{"title":"Genetic research with Indigenous Peoples: perspectives on governance and oversight in the US.","authors":"Nanibaa' A Garrison, Stephanie Russo Carroll","doi":"10.3389/frma.2023.1286948","DOIUrl":"10.3389/frma.2023.1286948","url":null,"abstract":"<p><strong>Introduction: </strong>Indigenous Peoples are increasingly exerting governance and oversight over genomic research with citizens of their nations, raising questions about how best to enforce research regulation between American Indian, Alaska Native, and Native Hawaiian peoples and researchers.</p><p><strong>Methods: </strong>Using a community-engaged research approach, we conducted 42 semi-structured interviews with Tribal leaders, clinicians, researchers, policy makers, and Tribal research review board members about their perspectives on ethical issues related to genetics research with Indigenous Peoples in the US.</p><p><strong>Results: </strong>We report findings related to (1) considerations for Indigenous governance, (2) institutional relationships upholding sovereignty, (3) expectations for research approvals, and (4) agreements enacting Indigenous governance. Participants described concerns about different ways of exerting oversight, relationships and agreements between Indigenous Peoples and researchers, and gaps that need to be addressed to strengthen existing governance of genomic data.</p><p><strong>Discussion: </strong>The results will ultimately guide policy-making and development of new strategies for Indigenous Peoples to enforce oversight in research to promote ethically and culturally appropriate research.</p>","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"8 ","pages":"1286948"},"PeriodicalIF":0.0,"publicationDate":"2023-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10702594/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138814597","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ibrahim Garba, Rogena Sterling, Rebecca Plevel, William Carson, Felina M Cordova-Marks, Jewel Cummins, Caleigh Curley, Dominique David-Chavez, Adam Fernandez, Danielle Hiraldo, Vanessa Hiratsuka, Maui Hudson, Mary Beth Jäger, Lydia L Jennings, Andrew Martinez, Joseph Yracheta, Nanibaa' A Garrison, Stephanie Russo Carroll
{"title":"Indigenous Peoples and research: self-determination in research governance.","authors":"Ibrahim Garba, Rogena Sterling, Rebecca Plevel, William Carson, Felina M Cordova-Marks, Jewel Cummins, Caleigh Curley, Dominique David-Chavez, Adam Fernandez, Danielle Hiraldo, Vanessa Hiratsuka, Maui Hudson, Mary Beth Jäger, Lydia L Jennings, Andrew Martinez, Joseph Yracheta, Nanibaa' A Garrison, Stephanie Russo Carroll","doi":"10.3389/frma.2023.1272318","DOIUrl":"10.3389/frma.2023.1272318","url":null,"abstract":"<p><p>Indigenous Peoples are reimagining their relationship with research and researchers through greater self-determination and involvement in research governance. The emerging discourse around Indigenous Data Sovereignty has provoked discussions about decolonizing data practices and highlighted the importance of Indigenous Data Governance to support Indigenous decision-making and control of data. Given that much data are generated from research, Indigenous research governance and Indigenous Data Governance overlap. In this paper, we broaden the concept of Indigenous Data Sovereignty by using the CARE Principles for Indigenous Data Governance to discuss how research legislation and policy adopted by Indigenous Peoples in the US set expectations around recognizing sovereign relationships, acknowledging rights and interests in data, and enabling Indigenous Peoples' participation in research governance.</p>","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"8 ","pages":"1272318"},"PeriodicalIF":0.0,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10685893/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138464779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"What's trust got to do with research: why not accountability?","authors":"Morẹ́nikẹ́ Oluwátóyìn Foláyan, Bridget Haire","doi":"10.3389/frma.2023.1237742","DOIUrl":"https://doi.org/10.3389/frma.2023.1237742","url":null,"abstract":"This paper explores the intricate dynamics of trust, power, and vulnerability in the relationship between researchers and study participants/communities in the field of bioethics. The power and knowledge imbalances between researchers and participants create a structural vulnerability for the latter. While trust-building is important between researchers and study participants/communities, the consenting process can be challenging, often burdening participants with power abrogation. Trust can be breached. The paper highlights the contractual nature of the research relationship and argues that trust alone cannot prevent exploitation as power imbalances and vulnerabilities persist. To protect participants, bioethics guidance documents promote accountability and ethical compliance. These documents uphold fairness in the researcher-participant relationship and safeguard the interests of socially vulnerable participants. The paper also highlights the role of shared decision-making and inclusive deliberation with diverse stakeholders and recommends that efforts should be made by researchers to clarify roles and responsibilities, while research regulatory agents should transform the research-participant relationship into a legal-based contract governed by accountability principles. While trust remains important, alternative mechanisms may be needed to ensure ethical research practices and protect the interests of participants and communities. Striking a balance between trust and accountability is crucial in this regard.","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"3 5","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136351788","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mariola Moeyaert, Marzieh Dehghan-Chaleshtori, Xinyun Xu, Panpan Yang
{"title":"Single-case design meta-analyses in education and psychology: a systematic review of methodology","authors":"Mariola Moeyaert, Marzieh Dehghan-Chaleshtori, Xinyun Xu, Panpan Yang","doi":"10.3389/frma.2023.1190362","DOIUrl":"https://doi.org/10.3389/frma.2023.1190362","url":null,"abstract":"Meta-analysis is of increasing importance as this quantitative synthesis technique has the potential to summarize a tremendous amount of research evidence, which can help making evidence-based decisions in policy, practice, and theory. This paper examines the single-case meta-analyses within the Education and Psychology fields. The amount of methodological studies related to the meta-analysis of Single-Case Experimental Designs (SCEDs) is increasing rapidly, especially in these fields. This underscores the necessity of a succinct summary to help methodologists identify areas for further development in Education and Psychology research. It also aids applied researchers and research synthesists in discerning when to use meta-analytic techniques for SCED studies based on criteria such as bias, mean squared error, 95% confidence intervals, Type I error rates, and statistical power. Based on the summary of empirical evidence from 18 reports identified through a systematic search procedure, information related to meta-analytic techniques, data generation and analysis models, design conditions, statistical properties, conditions under which the meta-analytic technique is appropriate, and the study purpose(s) were extracted. The results indicate that three-level hierarchical linear modeling is the most empirically validated SCED meta-analytic technique, and parameter bias is the most prominent statistical property investigated. A large number of primary studies (more than 30) and at least 20 measurement occasions per participant are recommended for usage of SCED meta-analysis in Education and Psychology fields.","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"6 2","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136348098","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Identifying mental health discussion topic in social media community: subreddit of bipolar disorder analysis","authors":"Tatsawan Timakum, Qing Xie, Soobin Lee","doi":"10.3389/frma.2023.1243407","DOIUrl":"https://doi.org/10.3389/frma.2023.1243407","url":null,"abstract":"Online platforms allow individuals to connect with others, share experiences, and find communities with similar interests, providing a sense of belonging and reducing feelings of isolation. Numerous previous studies examined the content of online health communities to gain insights into the sentiments surrounding mental health conditions. However, there is a noticeable gap in the research landscape, as no study has specifically concentrated on conducting an in-depth analysis or providing a comprehensive visualization of Bipolar disorder. Therefore, this study aimed to address this gap by examining the Bipolar subreddit online community, where we collected 1,460,447 posts as plain text documents for analysis. By employing LDA topic modeling and sentiment analysis, we found that the Bipolar disorder online community on Reddit discussed various aspects of the condition, including symptoms, mood swings, diagnosis, and medication. Users shared personal experiences, challenges, and coping strategies, seeking support and connection. Discussions related to therapy and medication were prevalent, emphasizing the importance of finding suitable therapists and managing medication side effects. The online community serves as a platform for seeking help, advice, and information, highlighting the role of social support in managing bipolar disorder. This study enhances our understanding of individuals living with bipolar disorder and provides valuable insights and feedback for researchers developing mental health interventions.","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"46 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135869104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Analyzing the dynamics of social media texts using coherency network analysis: a case study of the tweets with the co-hashtags of #BlackLivesMatter and #StopAsianHate.","authors":"Ke Jiang, Qian Xu","doi":"10.3389/frma.2023.1239726","DOIUrl":"10.3389/frma.2023.1239726","url":null,"abstract":"<p><strong>Introduction: </strong>This study examines the associations between time series, termed \"coherency,\" using spectral analysis. Coherence squared, analogous to the squared correlation coefficient, serves as a metric to quantify the degree of interdependence and co-evolution of individual nodes.</p><p><strong>Methods: </strong>We utilized spectral analysis to compute coherence squared, unveiling relationships and co-evolution patterns among individual nodes. The resultant matrix of these relationships was subjected to network analysis.</p><p><strong>Results: </strong>By conducting a case study analyzing tweets associated with the co-hashtags #StopAsianHate and #BlackLivesMatter, we present a novel approach utilizing coherency network analysis to investigate the dynamics of social media text. Frequency domain analysis aided in calculating coherence squared, effectively illustrating the relationships and co-evolution of individual nodes. Furthermore, an analysis of the phase spectrum's slope facilitated the determination of time lag and potential causality direction between highly co-evolved node pairs.</p><p><strong>Discussion: </strong>Our findings underline the potential of coherency network analysis in comprehending the intricate dynamics of social media text. This approach offers valuable insights into how topics, sentiments, or movements manifest and evolve within the digital realm. Future research should explore diverse datasets and domains to broaden our understanding of this novel analytical technique.</p>","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"8 ","pages":"1239726"},"PeriodicalIF":0.0,"publicationDate":"2023-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10618672/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71429849","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Responsible models and indicators: challenges from artificial intelligence.","authors":"Yi Zhang","doi":"10.3389/frma.2023.1305692","DOIUrl":"10.3389/frma.2023.1305692","url":null,"abstract":"","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"8 ","pages":"1305692"},"PeriodicalIF":0.0,"publicationDate":"2023-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10618676/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71429852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Corrigendum: Evaluative altmetrics: is there evidence for its application to research evaluation?","authors":"Wenceslao Arroyo-Machado, Daniel Torres-Salinas","doi":"10.3389/frma.2023.1295959","DOIUrl":"10.3389/frma.2023.1295959","url":null,"abstract":"<p><p>[This corrects the article DOI: 10.3389/frma.2023.1188131.].</p>","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"8 ","pages":"1295959"},"PeriodicalIF":0.0,"publicationDate":"2023-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10616825/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71429850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Editorial: Open when, why, to whom? Changing challenges, perspectives and practices in a new research culture.","authors":"Rogério Mugnaini, Chris Fradkin, Shalini Urs","doi":"10.3389/frma.2023.1303941","DOIUrl":"https://doi.org/10.3389/frma.2023.1303941","url":null,"abstract":"","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"8 ","pages":"1303941"},"PeriodicalIF":0.0,"publicationDate":"2023-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10616888/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71429851","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Bending time: lessons from critical, community-engaged, liberatory research.","authors":"Brian D Lozenski, Anita P Chikkatur","doi":"10.3389/frma.2023.1174694","DOIUrl":"https://doi.org/10.3389/frma.2023.1174694","url":null,"abstract":"<p><p>In this article, we use the framework of chronopolitics and racialized time to explore our experiences as professors of color at predominantly white institutions who strive to do emancipatory, community-driven research. Our shared work as organizers for Education for Liberation Minnesota (EdLibMN), a grassroots organization working to bring together various constituencies in Minnesota to organize for educational justice, led us to think together about chronopolitics as a framework to understand how our scholarly commitments to social transformation and liberatory education impact our labor and teaching practices at our institutions. This framework allows us to examine our relationships with communities in our individual research and advocacy contexts as well as in our shared work as organizers for EdLibMN. In particular, we explore how the urgency and timeline of our community-based advocacy work and the rhythms and improvisation of participatory action research are juxtaposed with the surveillance and evaluation of our labor and the urgency of \"tenure clocks\" at our institutions. We end by discussing our own transformational learning through our collaborations with community researchers and organizers. We speculate about the possibilities of bending time-the chronopolitics of collective struggle and joy-that allows us to focus on building relationships as a central tenet of emancipatory research practices and to ensure our own health and wellbeing as scholar-activists of color.</p>","PeriodicalId":73104,"journal":{"name":"Frontiers in research metrics and analytics","volume":"8 ","pages":"1174694"},"PeriodicalIF":0.0,"publicationDate":"2023-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10601638/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71415773","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}