在世界阿尔茨海默病月期间,在社交媒体上引导认识和支持痴呆症宣传的策略:信息流行病学研究。

IF 3.5 Q1 HEALTH CARE SCIENCES & SERVICES
JMIR infodemiology Pub Date : 2024-12-27 DOI:10.2196/63464
Juanita-Dawne Bacsu, Sarah Anne Fraser, Ali Akbar Jamali, Christine Conanan, Alison L Chasteen, Shirin Vellani, Rory Gowda-Sookochoff, Corinne Berger, Jasmine C Mah, Florriann Fehr, Anila Virani, Zahra Rahemi, Kate Nanson, Allison Cammer, Melissa K Andrew, Karl S Grewal, Katherine S McGilton, Samantha Lautrup, Raymond J Spiteri
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引用次数: 0

摘要

背景:了解宣传策略对于提高对痴呆症的认识、减少耻辱感、支持认知健康促进和影响政策以支持痴呆症患者至关重要。然而,对于用于支持痴呆症认识的宣传策略,缺乏基于证据的研究。目的:本研究旨在利用X(以前称为Twitter)的帖子来了解2022年9月世界阿尔茨海默氏症宣传月期间的痴呆症宣传策略。方法:从2022年9月1日至2022年9月30日世界阿尔茨海默病宣传月期间从X上抓取帖子。应用过滤器后,对1981篇相关帖子进行专题分析,并采取措施支持可信度和严谨性。结果:我们的研究揭示了各种宣传策略,包括分享生活经验的声音,针对种族和文化群体,打破神话的策略和政治游说。虽然确定了一系列战略,但需要进一步研究以审查不同国家和政治背景下的宣传战略。此外,需要科学评估具体战略对减少污名、促进认知健康和改变政策的影响。结论:我们的研究为加强痴呆症宣传和意识运动以支持痴呆症患者的策略提供了有价值的见解。我们的研究结果可能为政策制定者、组织和卫生专业人员提供重要的见解,以减少痴呆症相关的耻辱感,并增加降低风险活动的吸收,以支持促进认知健康。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Navigating Awareness and Strategies to Support Dementia Advocacy on Social Media During World Alzheimer's Month: Infodemiology Study.

Background: Understanding advocacy strategies is essential to improving dementia awareness, reducing stigma, supporting cognitive health promotion, and influencing policy to support people living with dementia. However, there is a dearth of evidence-based research on advocacy strategies used to support dementia awareness.

Objective: This study aimed to use posts from X (formerly known as Twitter) to understand dementia advocacy strategies during World Alzheimer's Awareness Month in September 2022.

Methods: Posts were scraped from X during World Alzheimer's Awareness Month from September 1, 2022, to September 30, 2022. After applying filters, 1981 relevant posts were analyzed using thematic analysis, and measures were taken to support trustworthiness and rigor.

Results: Our study revealed a variety of advocacy strategies, including sharing the voices of lived experience, targeting ethnic and cultural groups, myth-busting strategies, and political lobbying. Although a range of strategies were identified, further research is needed to examine advocacy strategies within different countries and political contexts. Furthermore, the impact of specific strategies on stigma reduction, cognitive health promotion, and policy change needs to be scientifically evaluated.

Conclusions: Our study offers valuable insight into strategies to bolster dementia advocacy and awareness campaigns to support people living with dementia. Findings from our research may provide critical insight for policymakers, organizations, and health professionals working to reduce dementia-related stigma and increase the uptake of risk-reduction activities to support the promotion of cognitive health.

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