The female patient最新文献

{"title":"Patient-Centered Core Impact Sets: What They are and Why We Need Them","authors":"E. Perfetto, Elisabeth M. Oehrlein, T. Love, S. Schoch, Annie Kennedy, J. Bright","doi":"10.1007/s40271-022-00583-x","DOIUrl":"https://doi.org/10.1007/s40271-022-00583-x","url":null,"abstract":"","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"89 12 1","pages":"619 - 627"},"PeriodicalIF":0.0,"publicationDate":"2022-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87711902","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What Matters for Evaluating the Quality of Mental Healthcare? Identifying Important Aspects in Qualitative Focus Groups with Service Users and Frontline Mental Health Professionals","authors":"P. Powell, D. Rowen","doi":"10.1007/s40271-022-00580-0","DOIUrl":"https://doi.org/10.1007/s40271-022-00580-0","url":null,"abstract":"","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"273 1","pages":"669 - 678"},"PeriodicalIF":0.0,"publicationDate":"2022-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84409611","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exit Interviews Examining the Patient Experience in Clinical Trials of Tirzepatide for Treatment of Type 2 Diabetes","authors":"L. Matza, K. Stewart, L. F. Landó, Hiren Patel, K. Boye","doi":"10.1007/s40271-022-00578-8","DOIUrl":"https://doi.org/10.1007/s40271-022-00578-8","url":null,"abstract":"","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"25 1","pages":"367 - 377"},"PeriodicalIF":0.0,"publicationDate":"2022-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"89581832","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy","authors":"Norah L. Crossnohere, R. Fischer, E. Vroom, P. Furlong, John F. P. Bridges","doi":"10.1007/s40271-022-00574-y","DOIUrl":"https://doi.org/10.1007/s40271-022-00574-y","url":null,"abstract":"","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"15 1","pages":"577 - 588"},"PeriodicalIF":0.0,"publicationDate":"2022-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78668751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID","authors":"S. Ziegler, A. Raineri, V. Nittas, N. Rangelov, Fabian Vollrath, Chantal Britt, M. Puhan","doi":"10.1007/s40271-022-00579-7","DOIUrl":"https://doi.org/10.1007/s40271-022-00579-7","url":null,"abstract":"","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"85 1","pages":"565 - 576"},"PeriodicalIF":0.0,"publicationDate":"2021-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80483651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study.","authors":"Erna C van Balen, Marjolein L Wesselo, Bridget L Baker, Marjan J Westerman, Michiel Coppens, Cees Smit, Mariëtte H E Driessens, Frank W G Leebeek, Johanna G van der Bom, Samantha C Gouw","doi":"10.1007/s40271-019-00395-6","DOIUrl":"10.1007/s40271-019-00395-6","url":null,"abstract":"<p><strong>Background and objective: </strong>New treatments for haemophilia are under development or entering the market, including extended half-life products, designer drugs and gene therapy, thereby increasing treatment options for haemophilia. It is currently unknown how people with haemophilia decide whether to switch to a new treatment. Therefore, the objective of this study was to explore what factors may play a role when Dutch patients and parents of boys with moderate or severe haemophilia make decisions about whether to switch to a different treatment, and how disease and treatment characteristics may affect these decisions. This may aid clinical teams in tailored information provision and shared decision making.</p><p><strong>Methods: </strong>We conducted interviews among adults with moderately severe or severe haemophilia and parents of young boys with severe haemophilia. We aimed to include participants from a variety of backgrounds in terms of involvement in the haemophilia community, age, treatment centre and treatments. Participants were recruited through the Netherlands Haemophilia Society and a haemophilia treatment centre. Semi-structured interviews were recorded and transcribed verbatim. Thematic content analysis was used to analyse the data.</p><p><strong>Results: </strong>Twelve people with haemophilia and two mothers of boys with haemophilia were included. In general, participants reported to be satisfied with their current treatment. However, they considered ease of use of the medication (fewer injections, easier handling, alternative administration) an added value of new treatments. Participants were aware of the high cost of coagulation factor products and some expressed their concern about the Netherlands Haemophilia Society's long-term willingness to pay for current and novel treatments, especially for increased usage due to high-risk activities. Participants also expressed their concerns about the short- and long-term safety of new treatments and believed the effects of gene therapy were not yet fully understood. Participants expected their treatment team to inform them when a particular new treatment would be suitable for them.</p><p><strong>Conclusions: </strong>With the number of treatment options set to increase, it is important for healthcare providers to be aware of how patient experiences shape patients' decisions about new therapies.</p>","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"76 1","pages":"201-210"},"PeriodicalIF":0.0,"publicationDate":"2020-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7075838/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90488101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Picture is Worth a Thousand Words: The Role of Survey Training Materials in Stated-Preference Studies.","authors":"Caroline M Vass, Niall J Davison, Geert Vander Stichele, Katherine Payne","doi":"10.1007/s40271-019-00391-w","DOIUrl":"10.1007/s40271-019-00391-w","url":null,"abstract":"<p><strong>Background: </strong>Online survey-based methods are increasingly used to elicit preferences for healthcare. This digitization creates an opportunity for interactive survey elements, potentially improving respondents' understanding and/or engagement.</p><p><strong>Objective: </strong>Our objective was to understand whether, and how, training materials in a survey influenced stated preferences.</p><p><strong>Methods: </strong>An online discrete-choice experiment (DCE) was designed to elicit public preferences for a new targeted approach to prescribing biologics (\"biologic calculator\") for rheumatoid arthritis (RA) compared with conventional prescribing. The DCE presented three alternatives, two biologic calculators and a conventional approach (opt out), described by five attributes: delay to treatment, positive predictive value, negative predictive value, infection risk, and cost saving to the national health service. Respondents were randomized to receive training materials as plain text or an animated storyline. Training materials contained information about RA and approaches to treatment and described the biologic calculator. Background questions included sociodemographics and self-reported measures of task difficulty and attribute non-attendance. DCE data were analyzed using conditional and heteroskedastic conditional logit (HCL) models.</p><p><strong>Results: </strong>In total, 300 respondents completed the DCE, receiving either plain text (n = 158) or the animated storyline (n = 142). The HCL showed the estimated coefficients for all attributes aligned with a priori expectations and were statistically significant. The scale term was statistically significant, indicating that respondents who received plain-text materials had more random choices. Further tests suggested preference homogeneity after accounting for differences in scale.</p><p><strong>Conclusions: </strong>Using animated training materials did not change the preferences of respondents, but they appeared to improve choice consistency, potentially allowing researchers to include more complex designs with increased numbers of attributes, levels, alternatives or choice sets.</p>","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"155 1","pages":"163-173"},"PeriodicalIF":0.0,"publicationDate":"2020-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7075825/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79771932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Patient Perspective: A Matter of Minutes","authors":"R. Falchetto","doi":"10.1007/s40271-019-00399-2","DOIUrl":"https://doi.org/10.1007/s40271-019-00399-2","url":null,"abstract":"","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"57 1","pages":"1 - 6"},"PeriodicalIF":0.0,"publicationDate":"2019-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88036349","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“Lower abdominal pains, as if I was being squeezed…in a clamp”: A Qualitative Analysis of Symptoms, Patient-Perceived Side Effects and Impacts of Ovarian Cancer","authors":"Mona L. Martin, K. Halling, D. Eek, M. Reaney","doi":"10.1007/s40271-019-00393-8","DOIUrl":"https://doi.org/10.1007/s40271-019-00393-8","url":null,"abstract":"","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"56 1","pages":"189 - 200"},"PeriodicalIF":0.0,"publicationDate":"2019-11-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82300276","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing the Patient Experience of Hypoparathyroidism Symptoms: Development of the Hypoparathyroidism Patient Experience Scale-Symptom (HPES-Symptom)","authors":"M. Brod, L. Waldman, Alden Smith, D. Karpf","doi":"10.1007/s40271-019-00388-5","DOIUrl":"https://doi.org/10.1007/s40271-019-00388-5","url":null,"abstract":"","PeriodicalId":89489,"journal":{"name":"The female patient","volume":"1 1","pages":"151 - 162"},"PeriodicalIF":0.0,"publicationDate":"2019-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76134833","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}