April Rogers, Alicia Chung, Azizi Seixas, Debbie Chung, Ferdinand Zizi, Girardin Jean-Louis
{"title":"Strategies to Engage Blacks in Sleep Medicine: Lessons Learned from Three Studies Applying Community-Based Participatory Research Principles.","authors":"April Rogers, Alicia Chung, Azizi Seixas, Debbie Chung, Ferdinand Zizi, Girardin Jean-Louis","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Introduction: </strong>Awareness, assessment and treatment of sleep apnea are disproportionately lower among Blacks, compared to other racial/ethnic groups. To address this health disparity gap, communication strategies that connect Blacks to OSA education, detection and treatment adherence interventions are needed. Strategies that engage individuals through communication technologies, community-level social network support, and medical providers in clinical settings are also needed. We present lessons learned from three studies that offer these solutions using a community-engaged research model: The Metabolic Syndrome Outcome Study (MetSO), Peer-enhanced Education to Reduce Sleep Ethnic Disparities (PEERS-ED), and Tailored Approach to Sleep Health Education (TASHE), to capture program effectiveness and lessons learned from project successes and failures.</p><p><strong>Methods: </strong>The methods of OSA community-based programs included the application of an OSA community-engaged research model. This model served as a strategic guideline for effective interventions to engage communities in research and ensure cultural appropriateness in OSA interventions. Focus groups, in-depth interviews and community steering committee meetings were conducted with various stakeholders. Delphi surveys were used to identify high priority diseases and conditions. Community barriers and needs were identified through iterative combinations of surveys and focus group meetings. Stakeholder groups participated in all aspects of our studies, including the development, dissemination and implementation phases, reflecting a bi-directional decision-making process that ensures the interests of both parties were considered. The MetSO, PEERS-ED and TASHE studies were reviewed to understand the effectiveness of the programs and to evaluate lessons learned.</p><p><strong>Results: </strong>MetSO, PEERS-ED and TASHE interventions revealed that community-engaged strategies are successful in enrolling Black populations into clinical trials. The study teams reached nearly 3,000 Blacks at risk of OSA and screened about 2,000 people in sleep apnea studies in New York City. Sleep brochures were distributed to over 10,000 people. Lessons learned from MetSO, PEERS-ED and TASHE interventions revealed that building relationships, establishing trust, identifying a study champion, learning to adjust and providing participant incentives are key strategic elements for successful recruitment and retention of Blacks participations in clinical trials.</p><p><strong>Conclusion: </strong>Strategic application of community-oriented frameworks ensures active community engagement throughout the research process, allowing for greater enrollment of Blacks in clinical studies as well as increased OSA awareness, diagnosis, and treatment.</p>","PeriodicalId":73946,"journal":{"name":"Journal of sleep disorders & therapy","volume":"12 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10327646/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9810151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Alzheimer's Disease: Symptoms And Signs","authors":"Giorgos K. Sakkas","doi":"10.35248/2167-0277.21.10.343","DOIUrl":"https://doi.org/10.35248/2167-0277.21.10.343","url":null,"abstract":"","PeriodicalId":73946,"journal":{"name":"Journal of sleep disorders & therapy","volume":"10 1","pages":"343-343"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69990462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Note on Quality Sleep in Women's","authors":"Zang Wang","doi":"10.35248/2167-0277.21.10.E104","DOIUrl":"https://doi.org/10.35248/2167-0277.21.10.E104","url":null,"abstract":"","PeriodicalId":73946,"journal":{"name":"Journal of sleep disorders & therapy","volume":"21 1","pages":"1-1"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69990555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"What are the different types of sleep disorders","authors":"Ahmed S. Bahammam","doi":"10.35248/2167-0277.21.10.347","DOIUrl":"https://doi.org/10.35248/2167-0277.21.10.347","url":null,"abstract":"","PeriodicalId":73946,"journal":{"name":"Journal of sleep disorders & therapy","volume":"10 1","pages":"347-347"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69990715","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Note on Epilepsy and Sleep","authors":"Zang Wang","doi":"10.35248/2167-0277.21.10.330","DOIUrl":"https://doi.org/10.35248/2167-0277.21.10.330","url":null,"abstract":"","PeriodicalId":73946,"journal":{"name":"Journal of sleep disorders & therapy","volume":"10 1","pages":"1-1"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69990174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Editorial Note on Isolated REM Sleep without Atonia","authors":"Amedeo Xu","doi":"10.35248/2167-0277.21.10.E102","DOIUrl":"https://doi.org/10.35248/2167-0277.21.10.E102","url":null,"abstract":"The pathophysiology of mental illness is in-efficaciously perceived, and to a nice extent theoretical. Current theories include: neuronic maturing, neuro inflammation, aerobic pressure, system dysregulation, interruption to the time unit cadence, and junction deregulation. A decrease in aldohexose digestion found in people with wooziness is a model with making proof. By and massive, the natural connects of mental illness square measure alluded to as 'incoherence biomarkers'. A biomarker is a natural particle found in blood, alternative body liquids, or tissues that is associate indication of a typical or strange cycle, or of a condition or unwellness. Biomarkers square measure most typically focused to analysis their affiliation with a illness to a lot of without delay comprehend its basic pathophysiology, and thus illuminate rejection and medical care systems for that unwellness.","PeriodicalId":73946,"journal":{"name":"Journal of sleep disorders & therapy","volume":"10 1","pages":"1-1"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69990294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Editorial Note on Manic-depressive Psychosis","authors":"Zang Wang","doi":"10.35248/2167-0277.21.10.E103","DOIUrl":"https://doi.org/10.35248/2167-0277.21.10.E103","url":null,"abstract":"According to the globe Health Organization, manic-depressive psychosis is that the sixth leading reason behind incapacity within the world and it affects regarding five-hitter of the population with dangerous repercussions on multiple aspects in an exceedingly person’s life. The depressive section of manic-depressive psychosis is commonly terribly severe, and suicide may be a major risk issue. Studies on the causes of the disorder specialize in environmental triggers like surprising stressors and unit of time variations and on genetic contributions.","PeriodicalId":73946,"journal":{"name":"Journal of sleep disorders & therapy","volume":"10 1","pages":"1-1"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69990414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Note on Pathophysiology and Muscle Physiology","authors":"Zang Wang","doi":"10.35248/2167-0277.21.10.E109","DOIUrl":"https://doi.org/10.35248/2167-0277.21.10.E109","url":null,"abstract":"","PeriodicalId":73946,"journal":{"name":"Journal of sleep disorders & therapy","volume":"10 1","pages":"1-1"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69991083","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Note on cardiovascular and Neurology Disorders","authors":"Jassel Phelia","doi":"10.35248/2167-0277.21.10.E110","DOIUrl":"https://doi.org/10.35248/2167-0277.21.10.E110","url":null,"abstract":"","PeriodicalId":73946,"journal":{"name":"Journal of sleep disorders & therapy","volume":"10 1","pages":"1-1"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"69991131","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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