JMIR infodemiology最新文献

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Exploring Pain on Social Media: Observational Study on Perceptions and Discussions of Chronic Pain Conditions. 在社交媒体上探索疼痛:对慢性疼痛状况的感知和讨论的观察研究。
IF 2.3
JMIR infodemiology Pub Date : 2025-09-16 DOI: 10.2196/67473
Teresa Valades, Cesar I Fernandez-Lazaro, Francisco Lara-Abelenda, Maria Montero-Torres, Ines Cuberta Gonzalez, Miguel A Ortega, Melchor Alvarez-Mon Soto, Miguel Angel Alvarez-Mon
{"title":"Exploring Pain on Social Media: Observational Study on Perceptions and Discussions of Chronic Pain Conditions.","authors":"Teresa Valades, Cesar I Fernandez-Lazaro, Francisco Lara-Abelenda, Maria Montero-Torres, Ines Cuberta Gonzalez, Miguel A Ortega, Melchor Alvarez-Mon Soto, Miguel Angel Alvarez-Mon","doi":"10.2196/67473","DOIUrl":"10.2196/67473","url":null,"abstract":"<p><strong>Background: </strong>Chronic pain, affecting 30.3% of the global population, constitutes a major public health and social challenge. It is associated with disability, emotional distress, and diminished quality of life. Conditions, such as fibromyalgia, headache, paraplegia, neuropathy, and multiple sclerosis are characterized by persistent pain and limited social and medical understanding. This contributes to patient isolation and increases mental health burden. In recent years, social media, particularly X (formerly Twitter), has emerged as a key space for analyzing health-related perceptions and experiences. Its massive use, spontaneity, and broad reach have made these platforms a valuable source for infodemiological research.</p><p><strong>Objective: </strong>This study aims to analyze posts on X concerning fibromyalgia, headache, paraplegia, neuropathy, and multiple sclerosis, as well as characterize the profile of users involved in these conversations, identify prevalent topics, measure public perception, evaluate treatment efficacy, and detect discussions related to the most frequent nonmedical issues.</p><p><strong>Methods: </strong>A total of 72,874 tweets in English and Spanish containing the selected keywords were collected between 2018 and 2022. A manual review of 2500 tweets was conducted, and the larger subset was automatically classified using natural language processing methods based on the BERTweet model, previously fine-tuned for content analysis on social media platforms. Subsequently, tweets related to chronic pain conditions were analyzed to examine user types, disease origin, and both medical and nonmedical content.</p><p><strong>Results: </strong>Of the total tweets collected, 55,451 (76.1%) were classifiable. The most active users were health care professionals and institutions. The primary perceived etiology was pharmacological, and higher treatment efficacy was noted in neuropathy, paraplegia, and multiple sclerosis. Regarding nonmedical content, there were more tweets related to the definition and understanding of the disease.</p><p><strong>Conclusions: </strong>Social media platforms, such as X, are playing a crucial role in the dissemination of information on chronic pain. Discussions largely focus on the available treatments and the need to enhance public education, using these platforms to correct misconceptions and provide better support to patients.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e67473"},"PeriodicalIF":2.3,"publicationDate":"2025-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12440231/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145076629","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Viewpoint on the Intersection Among Health Information, Misinformation, and Generative AI Technologies. 关于健康信息、错误信息和生成人工智能技术交叉的观点。
IF 2.3
JMIR infodemiology Pub Date : 2025-09-15 DOI: 10.2196/69474
António Bandeira, Luis Henrique Gonçalves, Felix Holl, Juliet Ugbedeojo Shaibu, Mariana Laranjo Gonçalves, Ronan Payinda, Sagun Paudel, Alessandro Berionni, Tina D Purnat, Tim Mackey
{"title":"Viewpoint on the Intersection Among Health Information, Misinformation, and Generative AI Technologies.","authors":"António Bandeira, Luis Henrique Gonçalves, Felix Holl, Juliet Ugbedeojo Shaibu, Mariana Laranjo Gonçalves, Ronan Payinda, Sagun Paudel, Alessandro Berionni, Tina D Purnat, Tim Mackey","doi":"10.2196/69474","DOIUrl":"10.2196/69474","url":null,"abstract":"<p><p>In recent years, artificial intelligence (AI) has seen rapid advancements, with innovations such as large language models and generative AI evolving at a rapid pace. While this progress offers tremendous opportunities, it also presents risks, particularly in the creation, consumption, and amplification of information and its impact on population health and health program delivery. Thoughtful approaches are necessary to navigate the consequences of advances in AI for different health care professionals and patient populations and from a policy and governance perspective. Through a collaboration between the World Federation of Public Health Associations working groups, this Viewpoint article brings together perspectives, concerns, and aspirations from young adult professionals across 5 continents and from diverse backgrounds to explore the future of public health and AI in the context of the changing health information environment. Our discussion is divided into 2 parts, specifically examining aspects of disinformation and AI, and also the role of public health and medical professionals in a growing AI-driven health information ecosystem. This Viewpoint concludes with 5 key recommendations on how to potentially address issues such as information and disinformation overload; misinformation propagation; and resultant changes in health practices, research, ethics, and the need for robust policies that can dynamically address current and future challenges.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e69474"},"PeriodicalIF":2.3,"publicationDate":"2025-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12481143/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145071356","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health-Related Concerns of Anti-LGBTQ+ Legislation: Thematic Analysis Using Social Media Data. 反lgbtq +立法的健康相关问题:基于社交媒体数据的专题分析
IF 2.3
JMIR infodemiology Pub Date : 2025-09-11 DOI: 10.2196/68956
Ari Z Klein, Kaelen Spiegel, José A Bauermeister, Graciela Gonzalez-Hernandez
{"title":"Health-Related Concerns of Anti-LGBTQ+ Legislation: Thematic Analysis Using Social Media Data.","authors":"Ari Z Klein, Kaelen Spiegel, José A Bauermeister, Graciela Gonzalez-Hernandez","doi":"10.2196/68956","DOIUrl":"10.2196/68956","url":null,"abstract":"<p><strong>Background: </strong>There has been a recent proliferation of anti-LGBTQ+ (lesbian, gay, bisexual, transgender, queer/questioning) legislation being proposed in the United States, including more than 500 bills across 42 states in 2024. Many of the studies examining the impact of anti-LGBTQ+ legislation have focused specifically on the association with mental health outcomes.</p><p><strong>Objective: </strong>The objective of this study was to use social media data to more broadly explore health-related concerns of anti-LGBTQ+ legislation among sexual minority men in the United States.</p><p><strong>Methods: </strong>We leveraged a dataset containing 70 million tweets that were posted by 23,276 users in the United States who self-reported on Twitter that they are sexual minority men. First, we searched these tweets for keywords related to LGBTQ+ legislation. Next, we developed a codebook for identifying those that expressed health-related concerns of anti-LGBTQ+ legislation. Then, we developed a coding scheme to categorize these concerns into one or more themes by using an inductive approach. Finally, we automatically identified the users' geographic location and age for subgroup analyses.</p><p><strong>Results: </strong>Among 8486 keyword-matched tweets, 493 (5.8%) tweets expressed health-related concerns due to anti-LGBTQ+ legislation and were posted by 288 sexual minority men in the United States: 112 (38.9%) who posted about health care, 84 (29.2%) about safety, 64 (22.2%) about mental health, 62 (21.5%) about general harm, 49 (17%) about human rights, and 40 (13.9%) about support. Health care was the top concern overall and across the United States and age groups. In contrast, the higher prevalence of mental health was driven by the larger number of users in the South, as it was less of a concern in other regions. Similarly, mental health was less of a concern among older age groups. Safety was as much of a concern as mental health overall and across the United States and most age groups.</p><p><strong>Conclusions: </strong>Our findings may inform a broader range of health interventions and approaches for targeting them at specific populations of sexual minority men. By demonstrating that these concerns are expressed on social media, our findings can be leveraged by advocacy groups to amplify voices and rally public support for countering anti-LGBTQ+ bills.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e68956"},"PeriodicalIF":2.3,"publicationDate":"2025-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12464498/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145042461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Data Mining Trauma: AI-Assisted Qualitative Study of Cyber Victimization on Reddit. 数据挖掘创伤:Reddit上网络受害的人工智能辅助定性研究。
IF 2.3
JMIR infodemiology Pub Date : 2025-09-03 DOI: 10.2196/75493
J'Andra Antisdel, Wendy R Miller, Doyle Groves
{"title":"Data Mining Trauma: AI-Assisted Qualitative Study of Cyber Victimization on Reddit.","authors":"J'Andra Antisdel, Wendy R Miller, Doyle Groves","doi":"10.2196/75493","DOIUrl":"10.2196/75493","url":null,"abstract":"<p><strong>Background: </strong>Cyber victimization exposes individuals to numerous risks. Developmental and psychological factors may leave some users unaware of the potential dangers, increasing their susceptibility to psychological distress. Despite this vulnerability, methods for identifying those at risk of cyber victimization within health care settings are limited, as is research that explores their experiences of cyber victimization. The purpose of this study was to analyze how users describe experiences of cyber victimization on the social media platform Reddit (Reddit, Inc) using data mining.</p><p><strong>Objective: </strong>This study aimed to analyze and describe how users on Reddit describe and discuss their experience of cyber victimization using data mining and computational analysis of unsolicited data.</p><p><strong>Methods: </strong>This computational qualitative study used data mining, Word Adjacency Graph (WAG) modeling, and thematic analysis to analyze discussions of Reddit users surrounding cyber victimization. Inclusion criteria included posts from 2012 to 2023 from subreddits r/cyberbullying and r/bullying. GPT-4 (OpenAI), an advanced artificial intelligence language model, summarized posts and assisted in cluster labeling. Posts were reviewed to remove irrelevant content and duplicates. User anonymity was maintained throughout the study.</p><p><strong>Results: </strong>A total of 13,381 posts from 3283 Reddit were analyzed, with approximately 5.1% (n=678) originating between 2012 and 2018 and 94.9% (n=12,703) from 2019 to 2023. The WAG modeling approach identified 38 clusters, with 35 deemed to be relevant to cyber victimization experiences. Two clusters containing irrelevant material were excluded. Six overarching themes emerged: (1) psychological impact, (2) coping and healing, (3) protecting yourself online, (4) protecting yourself offline, (5) victimization across various settings, and (6) seeking meaning and understanding.</p><p><strong>Conclusions: </strong>The study highlights the effectiveness of data mining and AI in analyzing large public datasets for qualitative research. These methods can inform future studies on risky internet behavior, victimization, and assessment strategies in health care settings.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e75493"},"PeriodicalIF":2.3,"publicationDate":"2025-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12407219/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144994507","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Online Illicit Drug Distribution in the Thai Language on X: Exploratory Qualitative Content Analysis. 网上非法药物在泰语X分销:探索性质的内容分析。
IF 2.3
JMIR infodemiology Pub Date : 2025-09-02 DOI: 10.2196/71703
Francois Rene Lamy, Seung Chun Paek, Natthani Meemon
{"title":"Online Illicit Drug Distribution in the Thai Language on X: Exploratory Qualitative Content Analysis.","authors":"Francois Rene Lamy, Seung Chun Paek, Natthani Meemon","doi":"10.2196/71703","DOIUrl":"10.2196/71703","url":null,"abstract":"<p><strong>Background: </strong>By increasing exposure to drug-related advertisements, the illicit digital drug trade promotes drug normalization and eases access to substances, increasing the likelihood of initiation. Social media platforms play an increasingly important role in facilitating the online substance trade by leveraging encrypted communications and user-friendly interfaces to advertise a large variety of readily available substances. Despite its growing importance, there is a paucity of research conducted in Thailand that aims to determine the types of substances, marketing strategies, and public health risks linked to drugs advertised on social media.</p><p><strong>Objective: </strong>This study aimed to inductively explore the content of tweets on the social media platform X (formerly known as Twitter) advertising drugs in the Thai language.</p><p><strong>Methods: </strong>Tweets advertising psychoactive substances in the Thai language were collected manually between April and July 2024. A qualitative content analysis was performed on the collected tweets. Tweets were coded based on 5 themes: types of substances advertised, marketing strategies, delivery methods, number of substances per tweet, and location references. The intercoder reliability for each theme was assessed using Krippendorff α, achieving substantial agreement across most codes.</p><p><strong>Results: </strong>A total of 3832 tweets advertising drugs were collected and analyzed. Most tweets (2424/3832, 63.26%) mentioned 5 or more substances, with depressants such as opioids (2807/3832, 73.25%), antihistamines (2394/3832, 62.47%), and benzodiazepines (2009/3832, 52.42%) being the most frequently advertised. Common marketing techniques included direct contact information (2848/3832, 74.32%) and fast delivery (1216/3832, 31.73%). Delivery methods primarily involved courier services but generally offered multiple options. Tweets that mentioned at least 1 sex-performance enhancer were frequently (422/543, 77.7%) advertised in combination with benzodiazepine.</p><p><strong>Conclusions: </strong>The results of this study suggest the presence of a large number of substances advertised for sale on the X platform in the Thai language. This digital form of drug trading is facilitated by possible direct messaging and the large number of courier services existing in Thailand. Our findings call for the development of real-time monitoring systems that harness drug-related data from social media to inform public health practitioners about emerging substances and trends and address the challenges posed by the digital drug trade.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e71703"},"PeriodicalIF":2.3,"publicationDate":"2025-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12441646/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144981328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mapping Vaccine Sentiment by Analyzing Spanish-Language Social Media Posts and Survey-Based Public Opinion: Dual Methods Study. 通过分析西班牙语社交媒体帖子和基于调查的民意来绘制疫苗情绪:双重方法研究。
IF 2.3
JMIR infodemiology Pub Date : 2025-08-29 DOI: 10.2196/63223
Agnes Huguet-Feixa, Wasim Ahmed, Eva Artigues-Barberà, Joaquim Sol, Xavier Gomez-Arbones, Pere Godoy, Marta Ortega Bravo
{"title":"Mapping Vaccine Sentiment by Analyzing Spanish-Language Social Media Posts and Survey-Based Public Opinion: Dual Methods Study.","authors":"Agnes Huguet-Feixa, Wasim Ahmed, Eva Artigues-Barberà, Joaquim Sol, Xavier Gomez-Arbones, Pere Godoy, Marta Ortega Bravo","doi":"10.2196/63223","DOIUrl":"https://doi.org/10.2196/63223","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;The internet and social media have been considered useful platforms for obtaining health information. However, critical and erroneous content about vaccines on social media has been associated with vaccination delays and refusal.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This study aimed to examine how social networks influence access to and perceptions of vaccine-related information. We sought to (1) quantify the proportion of individuals engaging with vaccine-related content on social media and to characterize their demographic and behavioral profiles through an internet-based population survey conducted in Spain and (2) to analyze vaccine-related sentiments and opinions in Spanish and Catalan posts on X (X Corp [formerly Twitter, Inc] and geolocate them using artificial intelligence.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;Two complementary methodologies were applied. First, an observational study was conducted via a self-administered internet-based questionnaire among adults in Spain in 2021. Second, we analyzed Spanish- and Catalan-language posts from X, collected between March and December 2021. Sentiment analysis was performed using a workflow developed in Orange Data Mining (Bioinformatics Laboratory, Faculty of Computer and Information Science, University of Ljubljana). Geolocation was based on user-defined locations and visualized using Microsoft Power Business Intelligence. Social network analysis was conducted with NodeXL Pro (Social Media Research Foundation) to identify and characterize the 5 largest user communities discussing vaccines. Although based on independent data sources, the 2 approaches provided complementary methodological insights.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Among the 1312 respondents in the survey, 85.7% (1124/1312) stated that they were regular social network users, and 66% (850/1287) reported having encountered antivaccine information on social networks. Of these, 24.3% (205/845) experienced doubts about receiving recommended vaccines, and out of those with doubts, 13.3% (27/203) refused at least 1 vaccine proposed by a health care professional. A total of 479,734 Spanish and Catalan posts on X were analyzed, with 54.44% (n=261,183) posts classified as negative, 28.18% (n=135,194) as neutral, and 17.37% (n=83,357) as positive. Sentiment varied across regions, with more negative posts appearing to derive from South America, with a mix in Europe and more positive posts in North America. Analysis of the topic words and key themes allowed the grouping of the predominant themes of the 5 study groups, which were (1) vaccination efforts during the COVID-19 pandemic, (2) issues of vaccine theft and struggles in managing and securing the vaccine supply, (3) campaigns in the State of Mexico, (4) vaccination efforts for older adults, and (5) the vaccination campaign in Colombia to combat COVID-19.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;High proportions of exposure to antivaccine content were reported by the su","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e63223"},"PeriodicalIF":2.3,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12400125/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144981280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Communicating Antimicrobial Resistance on Instagram: Content Analysis of #AntibioticResistance. 在Instagram上传播抗菌素耐药性:#抗生素耐药性的内容分析。
IF 2.3
JMIR infodemiology Pub Date : 2025-08-20 DOI: 10.2196/67825
Elin Nilsson, Emma Oljans, Anna-Carin Nordvall, Mirko Ancillotti
{"title":"Communicating Antimicrobial Resistance on Instagram: Content Analysis of #AntibioticResistance.","authors":"Elin Nilsson, Emma Oljans, Anna-Carin Nordvall, Mirko Ancillotti","doi":"10.2196/67825","DOIUrl":"https://doi.org/10.2196/67825","url":null,"abstract":"<p><strong>Background: </strong>Antimicrobial resistance (AMR) is a major global health issue heavily influenced by human behavior. Effective communication and awareness-raising are crucial in curbing AMR, with social network sites (SNSs) significantly shaping health behaviors. Despite their potential, current analyses of AMR on SNSs have focused mainly on top-down communication initiatives.</p><p><strong>Objective: </strong>This study aims to examine AMR on Instagram (Meta Platforms), identifying key actors, content themes, and the nature of the communication to understand how AMR is portrayed and perceived.</p><p><strong>Methods: </strong>Based on the sender-message-channel-receiver model, this study used content analysis to review publicly accessible posts on Instagram. The data refer to 24 months, focusing on the hashtag \"#antibioticresistance.\" After cleaning the data, 610 posts (10% of the total 6105) were analyzed.</p><p><strong>Results: </strong>Content creators were predominantly information drivers or professionals in science and health. Posts frequently featured text-dominated visuals or images of bacteria and laboratory tests. However, the AMR posts were found to be siloed, with limited engagement beyond specific interest groups. The study highlighted the neutrality and accuracy of the content but noted the challenge of reaching a broader audience.</p><p><strong>Conclusions: </strong>While Instagram serves as a platform for accurate and informative AMR communication, the post of it remains confined to niche groups, limiting its broader impact. To enhance engagement, AMR discussions should be integrated into more general interest content, use visually compelling formats, and encourage institutional participation and interactive user engagement.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e67825"},"PeriodicalIF":2.3,"publicationDate":"2025-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12367282/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144981322","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Role of Influencers and Echo Chambers in the Diffusion of Vaccine Misinformation: Opinion Mining in a Taiwanese Online Community. 影响者与回音室在疫苗错误资讯传播中的角色:台湾网路社群的意见挖掘。
IF 2.3
JMIR infodemiology Pub Date : 2025-08-18 DOI: 10.2196/57951
Jason Dean-Chen Yin, Tzu-Chin Wu, Chia-Yun Chen, Fen Lin, Xiaohui Wang
{"title":"The Role of Influencers and Echo Chambers in the Diffusion of Vaccine Misinformation: Opinion Mining in a Taiwanese Online Community.","authors":"Jason Dean-Chen Yin, Tzu-Chin Wu, Chia-Yun Chen, Fen Lin, Xiaohui Wang","doi":"10.2196/57951","DOIUrl":"10.2196/57951","url":null,"abstract":"<p><strong>Background: </strong>Prevalence and spread of misinformation are a concern for the exacerbation of vaccine hesitancy and a resulting reduction in vaccine intent. However, few studies have focused on how vaccine misinformation diffuses online, who is responsible for the diffusion, and the mechanisms by which that happens. In addition, researchers have rarely investigated this in non-Western contexts particularly vulnerable to misinformation.</p><p><strong>Objective: </strong>This study aims to identify COVID-19 vaccine misinformation, map its diffusion, and identify the effect of echo chamber users on misinformation diffusion on a Taiwanese online forum.</p><p><strong>Methods: </strong>The study uses data from a popular forum in Taiwan called PTT. A crawler scraped all threads on the most popular subforum from January 2021 until December 2022. Vaccine-related threads were identified through keyword searching (n=5818). Types of misinformation, including misleading, disinformation, conspiracy, propaganda, and fabricated content, were coded by 2 researchers. Polarity was proposed as a proxy for measuring an individual's level of involvement in the echo chamber, one of the mechanisms responsible for the viral misinformation on social media. Factors related to information diffusion, including misinformation type and polarity, were then assessed with negative binomial regression.</p><p><strong>Results: </strong>Of 5818 threads, 3830 (65.8%) were identified as true information, and 1601 (27.5%) contained misinformation, yielding 5431 boards for analysis. Misinformation content did not vary much from other contexts. Propaganda-related information was most likely to be reposted (relative risk: 2.07; P<.001) when comparing to true information. However, the more polarized a user was, the less likely his or her content was to be reposted (relative risk: 0.22; P<.001). By removing the nodes with a high level of indegree, outdegree, and betweenness centrality, we found that the core network and the entire network demonstrated a decreasing trend in average polarity score, which showed that influential users contributed to the polarization in misinformation consumption.</p><p><strong>Conclusions: </strong>Although the forum exhibits a resilience to echo chambering, active users and brokers contribute significantly to the polarization of the community, particularly through propaganda-style misinformation. This popularity of propaganda-style misinformation may be linked to the political nature of the forum, where public opinion follows \"elite cues\" on issues, as observed in the United States. The work in this study corroborates this finding and contributes a data point in a non-Western context. To manage the echo chambering of misinformation, more effort can be put into moderating these users to prevent polarization and the spread of misinformation to prevent growing vaccine hesitancy.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e57951"},"PeriodicalIF":2.3,"publicationDate":"2025-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12360728/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144877147","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Impact of Misinformation on Social Media in the Context of Natural Disasters: Narrative Review. 自然灾害背景下虚假信息对社交媒体的影响:叙事回顾。
IF 2.3
JMIR infodemiology Pub Date : 2025-07-31 DOI: 10.2196/70413
Sonya Hilberts, Mark Govers, Elena Petelos, Silvia Evers
{"title":"The Impact of Misinformation on Social Media in the Context of Natural Disasters: Narrative Review.","authors":"Sonya Hilberts, Mark Govers, Elena Petelos, Silvia Evers","doi":"10.2196/70413","DOIUrl":"10.2196/70413","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Misinformation on social media during natural disasters has become a significant challenge, with the potential to increase public confusion, panic, and distrust. Although individuals rely on social media platforms for timely updates during crises, these platforms also facilitate the rapid spread of unverified and misleading information. Consequently, misinformation can hamper emergency response efforts, misdirect resources, and distort public perception of the disaster's true severity.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This narrative review aims to (1) critically evaluate the available evidence; (2) unpack the dynamics of misinformation on social media in the context of natural disasters, specifically natural hazards, shedding light on the challenges, implications, and potential solutions; and (3) develop a conceptual model linking misinformation, public impact, and disasters, grounded in sourced evidence.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;The narrative review examines the impact of social media misinformation in the context of natural disasters. The literature search was conducted using the PubMed database and Google Scholar in April 2024. Studies eligible for inclusion were published in English, with no restrictions on publication date, geographic region, or target population. The inclusion criteria focused on the original research that examined social media misinformation related to natural disasters, specifically natural hazards.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;From an initial pool of 173 studies, 9 studies met the inclusion criteria for this review. The selected studies revealed consistent patterns in how misinformation spreads during natural disasters, highlighting the role of users, some influencers, and bots in amplified false narratives. The misleading messages disseminated across social media platforms often outpaced official communications, resulting in reduced trust and exacerbating anxiety, stress, and fear among affected populations. This heightened emotional response and erosion of trust in official communications influenced an individual's susceptibility to the misinformation and prompted inappropriate actions. Consequently, such actions led to resource misallocation, overwhelmed emergency services, and diverted attention away from genuine needs. Collectively, these factors negatively impacted public health outcomes and diminished the effectiveness of emergency management efforts, as illustrated in the conceptual model developed to provide a greater understanding of this critical area of study.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;This narrative review highlights the significant impact of misinformation in the context of natural disasters, specifically natural hazards. It stresses the urgent need for disaster preparedness and response plans that include targeted interventions such as real-time misinformation detection technologies, public education campaigns focused on digital literacy, and proactive d","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e70413"},"PeriodicalIF":2.3,"publicationDate":"2025-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12313155/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144762514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Differential Analysis of Age, Gender, Race, Sentiment, and Emotion in Substance Use Discourse on Twitter During the COVID-19 Pandemic: A Natural Language Processing Approach. COVID-19大流行期间推特上物质使用话语中的年龄、性别、种族、情绪和情感差异分析:一种自然语言处理方法。
IF 2.3
JMIR infodemiology Pub Date : 2025-07-28 DOI: 10.2196/67333
Julina Maharjan, Ruoming Jin, Jennifer King, Jianfeng Zhu, Deric Kenne
{"title":"Differential Analysis of Age, Gender, Race, Sentiment, and Emotion in Substance Use Discourse on Twitter During the COVID-19 Pandemic: A Natural Language Processing Approach.","authors":"Julina Maharjan, Ruoming Jin, Jennifer King, Jianfeng Zhu, Deric Kenne","doi":"10.2196/67333","DOIUrl":"10.2196/67333","url":null,"abstract":"<p><strong>Background: </strong>User demographics are often hidden in social media data due to privacy concerns. However, demographic information on substance use (SU) can provide valuable insights, allowing public health policy makers to focus on specific cohorts and develop efficient prevention strategies, especially during global crises such as the COVID-19 pandemic.</p><p><strong>Objective: </strong>This study aimed to analyze SU trends at the user level across different demographic dimensions, such as age, gender, race, and ethnicity, with a focus on the COVID-19 pandemic. The study also establishes a baseline for SU trends using social media data.</p><p><strong>Methods: </strong>The study was conducted using large-scale English-language data from Twitter (now known as X) over a 3-year period (2019, 2020, and 2021), comprising 1.13 billion posts. Following preprocessing, the SU posts were identified using our custom-trained deep learning model (Robustly Optimized Bidirectional Encoder Representations From Transformers Pretraining Approach [RoBERTa]), which resulted in the identification of 9 million SU posts. Then, demographic attributes, such as user type, age, gender, race, and ethnicity, as well as sentiments and emotions associated with each post, were extracted via a collection of natural language processing modules. Finally, various qualitative analyses were performed to obtain insight into user behaviors based on demographics.</p><p><strong>Results: </strong>The highest level of user participation in SU discussions was observed in 2020, with a 22.18% increase compared to 2019 and a 25.24% increase compared to 2021. Throughout the study period, male users and teenagers increasingly dominated the SU discussions across all substance types. During the COVID-19 pandemic, user participation in prescription medication discussions was notably higher among female users compared to other substance types. In addition, alcohol use increased by 80% within 2 weeks after the global pandemic declaration in 2020.</p><p><strong>Conclusions: </strong>This study presents a large-scale, fine-grained analysis of SU on social media data, examining trends by age, gender, race, and ethnicity before, during, and after the COVID-19 pandemic. Our findings, contextualized with sociocultural and pandemic-specific factors, provide actionable insights for targeted public health interventions. This study establishes social media data (powered with artificial intelligence and natural language processing tools) as a valuable platform for real-time SU surveillance and prevention during crises.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e67333"},"PeriodicalIF":2.3,"publicationDate":"2025-07-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12340460/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144735900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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