The Hospice journal最新文献

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Reflections on the history of occupational stress in hospice/palliative care. 安宁疗护/缓和疗护中职业压力的历史反思。
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1080/0742-969X.1999.11882941
M. Vachon
{"title":"Reflections on the history of occupational stress in hospice/palliative care.","authors":"M. Vachon","doi":"10.1080/0742-969X.1999.11882941","DOIUrl":"https://doi.org/10.1080/0742-969X.1999.11882941","url":null,"abstract":"The concept of hospice and palliative care emerged a quarter of a century ago out of recognition of the unmet needs of dying persons and the social issues of the 1960s and 1970s. The issues of the day included the sexual revolution; a questioning of social values; an increased awareness of death resulting from the murder of the Kennedy brothers and Martin Luther King and daily television exposure to deaths in the Vietnam War, feminism, consumerism, reclaiming a more humanized role in the birth process, and hence in the process of death. The history of the hospice movement and the stress experienced by staff is traced from the early developmental days through to the present. Initially there was sometimes a struggle to integrate the concepts of relief of physical symptoms with meeting the psychosocial and emotional needs of patients and families, caregivers were expected to sacrifice much of their personal life for work, emotional intensity was high and supports were developed to ease some of the stress experienced by caregivers. From the early days team stress and burnout have been issues of concern. In the 1980s issues involved establishing funding sources, dealing with the new crisis of AIDS, and dealing with the gap between the ideal and the real. In the 1990s the economic climate has escalated some of the tensions that have always existed as hospice attempts to position itself within mainstream care with diminishing fiscal resources. These are issues that confront us as we move into the next century.","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4 1","pages":"229-46"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.1999.11882941","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59937143","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 28
Origins: an American perspective. 起源:一个美国人的视角。
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1080/0742-969x.1999.11882926
Z Foster, I B Corless
{"title":"Origins: an American perspective.","authors":"Z Foster,&nbsp;I B Corless","doi":"10.1080/0742-969x.1999.11882926","DOIUrl":"https://doi.org/10.1080/0742-969x.1999.11882926","url":null,"abstract":"<p><p>The birth of hospice in the United States was fostered by the work of Florence Wald, former Dean of the Yale School of Nursing. Her activities are emblematic of the dedication of many other hospice volunteers who made hospice a reality in the United States. Nurturer, humanitarian and visionary, we salute Florence Wald and the many others who have contributed to the change in how end-of-life care is rendered in the United States. Congratulations and well done.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"9-13"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.1999.11882926","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21684060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 7
Symptom control in hospice--state of the art. 临终关怀的症状控制——最先进的技术。
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1080/0742-969x.1999.11882928
J C Muir, L M Krammer, J R Cameron, C F von Gunten
{"title":"Symptom control in hospice--state of the art.","authors":"J C Muir,&nbsp;L M Krammer,&nbsp;J R Cameron,&nbsp;C F von Gunten","doi":"10.1080/0742-969x.1999.11882928","DOIUrl":"https://doi.org/10.1080/0742-969x.1999.11882928","url":null,"abstract":"<p><p>There are a myriad of physical symptoms which can complicate the care of patients with advanced disease. Without knowledge of and attention to these distressing symptoms, the rest of the work of the interdisciplinary hospice team is greatly hampered. In this article, we review the management of ten prevalent symptoms in hospice care and to identify areas of clinical investigation underway and point of future areas ripe for investigation.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"33-61"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.1999.11882928","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21684064","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
End of life care and decision making: how far we have come, how far we have to go. 临终关怀和决策:我们已经走了多远,还要走多远。
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1080/0742-969X.1999.11882931
C. Zuckerman, D. Wollner
{"title":"End of life care and decision making: how far we have come, how far we have to go.","authors":"C. Zuckerman, D. Wollner","doi":"10.1080/0742-969X.1999.11882931","DOIUrl":"https://doi.org/10.1080/0742-969X.1999.11882931","url":null,"abstract":"While enormous progress has been made in improving the quality of care and the decision-making process for patients at the end of life, as a society we still have far to go to ensure that dying patients and their families have a comfortable and dignified death. In particular, reexamination and reconfiguration of our current decision framework is essential as our elderly population with chronic disease and slowly fatal conditions expands. With less certain disease paths and more complex and ambiguous choices, the growth of this geriatric population challenges us to develop a broader conceptualization of end of life care planning, so that end of life considerations are integrated into a larger anticipatory framework addressing options and needs as patients gradually decline. Within this framework hospice becomes a natural, integrated option along a continuum of care planning, rather than an abrupt alternative at a late stage of illness. End of life care planning must positively anticipate a robust array of needs and concerns well beyond the dramatic decisions to withhold or withdraw life-prolonging technologies usually found in advance directives. To embrace this broader framework it is critical that primary care physicians as well as disease specialists receive training in fundamental aspects of both geriatric and palliative care. Professionals from both of these disciplines must share expertise with each other, and should collaborate in advocacy efforts to effectuate changes in the clinical, policy and legislative arenas.","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4 1","pages":"85-107"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.1999.11882931","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59935964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 29
End-of-life care: challenges and opportunities for health care professionals. 临终关怀:卫生保健专业人员的挑战和机遇。
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1080/0742-969X.1999.11882932
D. Sherman
{"title":"End-of-life care: challenges and opportunities for health care professionals.","authors":"D. Sherman","doi":"10.1080/0742-969X.1999.11882932","DOIUrl":"https://doi.org/10.1080/0742-969X.1999.11882932","url":null,"abstract":"The failings of the American Health Care System in meeting the comprehensive needs of the seriously and terminally ill have led to both professional and public efforts to improve end-of-life care. Following a discussion of the shortcomings of end-of-life in America, this article describes the goals and philosophy of palliative care, while highlighting current innovative programs in end-of-life needs and insure quality of life for patients and families experiencing incurable, progressive illness. Health care professionals are called to respond to the challenges and opportunities of end-of-life care as individual health care providers, as members of professions, and as members of interdisciplinary teams committed to improving the care of the dying in America.","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"47 1","pages":"109-21"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.1999.11882932","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59936112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 12
Documenting the impact of hospice. 记录临终关怀的影响。
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1080/0742-969X.1999.11882937
M. Merriman
{"title":"Documenting the impact of hospice.","authors":"M. Merriman","doi":"10.1080/0742-969X.1999.11882937","DOIUrl":"https://doi.org/10.1080/0742-969X.1999.11882937","url":null,"abstract":"Hospice care has had an impact at many levels--on individual patients and families, on the health care industry, and on society. However, no comprehensive body of evidence has been generated that documents the impact of hospice care in terms that are meaningful to competitors, referral sources, and consumers. In part, this is because of the many challenges for evaluating hospice care. This paper describes recent efforts in the documentation of the value of hospice which have focused on outcomes measurement by individual providers rather than on large scale studies. Several groups are working to develop reliable measurement tools, to support standardized measurement in large numbers of hospices, and to collect information for benchmarking and comparison. Measurement of the impact of hospice care will set standards for other providers of end-of-life care and will document the expertise and knowledge of hospice professionals. Once established as centers of excellence in care of the dying, hospices will be well positioned for whatever delivery models may evolve for end-of-life care.","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4 1","pages":"177-92"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969X.1999.11882937","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"59936676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 5
Personal reflections. 个人反思。
The Hospice journal Pub Date : 1999-01-01
C B Tehan
{"title":"Personal reflections.","authors":"C B Tehan","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>A hospice pioneer and veteran of 23 years reflects on the early days of the hospice movement in the United States. The political, social and economic forces, which shaped the industry, are addressed from a local state and national perspective. Current challenges are briefly referenced with a call for hospice leaders to recognize the need for and identify where hospice fits into the broad end of life discussions.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"217-28"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21683191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hospice reminiscences and reflections--an 18 year personal and professional love affair. 临终关怀的回忆和反思——18年的个人和职业爱情。
The Hospice journal Pub Date : 1999-01-01
A MacGregor
{"title":"Hospice reminiscences and reflections--an 18 year personal and professional love affair.","authors":"A MacGregor","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"247-51"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21683193","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Access to care. 获得医疗服务。
The Hospice journal Pub Date : 1999-01-01
C M Dahlin
{"title":"Access to care.","authors":"C M Dahlin","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>In the twenty years since the National Hospice Organization began, hospice has grown tremendously. However, it still only serves a small percentage of terminally ill patients. This is because access to hospice services is limited by various restrictions to care. These barriers to care include societal attitudes towards death, diversity issues, socioeconomic issues, and eligibility issues. In order to develop and serve more of the population, hospice agencies must be flexible, creative, and use ingenuity to bridge the gaps that occur for some terminally ill patients.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 3-4","pages":"75-84"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21683305","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"What should I say?": qualitative findings on dilemmas in palliative care nursing. “我该说什么呢?”对姑息治疗护理困境的定性研究。
The Hospice journal Pub Date : 1999-01-01 DOI: 10.1080/0742-969x.1999.11882918
P McGrath, P Yates, M Clinton, G Hart
{"title":"\"What should I say?\": qualitative findings on dilemmas in palliative care nursing.","authors":"P McGrath,&nbsp;P Yates,&nbsp;M Clinton,&nbsp;G Hart","doi":"10.1080/0742-969x.1999.11882918","DOIUrl":"https://doi.org/10.1080/0742-969x.1999.11882918","url":null,"abstract":"<p><p>The nursing literature suggests that talking and listening to patients about issues associated with death and dying, is both important and difficult, and may be improved with training. This discussion presents the results of recent nursing research to confirm, and elaborate on, this theme. In this research participants touched on many central issues in communicating with patients that included articulating a sense of discomfort and inadequacy about the whole process, detailing the innumerable blocks to open communication [e.g., interference, denial, unrealistic optimism, resistance, collusion and anger] and sharing their sense of success and failure. The insights of nurses who participated in this research testify to the ongoing need to prioritize the development of nursing skills and support in this challenging but important area.</p>","PeriodicalId":77421,"journal":{"name":"The Hospice journal","volume":"14 2","pages":"17-33"},"PeriodicalIF":0.0,"publicationDate":"1999-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/0742-969x.1999.11882918","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"21480700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 40
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