Meredith M Skeels, Kenton T Unruh, Christopher Powell, Wanda Pratt
{"title":"Catalyzing Social Support for Breast Cancer Patients.","authors":"Meredith M Skeels, Kenton T Unruh, Christopher Powell, Wanda Pratt","doi":"10.1145/1753326.1753353","DOIUrl":"10.1145/1753326.1753353","url":null,"abstract":"<p><p>Social support is a critical, yet underutilized resource when undergoing cancer care. Underutilization occurs in two conditions: (a) when patients fail to seek out information, material assistance, and emotional support from family and friends or (b) when family and friends fail to meet the individualized needs and preferences of patients. Social networks are most effective when kept up to date on the patient's status, yet updating everyone takes effort that patients cannot always put in. To improve this situation, we describe the results of our participatory design activities with breast cancer patients. During this process, we uncovered the information a social network needs to stay informed as well as a host of barriers to social support that technology could help break down. Our resulting prototype, built using Facebook Connect, includes explicit features to reduce these barriers and thus, promote the healthy outcomes associated with strong social support.</p>","PeriodicalId":74552,"journal":{"name":"Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference","volume":"2010 ","pages":"173-182"},"PeriodicalIF":0.0,"publicationDate":"2010-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3108040/pdf/nihms220584.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"29921867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Predrag Klasnja, Andrea Civan Hartzler, Kent T Unruh, Wanda Pratt
{"title":"Blowing in the Wind: Unanchored Patient Information Work during Cancer Care.","authors":"Predrag Klasnja, Andrea Civan Hartzler, Kent T Unruh, Wanda Pratt","doi":"10.1145/1753326.1753355","DOIUrl":"10.1145/1753326.1753355","url":null,"abstract":"<p><p>Patients do considerable information work. Technologies that help patients manage health information so they can play active roles in their health-care, such as personal health records, provide patients with effective support for focused and sustained personal health tasks. Yet, little attention has been paid to patients' needs for information management support while on the go and away from their personal health information collections. Through a qualitative field study, we investigated the information work that breast cancer patients do in such 'unanchored settings'. We report on the types of unanchored information work that patients do over the course of cancer treatment, reasons this work is challenging, and strategies used by patients to overcome those challenges. Our description of unanchored patient information work expands our understanding of patients' information practices and points to valuable design directions for supporting critical but unmet needs.</p>","PeriodicalId":74552,"journal":{"name":"Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference","volume":"2010 ","pages":"193-202"},"PeriodicalIF":0.0,"publicationDate":"2010-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2913511/pdf/nihms-220573.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"29178157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Michelle N Kwasny, Kelly E Caine, Wendy A Rogers, Arthur D Fisk
{"title":"Privacy and Technology: Folk Definitions and Perspectives.","authors":"Michelle N Kwasny, Kelly E Caine, Wendy A Rogers, Arthur D Fisk","doi":"10.1145/1358628.1358846","DOIUrl":"https://doi.org/10.1145/1358628.1358846","url":null,"abstract":"<p><p>In this paper we present preliminary results from a study of individual differences in privacy beliefs, as well as relate folk definitions of privacy to extant privacy theory. Focus groups were conducted with young adults aged 18-28 and older adults aged 65-75. Participants first shared their individual definitions of privacy, followed by a discussion of privacy in six scenarios chosen to represent a range of potentially invasive situations. Taken together, Westin's and Altman's theories of privacy accounted for both younger and older adults' ideas about privacy, however, neither theory successfully accounted for findings across all age and gender groups. Whereas males tended to think of privacy in terms of personal needs and convenience, females focused more on privacy in terms of others, respecting privacy rights, and safety. Older adults tended to be more concerned about privacy of space rather than information privacy. Initial results reinforce the notion that targeting HCI design to the user population, even with respect to privacy, is critically important.</p>","PeriodicalId":74552,"journal":{"name":"Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference","volume":"2008 ","pages":"3291-3296"},"PeriodicalIF":0.0,"publicationDate":"2008-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1145/1358628.1358846","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35532884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}