BEOnline : journal of the West African bioethics training program最新文献

筛选
英文 中文
Advance Directive in End of Life Decision-Making among the Yoruba of South-Western Nigeria. 尼日利亚西南部约鲁巴人临终决策中的预先指令。
BEOnline : journal of the West African bioethics training program Pub Date : 2016-11-01 Epub Date: 2016-11-22 DOI: 10.20541/beonline.2016.0008
Ayodele Samuel Jegede, Olufunke Olufunsho Adegoke
{"title":"Advance Directive in End of Life Decision-Making among the Yoruba of South-Western Nigeria.","authors":"Ayodele Samuel Jegede, Olufunke Olufunsho Adegoke","doi":"10.20541/beonline.2016.0008","DOIUrl":"10.20541/beonline.2016.0008","url":null,"abstract":"<p><p>End-of-life decision making is value-laden within the context of culture and bioethics. Also, ethics committee role is difficult to understand on this, thus need for ethnomethodological perspective in an expanding bioethical age. Anthropological approach was utilized to document Yoruba definition and perspective of death, cultural beliefs about end-of-life decision making, factors influencing it and ethics committee role. Interviews were conducted among selected Yoruba resident in Akinyele LGA, Oyo State, Nigeria. Content analytical approach was used for data analysis. Yoruba culture, death is socially constructed having spiritual, physical and social significance. Relationship between the dying and significant others influences decision making. Hierarchy of authority informs implementing traditional advance directive. Socialization, gender, patriarchy, religious belief and tradition are major considerations in end-of-life decision making. Awareness, resource allocation and advocacy are important ethics committees' roles. Further research into cultural diversity of end-of-life decision making will strengthen ethical practice in health care delivery.</p>","PeriodicalId":89895,"journal":{"name":"BEOnline : journal of the West African bioethics training program","volume":"3 3","pages":"41-67"},"PeriodicalIF":0.0,"publicationDate":"2016-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5363404/pdf/nihms851108.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34856946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Systematic Review of the Management of Incidental Findings in Genomic Research. 基因组研究中偶然发现管理的系统综述。
BEOnline : journal of the West African bioethics training program Pub Date : 2016-01-01 Epub Date: 2016-11-22 DOI: 10.20541/beonline.2016.0006
Cornelius Ewuoso
{"title":"A Systematic Review of the Management of Incidental Findings in Genomic Research.","authors":"Cornelius Ewuoso","doi":"10.20541/beonline.2016.0006","DOIUrl":"https://doi.org/10.20541/beonline.2016.0006","url":null,"abstract":"<p><p>Information empowerment has been the greatest gain of genomics, yet it also poses serious threat to its survival, especially when the information is incidental. There may be an emerging consensus that actionable incidental findings be returned. But this has not been supported by any systematic review. Future directions are equally missing. These are significant gaps. To fill these gaps, an online search on PubMed and Genetics in Medicine website was conducted between 20th of August to 23rd of October, 2013; combining certain filters and phrases, such as 'return incidental findings'. Nineteen (19) articles were selected from an avalanche of results, and reviewed. The review confirms a majority support for return of clinically actionable findings. The result also shows that the support represents views of Northern Americans. Critical contributions of Africans, Asians and Europeans are missing in this discourse. I recommended studies in this direction.</p>","PeriodicalId":89895,"journal":{"name":"BEOnline : journal of the West African bioethics training program","volume":"3 1","pages":"1-21"},"PeriodicalIF":0.0,"publicationDate":"2016-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5370178/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34871197","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 12
Decolonizing Bioethics in Africa. 非洲的非殖民化生物伦理学。
BEOnline : journal of the West African bioethics training program Pub Date : 2016-01-01 Epub Date: 2016-11-22 DOI: 10.20541/beonline.2016.0009
Ademola Kazeem Fayemi, O C Macaulay-Adeyelure
{"title":"Decolonizing Bioethics in Africa.","authors":"Ademola Kazeem Fayemi,&nbsp;O C Macaulay-Adeyelure","doi":"10.20541/beonline.2016.0009","DOIUrl":"https://doi.org/10.20541/beonline.2016.0009","url":null,"abstract":"<p><p>The global spread of bioethics from its North-American and European provenance to non-Western societies is currently raising some concerns. Part of the concern has to do with whether or not the exportation of bioethics in its full Western sense to developing non-Western states is an instance of ethical imperialism or bioethical neocolonialism. This paper attempts an exploration of this debate in the context of bioethics in sub-Saharan Africa. Rather than conceding that bioethics has a colonial agenda in Africa, this paper defends the position that the current bioethics trend in sub-Saharan Africa is an unintended imperialistic project. It argues that its colonizing character is not entirely a product of the Western programmed goals of training and institution building; rather, it is a structural consequence of many receptive African minds and institutions. Though bioethics in Africa is turning out as a colonizing project, one serious implication of such trend, if unchecked urgently, is that bioethics' invaluable relevance to Africa is being incapacitated. This paper, therefore, attempts a decolonizing trajectory of bioethics in Africa. Contrary to the pretense of 'African bioethics,' which some African scholars are now defending, this paper through the logic of decolonization makes case for 'bioethics in Africa'. In such logic, the principle of existential needs is prioritized over the principle of identity and authenticity that define African voice in bioethics.</p>","PeriodicalId":89895,"journal":{"name":"BEOnline : journal of the West African bioethics training program","volume":"3 4","pages":"68-90"},"PeriodicalIF":0.0,"publicationDate":"2016-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5364804/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34856947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 19
Ethics of trial drug use: to give or not to give? 试验用药伦理:给还是不给?
BEOnline : journal of the West African bioethics training program Pub Date : 2016-01-01 Epub Date: 2016-11-22 DOI: 10.20541/beonline.2016.0007
Oduwole O Ebunoluwa, Fayemi A Kareem
{"title":"Ethics of trial drug use: to give or not to give?","authors":"Oduwole O Ebunoluwa,&nbsp;Fayemi A Kareem","doi":"10.20541/beonline.2016.0007","DOIUrl":"https://doi.org/10.20541/beonline.2016.0007","url":null,"abstract":"<p><p>The 2014 outbreak of Ebola viral disease in some West African countries, which later spread to the USA and Spain, has continued to be a subject of global public health debate. While there is no approved vaccine or drug for Ebola cure yet, moral questions of bioethical significance are emerging even as vaccine studies are at different clinical trial phases. This paper, through a normative and critical approach, focuses on the question of whether it is ethical to give any experimental drugs to Ebola victims in West Africa or not. Given the global panic and deadly contagious nature of Ebola, this paper argues on three major compassionate grounds that it is ethical to use experimental drugs on the dying African victims of Ebola. Besides respecting patients and family consent in the intervention process, this paper argues that the use of Ebola trial drugs on West African population will be ethical if it promotes the common good, and does not violate the fundamental principles of transparency and integrity in human research ethics. Using Kantian ethical framework of universality as a basis for moral defense of allowing access to yet approved drugs. This paper provides argument to strengthen the compassionate ground provisional recommendation of the WHO's Strategic Advisory Group of Experts on Immunization (SAGE) on Ebola vaccines and vaccination.</p>","PeriodicalId":89895,"journal":{"name":"BEOnline : journal of the West African bioethics training program","volume":"3 2","pages":"22-40"},"PeriodicalIF":0.0,"publicationDate":"2016-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5371348/pdf/nihms854019.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34877385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implementing National System of Health Research Ethics Regulations: The Nigerian Experience. 实施国家卫生研究伦理法规体系:尼日利亚的经验。
Aminu Yakubu, Clement A Adebamowo
{"title":"Implementing National System of Health Research Ethics Regulations: The Nigerian Experience.","authors":"Aminu Yakubu,&nbsp;Clement A Adebamowo","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Efforts by Nigerian authorities to institutionalize health research dates back to the early 70's with the establishment of the Medical Research Council. Subsequently efforts to strengthen a national health research system in line with the concept of Essential National Health Research (ENHR) were made but albeit un-successfully. This may have been as a result of poor political support, and lack of regulations to promote health research in the country. However little is known about health research regulations and their implementation in Nigeria. Health and health research in Nigeria is not regulated via a set of clearly defined legislation. While the country has developed a regulation document for health research ethics, compliance to this document is likely to be affected by the lack of legislation in for the health system as an entity. In this paper we narrate the developments in health, health research, and health regulations; we describe process for, and extent of implementation of the National Code of Health Research Ethics. We conclude that several factors affect the extent of implementation of the ethics code amongst which legislation is an important one.</p>","PeriodicalId":89895,"journal":{"name":"BEOnline : journal of the West African bioethics training program","volume":"1 1","pages":"4-15"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3855243/pdf/nihms510025.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31943939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ethical and Legal Issues in Biobanking for Genomic Research in Nigeria. 尼日利亚基因组研究生物库的伦理和法律问题。
Simisola O Akintola
{"title":"Ethical and Legal Issues in Biobanking for Genomic Research in Nigeria.","authors":"Simisola O Akintola","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The pursuit of genomic research and biobanking has raised concerns and discussions about the ethical and legal implications. Given the specific challenges that surround such enterprise in low and middle income countries, it is pertinent to examine them in the light of the advent of Biobanking and Genomic research in Nigeria. In this paper I discuss the issues and suggest model solutions derived from advanced jurisdictions. These ethical and legal issues are discussed within the context of the legal system of a typical African country whose jurisprudence derives from that of its erstwhile colonial master, the United Kingdom. This includes issues relating to law and human rights, informed consent, native and customary law.</p>","PeriodicalId":89895,"journal":{"name":"BEOnline : journal of the West African bioethics training program","volume":"1 1","pages":"16-25"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3863711/pdf/nihms510029.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31969649","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implementing National System of Health Research Ethics Regulations: The Nigerian Experience. 实施国家卫生研究伦理法规体系:尼日利亚的经验。
BEOnline : journal of the West African bioethics training program Pub Date : 2012-01-01 DOI: 10.20541/beonline.2012.0000
A. Yakubu, C. Adebamowo
{"title":"Implementing National System of Health Research Ethics Regulations: The Nigerian Experience.","authors":"A. Yakubu, C. Adebamowo","doi":"10.20541/beonline.2012.0000","DOIUrl":"https://doi.org/10.20541/beonline.2012.0000","url":null,"abstract":"Efforts by Nigerian authorities to institutionalize health research dates back to the early 70's with the establishment of the Medical Research Council. Subsequently efforts to strengthen a national health research system in line with the concept of Essential National Health Research (ENHR) were made but albeit un-successfully. This may have been as a result of poor political support, and lack of regulations to promote health research in the country. However little is known about health research regulations and their implementation in Nigeria. Health and health research in Nigeria is not regulated via a set of clearly defined legislation. While the country has developed a regulation document for health research ethics, compliance to this document is likely to be affected by the lack of legislation in for the health system as an entity. In this paper we narrate the developments in health, health research, and health regulations; we describe process for, and extent of implementation of the National Code of Health Research Ethics. We conclude that several factors affect the extent of implementation of the ethics code amongst which legislation is an important one.","PeriodicalId":89895,"journal":{"name":"BEOnline : journal of the West African bioethics training program","volume":"20 1","pages":"4-15"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79269394","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 13
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信
小红书