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Genomics, society, and policy最新文献

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Making humans better and making better humans 让人类变得更好，让人类变得更好
Genomics, society, and policy Pub Date : 2010-04-15 DOI: 10.1186/1746-5354-6-1-1
M. Levitt, F. O'Neill
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引用次数: 1
A Response to Christopher Hood: 'The ethics of personal genetic profiling' 对克里斯托弗·胡德的回应:“个人基因图谱的伦理”
Genomics, society, and policy Pub Date : 2010-04-15 DOI: 10.1186/1746-5354-6-1-66
R. Tutton, A. Hedgecoe
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引用次数: 0
Data Protection and Sample Management in Biobanking - A legal dichotomy 生物银行的数据保护和样本管理——法律上的二分法
Genomics, society, and policy Pub Date : 2010-04-15 DOI: 10.1186/1746-5354-6-1-33
Tobias Schulte in den Bäumen, D. Paci, D. Ibarreta
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引用次数: 13
Bionetworking over DNA and biosocial interfaces: Connecting policy and design DNA和生物社会界面上的生物网络:连接政策和设计
Genomics, society, and policy Pub Date : 2010-04-15 DOI: 10.1186/1746-5354-6-1-47
D. Kera
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引用次数: 6
The ethics of personal genetic profiling 个人基因分析的伦理
Genomics, society, and policy Pub Date : 2010-04-15 DOI: 10.1186/1746-5354-6-1-61
C. Hood
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引用次数: 0
Community engagement in biobanking: Experiences from the eMERGE Network. 生物银行的社区参与:来自eMERGE网络的经验。
Genomics, society, and policy Pub Date : 2010-01-01 DOI: 10.1186/1746-5354-6-3-50
Amy A Lemke, Joel T Wu, Carol Waudby, Jill Pulley, Carol P Somkin, Susan Brown Trinidad
{"title":"Community engagement in biobanking: Experiences from the eMERGE Network.","authors":"Amy A Lemke,&nbsp;Joel T Wu,&nbsp;Carol Waudby,&nbsp;Jill Pulley,&nbsp;Carol P Somkin,&nbsp;Susan Brown Trinidad","doi":"10.1186/1746-5354-6-3-50","DOIUrl":"https://doi.org/10.1186/1746-5354-6-3-50","url":null,"abstract":"<p><p>Advances in genomic technologies and the promise of \"personalised medicine\" have spurred the interest of researchers, healthcare systems, and the general public. However, the success of population-based genetic studies depends on the willingness of large numbers of individuals and diverse communities to grant researchers access to detailed medical and genetic information. Certain features of this kind of research - such as the establishment of biobanks and prospective data collection from participants' electronic medical records - make the potential risks and benefits to participants difficult to specify in advance. Therefore, community input into biobank processes is essential. In this report, we describe community engagement efforts undertaken by six United States biobanks, various outcomes from these engagements, and lessons learned. Our aim is to provide useful insights and potential strategies for the various disciplines that work with communities involved in biobank-based genomic research.</p>","PeriodicalId":87617,"journal":{"name":"Genomics, society, and policy","volume":"6 3","pages":"50"},"PeriodicalIF":0.0,"publicationDate":"2010-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1186/1746-5354-6-3-50","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"30892850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 52
Dynamic feelings about metaphors for genes: Implications for research and genetic policy 关于基因隐喻的动态感受:对研究和遗传政策的影响
Genomics, society, and policy Pub Date : 2009-12-01 DOI: 10.1186/1746-5354-5-3-44
C. Condit
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引用次数: 7
Heroes of agricultural innovation 农业创新英雄
Genomics, society, and policy Pub Date : 2009-12-01 DOI: 10.1186/1746-5354-5-3-59
C. van der Weele, J. Keulartz
{"title":"Heroes of agricultural innovation","authors":"C. van der Weele, J. Keulartz","doi":"10.1186/1746-5354-5-3-59","DOIUrl":"https://doi.org/10.1186/1746-5354-5-3-59","url":null,"abstract":"","PeriodicalId":87617,"journal":{"name":"Genomics, society, and policy","volume":"87 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2009-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80596583","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Ethics of Public Health volumes I and II Michael Freeman (ed.) Ashgate Publishing Limited, 2010 公共卫生的伦理卷一和二迈克尔·弗里曼(编)阿什盖特出版有限公司，2010年
Genomics, society, and policy Pub Date : 2009-12-01 DOI: 10.1186/1746-5354-5-3-77
Tom Walker
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引用次数: 0
Patenting Lives. Life Patents, Culture and Development Gibson, J. (ed.) Hampshire: Ashgate 专利的生活。生命专利，文化和发展吉布森，J.(编)汉普郡:阿什盖特
Genomics, society, and policy Pub Date : 2009-12-01 DOI: 10.1186/1746-5354-5-3-74
M. Korthals
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引用次数: 0
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