Online journal of public health informatics最新文献

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Harnessing Generalizable Real-World Ophthalmic Big Data: Descriptive Analysis of the Bodhya Eye Consortium Model for Collaborative Research. 利用可通用的真实世界眼科大数据:博迪亚眼科联盟合作研究模式的描述性分析。
Online journal of public health informatics Pub Date : 2024-09-30 DOI: 10.2196/53370
Ishaana Sood, Shalinder Sabherwal, Umang Mathur, Elesh Jain, Madhu Bhadauria, Deepshikha Agrawal, Ashi Khurana, Vikas Mittal, Avinash Mahindrakar, Vishal Govindahari, Sucheta Kulkarni, Ken K Nischal
{"title":"Harnessing Generalizable Real-World Ophthalmic Big Data: Descriptive Analysis of the Bodhya Eye Consortium Model for Collaborative Research.","authors":"Ishaana Sood, Shalinder Sabherwal, Umang Mathur, Elesh Jain, Madhu Bhadauria, Deepshikha Agrawal, Ashi Khurana, Vikas Mittal, Avinash Mahindrakar, Vishal Govindahari, Sucheta Kulkarni, Ken K Nischal","doi":"10.2196/53370","DOIUrl":"10.2196/53370","url":null,"abstract":"<p><strong>Background: </strong>Eye care organizations and professionals worldwide are increasingly focusing on bridging the gap between population health and medical practice. Recent advances in genomics and anthropology have revealed that most Indian groups trace their ancestry to a blend of 2 genetically distinct populations: Ancestral North Indians, who share genetic affinities with Central Asians, Middle Easterners, Caucasians, and Europeans; and Ancestral South Indians, genetically distinct from groups outside the Indian subcontinent. Studies conducted among North Indian populations can therefore offer insights that are potentially applicable to these diverse global populations, underscoring significant implications for global health.</p><p><strong>Objective: </strong>The Bodhya Eye Consortium is a collaboration among 8 high-volume nonprofit eyecare organizations from across North India. The consortium aims to harness real-world data consistently and with assured quality for collaborative research. This paper outlines the formation of the consortium as a proposed model for controlled collaborative research among the leading eyecare organizations of North India.</p><p><strong>Methods: </strong>We detail the creation and effective implementation of a consortium following a structured road map that included planning and assessment, establishing an exploratory task force, defining specialty areas, setting objectives and priorities, and conducting a SWOT (strengths, weaknesses, opportunities, and threats) analysis. Central to this process was a comprehensive data audit aimed at standardizing data collection across all participating organizations.</p><p><strong>Results: </strong>The consortium currently comprises 9 organizations, each represented in the governance structure by the Governing Council. Scientific standards for published research are established and overseen by the Scientific Committee, while the Conflict Resolution Committee manages any unresolved disputes. The consortium's working groups, organized by various eyecare specialties, collaborate on research projects through virtual interactions. A foundational step in this process was the organizationwide data audit, which revealed that most organizations complied with accurate and standardized data collection practices. Organizations with deficiencies in data completeness developed action plans to address them. Subsequently, the consortium adopted data collection proformas, contributing to the publication of high-quality manuscripts characterized by low dropout rates.</p><p><strong>Conclusions: </strong>The collaborative research conducted by the Bodhya Eye Consortium-a group of high-volume eyecare organizations primarily from North India-offers a unique opportunity to contribute to scientific knowledge across various domains of eyecare. By leveraging the established heterogeneity of anthropological and genomic origins within the population, the findings can be generalizable, to some ","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":"16 ","pages":"e53370"},"PeriodicalIF":0.0,"publicationDate":"2024-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11474137/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142333958","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation of Drug and Herbal Medicinal Promotions on Social Media During the COVID-19 Pandemic in Relation to World Health Organization Ethical Criteria and South African Health Products Regulatory Authority Guidelines in South Africa: Cross-Sectional Content Analysis. 评估 COVID-19 大流行期间南非社交媒体上的药物和草药促销与世界卫生组织伦理标准和南非保健品监管局指导方针的关系:横断面内容分析》。
Online journal of public health informatics Pub Date : 2024-09-18 DOI: 10.2196/58378
Rujeko Samanthia Chimukuche, Julia Ndlazi, Lucky Thembani Mtolo, Kristien Bird, Janet Seeley
{"title":"Evaluation of Drug and Herbal Medicinal Promotions on Social Media During the COVID-19 Pandemic in Relation to World Health Organization Ethical Criteria and South African Health Products Regulatory Authority Guidelines in South Africa: Cross-Sectional Content Analysis.","authors":"Rujeko Samanthia Chimukuche, Julia Ndlazi, Lucky Thembani Mtolo, Kristien Bird, Janet Seeley","doi":"10.2196/58378","DOIUrl":"10.2196/58378","url":null,"abstract":"<p><strong>Background: </strong>Consideration of ethics in the promotion of medications is essential to safeguard the health of consumers, particularly during health crises. The World Health Organization (WHO) and the South African Health Products Regulatory Authority (SAHPRA) have established stringent standards to ensure the integrity of pharmaceutical promotions and safeguard public health, including advertisements on the internet and social media platforms. However, the dynamic nature of online advertising poses challenges for monitoring and enforcing ethical standards.</p><p><strong>Objective: </strong>The study aimed (1) to examine the COVID-19 drug and medicinal promotions across online platforms and social media from 2020 to 2022 in South Africa and (2) to ensure that drug promotions adhere to ethical guidelines outlined by the WHO and SAPHRA.</p><p><strong>Methods: </strong>A cross-sectional content analysis was conducted to assess drug and medicinal advertisements across various internet and social media platforms. A systematic approach was used to identify and analyze promotional content, focusing on adherence to ethical guidelines outlined by WHO and SAPHRA. Data were collected and analyzed to determine the extent of compliance and identify any potential violations or areas for improvement.</p><p><strong>Results: </strong>A total of 14 online drug advertisements were included in this analysis. Our findings show that most of the drugs advertised did not meet the regulations and guidelines provided by WHO and SAHPRA. There were omissions about active ingredients, proprietary names, adverse drug responses, precautions, and overdosage and adverse drug reactions. Traditional medicines were not fully consistent with the approved WHO ethical criteria data sheet.</p><p><strong>Conclusions: </strong>Our analysis highlights the critical importance of ensuring compliance with ethical guidelines in drug promotions on the internet and social media platforms. There is a need for continued vigilance and enforcement efforts to uphold ethical standards and protect the health of the public. Ongoing monitoring and collaboration between national drug regulatory agencies, pharmaceutical companies, and online platforms will be essential for promoting responsible advertising. In addition, safety monitoring and pharmacovigilance systems for herbal medicinal products are yet to be established.</p>","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":"16 ","pages":"e58378"},"PeriodicalIF":0.0,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11447434/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142302826","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Population Digital Health: Continuous Health Monitoring and Profiling at Scale. 人口数字健康:大规模持续健康监测和分析。
Online journal of public health informatics Pub Date : 2024-09-10 DOI: 10.2196/60261
Naser Hossein Motlagh, Agustin Zuniga, Ngoc Thi Nguyen, Huber Flores, Jiangtao Wang, Sasu Tarkoma, Mattia Prosperi, Sumi Helal, Petteri Nurmi
{"title":"Population Digital Health: Continuous Health Monitoring and Profiling at Scale.","authors":"Naser Hossein Motlagh, Agustin Zuniga, Ngoc Thi Nguyen, Huber Flores, Jiangtao Wang, Sasu Tarkoma, Mattia Prosperi, Sumi Helal, Petteri Nurmi","doi":"10.2196/60261","DOIUrl":"10.2196/60261","url":null,"abstract":"<p><strong>Unstructured: </strong>Our article provides a viewpoint on population digital health - the use of digital health information sourced from Health IoT and wearable devices for population health modeling - as an emerging research initiative for offering an integrated approach for continuous monitoring and profiling of diseases and health conditions at multiple spatial resolutions. Global healthcare systems are increasingly challenged by rising costs as life expectancy and the average age of people increases. Population digital health looks at how wearables, IoT, and AI can offer an alternative approach for understanding health issues within the population, significantly reducing cost and improving the completeness of information collection by current practices, such as electronic health records - including integration with mhealth personal health records - or survey instruments. This significantly improves our collective understanding of public health priorities, including factors affecting disease prevalence, occurrence and risk factors, ultimately helping to design targeted programmatic interventions apt at reducing the cost of healthcare provision and leading to better life quality, also reducing disparities. Realizing this vision requires overcoming several unique challenges, including data quality, availability, sparsity, and social and technical barriers in the use of health technologies. Our article highlights these challenges and offers solutions and empirical evidence to demonstrate how these challenges can be addressed. As population digital health addresses the impact large-scale sensor data collection and AI can have on improving healthcare delivery and society, we sincerely believe the topic is well within the journal's scope and would be highly interesting to its readership. Our experiments using a combination of real-world health IoT data and electronic health records also highlight the potential cross-disciplinary benefits of population digital health and challenge the research community to address the vision and challenges. Therefore, our article serves the dual purpose of challenging the research community and offering insights into the use of AI and sensor data, and how population digital health can serve as a catalyst for further research by the broader research community.</p>","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142302827","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Public Perceptions of Treating Opioid Use Disorder With Deep Brain Stimulation: Comment Analysis Study. 公众对使用脑深部刺激治疗阿片类药物使用障碍的看法:评论分析研究。
Online journal of public health informatics Pub Date : 2024-08-16 DOI: 10.2196/49924
Patricia Henegan, Jack Koczara, Robyn Bluhm, Laura Y Cabrera
{"title":"Public Perceptions of Treating Opioid Use Disorder With Deep Brain Stimulation: Comment Analysis Study.","authors":"Patricia Henegan, Jack Koczara, Robyn Bluhm, Laura Y Cabrera","doi":"10.2196/49924","DOIUrl":"10.2196/49924","url":null,"abstract":"<p><strong>Background: </strong>The number of opioid-related deaths in the United States has more than tripled over the past 7 years, with a steep increase beginning at the same time as the COVID-19 pandemic. There is an urgent need for novel treatment options that can help alleviate the individual and social effects of refractory opioid use disorder (OUD). Deep brain stimulation (DBS), an intervention that involves implanting electrodes in the brain to deliver electrical impulses, is one potential treatment. Currently in clinical trials for many psychiatric conditions, including OUD, DBS's use for psychiatric indications is not without controversy. Several studies have examined ethical issues raised by using DBS to counter treatment-resistant depression, obsessive-compulsive disorder, and eating disorders. In contrast, there has been limited literature regarding the use of DBS for OUD.</p><p><strong>Objective: </strong>This study aims to gain empirical neuroethical insights into public perceptions regarding the use of DBS for OUD, specifically via the analysis of web-based comments on news media stories about the topic.</p><p><strong>Methods: </strong>Qualitative thematic content analysis was performed on 2 Washington Post newspaper stories that described a case of DBS being used to treat OUD. A total of 292 comments were included in the analysis, 146 comments from each story, to identify predominant themes raised by commenters.</p><p><strong>Results: </strong>Predominant themes raised by commenters across the 2 samples included the hopes and expectations with treatment outcomes, whether addiction is a mental health disorder, and issues related to resource allocation. Controversial comments regarding DBS as a treatment method for OUD seemingly decreased when comparing the first printed newspaper story to the second. In comparison, the number of comments relating to therapeutic need increased over time.</p><p><strong>Conclusions: </strong>The general public's perspectives on DBS as a treatment method for OUD elucidated themes via this qualitative thematic content analysis that include overarching sociopolitical issues, positions on the use of technology, and technological and scientific issues. A better understanding of the public perceptions around the use of DBS for OUD can help address misinformation and misperceptions about the use of DBS for OUD, and identify similarities and differences regarding ethical concerns when DBS is used specifically for OUD compared to other psychiatric disorders.</p>","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":"16 ","pages":"e49924"},"PeriodicalIF":0.0,"publicationDate":"2024-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11364942/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141992544","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction: Vaccine Hesitancy in Taiwan: Temporal, Multilayer Network Study of Echo Chambers Shaped by Influential Users. 更正:台湾的疫苗犹豫症:由有影响力的用户塑造的回声室的多层时空网络研究。
Online journal of public health informatics Pub Date : 2024-08-15 DOI: 10.2196/65413
Jason Dean-Chen Yin
{"title":"Correction: Vaccine Hesitancy in Taiwan: Temporal, Multilayer Network Study of Echo Chambers Shaped by Influential Users.","authors":"Jason Dean-Chen Yin","doi":"10.2196/65413","DOIUrl":"10.2196/65413","url":null,"abstract":"<p><p>[This corrects the article DOI: 10.2196/55104.].</p>","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":"16 ","pages":"e65413"},"PeriodicalIF":0.0,"publicationDate":"2024-08-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11362701/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction: Making Metadata Machine-Readable as the First Step to Providing Findable, Accessible, Interoperable, and Reusable Population Health Data: Framework Development and Implementation Study. 更正:使元数据机器可读是提供可查找、可访问、可互操作和可重复使用的人口健康数据的第一步:框架开发与实施研究》。
Online journal of public health informatics Pub Date : 2024-08-14 DOI: 10.2196/65249
David Amadi, Sylvia Kiwuwa-Muyingo, Tathagata Bhattacharjee, Amelia Taylor, Agnes Kiragga, Michael Ochola, Chifundo Kanjala, Arofan Gregory, Keith Tomlin, Jim Todd, Jay Greenfield
{"title":"Correction: Making Metadata Machine-Readable as the First Step to Providing Findable, Accessible, Interoperable, and Reusable Population Health Data: Framework Development and Implementation Study.","authors":"David Amadi, Sylvia Kiwuwa-Muyingo, Tathagata Bhattacharjee, Amelia Taylor, Agnes Kiragga, Michael Ochola, Chifundo Kanjala, Arofan Gregory, Keith Tomlin, Jim Todd, Jay Greenfield","doi":"10.2196/65249","DOIUrl":"10.2196/65249","url":null,"abstract":"<p><p>[This corrects the article DOI: 10.2196/56237.].</p>","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":"16 ","pages":"e65249"},"PeriodicalIF":0.0,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11358657/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141984143","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Vaccine Hesitancy in Taiwan: Temporal, Multilayer Network Study of Echo Chambers Shaped by Influential Users. 台湾的疫苗犹豫不决:由有影响力的用户塑造的回声室的多层时空网络研究。
Online journal of public health informatics Pub Date : 2024-08-09 DOI: 10.2196/55104
Jason Dean-Chen Yin
{"title":"Vaccine Hesitancy in Taiwan: Temporal, Multilayer Network Study of Echo Chambers Shaped by Influential Users.","authors":"Jason Dean-Chen Yin","doi":"10.2196/55104","DOIUrl":"10.2196/55104","url":null,"abstract":"<p><strong>Background: </strong>Vaccine hesitancy is a growing global health threat that is increasingly studied through the monitoring and analysis of social media platforms. One understudied area is the impact of echo chambers and influential users on disseminating vaccine information in social networks. Assessing the temporal development of echo chambers and the influence of key users on their growth provides valuable insights into effective communication strategies to prevent increases in vaccine hesitancy. This also aligns with the World Health Organization's (WHO) infodemiology research agenda, which aims to propose new methods for social listening.</p><p><strong>Objective: </strong>Using data from a Taiwanese forum, this study aims to examine how engagement patterns of influential users, both within and across different COVID-19 stances, contribute to the formation of echo chambers over time.</p><p><strong>Methods: </strong>Data for this study come from a Taiwanese forum called PTT. All vaccine-related posts on the \"Gossiping\" subforum were scraped from January 2021 to December 2022 using the keyword \"vaccine.\" A multilayer network model was constructed to assess the existence of echo chambers. Each layer represents either provaccination, vaccine hesitant, or antivaccination posts based on specific criteria. Layer-level metrics, such as average diversity and Spearman rank correlations, were used to measure chambering. To understand the behavior of influential users-or key nodes-in the network, the activity of high-diversity and hardliner nodes was analyzed.</p><p><strong>Results: </strong>Overall, the provaccination and antivaccination layers are strongly polarized. This trend is temporal and becomes more apparent after November 2021. Diverse nodes primarily participate in discussions related to provaccination topics, both receiving comments and contributing to them. Interactions with the antivaccination layer are comparatively minimal, likely due to its smaller size, suggesting that the forum is a \"healthy community.\" Overall, diverse nodes exhibit cross-cutting engagement. By contrast, hardliners in the vaccine hesitant and antivaccination layers are more active in commenting within their own communities. This trend is temporal, showing an increase during the Omicron outbreak. Hardliner activity potentially reinforces their stances over time. Thus, there are opposing forces of chambering and cross-cutting.</p><p><strong>Conclusions: </strong>Efforts should be made to moderate hardliner and influential nodes in the antivaccination layer and to support provaccination users engaged in cross-cutting exchanges. There are several limitations to this study. One is the bias of the platform used, and another is the lack of a comprehensive definition of \"influence.\" To address these issues, comparative studies across different platforms can be conducted, and various metrics of influence should be explored. Additionally, examining the impact of inf","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":"16 ","pages":"e55104"},"PeriodicalIF":0.0,"publicationDate":"2024-08-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11344187/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141910198","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Predictive Data Analytics in Telecare and Telehealth: Systematic Scoping Review. 远程护理和远程保健中的预测数据分析:系统性范围审查。
Online journal of public health informatics Pub Date : 2024-08-07 DOI: 10.2196/57618
Euan Anderson, Marilyn Lennon, Kimberley Kavanagh, Natalie Weir, David Kernaghan, Marc Roper, Emma Dunlop, Linda Lapp
{"title":"Predictive Data Analytics in Telecare and Telehealth: Systematic Scoping Review.","authors":"Euan Anderson, Marilyn Lennon, Kimberley Kavanagh, Natalie Weir, David Kernaghan, Marc Roper, Emma Dunlop, Linda Lapp","doi":"10.2196/57618","DOIUrl":"10.2196/57618","url":null,"abstract":"<p><strong>Background: </strong>Telecare and telehealth are important care-at-home services used to support individuals to live more independently at home. Historically, these technologies have reactively responded to issues. However, there has been a recent drive to make better use of the data from these services to facilitate more proactive and predictive care.</p><p><strong>Objective: </strong>This review seeks to explore the ways in which predictive data analytics techniques have been applied in telecare and telehealth in at-home settings.</p><p><strong>Methods: </strong>The PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist was adhered to alongside Arksey and O'Malley's methodological framework. English language papers published in MEDLINE, Embase, and Social Science Premium Collection between 2012 and 2022 were considered and results were screened against inclusion or exclusion criteria.</p><p><strong>Results: </strong>In total, 86 papers were included in this review. The types of analytics featuring in this review can be categorized as anomaly detection (n=21), diagnosis (n=32), prediction (n=22), and activity recognition (n=11). The most common health conditions represented were Parkinson disease (n=12) and cardiovascular conditions (n=11). The main findings include: a lack of use of routinely collected data; a dominance of diagnostic tools; and barriers and opportunities that exist, such as including patient-reported outcomes, for future predictive analytics in telecare and telehealth.</p><p><strong>Conclusions: </strong>All papers in this review were small-scale pilots and, as such, future research should seek to apply these predictive techniques into larger trials. Additionally, further integration of routinely collected care data and patient-reported outcomes into predictive models in telecare and telehealth offer significant opportunities to improve the analytics being performed and should be explored further. Data sets used must be of suitable size and diversity, ensuring that models are generalizable to a wider population and can be appropriately trained, validated, and tested.</p>","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":"16 ","pages":"e57618"},"PeriodicalIF":0.0,"publicationDate":"2024-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11339581/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141899119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Making Metadata Machine-Readable as the First Step to Providing Findable, Accessible, Interoperable, and Reusable Population Health Data: Framework Development and Implementation Study. 使元数据机器可读是提供可查找、可访问、可互操作和可重复使用的人口健康数据的第一步:框架开发与实施研究》。
Online journal of public health informatics Pub Date : 2024-08-01 DOI: 10.2196/56237
David Amadi, Sylvia Kiwuwa-Muyingo, Tathagata Bhattacharjee, Amelia Taylor, Agnes Kiragga, Michael Ochola, Chifundo Kanjala, Arofan Gregory, Keith Tomlin, Jim Todd, Jay Greenfield
{"title":"Making Metadata Machine-Readable as the First Step to Providing Findable, Accessible, Interoperable, and Reusable Population Health Data: Framework Development and Implementation Study.","authors":"David Amadi, Sylvia Kiwuwa-Muyingo, Tathagata Bhattacharjee, Amelia Taylor, Agnes Kiragga, Michael Ochola, Chifundo Kanjala, Arofan Gregory, Keith Tomlin, Jim Todd, Jay Greenfield","doi":"10.2196/56237","DOIUrl":"10.2196/56237","url":null,"abstract":"<p><strong>Background: </strong>Metadata describe and provide context for other data, playing a pivotal role in enabling findability, accessibility, interoperability, and reusability (FAIR) data principles. By providing comprehensive and machine-readable descriptions of digital resources, metadata empower both machines and human users to seamlessly discover, access, integrate, and reuse data or content across diverse platforms and applications. However, the limited accessibility and machine-interpretability of existing metadata for population health data hinder effective data discovery and reuse.</p><p><strong>Objective: </strong>To address these challenges, we propose a comprehensive framework using standardized formats, vocabularies, and protocols to render population health data machine-readable, significantly enhancing their FAIRness and enabling seamless discovery, access, and integration across diverse platforms and research applications.</p><p><strong>Methods: </strong>The framework implements a 3-stage approach. The first stage is Data Documentation Initiative (DDI) integration, which involves leveraging the DDI Codebook metadata and documentation of detailed information for data and associated assets, while ensuring transparency and comprehensiveness. The second stage is Observational Medical Outcomes Partnership (OMOP) Common Data Model (CDM) standardization. In this stage, the data are harmonized and standardized into the OMOP CDM, facilitating unified analysis across heterogeneous data sets. The third stage involves the integration of Schema.org and JavaScript Object Notation for Linked Data (JSON-LD), in which machine-readable metadata are generated using Schema.org entities and embedded within the data using JSON-LD, boosting discoverability and comprehension for both machines and human users. We demonstrated the implementation of these 3 stages using the Integrated Disease Surveillance and Response (IDSR) data from Malawi and Kenya.</p><p><strong>Results: </strong>The implementation of our framework significantly enhanced the FAIRness of population health data, resulting in improved discoverability through seamless integration with platforms such as Google Dataset Search. The adoption of standardized formats and protocols streamlined data accessibility and integration across various research environments, fostering collaboration and knowledge sharing. Additionally, the use of machine-interpretable metadata empowered researchers to efficiently reuse data for targeted analyses and insights, thereby maximizing the overall value of population health resources. The JSON-LD codes are accessible via a GitHub repository and the HTML code integrated with JSON-LD is available on the Implementation Network for Sharing Population Information from Research Entities website.</p><p><strong>Conclusions: </strong>The adoption of machine-readable metadata standards is essential for ensuring the FAIRness of population health data. By embracing these ","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":"16 ","pages":"e56237"},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11327634/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141861882","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Analyzing Google COVID-19 Vaccine Intent Search Trends and Vaccine Readiness in the United States: Panel Data Study. 分析谷歌 COVID-19 疫苗意向搜索趋势和美国的疫苗准备情况:面板数据研究。
Online journal of public health informatics Pub Date : 2024-07-29 DOI: 10.2196/55422
Kenneth W Moffett, Michael C Marshall, Jae-Eun C Kim, Heather Dahlen, Benjamin Denison, Elissa C Kranzler, Morgan Meaney, Blake Hoffman, Ivica Pavisic, Leah Hoffman
{"title":"Analyzing Google COVID-19 Vaccine Intent Search Trends and Vaccine Readiness in the United States: Panel Data Study.","authors":"Kenneth W Moffett, Michael C Marshall, Jae-Eun C Kim, Heather Dahlen, Benjamin Denison, Elissa C Kranzler, Morgan Meaney, Blake Hoffman, Ivica Pavisic, Leah Hoffman","doi":"10.2196/55422","DOIUrl":"10.2196/55422","url":null,"abstract":"<p><strong>Background: </strong>Factors such as anxiety, worry, and perceptions of insufficient knowledge about a topic motivate individuals to seek web-based health information to guide their health-related decision-making. These factors converged during the COVID-19 pandemic and were linked to COVID-19 vaccination decision-making. While research shows that web-based search relevant to COVID-19 was associated with subsequent vaccine uptake, less is known about COVID-19 vaccine intent search (which assesses vaccine availability, accessibility, and eligibility) as a signal of vaccine readiness.</p><p><strong>Objective: </strong>To increase knowledge about vaccine intent search as a signal of vaccine readiness, we investigated the relationship between COVID-19 vaccine readiness and COVID-19 vaccine intent relative search volume on Google.</p><p><strong>Methods: </strong>We compiled panel data from several data sources in all US counties between January 2021 and April 2023, a time during which those with primary COVID-19 vaccinations increased from <57,000 to >230 million adults. We estimated a random effects generalized least squares regression model with time-fixed effects to assess the relationship between county-level COVID-19 vaccine readiness and COVID-19 vaccine intent relative search volume. We controlled for health care capacity, per capita COVID-19 cases and vaccination doses administered, and sociodemographic indicators.</p><p><strong>Results: </strong>The county-level proportions of unvaccinated adults who reported that they would wait and see before getting a COVID-19 vaccine were positively associated with COVID-19 vaccine intent relative search volume (β=9.123; Z=3.59; P<.001). The county-level proportions of vaccine-enthusiast adults, adults who indicated they were either already vaccinated with a primary COVID-19 vaccine series or planned to complete the vaccine series soon, were negatively associated with COVID-19 vaccine intent relative search volume (β=-10.232; Z=-7.94; P<.001). However, vaccine intent search was higher in counties with high proportions of people who decided to wait and see and lower in counties with high proportions of vaccine enthusiasts.</p><p><strong>Conclusions: </strong>During this period of steep increase in COVID-19 vaccination, web-based search may have signaled differences in county-level COVID-19 vaccine readiness. More vaccine intent searches occurred in high wait-and-see counties, whereas fewer vaccine intent searches occurred in high vaccine-enthusiast counties. Considering previous research that identified a relationship between vaccine intent search and subsequent vaccine uptake, these findings suggest that vaccine intent search aligned with people's transition from the wait-and-see stage to the vaccine-enthusiast stage. The findings also suggest that web-based search trends may signal localized changes in information seeking and decision-making antecedent to vaccine uptake. Changes in web-based s","PeriodicalId":74345,"journal":{"name":"Online journal of public health informatics","volume":"16 ","pages":"e55422"},"PeriodicalIF":0.0,"publicationDate":"2024-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11319879/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141790181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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