{"title":"Team approach: an effective solution.","authors":"A A Dailey, S A DiTullio","doi":"10.1177/104990918800500607","DOIUrl":"https://doi.org/10.1177/104990918800500607","url":null,"abstract":"","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 6","pages":"20-1"},"PeriodicalIF":0.0,"publicationDate":"1988-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500607","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14331573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"DNR policies in healthcare organizations with emphasis on hospice.","authors":"R E Enck, D R Longo, M Warren, B A McCann","doi":"10.1177/104990918800500605","DOIUrl":"https://doi.org/10.1177/104990918800500605","url":null,"abstract":"In thepastseveralyears,intensive interest has focusedon the complexities of the do-not-resuscitate (DNR) treatmentdecision. Most recently, the President’sCommission for the Study of Ethical Problemsin MedicineandBiomedical andBehavioralResearch1raised thefollowing threecritical pointsin referenceto DNR. First, resuscitation is a very painful and intrusive procedure.Second,efforts to resuscitate a dying patientare only successfulin approximatelyone-inthreeattemptsandof thosepatients who survive initial resuscitationefforts, only one-third are eventually discharged.Thosewho wereable to return homeare often significantly impaired. Finally, the successof resuscitationefforts is generallydifficult to assesswithout carryingout the full rangeof procedures. These facts suggestthat physicians who carry out less aggressiveeffortsbecausetheydid not thoroughlyconsider the resuscitationdecision aheadof the time maynot be acting in their patients’bestinterest. Basedon their deliberations,the President’sCommissionmadethree chief recommendationsfor the developmentof DNR policies.1) Hospitals should developexplicit policies: “on the practiceof writing andimplementingDNR orders.”2) Hospital policies should recognize theneedfor balancedprotectionof patients,and respectthe right of a competentpatient to make an informed choice.3) Hospitalpolicies should provide a means for appropriateresolutionof conflicts,and also mandateinternalreview. In addition to these broad guidelines,the report noted that much of medicalpractice is now governedby private and independentorganizationssuch as the Joint Commissionon Accreditation of Healthcare Organizations (JCAHO) that: “bear a responsibilityto encouragesounddecisions","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 6","pages":"39-42"},"PeriodicalIF":0.0,"publicationDate":"1988-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500605","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14331582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The first decade: a hospice case study.","authors":"M Harrison, N D Richie","doi":"10.1177/104990918800500609","DOIUrl":"https://doi.org/10.1177/104990918800500609","url":null,"abstract":"thefounderofahospicespeakon the movement.Shethenmadeinquiries in the communityto find otherinterestedindividualsandwaseventually referredto a personwho hadhad some experienceat a hospice in Arizona,but who hadbeenunableto interest her employer (a nursing home)in the movement. Thesetwo placed an advertisement in a local newspaper inviting interestedparties to attenda meeting. Approximately 40 peopleshowedup with a dozen remaining for further discussion after the meeting. Fromthatpoint on, weekly meetingsof interested peoplewereheldfor severalmonths atalocalnursinghome. Initial plans by thegroupwere to approachexisting agencies—hospitals, nursing homes,andhomehealthagencies— andattemptto locateasponsorfor a hospice.The groupanticipatedthat theywould beinvolvedin theproject on a short-term basiseventually withdrawing after the hospiceconcept and functionwere part of the community’s mainstreammedical Astimepassed, it becameobvious that this approachwas not feasible andthatthegroupwouldhaveto becomemore directly involved in the establishmentof the hospice program/agency. The first board of directorswas appointedin December 1978, and in January1979,the agencybecameamemberof theNational Hospice Organization.Articles of incorporationand bylaws were written, andin May, 1979,the agencywasofficially incorporated. PhaseII The early years (late 1979to 1983) Considerabletimewasspentconducting communitymeetingsto inform the public about the hospice concept.A great deal of time was alsospenton developingtheagency’s structure.Emphasiswas placedon the developmentof admissionscriteria, forms, a volunteer training program, brochures,and contacts with physicians,hospitals,social workers, andnursinghomes.However,duringthe earlymonthsof incorporationwerealizedthatpositive responsefrom the communitywould be lacking until the agencyhadactuallybegunto offer services.","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 6","pages":"43-7"},"PeriodicalIF":0.0,"publicationDate":"1988-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500609","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14331580","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Documenting hospice care: critical factor for future acceptance.","authors":"A G Lipman","doi":"10.1177/104990918800500508","DOIUrl":"https://doi.org/10.1177/104990918800500508","url":null,"abstract":"Hospicecareis coming to the endof its seconddecadein this country.We’ve seenincredible growth—fromoneNational CancerInstitutesponsored demonstrationprojectin 1973 to morethan 1,500programs today. Yet, much of theAmerican public, andafrighteningly high percentageof healthprofessionals,arenot yetawareof hospice.And many of those who havebeenintroducedto hospicedo not acceptit as a legitimatepart of theAmerican healthcaresystem.Until hospice is acceptedinto themainstreamof Americanhealth care, frustrationwill continue to grow amonghospicecaregiversandprogramswill continue to faceseeminglyendless fiscal crises. Hospicecaregiversgive extraordinarilyof themselves. Theyare skilled, compassion-","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 5","pages":"10-2"},"PeriodicalIF":0.0,"publicationDate":"1988-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500508","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14330704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Bereavement issues for survivors of persons with AIDS: coping with society's pressures.","authors":"K A Colburn, D Malena","doi":"10.1177/104990918800500505","DOIUrl":"https://doi.org/10.1177/104990918800500505","url":null,"abstract":"The incurableandcommunicablenatureof theAcquired ImmuneDeficiency Syndrome (Aff~S)virus makesit adisease that complicatestheissueof carefor personswith AIDS (PWAs} andthe lovedones. Acrossthe nation,the social andpolitical issuessurrounding the diseasecreatesbarriers to servicesfor patients andfamily members.Coming to termswith grief is difficult in the courseof adeathnot surroundedby fear andmistrust.Thereareanumberof issuessurroundingasurvivor of an AIDS deaththatimpede andcaneffectively inhibit the resolutionof grief. The ideasandissuesraised in thispaperarebasedon conversationswith survivorsof AIDS patients.The issues touch on manyphysical,emotional andsocialelementsof beinga survivor of anAIDS death. Physicaland psycho-socialissues","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 5","pages":"20-5"},"PeriodicalIF":0.0,"publicationDate":"1988-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500505","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14331565","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Melinda House.","authors":"A A Dailey, S A DiTullio","doi":"10.1177/104990918800500506","DOIUrl":"https://doi.org/10.1177/104990918800500506","url":null,"abstract":"Whenparentsin theWashington,DC, areawant to take careof their terminally ill child at home,MelindaHousewill be there.Whenapediatric nursingprogramin California needstechnicalassistance, Melinda Housewill bethere. Whenthereis an infant with the AIDS virus abandonedby parentsin Maryland,Virginia, or Washington,DC, Melinda Housewill be there.And, whenthousandsof terminally ill children throughoutthe UnitedStatesneedto beheard to ensurethat theyhaveappropriatecareandtreatment, Children’sHospiceInternational (CHI), throughMelinda House,will bethere. Thesearejust someof the componentsof Melinda House—theuniquemodeland training centerthat CHI will establishduringthe fall of 1989 in collaborationwith local hospicesandthe Children’sHospitalNational Medical Center(CHNMC). As a facility dedicatedto develop-","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 5","pages":"13-5"},"PeriodicalIF":0.0,"publicationDate":"1988-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500506","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14331571","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The use of analgesics in patients with pain from terminal disease.","authors":"J I Berry","doi":"10.1177/104990918800500501","DOIUrl":"https://doi.org/10.1177/104990918800500501","url":null,"abstract":"Dying in pain is aforemost fear of most cancerpatients.1,2 Controllingpain is the foremostresponsibilityof those who carefor thesepatientsin the laterstagesof their illness.1,3,4 Uncontrolledpain in thesepatientsis amajor causeof the psychological symptomsof anxiety,depression, hostility, andloneliness2’5 andit contributesto the physicalsymptomsof insomnia, anorexia,weight loss, weakness,nausea,andvomiting.2’4’5 The goal of treatment is to useadequatedosesof analgesicson anaround-theclock basisin orderto keepthe patientascomfortableaspossible, while maintainingclear mentationandan unclouded sensorium.2’4 It hasbeenestimatedthat","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 5","pages":"26-42"},"PeriodicalIF":0.0,"publicationDate":"1988-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500501","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14191992","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"How to continue to attract the kind of volunteers we need in hospice: what the future holds.","authors":"R A Dershimer","doi":"10.1177/104990918800500507","DOIUrl":"https://doi.org/10.1177/104990918800500507","url":null,"abstract":"Thereis increasinganecdotal evidencethat ashospicesgrow in size andcomplexity, volunteercontributionsdecreasein importance—inspiteof the Medicarerequirementsandthe bestintentionsof directions andstaff. I basethis statementon commentsmadeby speakersand theaudienceat two recent meetingsat which I wasapresenter:A September1987conferencefor DirectorsandCoordinatorsof VolunteersServices heldby theNew York State HospiceAssociationin New York City andoneof thesessionsat the 1987NHO annual meeting. Without moredefinitive data,generalizationsaboutthe changesin volunteerservices mustbe treatedcautiously.But no onein the two meetings deniedthat conditionsgoverning the useof volunteershad changedquite drasticallyin mosthospices,andnot for the better.Onewomanat the NYSHA conferenceexpressed it well whenshesaid,“When our hospicehadonly a few staff, we hadto rely upon the volunteersto be our eyesand ears.Now the nursesdo it all.","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 5","pages":"43-6"},"PeriodicalIF":0.0,"publicationDate":"1988-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500507","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14331566","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Constipation: etiologies and management.","authors":"R E Enck","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 5","pages":"17-9"},"PeriodicalIF":0.0,"publicationDate":"1988-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14040960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Patient-controlled analgesia (PCA).","authors":"R E Enck","doi":"10.1177/104990918800500402","DOIUrl":"https://doi.org/10.1177/104990918800500402","url":null,"abstract":"","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 4","pages":"13-5"},"PeriodicalIF":0.0,"publicationDate":"1988-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500402","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14515752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}