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The Hospice journal最新文献

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Putting patient and family voice back into measuring quality of care for the dying. 将病人和家属的声音重新纳入对临终者护理质量的衡量。
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1080/0742-969X.1999.11882936
J. Teno
{"title":"Putting patient and family voice back into measuring quality of care for the dying.","authors":"J. Teno","doi":"10.1080/0742-969X.1999.11882936","DOIUrl":"https://doi.org/10.1080/0742-969X.1999.11882936","url":null,"abstract":"Quality of care and quality of life change substantially for those with a serious chronic illness and nearing the end of their lives. As one dies, life takes on new shape-values change and things once ignored become more important. Existing quality of care measures do not attend to the changes in priorities or to dimensions that acquire new significance (e.g., Spirituality and transcendence). An important impediment to addressing the inadequacies in the evidence base for palliative care, improving shortcomings of care, and holding institutions or health care systems accountable for the quality of care is the lack of valid and reliable measurement tools. In this article, an overview is presented of an ongoing research effort to develop measurement tools which will utilize the patient and family perspective to measure the quality of care.","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4 1","pages":"167-76"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.1999.11882936","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59936551","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 34
Spirituality. 灵性。
The Hospice journal Pub Date : 1999-01-01
E Chandler
{"title":"Spirituality.","authors":"E Chandler","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>At the present time, there is a widening search for spirituality as distinct from organized religion, particularly as it relates to well-being, wholeness, and healing. In both professional and lay contexts, spirituality has come to the forefront of public consciousness. The place of spirituality within the hospice movement is not unaffected by this shift in popular priorities. Once the prerogative of chaplains and clergy, the nurturing of spiritual journeys is now becoming a common concern. Experiencing sensory spirituality can provide both caregivers and those for whom they care a blessed respite for bodies, minds, and spirits.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"63-74"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21683303","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
End of life care and decision making: how far we have come, how far we have to go. 临终关怀和决策:我们已经走了多远，还要走多远。
The Hospice journal Pub Date : 1999-01-01
C Zuckerman, D Wollner
{"title":"End of life care and decision making: how far we have come, how far we have to go.","authors":"C Zuckerman,&nbsp;D Wollner","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>While enormous progress has been made in improving the quality of care and the decision-making process for patients at the end of life, as a society we still have far to go to ensure that dying patients and their families have a comfortable and dignified death. In particular, reexamination and reconfiguration of our current decision framework is essential as our elderly population with chronic disease and slowly fatal conditions expands. With less certain disease paths and more complex and ambiguous choices, the growth of this geriatric population challenges us to develop a broader conceptualization of end of life care planning, so that end of life considerations are integrated into a larger anticipatory framework addressing options and needs as patients gradually decline. Within this framework hospice becomes a natural, integrated option along a continuum of care planning, rather than an abrupt alternative at a late stage of illness. End of life care planning must positively anticipate a robust array of needs and concerns well beyond the dramatic decisions to withhold or withdraw life-prolonging technologies usually found in advance directives. To embrace this broader framework it is critical that primary care physicians as well as disease specialists receive training in fundamental aspects of both geriatric and palliative care. Professionals from both of these disciplines must share expertise with each other, and should collaborate in advocacy efforts to effectuate changes in the clinical, policy and legislative arenas.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"85-107"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21683306","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The NHO Medical Guidelines for Non-Cancer Disease and local medical review policy: hospice access for patients with diseases other than cancer. 国家卫生组织非癌症疾病医疗指南和地方医疗审查政策:癌症以外疾病患者的临终关怀服务。
The Hospice journal Pub Date : 1999-01-01
B Stuart
{"title":"The NHO Medical Guidelines for Non-Cancer Disease and local medical review policy: hospice access for patients with diseases other than cancer.","authors":"B Stuart","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>For much of its history, hospice focused on problems related to malignant disease. Recently, however, non-cancer diagnoses such as congestive heart failure, emphysema and Alzheimer's disease have comprised an increasing proportion of hospice referrals. This paper details criteria published by NHO and adopted by the US Health Care Financing Administration for hospice eligibility for common non-cancer diagnoses. A provisional list of domains for documenting \"evidence of rapid decline,\" by which patients with advanced disease who do not meet criteria can still be certified for the Medicare Hospice Benefit, is also outlined.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"139-54"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21683309","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
History of the National Hospice Organization. 国家临终关怀组织的历史。
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1080/0742-969X.1999.11882927
L. Beresford, S. Connor
{"title":"History of the National Hospice Organization.","authors":"L. Beresford, S. Connor","doi":"10.1080/0742-969X.1999.11882927","DOIUrl":"https://doi.org/10.1080/0742-969X.1999.11882927","url":null,"abstract":"The National Hospice Organization grew out of efforts by the founders of the earliest hospice programs in the United States to protect their emotional investments in hospice care, to advocate for hospice interests in Congress and other public policy forums, to define standards for the fledgling movement, and to provide education on the nuts and bolts of running hospice programs for others who were interested in starting hospices in communities from coast to coast. Unlike the model of St. Christopher's Hospice in England, which began as a free-standing in-patient facility and later added home care services, most U.S. hospices started as home care-based programs, often largely manned by volunteers. Among the crucial issues that have dominated the work of NHO during its first 21 years were passage and maintenance of the Medicare hospice benefit, ideological battles over the hospice philosophy, and efforts to extend hospice care to other populations, such as people with AIDS.","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4 1","pages":"15-31"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.1999.11882927","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59936273","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 11
Attitudes Toward Assisted Suicide 对协助自杀的态度
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1300/j011v14n02_04
P. Zehnder
{"title":"Attitudes Toward Assisted Suicide","authors":"P. Zehnder","doi":"10.1300/j011v14n02_04","DOIUrl":"https://doi.org/10.1300/j011v14n02_04","url":null,"abstract":"","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"66 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78605960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
All Kinds of Love Experiencing Hospice. By Carolyn Jaffe and Carol H. Ehrlich: Amityville, NY: Baywood, 1997. 364 pages, $29.95 各种爱的体验安宁疗护。卡罗琳·贾菲和卡罗尔·h·埃利希著:阿米提维尔，纽约:贝伍德出版社，1997年。364页，29.95美元
The Hospice journal Pub Date : 1998-12-01 DOI: 10.1080/0742-969X.1998.11882908
J. Kirschling
{"title":"All Kinds of Love Experiencing Hospice. By Carolyn Jaffe and Carol H. Ehrlich: Amityville, NY: Baywood, 1997. 364 pages, $29.95","authors":"J. Kirschling","doi":"10.1080/0742-969X.1998.11882908","DOIUrl":"https://doi.org/10.1080/0742-969X.1998.11882908","url":null,"abstract":"","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"35 1","pages":"83-86"},"PeriodicalIF":0.0,"publicationDate":"1998-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76894500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ars Moriendi: illuminations on 'the good death' from the arts and humanities. Ars Moriendi:艺术与人文对“善死”的阐释。
The Hospice journal Pub Date : 1998-01-01 DOI: 10.1080/0742-969x.1998.11882881
S Bertman
{"title":"Ars Moriendi: illuminations on 'the good death' from the arts and humanities.","authors":"S Bertman","doi":"10.1080/0742-969x.1998.11882881","DOIUrl":"https://doi.org/10.1080/0742-969x.1998.11882881","url":null,"abstract":"","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"13 1-2","pages":"5-28"},"PeriodicalIF":0.0,"publicationDate":"1998-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.1998.11882881","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"20563398","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pain management issues: the cost of medications in rural settings. 疼痛管理问题:农村地区的药物费用。
The Hospice journal Pub Date : 1998-01-01 DOI: 10.1080/0742-969x.1998.11882905
J A Dalton, J Carlson, J D Mann, W S Blau, S A Bernard
{"title":"Pain management issues: the cost of medications in rural settings.","authors":"J A Dalton,&nbsp;J Carlson,&nbsp;J D Mann,&nbsp;W S Blau,&nbsp;S A Bernard","doi":"10.1080/0742-969x.1998.11882905","DOIUrl":"https://doi.org/10.1080/0742-969x.1998.11882905","url":null,"abstract":"<p><p>Cost of analgesic and adjuvant medications used by rural patients with cancer cared for by 29 nurses participating in an in-depth education program were evaluated before and after the program. Across all time periods, the median daily cost was $5.16 across all medications. Average daily cost and maximum and median cost of all medications were $5.36, $74.38 and $3.58, respectively. Average daily cost did not change over time. Average pain intensity did not change over time and was not related to prescribing patterns or daily costs. While professional education was demonstrated to produce change in prescribing practices, further research is needed to evaluate patterns of medication administration and effectiveness patterns using reliable outcome measures other than self report of pain intensity.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"13 4","pages":"19-32"},"PeriodicalIF":0.0,"publicationDate":"1998-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.1998.11882905","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"20789791","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
Demography and epidemiology of dying in the U.S. with emphasis on deaths of older persons. 美国死亡的人口学和流行病学，重点是老年人的死亡。
The Hospice journal Pub Date : 1998-01-01 DOI: 10.1080/0742-969x.1998.11882887
D B Brock, D J Foley
{"title":"Demography and epidemiology of dying in the U.S. with emphasis on deaths of older persons.","authors":"D B Brock,&nbsp;D J Foley","doi":"10.1080/0742-969x.1998.11882887","DOIUrl":"https://doi.org/10.1080/0742-969x.1998.11882887","url":null,"abstract":"<p><p>As chronic disease continues to be the major cause of death and as the elderly population grows, it is important to evaluate the adequacy and completeness of health care strategies for the elderly. Two studies, the National Mortality Followback Survey and the National Institute on Aging Survey of the Last Days of Life, were designed to examine the circumstances of death for representative samples of decedents. Four areas of focus are location of death, transitions among health care settings, circumstances at the time of death, and changes in physical and cognitive function in the last year of life. Although the data are helpful for family planning, they are limited by a lack of data on costs.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"13 1-2","pages":"49-60"},"PeriodicalIF":0.0,"publicationDate":"1998-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.1998.11882887","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"20563403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 92
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