Cynthia P. Paidipati PhD, APRN, Janet A. Deatrick PhD, RN, FAAN, Ricardo B. Eiraldi PhD, Connie M. Ulrich PhD, RN, FAAN, Jamil M. Lane PhD, MPH, Bridgette M. Brawner PhD, APRN
{"title":"Caregivers' perspectives on the contextual influences within family management for ethnically diverse children with ADHD","authors":"Cynthia P. Paidipati PhD, APRN, Janet A. Deatrick PhD, RN, FAAN, Ricardo B. Eiraldi PhD, Connie M. Ulrich PhD, RN, FAAN, Jamil M. Lane PhD, MPH, Bridgette M. Brawner PhD, APRN","doi":"10.1111/jspn.12365","DOIUrl":"10.1111/jspn.12365","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Attention deficit hyperactivity disorder (ADHD) is a common neurodevelopmental disorder affecting over 9% of children in the United States. Family caregivers are often responsible for the management of their child's ADHD. Contextual influences, such as healthcare providers, systems, and resources, are factors contributing to the ease or difficulty of family management. The purpose of this article is to qualitatively describe the major contextual influences that impact family management for ethnically diverse children with ADHD.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design And Methods</h3>\u0000 \u0000 <p>This analysis is part of a mixed methods study using a concurrent nested design (QUAL + quant) to understand the phenomenon of family management from a contextual and socioecological perspective. In this analysis, cross-sectional data from caregivers of children with ADHD (<i>N</i> = 50) within a large northeastern city in the United States were collected, analyzed, and interpreted in the qualitative descriptive tradition. Semistructured interviews were conducted with participants to understand the contextual influences within family management. Conventional content analysis resulted in the emergence of barrier and facilitator domains and subdomains.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Caregivers were predominantly female (98%) and between 24 and 61 years with a mean age of 37.54 (SD = 1.18). Caregivers identified their children as Black or African American (56%), White (26%), Multi-Racial (16%), Hispanic or Latinx (8%), and Asian (2%). Contextual influences within family management emerged as barrier or facilitator domains. Barrier domains included: (1) family, (2) healthcare systems, (3) educational systems, (4) stigma, and (5) financial, insurance, and policy issues. Facilitator domains included: (1) family and community, (2) healthcare providers, and (3) educational providers. Subdomains within each domain are expanded in the article.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice Implications</h3>\u0000 \u0000 <p>Specialists in pediatric nursing should consider contextual influences within family management for ethnically diverse children with ADHD. As healthcare providers, it is important to recognize system-level barriers or facilitators for caregivers and their children and find creative ways to overcome obstacles and leverage strengths within families, communities, and care systems. Another important area for pediatric specialists to consider is understanding how stigma impacts children with ADHD. Policy-level engagement and advocacy should maximize the political will of nurses, families, and educators to create chan","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 2","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-12-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39768465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Malorie Brooks MSN, RN, CPN, CHSE, Linda Jacobs MPH, RRT-NPS, CHSE, Mary Cazzell PhD, RN
{"title":"Impact of emergency management in a simulated home environment for caregivers of children who are tracheostomy dependent","authors":"Malorie Brooks MSN, RN, CPN, CHSE, Linda Jacobs MPH, RRT-NPS, CHSE, Mary Cazzell PhD, RN","doi":"10.1111/jspn.12366","DOIUrl":"10.1111/jspn.12366","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Children who are tracheostomy dependent require comprehensive caregiver preparation for safe hospital-to-home transition. Although a structured discharge education program successfully trained caregivers to provide routine daily tracheostomy care, emergency response training was limited, lacking realistic experiences. Initiation of simulated emergency training for caregivers indicated performance confusion related to tracheostomy cardiopulmonary resuscitation (CPR). This study evaluated the effectiveness of an evidence-based tracheostomy CPR education intervention via caregiver participation in a high-fidelity simulation of a home-based emergency scenario on the performance of essential behaviors, comfort, and satisfaction.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design and Methods</h3>\u0000 \u0000 <p>The study utilized a prospective descriptive pre- and post interventional design; 44 caregivers of children who were tracheostomy dependent participated. All caregiver participants completed: video- and instructor-assisted specialized tracheostomy CPR class, high-fidelity simulation performance of a home-based emergency (respiratory failure with cardiac arrest), postsimulation video debriefing, performance assessment with an objective scoring rubric, and pre- and post simulation surveys on levels of comfort and satisfaction.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>On the performance of essential emergency management behaviors, 86.4% of caregivers performed all four behaviors, but only 36.4% performed these essential behaviors in order. Post simulation caregiver comfort with emergency management significantly increased from pre simulation (<i>p</i> = .001). All caregivers were satisfied with this training and would recommend simulation of home-based emergencies for all caregivers. Qualitative feedback from caregivers revealed themes of gratitude and the importance of hands-on practice with guided debriefing/feedback. Study power was 0.98.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice Implications</h3>\u0000 \u0000 <p>Objective evaluation of caregiver performance demonstrated specialized tracheostomy CPR education prepared caregivers to respond in a home emergency. Caregivers viewed simulation as an opportunity to gain hands-on experience and improve emergency responses. It may be beneficial for other similar programs to include specialized tracheostomy CPR and emergency scenario simulation in their discharge education protocols and subsequently compare this program to other similar programs to establish best practice guidelines.</p>\u0000 </section>\u0000 </div>","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 2","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39826060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Melissa M. Klamm MSN, RN, Angela A. Duck PhD, RN, CNE, Michael A. Welsch PhD, FACSM, Yonghua Yan PhD, Elisa R. Torres PhD, RN, Breanna Wade MS, CHES, Mary W. Stewart PhD, RN, FAAN, Jill Clayton PhD, RN, Lei Zhang PhD, MBA
{"title":"Dispersion of daily physical activity behaviors in school-age children: A novel approach to measure patterns of physical activity","authors":"Melissa M. Klamm MSN, RN, Angela A. Duck PhD, RN, CNE, Michael A. Welsch PhD, FACSM, Yonghua Yan PhD, Elisa R. Torres PhD, RN, Breanna Wade MS, CHES, Mary W. Stewart PhD, RN, FAAN, Jill Clayton PhD, RN, Lei Zhang PhD, MBA","doi":"10.1111/jspn.12364","DOIUrl":"10.1111/jspn.12364","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>The objectives of this paper are (1) to examine patterns of physical activity (PA) and sedentary behavior; (2) to describe development of a method to quantify movement dispersion; and (3) to determine the relationship between variables of movement (i.e., volume, intensity, and dispersion), volume of sedentary behavior, and estimated cardiorespiratory capacity in school-aged children.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design and Methods</h3>\u0000 \u0000 <p>A secondary analysis of an existing data set with raw accelerometer data identified PA patterns of movement dispersion in school-aged children. Bar graphs visually depicted each participant's daily vector magnitude counts. The research team developed a dispersion variable—movement dispersion—and formula to provide a new quantification of daily PA patterns. <i>Total</i> movement dispersion represents both intensity and distribution of movement, whereas <i>pure</i> movement dispersion refers to the distribution of movement during the wear time, independent of intensity. Kendall's tau examined the relationship between several variables: body mass index percentile, average minutes of sedentary behavior, average minutes of light PA, average minutes of moderate-vigorous PA (MVPA), derived VO<sub>2</sub> max, total movement dispersion, and pure movement dispersion.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Three participants' activity graphs were presented as examples: (1) active, (2) inactive, and (3) mixed. The more active participant had the highest values for pure and total movement dispersion. The inactive participant had much lower pure and total movement dispersion values compared to the active participant. The mixed participant had high average minutes of MVPA yet lower pure and total movement dispersion values. Total movement dispersion had a significant correlation with average minutes of light PA (<i>r</i> = .406, <i>p</i> = .016) and average minutes of MVPA (<i>r</i> = .686, <i>p</i> < .001). Pure movement dispersion was significantly correlated with average minutes of light PA (<i>r</i> = .448, <i>p</i> = .008) and average minutes of MVPA (<i>r</i> = .599, <i>p</i> < .001). Average minutes of sedentary behavior (SB) were not significantly correlated with total (<i>r</i> = .041, <i>p</i> = .806) or pure movement dispersion (<i>r</i> = .165, <i>p</i> = .326).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice Implications</h3>\u0000 \u0000 <p>Movement dispersion may provide another tool to advance knowledge of PA, potentially leading to improved health outcomes. Raw accelerometer data, such as that gathered at the elementary school in this study, offer opportunities to ","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 2","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9579313","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Beth Hawkins, Courtney Ventresco, Meghan Cummings, Kimberly McCaffrey, Andrew J. Willwerth, Elizabeth D. Blume MD, Christina VanderPluym MD
{"title":"Design and pilot testing of therapeutic clothing for hospitalized children","authors":"Beth Hawkins, Courtney Ventresco, Meghan Cummings, Kimberly McCaffrey, Andrew J. Willwerth, Elizabeth D. Blume MD, Christina VanderPluym MD","doi":"10.1111/jspn.12363","DOIUrl":"10.1111/jspn.12363","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>The purpose of this paper is to describe the design and pilot program of a parent designed clothing option for hospitalized infants and children and to better understand the importance and effects of hospital clothing on families. Little research has been done on how clothing a hospitalized child impacts the child's quality of life and their parent's perception of care. Research has been limited to clothing in adults and its relation to infection.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design and Methods</h3>\u0000 \u0000 <p>A pediatric outfit (the <i>Georgie</i>) for hospitalized infants and children was designed based on insight from bedside nursing, physicians, parents, and supply chain personnel. The garment was pilot tested on select patients from intensive care units of a large children's hospital. A pre- and post-use questionnaire was disseminated with questions focused on aspects of the child's care, comfort in changing child's clothes/diapers, number of times the <i>Georgie</i> was used and comfort level of using the <i>Georgie</i>. Survey responses were summarized using descriptive statistics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Parents overall response to the <i>Georgie</i> was positive with great value placed on having their child dressed. All parents (<i>n</i> = 5) responded that too many lines were an obstacle to having their child dressed. Compared to the hospital Johnny, the <i>Georgie</i> (80%, <i>n</i> = 4) was the most preferred when placement and securement of monitoring lines was taken into consideration with one parent preferring a blanket and diaper only. Nurses felt the benefit outweighed the added effort in dressing the patient. The majority of the nurses had a positive initial reaction to the <i>Georgie</i> (80%, <i>n</i> = 4) and felt the lines or external devices were “very secure/secure” (80%, <i>n</i> = 4) when the patient was wearing the <i>Georgie</i>.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice Implications</h3>\u0000 \u0000 <p>Implementing a new family centered care initiative of dressing critically ill patients in the <i>Georgie</i> may improve patient and family's quality of life while hospitalized. A larger scale study is indicated to assess the importance of dressing hospitalized pediatric patients for their families, to clarify the effect on nursing care, to optimize ability to stabilize lines, and to understand logistical issues.</p>\u0000 </section>\u0000 </div>","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 2","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39579683","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marissa N. Baudino MS, Caroline M. Roberts MS, Clayton S. Edwards BS, Kaitlyn L. Gamwell PhD, Jeanne Tung MD, Noel J. Jacobs PhD, John E. Grunow MD, John M. Chaney PhD
{"title":"The impact of illness intrusiveness and overparenting on depressive symptoms in parents of youth with inflammatory bowel disease","authors":"Marissa N. Baudino MS, Caroline M. Roberts MS, Clayton S. Edwards BS, Kaitlyn L. Gamwell PhD, Jeanne Tung MD, Noel J. Jacobs PhD, John E. Grunow MD, John M. Chaney PhD","doi":"10.1111/jspn.12362","DOIUrl":"10.1111/jspn.12362","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Inflammatory bowel disease (IBD) management creates significant caregiver demands that can interfere with parents' ability to engage in a number of role functions (i.e., <i>illness intrusiveness</i>) well into their child's adolescence, potentially resulting in excessive or misdirected parenting (i.e., <i>overparenting</i>). Disruptions and limited access to routine and valued activities (e.g., family, work, and leisure) due to IBD and excessive parenting may result in parents neglecting their own personal and emotional self-care needs, increasing their risk for depressive symptoms. To explore these associations, the present study examined parents' experience of illness intrusiveness and subsequent overparenting as serial mediators in the association between disease severity and parent depressive symptoms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design and methods</h3>\u0000 \u0000 <p>Participants were 146 caregivers of adolescents with IBD from an outpatient pediatric gastroenterology clinic. During a scheduled outpatient visit, parents completed measures of <i>illness intrusiveness</i>, <i>overparenting</i>, and <i>depressive symptoms</i>. Pediatric gastroenterologists provided ratings of <i>disease severity</i>.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Several direct and indirect associations were observed among the modeled variables. Notably, mediation analysis revealed a significant <i>disease severity</i> → <i>illness intrusiveness</i> → <i>overparenting</i> → <i>depressive symptoms</i> serial indirect effect.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Parents' experience of greater IBD-induced lifestyle disruptions is associated with increased overparenting and a heightened risk for depressive symptoms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice implications</h3>\u0000 \u0000 <p>Parents should be encouraged to establish and maintain a healthy balance between parenting and self-care/role function activities, especially during adolescence when greater youth autonomy and independence are crucial. These types of clinical efforts may reduce the likelihood of parents experiencing depressive symptoms, and have the added benefit of improving adolescent IBD self-management.</p>\u0000 </section>\u0000 </div>","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jspn.12362","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39903045","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ramya Sampath MSN, RN, Ruma Nayak M.Sc. (N), Shanthi Gladston M.Sc. (N), Kala Ebenezer MD, DCH, Shawna S. Mudd DNP, CPNP-AC, PPCNP-BC, CNE, Jessica Peck DNP, APRN, CPNP-PC, CNE, CNL, FAANP, FAAN, Michael J. Brenner MD, FACS, Vinciya Pandian PhD, MBA, MSN, RN, ACNP-BC, FAANP, FAAN, FRCSI
{"title":"Sleep disturbance and psychological distress among hospitalized children in India: Parental perceptions on pediatric inpatient experiences","authors":"Ramya Sampath MSN, RN, Ruma Nayak M.Sc. (N), Shanthi Gladston M.Sc. (N), Kala Ebenezer MD, DCH, Shawna S. Mudd DNP, CPNP-AC, PPCNP-BC, CNE, Jessica Peck DNP, APRN, CPNP-PC, CNE, CNL, FAANP, FAAN, Michael J. Brenner MD, FACS, Vinciya Pandian PhD, MBA, MSN, RN, ACNP-BC, FAANP, FAAN, FRCSI","doi":"10.1111/jspn.12361","DOIUrl":"10.1111/jspn.12361","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Investigate parental perceptions of children's sleep disturbance and psychological distress associated with an inpatient stay in a low-resource hospital setting.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design and Methods</h3>\u0000 \u0000 <p>Demographic and validated survey instruments were adapted for administration to parents of children in the medical wards of a tertiary hospital in India. Parents proficient in English, Hindi, Tamil, or Telugu with a child age 4–12 years admitted for at least 48 h were eligible to participate. All respondents completed the Factors Affecting Sleep Disturbance Scale, Sleep Duration Questionnaire, Sleep Disturbance Scale, and Kessler Psychological Distress Scale. Data analysis entailed descriptive statistics, correlations, and multivariate regressions to analyze relationships across responses on demographics, sleep disturbance, and psychological distress.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Among 105 parents with hospitalized children, most had children 4–6 years old (54%), including 65% boys and 35% girls. Parents reported that their children slept overnight in the hospital for a mean of 8.3 ± 1.6 h. Children 4–6 year old (relative risk ratio [RRR] = 0.63, <i>p</i> = .004), dyspnea (RRR = 8.73, <i>p</i> = .04), previous hospitalization (RRR = 9.17, <i>p</i> = .03), nighttime procedures (RRR = 2.97, <i>p</i> = .03, and missing home (RRR = 6.78, <i>p</i> < .001) were the factors affecting sleep. Factors affecting psychological distress was nighttime medication administration (RRR = 4.92, <i>p</i> = .01). Sleep disturbances correlated with psychological distress (<i>r</i> = 0.56; <i>p</i> < .01).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Sleep disturbance and associated psychological distress in hospitalized children were widely reported by parents queried in this low-resource hospital setting.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practical Implications</h3>\u0000 \u0000 <p>Nurses can lead efforts in ameliorating sleep in hospitalized children, including partnering with stakeholders on measures to reduce sleep disruption. Child-centered interventions may improve sleep hygiene and decrease psychological distress among children.</p>\u0000 </section>\u0000 </div>","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jspn.12361","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39542277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maureen M. Hillier DNP, RN, CCRN, CHSE, Michele DeGrazia PhD, RN, NNP-BC, FAAN, Sandra Mott PhD, RN, CPN, Matthew Taylor BA, RN, Mary J. Manning MS, APRN, PPNP-BC, CCRN, Mary O'Brien MHA, MSN, RN, CCRN, Sara R. Schenkel MPH, Alexandra Cole MPH, Patricia A. Hickey PhD, MBA, RN, FAAN
{"title":"Utilizing high-fidelity simulation to improve newly licensed pediatric intensive care unit nurses' experiences with end-of-life care","authors":"Maureen M. Hillier DNP, RN, CCRN, CHSE, Michele DeGrazia PhD, RN, NNP-BC, FAAN, Sandra Mott PhD, RN, CPN, Matthew Taylor BA, RN, Mary J. Manning MS, APRN, PPNP-BC, CCRN, Mary O'Brien MHA, MSN, RN, CCRN, Sara R. Schenkel MPH, Alexandra Cole MPH, Patricia A. Hickey PhD, MBA, RN, FAAN","doi":"10.1111/jspn.12360","DOIUrl":"10.1111/jspn.12360","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>New pediatric intensive care unit (PICU) nurses face distinct challenges in transitioning from the protected world of academia to postlicensure clinical practice; one of their greatest challenges is how to support children and their caregivers at the end-of-life (EOL). The purpose of this quality improvement project was to create, implement, and assess the efficacy of a high-fidelity EOL simulation, utilizing the “Debriefing with Good Judgment” debriefing model.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design and methods</h3>\u0000 \u0000 <p>Participants were nurses with 4 years or less of PICU experience from a 404-bed quaternary care, free-standing children's hospital in the northeastern United States. Data were collected with the Simulation Effectiveness Tool-Modified (SET-M) and the PICU EOL Simulation Evaluation Survey.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-four nurses participated; the majority (54%) were 25–29 years of age. The SET-M results indicate that the EOL simulation was beneficial to their learning and increased nurse confidence in delivering EOL care. Responding to the EOL Simulation Survey, participants rated high levels of confidence with tasks such as utilizing unit and hospital-based supports, self-care, ability to listen and support families, and medicating their patients at the EOL.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice implications</h3>\u0000 \u0000 <p>This high-fidelity EOL simulation is a robust teaching tool that serves to support the unmet needs of the PICU nurses who care for dying children. Nurse participants had a unique opportunity to practice procedural and communication skills without risk for patient or family harm. Findings from this project can serve to guide curriculum changes at the undergraduate level as well as provide direction for new nurse orientation classes.</p>\u0000 </section>\u0000 </div>","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jspn.12360","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39502720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marilyn Aita RN, PhD, Gwenaëlle De Clifford Faugère RN, PhD (cand), Geneviève Laporte RN, PhD (cand), Sébastien Colson RN, PhD, Nancy Feeley RN, PhD
{"title":"French translation and preliminary psychometric validation of a skin-to-skin contact instrument for nurses (SSC-F)","authors":"Marilyn Aita RN, PhD, Gwenaëlle De Clifford Faugère RN, PhD (cand), Geneviève Laporte RN, PhD (cand), Sébastien Colson RN, PhD, Nancy Feeley RN, PhD","doi":"10.1111/jspn.12359","DOIUrl":"10.1111/jspn.12359","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>To translate and conduct the preliminary psychometric validation of a skin-to-skin contact instrument in French (SSC-F) with a sample of nurses from Quebec and France working in neonatal intensive care units.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The 20 items of the SSC instrument containing four subscales (knowledge, attitudes and beliefs, training and education and implementation), developed by Vittner et al. (2017), was translated into French. The methodological steps used for psychometric validation included assessment of the item and subscale normality distributions, assessment of reliability using internal consistency, and assessment of validity using inter-item and inter-scale correlations and principal component analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The preliminary psychometric validation showed that all four subscales of the French version had adequate internal consistency (0.61–0.77), supporting the calculation of a total score for each subscale based on the English version of the instrument. The structural validity was supported by principal component analysis findings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice Implications</h3>\u0000 \u0000 <p>Based on the findings of the preliminary psychometric validation of our study, the SSC-F instrument could be used in research with French-speaking neonatal nurses in Western countries, but gathering more evidence about its reliability and validity is warranted for clinical practice.</p>\u0000 </section>\u0000 </div>","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jspn.12359","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39465766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alyson Campbell, Vickie Plourde PhD, Lisa Hartling PhD, Shannon D. Scott
{"title":"“You Can't Fix Your Brain”: Exploring concussion experiences of children and parents","authors":"Alyson Campbell, Vickie Plourde PhD, Lisa Hartling PhD, Shannon D. Scott","doi":"10.1111/jspn.12357","DOIUrl":"10.1111/jspn.12357","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>To explore the experiences, information needs and preferences of children who have had a concussion and their parents who have cared for them.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>Qualitative description.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Semi-structured qualitative interviews were conducted via Zoom with children who have had a concussion between ages 5 and 16 years and parents who have cared for a child with a concussion. Interviews were audio-recorded and transcribed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Fourteen interviews were conducted with children and parents who have experiences with concussion. Four major themes were identified: (1) mechanism of injury and concussion symptoms experienced by children, (2) parent concerns, emotions, and health care experience with child's concussion, (3) concussions affect more than just your head and, (4) health information seeking, and preferences of parents and children related to concussion. Children and their parents have unique experiences, information needs and preferences regarding concussion.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Practice Implications</h3>\u0000 \u0000 <p>This information offers valuable insights about developing resources about childhood concussion that parents and children will find useful and relevant. This research has direct relevance to healthcare professionals who may encounter children with concussion in their daily practice so they can ensure the needs of children and families are being met. Our findings will be used to create the content for an innovative knowledge translation tool about pediatric concussion.</p>\u0000 </section>\u0000 </div>","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jspn.12357","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39393727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jennifer Shearer Miller PhD, RN, Joel G. Anderson PhD, CHTP, FGSA
{"title":"Factors in children with a history of neonatal abstinence syndrome at 10 years of age: Evidence from the maternal lifestyle study","authors":"Jennifer Shearer Miller PhD, RN, Joel G. Anderson PhD, CHTP, FGSA","doi":"10.1111/jspn.12358","DOIUrl":"10.1111/jspn.12358","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>Few studies have addressed the impact of prior prenatal substance exposure and current household environment on neurodevelopmental health in children with a history of neonatal abstinence syndrome (NAS). This study aimed to describe the prenatal exposures, household environment, and neurodevelopmental health at 10 years of age among children with a history of NAS.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design and Methods</h3>\u0000 \u0000 <p>This study was a retrospective, descriptive design using data from the Maternal Lifestyle Study. Descriptive analyses were conducted. A total of 234 children with a history of NAS were included in this study. Variables selected based on the socio-ecological model included prenatal exposures, household environment, and neurodevelopmental health outcomes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>In this sample, most children were male (63%) with prenatal polysubstance exposure (80%). The majority lived in a home where substance use occurred (68%). Children experienced abnormal cognitive development (26%), language disorders (24%), learning disorders (23%), and abnormal behavioral development (16%).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Implications</h3>\u0000 \u0000 <p>This study extends the description of children with a history of NAS beyond 5 years of age. Pediatric nurses can ensure that children with a history of NAS receive neurodevelopmental screening up to and beyond 10 years of age.</p>\u0000 </section>\u0000 </div>","PeriodicalId":54900,"journal":{"name":"Journal for Specialists in Pediatric Nursing","volume":"27 1","pages":""},"PeriodicalIF":1.3,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jspn.12358","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39377559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}