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The oral-facial-digital syndrome: case report of a mother and daughter. 口-面-指综合征:一对母女的病例报告。
The Cleft palate journal Pub Date : 1990-07-01
M J Lipp, E C Lubit
{"title":"The oral-facial-digital syndrome: case report of a mother and daughter.","authors":"M J Lipp,&nbsp;E C Lubit","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>A case report of a daughter and mother with the oral-facial digital syndrome, type I, is presented. The features were variable between the two cases. The daughter had a previously unreported feature, ridging of the metopic suture. Hand-wrist radiographs of both the patient and mother demonstrated a normal trabeculation pattern, contradicting the suggestion of Anneren et al (1984) that irregular mineralization of the hands is pathognomonic for the OFD I syndrome.</p>","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"311-6"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13520421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Culture, health care, and birth defects in the United States: an introduction. 美国的文化、卫生保健和出生缺陷:简介。
The Cleft palate journal Pub Date : 1990-07-01 DOI: 10.1597/1545-1569(1990)027<0275:chcabd>2.3.co;2
R P Strauss
{"title":"Culture, health care, and birth defects in the United States: an introduction.","authors":"R P Strauss","doi":"10.1597/1545-1569(1990)027<0275:chcabd>2.3.co;2","DOIUrl":"https://doi.org/10.1597/1545-1569(1990)027<0275:chcabd>2.3.co;2","url":null,"abstract":"<p><p>Culture impacts both professional practice and patient health behaviors. This paper introduces the concept of culture and examines how it may be of importance to health professionals engaged in craniofacial care. The taking of a cultural history is presented as a way of assessing cultural differences. This paper is the first in a series of interrelated papers that define cultural perspectives toward health and craniofacial care in United States subpopulations.</p>","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"275-8"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1597/1545-1569(1990)027<0275:chcabd>2.3.co;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13520419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 19
Cultural considerations in the treatment of craniofacial malformations in African Americans. 非裔美国人颅面畸形治疗中的文化因素。
The Cleft palate journal Pub Date : 1990-07-01 DOI: 10.1597/1545-1569(1990)027<0289:ccitto>2.3.co;2
G Toliver-Weddington
{"title":"Cultural considerations in the treatment of craniofacial malformations in African Americans.","authors":"G Toliver-Weddington","doi":"10.1597/1545-1569(1990)027<0289:ccitto>2.3.co;2","DOIUrl":"https://doi.org/10.1597/1545-1569(1990)027<0289:ccitto>2.3.co;2","url":null,"abstract":"<p><p>African Americans represent the second largest ethnic group in the United States. Even though there are mixtures of other races and cultures, their primary ancestry is African. Because of their heritage and cultural practices in the United States, the acceptance of the diagnosis and treatment of craniofacial anomalies is different from that of other groups. Positive aspects of the culture that augment the treatment of disorders include the strength of the family and a strong religious belief system. Factors that may impede the effectiveness of clinical intervention are economics and accessibility to medical care.</p>","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"289-93"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1597/1545-1569(1990)027<0289:ccitto>2.3.co;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13348914","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 15
Response to commentary on the papers from the Sri Lankan Cleft Lip and Palate Project. 对斯里兰卡唇腭裂项目论文评论的回应。
The Cleft palate journal Pub Date : 1990-07-01
M Mars, W J Houston
{"title":"Response to commentary on the papers from the Sri Lankan Cleft Lip and Palate Project.","authors":"M Mars,&nbsp;W J Houston","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"321"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13520423","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intraindividual change in the occurrence of Passavant's ridge due to change in velopharyngeal sphincter function: a videofluoroscopic study. 由于腭咽括约肌功能改变而引起的Passavant脊的个体变化:一项视频透视研究。
The Cleft palate journal Pub Date : 1990-07-01 DOI: 10.1597/1545-1569(1990)027<0253:icitoo>2.3.co;2
A M Isberg, G E Henningsson
{"title":"Intraindividual change in the occurrence of Passavant's ridge due to change in velopharyngeal sphincter function: a videofluoroscopic study.","authors":"A M Isberg,&nbsp;G E Henningsson","doi":"10.1597/1545-1569(1990)027<0253:icitoo>2.3.co;2","DOIUrl":"https://doi.org/10.1597/1545-1569(1990)027<0253:icitoo>2.3.co;2","url":null,"abstract":"<p><p>Passavant's ridge was studied by means of videofluoroscopy and nasopharyngoscopy in 80 patients with hypernasal speech. In patients with Passavant's ridge an improvement of the sphincter function was found to be associated with an enlargement of the ridge. It was also observed that the ridge could disappear if complete velopharyngeal closure was achieved without surgical intervention of the ridge area. The results indicate that Passavant's ridge is of compensatory origin.</p>","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"253-5; discussion 255-7"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1597/1545-1569(1990)027<0253:icitoo>2.3.co;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13520416","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 17
Difference and danger: the cultural dynamics of childhood stigma, rejection, and rescue. 差异与危险:儿童耻辱、拒绝和救助的文化动态。
The Cleft palate journal Pub Date : 1990-07-01 DOI: 10.1597/1545-1569_1990_027_0301_dadtcd_2.3.co_2
N Scheper-Hughes
{"title":"Difference and danger: the cultural dynamics of childhood stigma, rejection, and rescue.","authors":"N Scheper-Hughes","doi":"10.1597/1545-1569_1990_027_0301_dadtcd_2.3.co_2","DOIUrl":"https://doi.org/10.1597/1545-1569_1990_027_0301_dadtcd_2.3.co_2","url":null,"abstract":"<p><p>This paper presents a brief overview of some cultural, ecologic, and demographic influences on the treatment and maltreatment of infants and children with congenital anomalies. Based on research on the selective neglect of infants leading to death in parts of the developing world, it is suggested that such practices be viewed as \"ethno-eugenic\" survivalist strategies altogether distinct from malicious child abuse and neglect in the modern, industrialized world. Caution with respect to heroic (and not so heroic) medical interventions and \"child saving\" in the contexts of both developing and modern societies is stressed.</p>","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"301-7; discussion 307-10"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1597/1545-1569_1990_027_0301_dadtcd_2.3.co_2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13520420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
A commentary on the papers by Munro et al (1989) and Mulliken et al (1989) 对Munro等人(1989)和Mulliken等人(1989)论文的评论
The Cleft palate journal Pub Date : 1990-07-01
B Rune, K V Sarnäs
{"title":"A commentary on the papers by Munro et al (1989) and Mulliken et al (1989)","authors":"B Rune,&nbsp;K V Sarnäs","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"322"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13520424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Craniofacial growth disturbance after skull base and associated suture synostoses in the newborn chacma baboon: a preliminary report. 新生儿chacma狒狒颅底后颅面生长障碍及相关缝合线滑脱:初步报告。
The Cleft palate journal Pub Date : 1990-07-01 DOI: 10.1597/1545-1569(1990)027<0241:cgdasb>2.3.co;2
K W Bütow
{"title":"Craniofacial growth disturbance after skull base and associated suture synostoses in the newborn chacma baboon: a preliminary report.","authors":"K W Bütow","doi":"10.1597/1545-1569(1990)027<0241:cgdasb>2.3.co;2","DOIUrl":"https://doi.org/10.1597/1545-1569(1990)027<0241:cgdasb>2.3.co;2","url":null,"abstract":"<p><p>The purpose of this study was to create craniofacial growth disturbances via synostoses of sutures of the cranial base, as well as of other various selected sutures of the anterior cranial and posterior facial structures. Twelve sutures, single or in combination, were obliterated by means of autogenous bone transplantation in twenty-five baby baboons (Papio ursinus). The data obtained from the sacrificed animals were qualitatively analyzed. The results indicated that synostosis of any of the selected sutures does lead to craniofacial growth disturbances. Furthermore, no specific synostosed suture could be identified that might cause a specific type of craniofacial dysostosis, although unilateral facial deformities always occurred after unilateral suture synostosis.</p>","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"241-51; discussion 251-2"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1597/1545-1569(1990)027<0241:cgdasb>2.3.co;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13521364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 21
Observations on a role for the tensor veli palatini muscle in intrinsic palatal function. 腭veli张肌在腭内征功能中的作用观察。
The Cleft palate journal Pub Date : 1990-07-01
W J Doyle, M L Casselbrandt, J D Swarts, C D Bluestone
{"title":"Observations on a role for the tensor veli palatini muscle in intrinsic palatal function.","authors":"W J Doyle,&nbsp;M L Casselbrandt,&nbsp;J D Swarts,&nbsp;C D Bluestone","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"317-8; discussion 318-20"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13520422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Asian-American cultural perspectives on birth defects: focus on cleft palate. 亚裔美国人对出生缺陷的文化视角:以腭裂为焦点。
The Cleft palate journal Pub Date : 1990-07-01 DOI: 10.1597/1545-1569(1990)027<0294:aacpob>2.3.co;2
L R Cheng
{"title":"Asian-American cultural perspectives on birth defects: focus on cleft palate.","authors":"L R Cheng","doi":"10.1597/1545-1569(1990)027<0294:aacpob>2.3.co;2","DOIUrl":"https://doi.org/10.1597/1545-1569(1990)027<0294:aacpob>2.3.co;2","url":null,"abstract":"<p><p>The treatment of birth defects and other disabilities is influenced by cultural beliefs of the individual, family and society. The recent influx of Asian/Pacific immigrants and refugees has challenged professionals to provide appropriate services to individuals with cleft palate and their families from these populations. The issues of folk and religious beliefs are complex, and the variations among them are often intertwined. Their comprehension is important because studies have reported a higher incidence of cleft lip and/or palate among Asian/Pacific populations. Successful communication with Asian individuals requires recognition and consideration of cultural diversity and differing interactional styles.</p>","PeriodicalId":76622,"journal":{"name":"The Cleft palate journal","volume":"27 3","pages":"294-300"},"PeriodicalIF":0.0,"publicationDate":"1990-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1597/1545-1569(1990)027<0294:aacpob>2.3.co;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"13348915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 48
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