Qualitative research in medicine & healthcare最新文献

{"title":"Spheres of uncertainty: A phenomenological inquiry into healthcare practice surrounding the care for people with relapsing-remitting multiple sclerosis.","authors":"Eva C van Reenen, Alistair R Niemeijer, Leo H Visser, Janet W K de Beukelaar, Bob W van Oosten, Stephan T F M Frequin, Erwin L J Hoogervorst, Inge A M van Nistelrooij","doi":"10.1016/j.qrmh.2025.100031","DOIUrl":"10.1016/j.qrmh.2025.100031","url":null,"abstract":"<p><strong>Background: </strong>Uncertainty is pervasive in healthcare and permeates every clinical encounter between patients and medical professionals. Patients with specifically uncertain diagnoses or treatments such as multiple sclerosis (MS) are more likely to respond negatively to a lack of clear information. Research into MS has a narrow focus on scientific issues of uncertainty, such as causal explanations or treatment recommendations. Inquiry into the interplay between various dimensions, contexts, and subjects of uncertainty in a relational practice and institutional context, is scarce. The objective of this research is to investigate the phenomenon of uncertainty as it appears in hospital practice surrounding outpatient care for people with relapsing-remitting multiple sclerosis (RRMS).</p><p><strong>Methods: </strong>This study followed a phenomenological research design, inspired by the work of Les Todres on embodied enquiry. Fifteen people with a recent (less than one year) diagnosis of RRMS were included and prospectively shadowed during hospital appointments over the course of two years.</p><p><strong>Results: </strong>The phenomenon of uncertainty is captured as occurring in four different spheres: 1) precarious spaces, 2) elusive technology, 3) hidden expectations, and 4) unsure communication. The image of spheres points to their varied and sometimes opposing (sur)faces when rotated around their axis. The spheres can increase or decrease a sense of doubt, confusion, restlessness, or anxiety in both patients and healthcare providers.</p><p><strong>Conclusion: </strong>The four different spheres never seem to fully surface, making uncertainty a masked phenomenon. The findings imply a need for an \"unveiling\" of uncertainty through 1) examining and debating the course of action at the outpatient clinic, 2) reconsidering the promises and perils of technology, and 3) through metacommunication with patients.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"9 3","pages":"100031"},"PeriodicalIF":0.0,"publicationDate":"2025-11-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12796103/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145971495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Guest editorial: From research design to the waiting room.","authors":"Paula Hopeck","doi":"10.1016/j.qrmh.2025.100019","DOIUrl":"10.1016/j.qrmh.2025.100019","url":null,"abstract":"","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"9 2","pages":"100019"},"PeriodicalIF":0.0,"publicationDate":"2025-07-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12409379/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145016846","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Navigating the life stage after stroke: From Life 2.0 to stroke prevention models of care - A qualitative exploration of younger and middle-aged adult stroke patients' experiences and recommendations.","authors":"Sarah Ibrahim, Danielle D'Amico, Lindsey Zhang, Syeda Hashmi, Angela Verven, Sharon Ng, Troy Francis, Aleksandra Stanimirovic, Jasper R Senff, Sanjula Singh, Jonathan Rosand, Leanne K Casaubon, Keithan Sivakumar, Valeria Rac, Aleksandra Pikula","doi":"10.1016/j.qrmh.2025.100017","DOIUrl":"10.1016/j.qrmh.2025.100017","url":null,"abstract":"<p><strong>Background: </strong>Global stroke incidence has been rising among adults 65 years of age or younger. A dearth of research exists exploring and understanding younger and middle-aged adults' lifestyle-related knowledge and habits along with associated facilitators and/or barriers with the adoption, maintenance, and support needs for development of new brain health interventions, which this study sought to address.</p><p><strong>Methods: </strong>A qualitative study was conducted, followed by virtual, semi-structured focus groups. Data collection and analysis were performed using Goffman's dramaturgical theory to guide the inductive thematic data analysis.</p><p><strong>Results: </strong>A total of 12 participants comprised the sample. Four themes emerged: 1) <i>Front stage: Life 2.0</i>, 2) <i>Back stage: Unseen and invisible challenges</i>, 3) <i>Scripts and audience reaction: Dualism of social influence</i>; and 4) <i>Setting: Standard of care, but to who's standard?</i></p><p><strong>Conclusion: </strong>Findings contributed to a deeper understanding of factors influencing the adoption of healthy habits and approaches to reconceptualize and re-design brain health interventions that meet the needs, preferences, and priorities of this population.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"9 2","pages":"100017"},"PeriodicalIF":0.0,"publicationDate":"2025-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12396435/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144981775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"They just don't have the \"doctor\" in front of their name:\" Dimensions of trust of physician assistants.","authors":"Staci Defibaugh, Leah Onosato","doi":"10.1016/j.qrmh.2025.100018","DOIUrl":"10.1016/j.qrmh.2025.100018","url":null,"abstract":"<p><p>Physician assistants play a major role in healthcare delivery in the United States, yet what we know about how patients perceive the care they receive from PAs is limited. Prior research on patients' impressions of PAs has focused primarily on survey data, limiting the scope of what we can learn about patient impressions to predetermined, quantifiable categories, and has focused on post-visit impressions of a single encounter. In an attempt to better understand patient impressions, we conducted open-ended, semi-structured interviews with 30 participants prior to their medical visit, focusing on general impressions of PAs. Through an analytic process of reflexive thematic analysis, we identified three themes from the interview data: patients are confident in PAs, patients feel valued by PAs, and patients appreciate the openness that PAs create. Through exploration of these themes, we uncovered the ways in which interviewees described PAs as engendering trust and enacting multiple aspects of patient-centered care.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"9 2","pages":"100018"},"PeriodicalIF":0.0,"publicationDate":"2025-07-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12423664/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145066817","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How to become partners. Ways to enhance the quality of patient and public involvement in healthcare research.","authors":"Elna Leth Pedersen, Hanne Agerskov, Torkell Ellingsen, Connie Timmermann","doi":"10.1016/j.qrmh.2025.100016","DOIUrl":"10.1016/j.qrmh.2025.100016","url":null,"abstract":"<p><p>There is a growing emphasis on involving patients and the public in healthcare research. This is especially true in qualitative healthcare research, where partnerships are encouraged between patients with lived experiences and researchers with academic expertise. The rationale is that collaboration can enhance the study's relevance to healthcare users and improve the research quality. However, establishing partnerships can be complex and challenging, requiring negotiation and alignment of expectations. In a qualitative study exploring communication in clinical encounters at a Danish university hospital, we invited patients and relatives to become involved in research. This commentary discusses the challenges, insights, and adjustments to our research design that emerged from the process. Through continuous dialogues with various patients and relatives, we, as researchers, gained a deeper understanding of how to make our research relevant to patients and relatives and how to approach involving patients and relatives in our research. By emphasizing the significance of these dialogues, we aim to demonstrate how aligning expectations and building partnerships with patients and relatives resulted in valuable learning experiences for the researchers and considerably impacted the study's design. Furthermore, we want to highlight that building partnerships requires time, flexibility, and a mutual learning approach to negotiate and align expectations effectively. In this commentary we first review the practice of involving patients and the public in healthcare research and provide an overview of the study's context. Next, we outline our efforts to negotiate and align expectations with patients and relatives, highlighting how new insights led to adjustments to the research design. Finally, we address challenges and the requirements researchers face when involving patients and the public in research partnerships.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"9 2","pages":"100016"},"PeriodicalIF":0.0,"publicationDate":"2025-06-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12305706/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144755331","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Three challenges in qualitative research.","authors":"Warren Bareiss","doi":"10.1016/j.qrmh.2025.100005","DOIUrl":"https://doi.org/10.1016/j.qrmh.2025.100005","url":null,"abstract":"","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"9 1","pages":"100005"},"PeriodicalIF":0.0,"publicationDate":"2025-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12096084/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144217764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"The message is the manner\": Patterns of influence in communicating pap screening in North-Central Nigeria.","authors":"Nancin Dadem","doi":"10.1016/j.qrmh.2025.100004","DOIUrl":"10.1016/j.qrmh.2025.100004","url":null,"abstract":"<p><p>Effective strategies to closing the knowledge gap on cervical cancer and pap screening are needed to increase screening rates and create a greater demand for services in Nigeria. Using the PEN-3 Cultural Model, this paper facilitates understanding of cultural influences on women's decision to screen for cervical cancer. The study draws on qualitative interviewing to explore women's experiences with pap testing and to describe how cervical cancer prevention is perceived, communicated, and utilized in the population. Data consisted of interviews generated from a purposeful sample of 63 adult female participants. An iterative approach was used to abductively synthesize data to identify themes. Analyses produced three themes: knowledge and relational motivation, risk and barrier perceptions, and getting the word out. Findings highlight the potential in applying culturally centered approaches to promoting cervical cancer prevention in underserved populations.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"9 1","pages":"100004"},"PeriodicalIF":0.0,"publicationDate":"2025-03-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12146663/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144259573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An examination of veterinarians' negotiation of emotional labor.","authors":"Lynsey K Romo, April A Kedrowicz, Katelin A Mueller, Colin Mayhorn","doi":"10.1016/j.qrmh.2025.100001","DOIUrl":"10.1016/j.qrmh.2025.100001","url":null,"abstract":"<p><p>Veterinarians are expected to care for animals while managing clients' emotions and dealing with stress, depression, burnout, anxiety, suicidal ideation, and other mental health struggles that accompany their profession. Through an open-ended qualitative survey of 124 alumni of a southeastern U.S. vet school, this study was designed to provide a rich, holistic examination regarding veterinarians' management of emotional labor. The investigation found that although veterinarians felt overwhelmed, frustrated, powerless, and fearful, they were institutionally expected to suppress these feelings, which they did by focusing on logic and facts over emotions and by reframing negatives into positives. The study also showcases how participants, by staying neutral and strong for themselves and clients, engaged in double-faced emotion management, newly applying this concept to veterinary medicine. Participants coped with emotional labor demands by turning backstage, where they sought support, allowed themselves to get emotional, engaged in self-care, and decided to enact tangible changes. Some participants were unable to truly find peace backstage, however, due to an entrenched veterinarian identity, lack of communication skills, or preexisting mental health struggles that made it difficult to disengage from their emotions. This study largely supports the claim that emotional labor may be worsening some vets' preexisting stressors and mental health struggles and recommends that veterinary programs universally incorporate training that targets development of interpersonal communication competence, emotional labor, and wellbeing and their ability to decompress backstage.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"9 1","pages":"100001"},"PeriodicalIF":0.0,"publicationDate":"2025-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12146643/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144259574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"It's sink or swim for us\": The lived experiences of Filipino nurses in the UK during the COVID-19 pandemic.","authors":"Denise Borbolla, Ohemaa Nkansa-Dwamena","doi":"10.1016/j.qrmh.2025.100002","DOIUrl":"10.1016/j.qrmh.2025.100002","url":null,"abstract":"<p><strong>Background: </strong>The United Kingdom has recruited Filipino nurses since the late 1990s to meet the country's healthcare needs. Currently, over 40,000 Filipinos are working in the National Health Service, and it is suggested that 36 % of all known healthcare worker (HCW) deaths from COVID-19 within the first two-month period (March and April 2020) were Filipinos, despite accounting for 8 % of the NHS nursing workforce. There was a clear disparity in social media exposure between the celebrated heroism of Filipino HCW and the coverage of disproportionate death rates within the Filipino HCW community in the UK. This study aimed to explore the lived experiences of Filipino nurses in the UK during the COVID-19 pandemic.</p><p><strong>Methods: </strong>A qualitative study was conducted using interpretative phenomenological approach (IPA). Six nurses were recruited using purposive and snowball sampling, and interviews were transcribed verbatim and analyzed using IPA.</p><p><strong>Findings: </strong>Drawing on interview data, two themes are presented: <i>inescapability and relentlessness of COVID-19</i> and <i>\"It's sink or swim\": psychological welfare</i>.</p><p><strong>Interpretation: </strong>Filipino nurses experienced the COVID-19 pandemic as an all-consuming phenomenon, as they were perceived as the embodiment of threat and placed at disproportionate risk perpetuated by racial, systemic, and political factors. Despite this, they had no choice but to battle through, engaging in culturally specific ways of coping.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"9 1","pages":"100002"},"PeriodicalIF":0.0,"publicationDate":"2025-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12096085/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144217763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"It is harder for me: A thematic analysis of lived experience of self-care, and its relationship with self-injurious behaviors in psychiatric patients.","authors":"Jonas Bjärehed, Hanna Grenner, Sara Pavlovic, Magnus Nilsson","doi":"10.4081/qrmh.2024.12544","DOIUrl":"10.4081/qrmh.2024.12544","url":null,"abstract":"<p><p>Self-injury is associated with significant psychological distress and functional impairments, including difficulties with self-care. However, little is known about how individuals engaging in self-injury perceive and manage self-care in their daily lives. This study aimed to explore the lived experiences of self-care among individuals receiving psychiatric treatment for self-injury and to identify factors that support or hinder self-care capacity. Twelve participants were recruited from a psychiatric outpatient clinic and semi-structured interviews were conducted focusing on participants' perceptions of self-care, its relationship with self-injury, and factors influencing self-care. Reflexive thematic analysis was conducted to identify patterns and themes. The analysis revealed four themes: i) <i>Why should I choose self-care?</i>, highlighting motivational challenges rooted in low self-worth and the need for meaning; ii) <i>Self-care is a difficult choice for me</i>, reflecting how emotional variability, uncertainty about self-care, and dichotomous thinking hinder decision-making; iii) <i>Self-care is beyond my control</i>, emphasizing struggles with planning, routines, and the interplay of emotional states and self-care behaviors; and iv) <i>Support can both help and hinder self-care</i>, illustrating the critical yet complex role of external support. Findings highlight the multifaceted challenges individuals face in managing self-care and its intersection with self-injury. Clinical implications include the need for tailored, person-centered interventions that address barriers to self-care. Recognizing the dual role of self-injury-as both a barrier to and a risky form of self-care-may enhance treatment approaches for this population.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"8 Suppl 1","pages":"12544"},"PeriodicalIF":0.0,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11788996/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143124107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}