JMIR infodemiology最新文献

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Social Media Perspectives on a Future HIV Vaccine: Mixed Methods Analysis. 社会媒体对未来HIV疫苗的看法:混合方法分析。
IF 4
JMIR infodemiology Pub Date : 2026-03-19 DOI: 10.2196/82917
Megan A Rabin, Sarah Penuela-Wermers, Neil K R Sehgal, Teniola I Egbe, Criswell L M Lavery, Sharath Chandra Guntuku, Alison M Buttenheim
{"title":"Social Media Perspectives on a Future HIV Vaccine: Mixed Methods Analysis.","authors":"Megan A Rabin, Sarah Penuela-Wermers, Neil K R Sehgal, Teniola I Egbe, Criswell L M Lavery, Sharath Chandra Guntuku, Alison M Buttenheim","doi":"10.2196/82917","DOIUrl":"10.2196/82917","url":null,"abstract":"<p><strong>Background: </strong>As the prospect of an HIV vaccine nears reality, understanding public discourse around the vaccine is essential for informing communication strategies and addressing misinformation. Social media platforms are influential spaces where public narratives form, yet little research has examined discourse around an HIV vaccine, especially on TikTok.</p><p><strong>Objective: </strong>This study aims to compare and characterize public discourse about a future HIV vaccine across Twitter (subsequently rebranded X) and TikTok, identifying prevailing themes, sentiments, and rhetorical strategies to inform public health communication.</p><p><strong>Methods: </strong>From over 400,000 tweets and 65,000 TikTok comments, we analyzed the 1000 most-liked posts on each platform using natural language processing and coded the top 500 most-liked posts for rhetorical strategies, sentiment, and themes.</p><p><strong>Results: </strong>Our findings reveal expressions of hope and trust in science on both platforms, as well as concerns about institutional corruption and conspiracy theories, such as the belief that the HIV vaccine responds to harm caused by the COVID-19 vaccine. Tweets tended to be more linguistically complex and yielded richer insights, while TikTok comments were shorter and more difficult to interpret without video context. Key rhetorical strategies included conspiracy theories, post hoc reasoning, and emotional appeals.</p><p><strong>Conclusions: </strong>This study underscores the need for platform-specific communication strategies to address misinformation and build public trust. The findings offer timely insights into emerging HIV vaccine discourse and highlight actionable opportunities for public health stakeholders to build trust and combat misinformation in advance of the vaccine rollout.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"6 ","pages":"e82917"},"PeriodicalIF":4.0,"publicationDate":"2026-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13001999/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147488941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Audience-Specific Health Communication: Mixed Methods Evaluation of the Maria Ciência AI-Assisted Knowledge Translation Tool. 针对特定受众的健康传播:Maria Ciência人工智能辅助知识翻译工具的混合方法评价。
IF 4
JMIR infodemiology Pub Date : 2026-03-03 DOI: 10.2196/78843
Mariana Araújo-Pereira, Klauss Villalva-Serra, Gustavo Pires-Ramos, Beatriz Sousa-Peres, Joanã Nascimento Conceição-Oliveira, Sarah Dourado Maiche, Rebeca Rebouças da Cunha Silva, Bruno de Bezerril Andrade
{"title":"Audience-Specific Health Communication: Mixed Methods Evaluation of the Maria Ciência AI-Assisted Knowledge Translation Tool.","authors":"Mariana Araújo-Pereira, Klauss Villalva-Serra, Gustavo Pires-Ramos, Beatriz Sousa-Peres, Joanã Nascimento Conceição-Oliveira, Sarah Dourado Maiche, Rebeca Rebouças da Cunha Silva, Bruno de Bezerril Andrade","doi":"10.2196/78843","DOIUrl":"10.2196/78843","url":null,"abstract":"<p><strong>Background: </strong>Scientific misinformation remains a major barrier to effective health communication. Bridging the gap between academic research and public understanding requires tools that simplify scientific language and adapt content to diverse audiences.</p><p><strong>Objective: </strong>This study presents Maria Ciência (LPCT-IGM), a specialized GPT-based assistant for science communication. The tool supports researchers in translating peer-reviewed scientific findings through simple prompts into accessible, ethically appropriate materials tailored for children, the general public, health professionals, and policymakers.</p><p><strong>Methods: </strong>The tool was configured using prompt engineering techniques and guided by curated reference materials on inclusive and nonstigmatizing scientific language. Materials derived from 47 public health papers resulted in 188 outputs, which were assessed by 121 evaluators using 4 criteria: clarity, level of detail, language suitability, and content quality. In addition, outputs generated by Maria Ciência were compared with those produced by a base large language model and with human-written science communication materials. Readability and linguistic accessibility were assessed using multiple established metrics.</p><p><strong>Results: </strong>Worldwide, mean scores were high: clarity (4.90), language suitability (4.78), content quality (4.72), and level of detail (4.56), on a 5-point scale. Materials for children and the general public consistently achieved the highest ratings across all criteria. A targeted comparison with the base large language model demonstrated superior performance of Maria Ciência in contextual stability. Readability analyses indicated that Maria Ciência's outputs were significantly more accessible than human-written texts, while maintaining high legibility classifications.</p><p><strong>Conclusions: </strong>Maria Ciência demonstrates the potential of artificial intelligence-assisted tools to enhance knowledge translation and counter scientific misinformation by producing scalable, audience-specific content that balances accessibility and informational integrity.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"6 ","pages":"e78843"},"PeriodicalIF":4.0,"publicationDate":"2026-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12978924/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147438096","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Nonnegotiable Symbolic Value and Sugar-Driven Food Habits in Indonesia: Mixed Methods Study Using a Digital Sociological Approach. 印度尼西亚不可协商的象征价值和糖驱动的饮食习惯:使用数字社会学方法的混合方法研究。
IF 4
JMIR infodemiology Pub Date : 2026-02-27 DOI: 10.2196/77261
Ewina Efriani Manik, Sudarsono Hardjosoekarto, Ricardi Adnan, Radhiatmoko Radhiatmoko, One Herwantoko, Hakiki Nurmajesty, Darwan Darwan, Farrah Eriska Putri, Astuti Sri Pawening
{"title":"Nonnegotiable Symbolic Value and Sugar-Driven Food Habits in Indonesia: Mixed Methods Study Using a Digital Sociological Approach.","authors":"Ewina Efriani Manik, Sudarsono Hardjosoekarto, Ricardi Adnan, Radhiatmoko Radhiatmoko, One Herwantoko, Hakiki Nurmajesty, Darwan Darwan, Farrah Eriska Putri, Astuti Sri Pawening","doi":"10.2196/77261","DOIUrl":"10.2196/77261","url":null,"abstract":"<p><strong>Background: </strong>The sugar market in Indonesia reflects the distinct consumer behavior shaped by economic and deeply rooted cultural factors. This study explores how symbolic values attached to sugar sustain persistent, often irrational or uncontrollable consumption, highlighting the need for a demand-side perspective in the economic sociology of sugar markets.</p><p><strong>Objective: </strong>This study analyzes the nonnegotiable symbolic value of sugar and its implication to uncontrollable consumption in Indonesia. Referring to the framework of product valuation in the social order of markets by Beckert, it offers insights into both the symbolic and material values of sugar.</p><p><strong>Methods: </strong>The applied method complements digital mixed method approaches used in prior research. Digital data from online news and YouTube were visualized through textual network analysis and social network analysis to describe the symbolic and material values of sugar. In-depth interviews with key actors and limited field observations on food and beverage labels were also conducted.</p><p><strong>Results: </strong>Findings reveal that the symbolic value of sugar increases significantly when processed into food or beverages, shaping food habits and habitus across diverse ethnic groups in Indonesia and reinforcing early dependence on sugar. Weak enforcement of labeling regulations on food and beverage packages further impedes shifts in consumer perceptions of the risks of excessive sugar consumption.</p><p><strong>Conclusions: </strong>This study contributes a demand-side perspective to the economic sociology of the sugar market, proposing strategies to address the sugar-driven food habits and habitus from the perspective of consumer behavior. Simultaneously, it assesses producer compliance with regulations on the sweetness level to reduce sugar consumption and the prevalence of noncommunicable diseases.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"6 ","pages":"e77261"},"PeriodicalIF":4.0,"publicationDate":"2026-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12954692/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147346004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Impact of Social Media Videos on Quantitative Health Outcomes: Systematic Review. 社交媒体视频对定量健康结果的影响:系统评价。
IF 4
JMIR infodemiology Pub Date : 2026-02-19 DOI: 10.2196/77578
Fangyue Chen, Tricia Tay, Hannah Thould, Chatchaya Nangsue, Simon Dryden, Amish Acharya, Ara Darzi, Kate Grailey
{"title":"The Impact of Social Media Videos on Quantitative Health Outcomes: Systematic Review.","authors":"Fangyue Chen, Tricia Tay, Hannah Thould, Chatchaya Nangsue, Simon Dryden, Amish Acharya, Ara Darzi, Kate Grailey","doi":"10.2196/77578","DOIUrl":"10.2196/77578","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;Social media has transformed the landscape of health communication. Video content can optimally activate our cognitive systems, enhance learning, and deliver accessible information. Evidence has suggested the positive impact of videos on health knowledge and health-related behaviors, yet the impact of social media videos on quantitative health outcomes is underresearched. Evaluating such outcomes poses unique challenges in measuring exposure and outcomes within internet-based populations.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;We aimed to evaluate the impact of social media videos on quantitative health outcomes, examine methodologies used to measure these effects, and describe the characteristics of video interventions and their delivery.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;In accordance with PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) guidelines, MEDLINE, Embase, Web of Science, CINAHL, and Google Scholar were searched. Studies were eligible if they were original research evaluating long-form social media video interventions addressing any health-related condition, delivered via social media platforms, and reported quantitative health outcomes. The primary outcome was the effect of social media videos on quantitative health outcomes. Additional outcomes included participant characteristics, video features, delivery methods, and the use of theoretical frameworks. A narrative synthesis was conducted. A subgroup meta-analysis was performed to synthesize health outcomes mentioned in 2 or more studies with sufficient homogeneity. Risk of bias assessment was conducted using Cochrane Risk of Bias 2, ROBINS-I, or National Institutes of Health Quality Assessment Tool, depending on the study design. One reviewer screened titles and abstracts. Two reviewers independently conducted full-text screening, data extraction, and risk of bias assessment.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;A systematic search was conducted on October 25, 2023, and was updated on June 12, 2025, yielding a total of 41,172 records after duplicate removal. Sixteen studies were included, involving 4158 participants. Mental health-related conditions were the most studied (10 studies). Most video interventions were delivered via YouTube (12 studies). Studies have reported that video interventions were associated with significant improvements in peri-procedural anxiety, mood, and physical activity levels, although most findings were limited to individual studies with variable methodological quality. Three studies that developed videos with user input and theoretical frameworks significantly impacted study-specific primary outcomes. A subgroup meta-analysis demonstrated a significant moderate impact of online video interventions in improving peri-procedural anxiety (standard mean difference=0.57, 95% CI 0.09-1.05). All but one study showed some concern or high risk of bias.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;We demonstrated a potential p","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"6 ","pages":"e77578"},"PeriodicalIF":4.0,"publicationDate":"2026-02-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12919906/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146230037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Automated Risk Assessment of Opioid Use: Analysis Using Pre-Trained Transformers on Social Media Data. 阿片类药物使用的自动风险评估:在社交媒体数据上使用预训练变压器进行分析。
IF 4
JMIR infodemiology Pub Date : 2026-02-19 DOI: 10.2196/77783
Muhammad Ahmad, Rita Orji, Maaz Amjad, Abubakar Siddique, Nailya Kubysheva, Ildar Batyrshin, Grigori Sidorov
{"title":"Automated Risk Assessment of Opioid Use: Analysis Using Pre-Trained Transformers on Social Media Data.","authors":"Muhammad Ahmad, Rita Orji, Maaz Amjad, Abubakar Siddique, Nailya Kubysheva, Ildar Batyrshin, Grigori Sidorov","doi":"10.2196/77783","DOIUrl":"10.2196/77783","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;The illegal use of opioids has emerged as a major global public health concern, contributing to widespread addiction and a growing number of overdose-related deaths. In response, the US federal government has invested billions of dollars in combating the opioid epidemic through treatment, prevention, and law enforcement initiatives. Despite these efforts, there remains an urgent need for automated tools capable of detecting overdose cases and assessing the risk levels of substances-tools that can enable faster, more effective responses with less reliance on human intervention. Social media, particularly Reddit, has become a valuable source of self-reported data on opioid misuse, offering rich insights into user experiences and symptoms.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This research aimed to develop an advanced automated tool for detecting opioid overdose risks and classifying substances into high-risk and low-risk categories by analyzing social media posts.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;A multistage methodology was used to achieve the objectives of this work. First, a new dataset was constructed from Reddit posts and manually annotated. Each post was labeled according to the risk level of the mentioned substance, using contextual indicators and user-reported experiences as the basis for classification. To ensure reliability and annotator consistency, detailed annotation guidelines were developed and applied throughout the labeling process. Second, a bidirectional encoder representation from transformers for biomedical text mining (BioBERT)-based classification framework was implemented and enhanced with a custom attention mechanism to capture relevant semantic information for more accurate predictions. Third, the model's performance was evaluated using 5-fold cross-validation and compared against several baseline approaches, including traditional supervised learning, deep learning, and transfer learning methods. In total, 14 experiments were conducted to evaluate comparative effectiveness. To further assess the contribution of the attention layer, the best-performing model was also evaluated against a version incorporating the standard self-attention mechanism, using a train-test split. Finally, a paired t test was conducted to statistically assess the performance difference between the BioBERT-based model and the strongest baseline, extreme gradient boosting (XGBoost), providing validation of the observed improvements.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;The proposed BioBERT model with custom attention achieved an F&lt;sub&gt;1&lt;/sub&gt;-score of 0.99 in cross-validation, outperforming the best baseline, XGBoost (F&lt;sub&gt;1&lt;/sub&gt;-score=0.97), with a relative improvement of 2.06%. A paired t test conducted across the 5 folds (n=5) confirmed that the performance gain was statistically significant (P=.003), providing strong evidence that the improvement reflects genuine advances in overdose risk detection.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusio","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"6 ","pages":"e77783"},"PeriodicalIF":4.0,"publicationDate":"2026-02-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13147923/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146230042","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health Data for Linguistic Minority Group Research in Canada: Proof-of-Concept Centralized Health Care Metadata Repository Development and Usability Study. 语言少数群体研究的健康数据:为加拿大开发概念验证的集中式医疗保健元数据存储库。
IF 4
JMIR infodemiology Pub Date : 2026-02-09 DOI: 10.2196/77242
Vincent Martin-Schreiber, Cayden Peixoto, Ricardo Batista, Christopher Belanger, Peter Tanuseputro, Amy T Hsu, Lise M Bjerre
{"title":"Health Data for Linguistic Minority Group Research in Canada: Proof-of-Concept Centralized Health Care Metadata Repository Development and Usability Study.","authors":"Vincent Martin-Schreiber, Cayden Peixoto, Ricardo Batista, Christopher Belanger, Peter Tanuseputro, Amy T Hsu, Lise M Bjerre","doi":"10.2196/77242","DOIUrl":"10.2196/77242","url":null,"abstract":"<p><strong>Background: </strong>Language barriers between Canadian patients and health care providers are associated with poorer health outcomes, including decreased patient safety and quality of care, misdiagnosis and longer treatment initiation times, and increased mortality. However, research exploring language as a social determinant of health is limited, as Canadian health data are scattered across many jurisdictions, each with its own policies and procedures. This fragmentation makes it difficult for researchers to identify, locate, and use existing data. This paper presents the results of a pilot study that attempts to address this gap by creating a metadata repository (MDR) to act as a central source of information about what data are available at which data holdings across Canada.</p><p><strong>Objective: </strong>This project aimed to (1) create a proof-of-concept MDR for Canadian health data at the variable level; (2) identify and label language-related variables existing within the MDR data; and (3) develop an interactive, public-facing web application to let users browse and search the MDR.</p><p><strong>Methods: </strong>Metadata were collected from 5 Canadian health data sources, including 4 provincial data holdings and 1 national survey, and pooled to create a data repository. Then, we performed bottom-up labeling of language-related variables within the pooled metadata by first using a search string algorithm across all variable labels, names, and definitions and then consensus screening these variables using a derived, standardized definition of language or linguistic variables. Using the Shiny web framework in R, we then developed an openly accessible web application to allow users to search the proof-of-concept MDR.</p><p><strong>Results: </strong>A total of 850,343 variables were collected and included in the repository, with most coming from Ontario (n=712,037, 83.7%) and Manitoba (n=97,051, 11.4%) provincial data holdings. Among all variables in the repository, 213,696 (25.1%) were confirmed to be language related.</p><p><strong>Conclusions: </strong>Developing a national MDR would be a transformative opportunity for Canadian researchers to leverage the full scope of Canadian health administrative data. Although a top-down approach with consistent engagement of and collaboration between provincial data holdings and federal data agencies is ideal to develop a national MDR, this study demonstrates the feasibility of a bottom-up approach in contributing to this overarching goal.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":" ","pages":"e77242"},"PeriodicalIF":4.0,"publicationDate":"2026-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12930145/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145992290","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Leveraging AI for Analysis of Digital Health Information on Cancer Prevention Among Arab Youth and Adults: Content Analysis. 利用人工智能分析阿拉伯青年和成人预防癌症的数字健康信息:内容分析。
IF 4
JMIR infodemiology Pub Date : 2026-02-09 DOI: 10.2196/77888
Alia Komsany, Obada Al Zoubi, Laetitia Sebaaly, Gabrielle Harrison, Orysya Soroka, Safa ElKefi, David Scales, Erica Phillips, Laura C Pinheiro, Israa Ismail, Perla Chebli
{"title":"Leveraging AI for Analysis of Digital Health Information on Cancer Prevention Among Arab Youth and Adults: Content Analysis.","authors":"Alia Komsany, Obada Al Zoubi, Laetitia Sebaaly, Gabrielle Harrison, Orysya Soroka, Safa ElKefi, David Scales, Erica Phillips, Laura C Pinheiro, Israa Ismail, Perla Chebli","doi":"10.2196/77888","DOIUrl":"10.2196/77888","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;As TikTok (ByteDance) grows as a major platform for health information, the quality and accuracy of Arabic-language cancer prevention content remain unknown. Limited access to culturally relevant and evidence-based information may exacerbate disparities in cancer knowledge and prevention behaviors. Although large language models offer scalable approaches for analyzing online health content, their utility for short-form video data, especially in underrepresented languages, has not been well established.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;We aimed to characterize and evaluate the quality of Arabic-language TikTok videos on cancer prevention and explore the use of large language models for scalable content analysis.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;We used the TikTok research application programming interface and a GPT-assisted keyword strategy to collect Arabic-language TikTok videos (2021-2024). From an initial collection of 1800 TikTok videos, 320 were eligible after preprocessing. Of these, the top 25% (N=30) most-viewed were analyzed and manually coded for content type, cancer type, uploader identity, tone and register, scientific citation, and disclaimers. Video quality was assessed using the Patient Education Materials Assessment Tool for Audiovisual Materials for understandability and actionability, and the Global Quality Scale (GQS). GPT-4 was used to generate artificial intelligence annotations, which were compared to human coding for select variables.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;The top 25% (N=30) most-viewed videos amassed a total of 21.6 million views. Diet and alternative therapies were most common (15/30, 50%), which included recommendations to reduce hydrogenated oils, increase fruit and vegetable intake, and the use of traditional remedies such as garlic and black seed. Only 6.6% (2/30) of videos cited scientific literature. General cancer (15/30, 53%), breast (5/30, 17%), and cervical (4/30, 13%) cancers were most frequently mentioned. Doctors led 30% (9/30) of videos and were more likely to produce higher quality content, including significantly higher global quality scores (GQS=4, median 4, IQR 4-4 vs 3, median 3, IQR 2-3, P=.06). Over half of the videos had low understandability (16/30, 53%) and actionability (18/30, 60%). Emotionally framed content had the highest engagement across likes and shares, although this did not reach statistical significance (P=.08 and P=.05, respectively). However, emotional tone was significantly associated with lower GQS scores (P=.01). GPT-4 showed high agreement with human coders for cancer type (Cohen κ=1.0), strong agreement for GQS (κ=0.94), but low agreement for tone classification (κ=0.15), due to misclassification of emotional delivery from text-only input.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;Arabic-language TikTok cancer prevention content is highly engaging but variable in quality, with emotionally framed videos attracting substantial attention despite lo","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"6 ","pages":"e77888"},"PeriodicalIF":4.0,"publicationDate":"2026-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12930147/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146151340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Quality, Reliability, and Dissemination of In Vitro Fertilization-Related Videos on Chinese Social Media: Cross-Sectional Analysis of 300 Short Videos. 中国社交媒体上体外受精相关视频的质量、可靠性与传播:300个短视频的横断面分析
IF 4
JMIR infodemiology Pub Date : 2026-01-28 DOI: 10.2196/83900
Dapeng Chu, Xueyan Bai, Feng Guo
{"title":"Quality, Reliability, and Dissemination of In Vitro Fertilization-Related Videos on Chinese Social Media: Cross-Sectional Analysis of 300 Short Videos.","authors":"Dapeng Chu, Xueyan Bai, Feng Guo","doi":"10.2196/83900","DOIUrl":"10.2196/83900","url":null,"abstract":"<p><strong>Background: </strong>Patients increasingly rely on short-video platforms for information regarding in vitro fertilization (IVF), yet the relationship between the scientific quality of this content and its algorithmic dissemination remains unclear.</p><p><strong>Objective: </strong>This study aimed to assess the quality, reliability, and key drivers of dissemination of IVF-related short videos on major Chinese social media platforms.</p><p><strong>Methods: </strong>A cross-sectional content analysis was conducted on 300 popular IVF-related videos (the top 100 results from each platform) retrieved from Douyin, Bilibili, and Xiaohongshu between January 10 and 15, 2025. Video quality and reliability were evaluated using the Global Quality Score and a modified DISCERN instrument. Predictors of video dissemination were identified using an Extreme Gradient Boosting machine learning model, with the number of \"likes\" serving as the primary outcome variable.</p><p><strong>Results: </strong>Content produced by medical professionals demonstrated significantly higher quality and reliability (median mDISCERN 11.0, IQR 9.0-15.0) compared to non-medical sources (median mDISCERN 8.0, IQR 5.0-13.0; P< .001). However, the Extreme Gradient Boosting analysis identified the uploader's follower count as the most powerful predictor of video \"likes.\" In contrast, quality metrics (Global Quality Score and modified DISCERN scores) had a negligible impact on dissemination.</p><p><strong>Conclusions: </strong>In the current Chinese social media landscape, the dissemination of IVF-related videos is strongly associated with creator influence rather than scientific merit. This disconnect between engagement and quality poses a potential risk of misinformation, highlighting the need for medical professionals to adopt platform-native communication strategies to ensure that high-quality information reaches patients.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"6 ","pages":"e83900"},"PeriodicalIF":4.0,"publicationDate":"2026-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12851426/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146094989","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using Artificial Intelligence Methods to Evaluate the Effect of the National Cytomegalovirus Awareness Month on the Content and Sentiment of Social Media Posts: Infodemiology Study. 利用人工智能方法评估全国巨细胞病毒宣传月对社交媒体帖子内容和情绪的影响:信息流行病学研究
IF 4
JMIR infodemiology Pub Date : 2026-01-22 DOI: 10.2196/80922
Tracy R Rosebrock, Zhen Yang, Lauren D'Arco, Tapan Pathak, Rebecca Vislay-Wade, Karen Fowler, John Diaz-Decaro, Colin Kunzweiler
{"title":"Using Artificial Intelligence Methods to Evaluate the Effect of the National Cytomegalovirus Awareness Month on the Content and Sentiment of Social Media Posts: Infodemiology Study.","authors":"Tracy R Rosebrock, Zhen Yang, Lauren D'Arco, Tapan Pathak, Rebecca Vislay-Wade, Karen Fowler, John Diaz-Decaro, Colin Kunzweiler","doi":"10.2196/80922","DOIUrl":"10.2196/80922","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;The month of June has been recognized as the National Cytomegalovirus (CMV) Awareness Month since 2011 in the United States. Established by government resolution, the goal is to increase awareness and reduce the incidence of congenital CMV infection, a leading cause of preventable birth defects and developmental disabilities. Social media is a powerful tool to support public health by making health information easily accessible. With an estimated 246 million users in the United States and more than half of adults seeking health information through such platforms, social media offers an unparalleled opportunity to promote CMV awareness and prevention.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This study aimed to evaluate social media messaging before, during, and after the National CMV Awareness Month to assess how the campaign influenced messaging patterns and sentiment related to specific CMV health topics.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;Publicly available posts on Twitter/X from May to August 2023 that contained at least one of the five most used CMV-related hashtags were collected using a media monitoring platform. The dataset was preprocessed using a customized Bidirectional Encoder Representations from Transformers tokenizer and a language detection package to remove irrelevant and non-English posts. Validated and artificial intelligence (AI) methods (Cohen κ=0.69) were used to determine the thematic content of posts (N=14,900), such as awareness and prevention messaging, and to characterize the sentiment. Changes in post characteristics were measured in relation to the National CMV Awareness Month.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;CMV-relevant post volume increased by 55% during the campaign month and returned to precampaign levels in July. Overall, academic/university researchers were the most frequent authors, pediatrics was the most frequent population discussed, and vaccines were the most frequently mentioned prevention. Significant associations were observed between the month of post publication and the target audience (χ&lt;sup&gt;2&lt;/sup&gt;&lt;sub&gt;2&lt;/sub&gt;=144.3, P&lt;.001), awareness or prevention messaging (χ&lt;sup&gt;2&lt;/sup&gt;&lt;sub&gt;2&lt;/sub&gt;=107.8, P&lt;.001), and post sentiment (χ&lt;sup&gt;2&lt;/sup&gt;&lt;sub&gt;4&lt;/sub&gt;=163.6, P&lt;.001). The intended audience of posts shifted toward the general population from scientists/health care professionals during the campaign month (adjusted Pearson residuals, P=.009). Awareness messaging increased in June 2023, particularly in relation to CMV transmission and disease burden, while prevention messaging decreased (adjusted Pearson residuals, P=.008). Finally, although posts were generally neutral in sentiment, a significant shift occurred toward a positive sentiment during the campaign month (adjusted Pearson residuals, P=.006), a sentiment that was more likely to engage the user (Kruskal-Wallis; χ&lt;sup&gt;2&lt;/sup&gt;&lt;sub&gt;2&lt;/sub&gt;=194.31, P&lt;.001).&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;The National CMV Awareness Month in 202","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"6 ","pages":"e80922"},"PeriodicalIF":4.0,"publicationDate":"2026-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12877745/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146031942","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of the Quality and Reliability of Online Arabic Content on Diabetic Retinopathy: Infodemiological Study. 糖尿病视网膜病变在线阿拉伯语内容的质量和可靠性综述:信息流行病学研究。
IF 4
JMIR infodemiology Pub Date : 2026-01-07 DOI: 10.2196/70514
Abdullah Ahmed Alabdrabulridha, Dalal Mahmoud Alabdulmohsen, Maryam Abdullah AlNajjar, Ibtisam Ahmed Algouf, Abdullah Mohammed Al-Omair, Omaima Muneer Alyahya, Mesa Ahmed Almahmudi, Abdulaziz Ahmed Al Taisan
{"title":"Review of the Quality and Reliability of Online Arabic Content on Diabetic Retinopathy: Infodemiological Study.","authors":"Abdullah Ahmed Alabdrabulridha, Dalal Mahmoud Alabdulmohsen, Maryam Abdullah AlNajjar, Ibtisam Ahmed Algouf, Abdullah Mohammed Al-Omair, Omaima Muneer Alyahya, Mesa Ahmed Almahmudi, Abdulaziz Ahmed Al Taisan","doi":"10.2196/70514","DOIUrl":"10.2196/70514","url":null,"abstract":"<p><strong>Background: </strong>Diabetic retinopathy (DR) is a leading cause of vision loss, particularly in the Middle East. With the rise of online health information, many patients turn to the internet for knowledge about health conditions. However, the accuracy and quality of this information can be questionable, particularly in languages other than English.</p><p><strong>Objective: </strong>We sought to evaluate the quality and reliability of Arabic websites on DR to address this knowledge gap and improve patient care.</p><p><strong>Methods: </strong>The first 100 Arabic search results for DR were examined on Google, focusing on patient education websites in Arabic. Content was assessed using a 20-question model, quality was evaluated with the DISCERN instrument, and reliability was measured using the Journal of the American Medical Association (JAMA) benchmark. Two independent raters conducted evaluations, and data were analyzed with SPSS (IBM Corp). Descriptive statistics were used for website characteristics, and the first 10 Google web pages were compared to others using bivariate analysis with a significance level of P<.05.</p><p><strong>Results: </strong>A Google search yielded 178,000 websites, and the first 100 were examined, with 29 meeting inclusion criteria. Most were hospital or medical center sites (n=20, 69%). The DISCERN assessment showed a low mean score of 36.59(SD 9.32) out of 80 points, with most rated \"poor\" or \"very poor.\" The JAMA benchmarks indicated low reliability, with 62% (18/29) failing to meet any criteria.</p><p><strong>Conclusions: </strong>This study identified significant failings in the content, quality, and reliability of Arabic websites on diabetic retinopathy, highlighting the need for stronger evidence-based online resources focused on early disease prevention.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"6 ","pages":"e70514"},"PeriodicalIF":4.0,"publicationDate":"2026-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12779100/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145919395","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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