crisis management, etc. has been implemented. By utilizing the database on free legal counselling, it may be possible to identify legal systems that need to be ironed out or problems related to public policy in preparation for a huge disaster such as an earthquake directly striking the Tokyo metropolitan area or an earthquake in the Nankai Trough. It is thought that intensifying study of relevant fields will result in the proposal of new designs in the fields of disaster prevention and crisis management.</p>","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"59 2-3","pages":"77-90"},"PeriodicalIF":0.0,"publicationDate":"2016-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5333619/pdf/jmaj-59-0077.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34816342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Large-scale Health Information Database and Privacy Protection.","authors":"Ryuichi Yamamoto","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Japan was once progressive in the digitalization of healthcare fields but unfortunately has fallen behind in terms of the secondary use of data for public interest. There has recently been a trend to establish large-scale health databases in the nation, and a conflict between data use for public interest and privacy protection has surfaced as this trend has progressed. Databases for health insurance claims or for specific health checkups and guidance services were created according to the law that aims to ensure healthcare for the elderly; however, there is no mention in the act about using these databases for public interest in general. Thus, an initiative for such use must proceed carefully and attentively. The PMDA projects that collect a large amount of medical record information from large hospitals and the health database development project that the Ministry of Health, Labour and Welfare (MHLW) is working on will soon begin to operate according to a general consensus; however, the validity of this consensus can be questioned if issues of anonymity arise. The likelihood that researchers conducting a study for public interest would intentionally invade the privacy of their subjects is slim. However, patients could develop a sense of distrust about their data being used since legal requirements are ambiguous. Nevertheless, without using patients' medical records for public interest, progress in medicine will grind to a halt. Proper legislation that is clear for both researchers and patients will therefore be highly desirable. A revision of the Act on the Protection of Personal Information is currently in progress. In reality, however, privacy is not something that laws alone can protect; it will also require guidelines and self-discipline. We now live in an information capitalization age. I will introduce the trends in legal reform regarding healthcare information and discuss some basics to help people properly face the issue of health big data and privacy protection with a sense of ownership.</p>","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"59 2-3","pages":"91-109"},"PeriodicalIF":0.0,"publicationDate":"2016-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5333617/pdf/jmaj-59-0091.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34816343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Policy Address.","authors":"Yoshitake Yokokura","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"59 2-3","pages":"55-58"},"PeriodicalIF":0.0,"publicationDate":"2016-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5333620/pdf/jmaj-59-0055.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34816956","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Challenges of Japanese Community Medicine from the Global Health Perspective.","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"59 2-3","pages":"59-76"},"PeriodicalIF":0.0,"publicationDate":"2016-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5333615/pdf/jmaj-59-0059.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34816957","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Healthcare and the Roles of the Medical Profession in the Big Data Era.","authors":"Yuji Yamamoto","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The accumulation of large amounts of healthcare information is in progress, and society is about to enter the Health Big Data era by linking such data. Medical professionals' daily tasks in clinical practice have become more complicated due to information overload, accelerated technological development, and the expansion of conceptual frameworks for medical care. Further, their responsibilities are more challenging and their workload is consistently increasing. As medical professionals enter the Health Big Data era, we need to reevaluate the fundamental significance and role of medicine and investigate ways to utilize this available information and technology. For example, a data analysis on diabetes patients has already shed light on the status of accessibility to physicians and the treatment response rate. In time, large amounts of health data will help find solutions including new effective treatment that could not be discovered by conventional means. Despite the vastness of accumulated data and analyses, their interpretation is necessarily conducted by attending physicians who communicate these findings to patients face to face; this task cannot be replaced by technology. As medical professionals, we must take the initiative to evaluate the framework of medicine in the Health Big Data era, study the ideal approach for clinical practitioners within this framework, and spread awareness to the public about our framework and approach while implementing them.</p>","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"59 2-3","pages":"125-139"},"PeriodicalIF":0.0,"publicationDate":"2016-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5333618/pdf/jmaj-59-0125.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34816345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"HONG KONG MEDICAL ASSOCIATION.","authors":"Alvin Y S Chan","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"58 4","pages":"224-30"},"PeriodicalIF":0.0,"publicationDate":"2015-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4829776/pdf/jmaj-58-0224.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34405475","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"JAPAN MEDICAL ASSOCIATION.","authors":"Yoshitake Yokokura","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"58 4","pages":"236-9"},"PeriodicalIF":0.0,"publicationDate":"2015-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4829779/pdf/jmaj-58-0236.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34405478","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"MALAYSIAN MEDICAL ASSOCIATION.","authors":"Ravindran Naidu","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"58 4","pages":"245-9"},"PeriodicalIF":0.0,"publicationDate":"2015-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4829781/pdf/jmaj-58-0245.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34405480","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"[Taiwan]Ensuring Food Safety: An Important Challenge Today: -Food safety management in Taiwan.","authors":"Ching-Chuan Su, Da-Chen Chu","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":90568,"journal":{"name":"Japan Medical Association journal : JMAJ","volume":"58 4","pages":"209-12"},"PeriodicalIF":0.0,"publicationDate":"2015-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4829772/pdf/jmaj-58-0209.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34405471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}