{"title":"Rose Clay--creative networking in the care of a hospice patient.","authors":"K H Suen, K Harville","doi":"10.1177/104990918800500413","DOIUrl":"https://doi.org/10.1177/104990918800500413","url":null,"abstract":"","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 4","pages":"22-6"},"PeriodicalIF":0.0,"publicationDate":"1988-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500413","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14515754","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Strategies for the retention of hospice home care nurses. Maintaining quality care.","authors":"E Medoff","doi":"10.1177/104990918800500409","DOIUrl":"https://doi.org/10.1177/104990918800500409","url":null,"abstract":"Severalarticleshavebeen written to highlight theneed for effectiveretentionstrategiesduringa time whena shortageof nursesis againbecoming an issue.Nursemanagershaverealizedthat retention, ratherthanrecruitment, is amorecost-effectivestrategy to assurethatorganizationscan bestaffedto provideconsistent quality care.However, literature describingthe specific issuesof retaininghospice nursestaff is lacking. As the hospicemovementcontinues to grow andmature,staff membersbecomemorevaluabledueto the knowledgeand experiencetheypossess. Excellencein hospicewill beachieved by thosewho canretain the staffwith expertiseto provide quality care. Veteranstaffmembersare neededto provideexpert knowledge,to beavailableas mentorsto employees,andto provide stability to theorganization. Managerswhofail to acknowledgestaffcontributions throughprofessionalrecognitionandanadequatesalary andbenefits,fail to provide the resourcesfor theaccomplishmentof staff members’ roles, or impedetheprofessional growth,will soonfind currentemployeesworking elsewhere. Hospicehomecareis demandingto eventhe mostseasonedof nurses.Hospicefamilies havemorecontrol because thepatientis beingcaredfor in their homeandcanrejectpart or all of the careplansuggestedby the hospicenurse. As mosthomevisitsaremade independently,nursescanfeel","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 4","pages":"27-30"},"PeriodicalIF":0.0,"publicationDate":"1988-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500409","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14515756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Families with a terminally ill member. A grounded theory of family relationships.","authors":"C A Matson","doi":"10.1177/104990918800500408","DOIUrl":"https://doi.org/10.1177/104990918800500408","url":null,"abstract":"Mrs. A. movedbackto her hometo carefor herterminally ill brother-in-law,with whom shehadenjoyedacloserelationship. However,the two beganto differ in their views of how hiscareshouldbe managed.Mrs. A. reportedthat her brother-in-lawrecently rebuffedher offersof care. She commented,“The hospice nursesprobablythink I’m terrible becauseI don’t helphim, but whenI tried to seehim he got angry; I felt like a failure.” Mrs. B. andher family moved her terminally ill mother-in-law into their home.The experience, althoughdifficult at times,had broughtthe family closer togetherand, in someways hadenhancedcommunications. Sheadded,“The family feelswe are doingthe right thing.” It is clearthe two families","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 4","pages":"38-41"},"PeriodicalIF":0.0,"publicationDate":"1988-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500408","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14515760","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ethnic and cultural dimensions of work with hospice families. Allowing latitude for religious differences.","authors":"E J Rosen","doi":"10.1177/104990918800500412","DOIUrl":"https://doi.org/10.1177/104990918800500412","url":null,"abstract":"Thereis ageneralassumption that the waysin which familiesrespondto illnessand deatharedeterminedprimarily by their psychologicalmakeup. However,onefactor is frequently ignoredwhenwe considerhow families carefor the terminally ill or families’ bereavementpatterns.That factor is cultural background.In anearlierpaper,’the author discussedwaysthatunderstandingthe dynamicsof family structurecancontribute enormouslyto effectivework by the hospiceteam.The teachingof ethnicandcultural differencesis oneimportant component of understanding familiesandthis articleexpandsupon theethnicdimension in working with families. Audiencesexperienceadegreeof discomfortwhenpresentedwith the ideaof ethnic differences;for many, talking abouthow wediffer maybeas toxic asdiscussingsex (or even death),andthereis oftena concernthatexaminationsof ethnicdifferencesmayborder on prejudiceor go beyondthe boundsof goodtaste.Indeed, manyfear thatemphasizing our differencessimply reinforceswhat dividesus;but what we mustacknowledgeis thatwe are differentandthat recognitionof thesedifferences canfacilitateour work with families.2 This paperwill addressfour generalareasof importancein work with hospicepatientsand their families andlook at the waysin which avariety of ethnic groupspresentthemselves in each.Theseareasare:Values regardinglife anddeath;attitudestowardpain; careof the ill andinterfacewith the extrafamilial environment;andexpressionsof griefandbereavementpatterns,including the useof ritesandrituals. It will presentexamplesof anumber of differentethnicgroups ratherthanfocusingon any one, in orderto providethe readeranoverviewof how groupnormsandbehaviorcan differ.","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 4","pages":"16-21"},"PeriodicalIF":0.0,"publicationDate":"1988-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500412","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14515753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"About our children. Approaching grief for parents and siblings.","authors":"A A Dailey","doi":"10.1177/104990918800500403","DOIUrl":"https://doi.org/10.1177/104990918800500403","url":null,"abstract":"While thedeathof anyloved onetypically bringson a periodof grief, thedeathof a child often leadsto amoreintenseanddifficult grieving process.This is becausein our societythedeathof achild is consideredto beunacceptable. While we mournthe deathof a belovedgrandparent,we are usuallyableto accepttheir deathasafinal phaseof life. However,whenachild dies, the deathis ashockto thenormal living process.Whena child dies, it destroyshopes anddreamsfor the future, and forcesoneto faceaneventthat a personis unwilling to accept. This article will discussthe grief processof parentsand siblings,in orderto provide hospicepractitionerswith someinsightson howto deal with this patientgroup. This will allow practitionersto provide bettercareto the entire family whenachild dies.The articlewill explainthat thereis neithera right nor wrongway to approachgrief, soeachpersonmustestablishindividual meansof dealingwith it. This articlewill stress,however, that thereis apatternto resolving grief. Many peoplehave sufferedlossesandexperiencedintensegrief, but they havesurvived.Forparents whohavelost achild, it is crucial thattheyrealize they arenot alone.Therearemany peoplewho care,andthey are willing andableto help.","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 4","pages":"10-2"},"PeriodicalIF":0.0,"publicationDate":"1988-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500403","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14515751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The role of spiritual care in hospice. Are we meeting patients' needs?","authors":"P O'Connor","doi":"10.1177/104990918800500411","DOIUrl":"https://doi.org/10.1177/104990918800500411","url":null,"abstract":"Sincehospiceprogramsattempt to provideholistic care to personsnearingtheendof their life span,thereis wide agreementhat this careought to incudeadimensionof spiritual care. Unfortunately, viewpointsdiffer on thecornmonalitiesof spiritual care, in spiteof the convictionof Dame CicelySaundersthat spiritual careis not an “optional extra.” An effort to resolve someof theseissuesbegan with the Conferenceson Secular andNon-secularIssueson DeathandDying at Yale University in 1985and1986.Proceedingsfrom thesecolloquia contributedto the agendaof both the InternationalWork-","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 4","pages":"31-7"},"PeriodicalIF":0.0,"publicationDate":"1988-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500411","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14515759","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Sensory-perceptual experiences of bereaved individuals. Additional cues for survivors.","authors":"A J Longman, B Lindstrom, M Clark","doi":"10.1177/104990918800500407","DOIUrl":"https://doi.org/10.1177/104990918800500407","url":null,"abstract":"Hospicecareaddresses the problemsthat areuniqueto the dying personandassists patientsandtheir families as a unit of care.An aspectof hospicecareis bereavement counselingafter the deathof thepatientprovidedto the family and/or thosewhohave beenresponsiblefor care. St. Mary’s Hospiceis ahospital-based,Medicarecertified programprovidinghomecare, inpatientcare,andbereavement follow-up. The Hospice BereavementProgramis comprehensiveandoffersvolunteerhomevisits, individual andgroup counseling,asix-","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 4","pages":"42-5"},"PeriodicalIF":0.0,"publicationDate":"1988-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500407","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14515764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"AIDS and the hidden epidemic of grief. A personal experience.","authors":"J P Bell","doi":"10.1177/104990918800500302","DOIUrl":"https://doi.org/10.1177/104990918800500302","url":null,"abstract":"","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 3","pages":"25-31"},"PeriodicalIF":0.0,"publicationDate":"1988-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500302","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14515748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Pain management: an overview.","authors":"R E Enck","doi":"10.1177/104990918800500304","DOIUrl":"https://doi.org/10.1177/104990918800500304","url":null,"abstract":"Pain is an unpleasant sensory and emotional experience caused by actual or potential tissue damage. This damage is nature’s warning that something is not well within the body. This condition causes loss of workforce and also affects the patients family members in socio-economical and psychological terms. There is an increase in knowledge regarding pain management in recent years. These developments in pain management may provide different opportunities to the patient and their families to lead a more comfortable and productive life. Managing pain is not about making it disappear rather it is about keeping it under control. The aim is not to stop pain in its stride, but to avert the damage caused by it. Prolonged pain is demoralising and debilitating and should be controlled as fast as possible and with all possible means. For this reason in addition to pharmacological treatment now a days non pharmacological treatment options are on rise.","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 3","pages":"17-9"},"PeriodicalIF":0.0,"publicationDate":"1988-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500304","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14516586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A brief history of American healthcare. Predictions for the future of hospice.","authors":"R C Tenney","doi":"10.1177/104990918800500309","DOIUrl":"https://doi.org/10.1177/104990918800500309","url":null,"abstract":"In March 1988I waspreparing the agendafor our hospice Boardof Directorsretreat.This was appropriatesinceI was chairmanof the PlanningCommitteeandhad led two previousannualretreatson strategic planning.After threeyearsof committeework I wasalsoappointedto the board.Preparing retreatsor seminarson strategic planningis not new to me becauseour companyhasdone strategic/marketingplansfor more than200hospitalsandI havepresentedseminarson strategicplanningandmarketing for statehospitalassociation meetingsandtheAmerican Collegeof HealthcareExecutivesConferenceon Administration. Howeverin doing our researchon the latestin hospice literature,I wasextremely takenby aletter from the publisherin theJanuary/February issueof theAmerican Journal ofHospiceCare. Partof the letter read:","PeriodicalId":77805,"journal":{"name":"The American journal of hospice care","volume":"5 3","pages":"9-13"},"PeriodicalIF":0.0,"publicationDate":"1988-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/104990918800500309","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"14265486","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}