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Qualitative research in medicine & healthcare最新文献

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The ticking time-bomb. Health literacy in the context of genetic risk prediction in familial breast-ovarian cancer; A qualitative study. 滴答作响的定时炸弹。健康素养在家族性乳腺癌遗传风险预测中的作用定性研究。
Qualitative research in medicine & healthcare Pub Date : 2021-10-05 DOI: 10.4081/qrmh.2021.9647
Mariya Lorke, Laura Harzheim, Kerstin Rhiem, Christiane Woopen, Saskia Jünger
{"title":"The ticking time-bomb. Health literacy in the context of genetic risk prediction in familial breast-ovarian cancer; A qualitative study.","authors":"Mariya Lorke,&nbsp;Laura Harzheim,&nbsp;Kerstin Rhiem,&nbsp;Christiane Woopen,&nbsp;Saskia Jünger","doi":"10.4081/qrmh.2021.9647","DOIUrl":"https://doi.org/10.4081/qrmh.2021.9647","url":null,"abstract":"<p><p>Personalised methods of predicting breast and ovarian cancer risk through genetic testing increasingly demand a person's understanding and critical appraisal of risk-related information, as well as decision-making and acting upon disclosure of a positive test result. The current study aims at understanding health literacy (HL) among persons at risk of developing familial breast-ovarian cancer (FBOC) from a bottom-up perspective-incorporating their viewpoints into the research process. Its qualitative design integrates an ethnographic-narrative approach and findings from 10 narrative interviews with women who have undergone genetic testing, analysed by using reflexive grounded theory. The collected data reveal the entanglement of the women's perceptions concerning the risk of getting ill, their identity, and their strategies of managing health. The analysis of this interplay provides an empirical basis for approaching HL in its communicative dimension, considering individuals' understandings of health and illness, and emphasizing the role of critical HL.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"5 2","pages":"9647"},"PeriodicalIF":0.0,"publicationDate":"2021-10-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/3f/8f/qrmh-5-2-9647.PMC10336887.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10193736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Assessing collaboration among team scientists within a triadic research center partnership. 评估三方研究中心伙伴关系中团队科学家之间的合作。
Qualitative research in medicine & healthcare Pub Date : 2021-10-05 DOI: 10.4081/qrmh.2021.9724
Linda S Behar-Horenstein, Joyce M Richey, Ukamaka Diké Smith
{"title":"Assessing collaboration among team scientists within a triadic research center partnership.","authors":"Linda S Behar-Horenstein,&nbsp;Joyce M Richey,&nbsp;Ukamaka Diké Smith","doi":"10.4081/qrmh.2021.9724","DOIUrl":"https://doi.org/10.4081/qrmh.2021.9724","url":null,"abstract":"<p><p>Few studies have utilized qualitative methods to assess the perceived effectiveness of collaboration among research center interdisciplinary team scientists. Stages of team development served as the theoretical framework to characterize minority serving institution (MSI) and predominantly White institutions (PWI) participants' challenges and successes during a National Institutes of Health (NIH) sponsored cancer health disparities training and research program. We present the finding of an inductive analysis of four open-ended survey questions across two years. Fostering an awareness of the inherently taxing, yet centrality of group (team) development may advance an understanding of team dynamics and lead to increased team cohesion and productivity. In conclusion, we provide recommendations to assist multiple principal investigators who embark on team development.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"5 2","pages":"9724"},"PeriodicalIF":0.0,"publicationDate":"2021-10-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/bb/95/qrmh-5-2-9724.PMC10336870.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9817167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Editorial. 社论
Qualitative research in medicine & healthcare Pub Date : 2021-10-05 DOI: 10.4081/qrmh.2021.10168
Wren Bareiss
{"title":"Editorial.","authors":"Wren Bareiss","doi":"10.4081/qrmh.2021.10168","DOIUrl":"10.4081/qrmh.2021.10168","url":null,"abstract":"","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"5 2","pages":"10168"},"PeriodicalIF":0.0,"publicationDate":"2021-10-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/5d/6d/qrmh-5-2-10168.PMC10336886.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9817170","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
From nurse to patient: A journey to healing. 从护士到病人:治愈之旅。
Qualitative research in medicine & healthcare Pub Date : 2021-03-25 DOI: 10.4081/qrmh.2021.9689
Leo Begazo
{"title":"From nurse to patient: A journey to healing.","authors":"Leo Begazo","doi":"10.4081/qrmh.2021.9689","DOIUrl":"https://doi.org/10.4081/qrmh.2021.9689","url":null,"abstract":"<p><p>The nurse manager of an oncology clinic in a major cancer center shares his personal experience as a COVID-19 patient with other health care workers. He has spent two weeks in intensive care and found himself on the brink of death. In a lively description, he underlines the aspect of care that contributed to his cure. This included the respect that his caregivers expressed to his values, his love of his family and his religious beliefs. The communication of the caregivers was always honest and compassionate. He learned that love is the strongest motivation to survive in the course of a life-threatening disease and that healing is possible even in the absence of cure.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"5 1","pages":"9689"},"PeriodicalIF":0.0,"publicationDate":"2021-03-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/be/6d/qrmh-5-1-9689.PMC10336878.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9807141","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
COVID-19 pandemic causing medical and public health ethical dilemmas: A case report and review of literature. COVID-19大流行引发的医疗和公共卫生伦理困境:一例报告和文献综述。
Qualitative research in medicine & healthcare Pub Date : 2021-03-25 DOI: 10.4081/qrmh.2021.9690
Jarelys Hernandez, Barbara Lubrano di Ciccone, Sarah Thirlwell, Margaret Booth-Jones, Sadaf Aslam, John Greene
{"title":"COVID-19 pandemic causing medical and public health ethical dilemmas: A case report and review of literature.","authors":"Jarelys Hernandez,&nbsp;Barbara Lubrano di Ciccone,&nbsp;Sarah Thirlwell,&nbsp;Margaret Booth-Jones,&nbsp;Sadaf Aslam,&nbsp;John Greene","doi":"10.4081/qrmh.2021.9690","DOIUrl":"https://doi.org/10.4081/qrmh.2021.9690","url":null,"abstract":"<p><p>The COVID-19 pandemic presented myriad of unprecedented and daunting ethical dilemmas to healthcare workers, patients, their families, and the public health. Here we present a case of a 42-years-old Hispanic female with underlying hematological malignancy that developed severe SARS-COV-2 infection amidst the pandemic. This case illustrates some remarkable ethical dilemmas during pandemic times, including the lack of advanced directive planning, the repercussions of restricting family visits, and what ethics in crisis and moral injury entails. Identifying the ethical challenges emerging from the pandemic will assist physicians and other providers in making proper decisions and maintaining the best standard of care.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"5 1","pages":"9690"},"PeriodicalIF":0.0,"publicationDate":"2021-03-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/fe/5d/qrmh-5-1-9690.PMC10336877.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9816600","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
COVID-19: A learning moment for patients and health professionals. COVID-19:患者和卫生专业人员的学习时刻。
Qualitative research in medicine & healthcare Pub Date : 2021-03-25 DOI: 10.4081/qrmh.2021.9688
Stefano Leccardi
{"title":"COVID-19: A learning moment for patients and health professionals.","authors":"Stefano Leccardi","doi":"10.4081/qrmh.2021.9688","DOIUrl":"https://doi.org/10.4081/qrmh.2021.9688","url":null,"abstract":"<p><p>A hospital physician from Northern Italy describes his own experience as caregiver of COVID-19 patients and as a patient himself who required treatment in urgent care. From this experience he learned that an untapped reserve of human solidarity exists in a team of caregivers in the midst of a crisis where they find an unsuspected shared energy. He never would have believed to be able to work long hours patiently and without sleep until he was challenged by the demands of the COVID crisis. As such, he discovers that to be effective the team leader should lead by example rather than by commandments! His experience as a patient allowed him to face his own mortality, to learn that healing rather than cure is the ultimate goal of caregiving.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"5 1","pages":"9688"},"PeriodicalIF":0.0,"publicationDate":"2021-03-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/56/16/qrmh-5-1-9688.PMC10336879.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9814046","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Editor's introduction: Qualitative research in the course of a pandemic. 编辑引言：大流行病过程中的定性研究。
Qualitative research in medicine & healthcare Pub Date : 2021-03-24 eCollection Date: 2021-03-25 DOI: 10.4081/qrmh.2021.9686
Lodovico Balducci
{"title":"Editor's introduction: Qualitative research in the course of a pandemic.","authors":"Lodovico Balducci","doi":"10.4081/qrmh.2021.9686","DOIUrl":"10.4081/qrmh.2021.9686","url":null,"abstract":"","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"5 1","pages":"9686"},"PeriodicalIF":0.0,"publicationDate":"2021-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/5e/3c/qrmh-5-1-9686.PMC10336977.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10180922","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Bad girl and unmet family planning need among Sub-Saharan African adolescents: the role of sexual and reproductive health stigma. 撒哈拉以南非洲青少年中的坏女孩和未满足的计划生育需求：性健康和生殖健康耻辱感的作用。
Qualitative research in medicine & healthcare Pub Date : 2018-05-30 DOI: 10.4081/qrmh.2018.7062
Kelli Stidham Hall, Abubakar Manu, Emmanuel Morhe, Vanessa K Dalton, Sneha Challa, Dana Loll, Jessica L Dozier, Melissa K Zochowski, Andrew Boakye, Lisa H Harris
{"title":"<i>Bad girl</i> and unmet family planning need among Sub-Saharan African adolescents: the role of sexual and reproductive health stigma.","authors":"Kelli Stidham Hall, Abubakar Manu, Emmanuel Morhe, Vanessa K Dalton, Sneha Challa, Dana Loll, Jessica L Dozier, Melissa K Zochowski, Andrew Boakye, Lisa H Harris","doi":"10.4081/qrmh.2018.7062","DOIUrl":"10.4081/qrmh.2018.7062","url":null,"abstract":"<p><p>Adolescent pregnancy contributes to high maternal mortality rates in Sub-Saharan Africa. We explored stigma surrounding adolescent sexual and reproductive health (SRH) and its impact on young Ghanaian women's family planning (FP) outcomes. We conducted in-depth, semi-structured interviews with 63 women ages 15-24 recruited from health facilities and schools in Accra and Kumasi, Ghana. Purposive sampling provided diversity in reproductive/relationship/socioeconomic/religious characteristics. Using both deductive and inductive approaches, our thematic analysis applied principles of grounded theory. Participants described adolescent SRH experiences as cutting across five stigma domains. First, <i>community norms</i> identified non-marital sex and its consequences (pregnancy, childbearing, abortion, sexually transmitted infections) as <i>immoral</i>, <i>disrespectful</i>, and <i>disobedient</i>, resulting in <i>bad girl</i> labeling. Second, <i>enacted stigma</i> entailed gossip, marginalization, and mistreatment from all community members, especially healthcare workers. Third, young sexually active, pregnant, and childbearing women experienced <i>internalized stigma</i> as <i>disgrace</i>, <i>shame</i> and <i>shyness</i>. Fourth, <i>non-disclosure and secret-keeping</i> were used to avoid/reduce stigma. Fifth, <i>stigma resilience</i> was achieved through social support. Collectively, SRH stigma precluded adolescents' use of FP methods and services. Our resulting conceptual model of adolescent SRH stigma can guide health service, public health, and policy efforts to address unmet FP need and de-stigmatize SRH for young women worldwide.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"2 1","pages":"55-64"},"PeriodicalIF":0.0,"publicationDate":"2018-05-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6292434/pdf/nihms975603.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"36789744","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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